Multiple Sclerosis

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  • Does Multiple Sclerosis Start with Faulty Gut Bacteria?

    Healthline News: Multiple Sclerosis
    Jeri Burtchell
    19 Oct 2014 | 12:00 am
    A new study comparing intestinal bacteria in healthy volunteers to bacteria found in people with MS shows a stark contrast in the number and type of microbes each group carries.
  • Vaccinations 'not linked to increased risk of MS, central nervous system disorders'

    Multiple Sclerosis News From Medical News Today
    21 Oct 2014 | 12:00 am
    Contrary to previous research, a new study finds no long-term link between vaccinations and higher risk of multiple sclerosis and other disorders of the central nervous system.
  • Promising results obtained with multiple sclerosis vaccine

    Multiple Sclerosis Research News -- ScienceDaily
    23 Sep 2014 | 12:21 pm
    Thanks to new insights related to dendritic cell vaccines, researchers are investigating a potential vaccine for MS treatment and prevention. If future research supports early findings, the study could mark an important first in that it attacks MS early while preserving the immune system.
  • Cells from placentas safe for patients with multiple sclerosis, study shows

    Multiple Sclerosis Research News -- ScienceDaily
    29 Sep 2014 | 6:02 am
    Patients with Multiple Sclerosis (MS) were able to safely tolerate treatment with cells cultured from human placental tissue, according to a study. “This is the first time placenta-derived cells have been tested as a possible therapy for multiple sclerosis,” said the lead investigator of the study. “The next step will be to study larger numbers of MS patients to assess efficacy of the cells, but we could be looking at a new frontier in treatment for the disease.”
  • Molecule delays autoimmune disease onset and reverses disease progression

    Multiple Sclerosis News From Medical News Today
    9 Oct 2014 | 12:00 am
    The main function of the immune system is to protect against diseases and infections.
 
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    Multiple Sclerosis Research News -- ScienceDaily

  • Cells from placentas safe for patients with multiple sclerosis, study shows

    29 Sep 2014 | 6:02 am
    Patients with Multiple Sclerosis (MS) were able to safely tolerate treatment with cells cultured from human placental tissue, according to a study. “This is the first time placenta-derived cells have been tested as a possible therapy for multiple sclerosis,” said the lead investigator of the study. “The next step will be to study larger numbers of MS patients to assess efficacy of the cells, but we could be looking at a new frontier in treatment for the disease.”
  • Promising results obtained with multiple sclerosis vaccine

    23 Sep 2014 | 12:21 pm
    Thanks to new insights related to dendritic cell vaccines, researchers are investigating a potential vaccine for MS treatment and prevention. If future research supports early findings, the study could mark an important first in that it attacks MS early while preserving the immune system.
  • Benefits of wellness program for people with multiple sclerosis demonstrated in pilot study

    22 Sep 2014 | 12:17 pm
    A pilot study has shown the benefits of a 10-week psychoeducational wellness program in people with multiple sclerosis. Improvements were seen in mood, overall mental health, perceived stress, and pain, researchers report.
  • Multiple sclerosis drug candidate shows new promise

    19 Sep 2014 | 6:27 am
    Positive new data have been released on a drug candidate, RPC1063, for relapsing multiple sclerosis. According to the results from a six-month Phase 2 study of 258 multiple sclerosis patients, the drug candidate reduced the annualized relapse rate of participants with multiple sclerosis by up to 53 percent, compared with placebo. The potential therapy also decreased the emergence of new brain damage seen by MRI by more than 90 percent.
  • Slowed processing speed linked with executive deficits in multiple sclerosis

    16 Sep 2014 | 10:25 am
    A new study supports the role of slowed processing speed in the executive deficits found in individuals with multiple sclerosis. Following this study, experts say that MS cognitive research should focus on two key domains -- processing speed and memory.
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    MS-UK Latest MS News

  • FDA approves label change for oral MS drug Aubagio

    21 Oct 2014 | 12:52 am
    The US Food and Drug Administration (FDA) approved Genzyme’s application to include new information about its multiple sclerosis drug teriflunomide (Aubagio) on its label.The new labeling content is efficacy and safety data from two Phase III trials of the drug. One trial, a study known as TOPIC is described in the Sept., 2014 issue of The Lancet Neurology. In it Aaron Miller, MD and colleagues report that in 618 relapsing-remitting multiple sclerosis patients assigned to the drug or placebo those who got the drug had a significantly reduced risk of relapse.  The patients got a…
  • Study suggests vaccines do not appear to increase risk of Multiple Sclerosis

    21 Oct 2014 | 12:37 am
    Scientists looked at about 4,700 people who received vaccines against hepatitis B (Hep B) and the human papillomavirus (HPV), and found no long-term risk of developing multiple sclerosis (MS) or similar nervous-system diseases.....
  • Estimating typical Multiple Sclerosis disability progression speed from clinical observations

    20 Oct 2014 | 2:16 am
    Murray G. Brown,  Mark Asbridge, Vern Hicks, Sarah Kirby, Thomas J. Murray, Pantelis Andreou, Dong LinAbstractIntroductionMultiple sclerosis (MS) is a chronic disease of the central nervous system. Estimates of MS natural history (NH) disability progression speed from clinical observations vary worldwide. This may reflect, in part, variance in censoring-bias) (missing observations) and assumptions about when irreversible disability progression events occurred. We test whether estimates of progression speed which assume midpoint survival time at irreversible disability endpoints are…
  • Possible new target for Multiple Sclerosis treatment

    15 Oct 2014 | 12:59 am
    A study published  in the October, 2014 issue of Nature Medicine points to a new target for the treatment of multiple sclerosis (M.S.).  Inhibiting this target, in a mouse model of the disease, was shown to inhibit the disease in its most advanced stages.The landmark paper, “B4GALT6 regulates astrocyte activation during CNS inflammation,” was authored by Lior Mayo, Francisco J. Quinta et al. at Harvard Medical School. Abdolmohamad Rostami, M.D. Ph.D., professor and chair of the department of neurology at Thomas Jefferson University, together with Assistant Professor of…
  • New MS Research into cytokine regulation, neuroprotection, tolerance induction

    15 Oct 2014 | 12:46 am
    Evotec AG, a German company specializing in the provision of drug discovery resources to biotech companies and learning institutions, announced that is going to begin three new research projects for the treatment of multiple sclerosis (MS), which will be supported by funds from the German Federal Ministry of Education and Research....
 
 
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    Life With Multiple Sclerosis

  • A Cup of Coffee and 10 Tips for a Successful Nap

    Trevis Gleason
    17 Oct 2014 | 2:25 pm
    Many people – MS and otherwise – find themselves in need of a rest during the day.  My energy usually wanes around 2 p.m.  Sometimes it’s just a dull ache of tiredness and others it’s lay-down-or-fall-down, mind-crushing MS fatigue. Sometimes these kips turn into full-on MS sleeps and I wake hours later in the same position I started.  In the midst of an exacerbation of my multiple sclerosis, this kind of sleep might be required.  For the ‘everyday’ fatigue, however, sleeping for that long can muck up that night’s sleep and send me into an awkward sleep deprivation spiral.
  • Silly Little MS Mistakes

    Trevis Gleason
    14 Oct 2014 | 8:33 am
    “If I didn’t laugh, I’d cry… and I’ve cried enough over MS.” I say it quite often.  I often get a little titter at myself when I walk into the wrong room, walk into a wall, or simply turn and fall.  I’ve made a fool of myself in front of the bathroom mirror by using toothpaste to try to shave, or in small groups when I go on “MS mental holidays.” This past weekend, however, I had a little hiccup that embarrassed me in front of thousands. Every Sunday for the past good while, I post a simple little meme on our Life with MS Facebook page.  Sometimes it’s my…
  • Comorbidity: Living With MS and…

    Trevis Gleason
    8 Oct 2014 | 9:26 am
    It’s either the health equivalent of the domino theory or some deeper involvement of our whole immune system makeup, but people living with MS (or any other autoimmune condition) seem to be more likely to acquire a second condition than “healthy” people are to suffer from a first. Even in these pages, we have heard from the Life With MS community about conditions like diabetes, autoimmune allergies, rheumatoid arthritis, relapsing polychondritis, and many more. Everyday Health columnist Brad Mann lives with MS and narcolepsy. It’s one of the reasons why organizations like…
  • From the Life With MS Inbox: My Jump for MS

    Trevis Gleason
    2 Oct 2014 | 9:41 am
    Every once in a while, something comes to my Life With MS inbox that sparks something inside of me and I have to share. We’ve had interesting products that can help people with MS come across our screen, a groundbreaking film about being diagnosed with MS, and books about MS and other disabilities. In August, a message came into our Life With MS Facebook page’s inbox that caught my eye and eventually caught my breath. When a guy called “Rip” sends you a note about jumping from cliffs, part of you – the rational part – thinks it might just be a joke. When the title of the…
  • It’s Time We Have Access to High-Quality MS Care

    Trevis Gleason
    26 Sep 2014 | 9:14 am
    In the past five months, I’ve traveled nearly 23,000 miles on buses, trains, taxis, rental cars, and airplanes traveling; spent scores of hours in meetings in person, on the phone, and via the Internet; and been privileged to work with an incredibly talented task force of individuals on the question of access to quality MS care. On behalf of the people living with this condition, our group tackled some of the high-level issues surrounding availability, cost, decision making, equality, choice, and complementary/alternative approaches to wellness. The task force’s principles document has…
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    Living! with MS

  • Still flying

    18 Oct 2014 | 4:27 pm
    I rarely do any writing these days. I am very busy teaching and performing and I only have one day off a week if I am lucky. When that day arrives, like today, I am exhausted: physically, emotionally and on bad days, spiritually as well. In many ways, I am living my passion and my dreams. My only real complaint: my day job and the need to make a good living to take care of my family keeps me working a job I care little about. I find myself at work daydreaming about circus life, distracted from my actual work by looking at aerial pictures and videos, updating my Firebird Moving Arts page on…
  • Patience

    3 Jan 2014 | 12:01 pm
    Embrace the sunshine when the sun shines. I am still not ready to write something of or about Cara but I feel a pull to write, to just let words spill out on the page and see where they lead. Every year in my yoga classes right after new year's I talk about letting go of the old to make room for the new. Now I ask myself, "What layers must I shed? What do I seek in the year ahead?" I think until June that there is little I want to change in my external realities but much I seek to change internally. I have only one "resolution" but it is massive, not a resolution I expect to excel at or to…
  • What comes after

    30 Dec 2013 | 3:38 pm
    My close friend and acro yoga partner died in a car crash on Friday. Since then I have been thinking to write something but then I find either I can't, or I am not willing to put memories to the page because then they have a way of becoming my truth and I am still sorting out my truth. When each of my grandmothers passed away I was almost instantly able to write something that captured the things I wanted to capture. Not so now... I think I feel different because my friend was so young. I just saw her, just talked, just practice acro and she was healthy and happy... My grandmothers each lived…
  • Decision reached for now

    9 Sep 2013 | 4:59 pm
    As I sat worrying the other night about what to do with my Copaxone situation, it occured to me that if the choice had involved my anti-depressant, there would have been no choice. I would have just bought my med with credit and a prayer. It also occurred to me that my physical health is as important to me as my mental health. I would spend every cent in my arsenal in order to keep doing aerial dance. Once I had this realization, my choice was clear, start stripping (JK). Actually, I knew that I would contact the drug company to get help with my copay. I also decided that even if I could not…
  • Please advise

    6 Sep 2013 | 5:29 pm
    Fellow MSers, I really need some good advice right now from some people like myself who understand... I went to get my Copaxone today on my health plan from my new school district. When I went to the counter to pick it up the woman told me it would be $250.00. I thought I had heard her wrong but I had not. I decided not to buy my Copaxone today so I could go home to troubleshoot. I signed up for the same Kaiser plan I had in my old district where I only had to pay $10.00 copay each time. Apparently even the same plan is not the same in each district and does not cover the same stuff. I came…
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    Maggsbunny

  • 3 months old today

    Maggie
    17 Oct 2014 | 1:49 pm
    In honour of Vivienne’s three month anniversary, I decided to start up my blog again. I have so much to share, all of it very good at this point. I survived the pregnancy, obviously, although it was pretty rough going. Not something I am going to repeat in a hurry. Or ever. But I am SO glad I did it. So glad it happened; so glad this little angel was sent to us. I have never been happier in my life. Vivienne, who we are calling Vivi, is just the most amazing baby. She has the sweetest personality and she is just so easy. Everything that a good baby should do, she does. She eats well,…
  • Tomorrow is V-day!

    Maggie
    16 Jul 2014 | 8:53 am
    Finally. My little Vivi Rosebud’s birth day has arrived. I am so ready to not be pregnant anymore. My right foot looks like a sausage and I have a cankle. This was enough of a worry to have a doppler test done to check for thrombosis yesterday. Luckily, I got the all-clear on that. Gynaecologist said anaesethiologist is not happy giving me a spinal block because of the MS. I have been worried about this too. So it will be general anaesthetic. I feel happier about this. To my dear little Vivienne: I wish you a safe passage to the outside world tomorrow, my little sweetheart. I…
  • 6 Nights to go :-)

    Maggie
    11 Jul 2014 | 8:02 am
    Beary dog has been studiously ignoring my belly for months now But she is not leaving my side for long. I know both dogs are going to be so delighted to have a little one in the house. We won’t ever have to have an Au Pair, because Vivienne will have her own two Au Bears Time getting short now before our little sweetheart arrives! The last two nights I have snored Michael awake when I turn on my back, lol. I guess no-one said pregnancy was all glamour These past couple of days have been so cold. People’s water pipes have been bursting. We will tell Vivi one day of the freezing…
  • 7 nights to go…

    Maggie
    10 Jul 2014 | 9:08 am
      Only 7 nights to go until we meet our little Vivienne Rose. Getting very exciting now!! Check out my pregnancy ticker: 38 weeks, currently. It’s been a long haul, but Vivi-bunny and I have come so far. And is little missy ever active at night! Daddy has to spoon us, and talk to us, and then it’s just knees and bum and feet, making such bumps in my tummy. I do love it. So glad we are getting to experience it.
  • Vivienne’s song

    Maggie
    26 Jun 2014 | 12:37 pm
    Apparently one is supposed to sing to one’s unborn baby. Oh, I had such plans for this pregnancy. I was going to listen to loads of classical music, sings songs, be ultra-relaxed, eat so well, exercise gently for the whole nine months… Alas, the MS had other ideas. It has broken me down. Still, I do try and sing her her little song a couple of times a day… (to the tune of Twinkle, Twinkle Little Star) Twinkle. twinkle Vivi-bun, Such a special little one. Deep inside my tummy-tum, Gonna have a lot of fun! Twinkle, twinkle Vivi-bun, what a special little one
 
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    A Short in the Cord

  • Beyond Bone Tired

    16 Oct 2014 | 6:48 pm
    After my last post, The Biscuit Week, about getting hit with bad fatigue, I discovered an article posted to the On Being website that I want to discuss.Because I've been dealing with bone-crushing fatigue for years, I have studied how to get help when needed.  I've even lectured on the subject.  Step one: determine what you need. Step Two:  ASK.  This is drastically oversimplified, but you get the idea. Asking for help is hard, often because I don't know what I need. If I do, I usually can't explain.When I'm that tired, I forget everything I've learned.So I was very…
  • The Biscuit Week

    14 Oct 2014 | 7:10 am
    Wow, the MS fatigue is really bad right now, and I’m blaming last week.What would seem like a busy week for anybody was a significantly challenging week for me. On Monday, I had a medical appointment. On Tuesday, I spent a few hours with an architect reviewing plans for a sunroom. On Wednesday, another medical appointment. On Thursday, a discussion group in the evening. On Friday morning, a two-hour home repair for women class. On Saturday, a two-hour study hall.For most people, this may seem like just a full week. But for me, this was a week from hell. Each of these events…
  • MS is a Global Disease

    28 Sep 2014 | 2:30 pm
    After a sojourn to other topics on my social media outlets (complaining about the NFL's wimpy response to domestic violence, getting inspiration from Scotland's vote on independence, and being disappointed that the Asian Games in South Korea would not allow Muslim women to play basketball wearing their headscarves), I feel that I will go back to writing about Multiple Sclerosis for a little while.It's not that those other topics are not important; to the contrary, they are very important.Too important.  Globally important.  I like being an informed citizen of the globe, I feel…
  • I'd Rather Be a Bimbo

    20 Sep 2014 | 4:51 pm
    Before the recent NFL domestic abuse problems were uncovered, I had already decided to limit watching NFL games.  I still enjoy the game, but I just got sick of all the commercials.  The play stops for booth reviews and measurements and lots more commercials.  Then there's the bone-crunching sounds from players smashing into each other.  And then more commercials.  Then pans of mostly naked women shaking pom-poms on the sidelines.  Crunch, commercials, repeat.  Superbowl? Who cares about the game, we want to watch the commercials!Now with the NFL's lame…
  • Let Us Dwell on the Distance We Have Traveled

    19 Sep 2014 | 4:38 am
    Scotland has voted to stay in the United Kingdom.  As I was reading the reports from BBC, I found some meaningful quotes that I want to share.  I think the world can learn from this event.  I know I can.From Alistair Darling, who led the winning Better Together (against independence) movement, "As we celebrate, let us also listen."From First Minister Alex Salmond, who led the movement to declare independence from UK, "Today of all days as we bring Scotland together, let us not dwell on the distance we have fallen short, let us dwell on the distance we have traveled..."That last…
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    Navigating the Journey of MS

  • May tag repairman

    15 Oct 2014 | 6:35 am
    Yesterday I had someone take a look at my washing machineAnd although it's not really a Maytag it's an eluctoluxToday the dogs went to the groomerSupposed to go to grocery store tomorrow but cancelled becauseIt's not in the budget Who needs food anyway ?Still trying to come up with plan to pay for upcoming medicalBillsGoing to talk to hospital about a payment planI'm sure they will help me
  • Rough.night

    14 Oct 2014 | 9:02 am
    OMG this weather is killing meI knew the storm would be bad but I had no idea how badTried to sleep downstairs last night but was in so much painMy oldest dog was really struggling to get up rampShe gave it everything she hadDried them off and cuddled under big blanket til they were able to fallAsleepI'm in a lot of pain today but dealing with itBecause that's what adults doHeheheHugs and silly faces from the dogs helps ( love my furballs )Worked on taxes for business this morning and repairman Came for washing machine
  • Paying bills decisions

    13 Oct 2014 | 6:36 am
    Today I'm paying bilks yuckDecisions Do I pay Dr bills or food ?Too bad we all don't qualify for the " freeloader " plan
  • New meds

    12 Oct 2014 | 11:02 am
    Yesterday I started a best medI was so nervous but Mike was here incase I had a bad reactionI actually slept really wellHope these mess are what the doctor ordered and they helpNeed to get some MS symptoms under controlSay a prayer they work
  • Jerky and jerks

    10 Oct 2014 | 6:49 am
    EToday I'm making jerky in my new dehydrator Seems like a good idea since the family " jerk"is butting his noseInto my life againCan we say jeolousy ???
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    MS Trust Recent Story List

  • Sativex not recommend for NHS in England

    7 Oct 2014 | 4:00 pm
    With the launch NICE's wider guideline on managing MS in England, several newspapers chose to focus on the decision not to recommend Sativex as a treatment for spasticity. Reuters Guardian Daily Telegraph Sativex - A to Z of MS
  • NICE MS Guideline published

    7 Oct 2014 | 4:00 pm
    The revision of NICE's guideline for services managing MS in England has been published, focussing on regular monitoring by specialist multidisciplinary teams. NICE Press Association (Daily Mail) Guardian podcast MS Trust comment on the NICE Guideline
  • Genes and MS

    2 Oct 2014 | 4:00 pm
    The number of genes associated with MS has risen to 159 according to research presented at the recent ACTRIMS/ECTRIMS conference. Multiple Scelrosis News Today Latest MS research updates
  • Encouraging self repair

    2 Oct 2014 | 4:00 pm
    Article on the team at the Cambridge Centre for Myelin Repair who are working on ways to encourage the central nervous system to repair itself. Medical Xpress Latest MS research updates
  • Benefits of exercise

    1 Oct 2014 | 4:00 pm
    A small study involving 19 people with MS in Spain found that those who took part in a general fitness regime followed by a personalised programme showed improvements in functionality when compared to a non-exercising control group. Medical News Today Exercises for people with MS
 
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    MS Trust Stop Press

  • New NICE Guideline information for the public now available

    14 Oct 2014 | 4:00 pm
    Following the recent publication of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186), NICE have now published their information for the public.
  • Fingolimod (Gilenya) eligibility extended in Scotland

    13 Oct 2014 | 4:00 pm
    The Scottish Medicines Consortium (SMC), which issues guidance on whether treatments should be funded by NHS Scotland, has announced that fingolimod can now also be prescribed for people with rapidly evolving severe relapsing remitting MS (RES RRMS).
  • New NICE Guideline for MS published today

    7 Oct 2014 | 4:00 pm
    Today sees the publication of the first revision since 2003 of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186).
  • Do you have a place in the 2015 London Marathon?

    5 Oct 2014 | 4:00 pm
    The results of the 2015 Virgin Money London Marathon ballot are being announced, so if you've managed to gain a place we would love you to join our team.
  • People with MS are encouraged to get seasonal flu jab

    2 Oct 2014 | 4:00 pm
    The seasonal flu vaccination is now available to people who fall into at-risk groups, which includes anyone with a neurological condition such as multiple sclerosis, those over 65, and the main carers of a disabled person.
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    Wheelchair Kamikaze

  • My Body, My Self

    The Wheelchair Kamikaze
    16 Oct 2014 | 10:17 pm
    In Mel Brooks’ 1981 comedy “The History of the World, Part 1”, a scene set during the French Revolution features a member of the aristocracy rushing to tell King Louis XVI, “It is said that the people are revolting!” His Majesty quickly replies, “You said it, they stink on ice”. The exchange is an amusing play on words that succinctly and humorously sums up the crux of the social upheaval engulfing France at the end of the 18th century. Substitute me for the King of France and the words “your body” for “the people”, and you’ll get a pretty good idea of what’s…
  • Bits and Pieces: Autumn Equinox Edition (also Tysabri, MS and HIV,viruses, relapse rates, misdiagnoses, diet, and asinine research)

    The Wheelchair Kamikaze
    29 Sep 2014 | 6:22 pm
    Personification of Autumn (Currier & Ives lithograph, 1871) (Photo credit: Wikipedia) Well, according to the full scale replica of Stonehenge that I have sitting in my living room (which is right next to my exact copy of the Sphinx and down the hall from my faux Taj Mahal – it’s incredible what you can fit in a 900 ft.² apartment with a little ingenuity) summer is over and autumn is now upon us. Time for packing away the seersucker, preparing for the harvest, and getting ready for the ceremonial sacrificing of virgins. Luckily, there are no virgins available in my apartment, so…
  • Supplements, My Supplements

    The Wheelchair Kamikaze
    11 Sep 2014 | 7:38 pm
    Arabic herbal medicine guidebook (Photo credit: Wikipedia) Using natural supplements to help treat MS is always a topic of much interest amongst patients. In the face of the sometimes daunting side effect profiles of the pharmaceutical drugs approved to combat the disease, the use of herbs and other natural substances, widely perceived as being more benign than the immunosuppressant/immunomodulating pharmaceutical products, holds great appeal for many dealing with Multiple Sclerosis. MS research headlines regularly trumpet one natural remedy or another as having been discovered to slay or at…
  • The Problem with Progression, Revisited

    The Wheelchair Kamikaze
    26 Aug 2014 | 8:02 pm
    English: Cropped version of :Image:Domino effect.jpg (Photo credit: Wikipedia) The good folks who administer the website MultipleSclerosis.net (click here) and I have reached an agreement to publish 20 essays from the Wheelchair Kamikaze archives on their site. MS.net is a wonderful resource for MS patients and those who love them, filled with the latest MS news as well as insightful articles and essays by folks dealing with the disease in all its forms. Lots of good stuff there, all of it high-quality. Best as I can figure, the fact that they decided to include some of my essays must be due…
  • Man Bites Dog (or, MS Patient Beats Insurance Company after Stem Cell Transplant, to the Tune of $400,000)

    The Wheelchair Kamikaze
    10 Aug 2014 | 9:00 pm
    (c) GoGraph / lhfgraphics Oh, the many pleasures of Multiple Sclerosis. In addition to the physical and psychological toll taken by the disease, MSers also have to deal with a medical establishment that at times seems purposely set up to make being sick as hard as possible. Here in the USA, one of the most infuriating components of that medical establishment is quite often the private health insurance companies, upon whose whims many patients rely on to pay for such superfluous luxuries as vital medications, essential treatments, and indispensable mobility devices. In my 11-year career as a…
 
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