Multiple Sclerosis

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  • Mental visual imaging training improves multiple sclerosis patients' well-being

    Multiple Sclerosis News From Medical News Today
    26 Aug 2015 | 7:00 am
    Technique helps with memory and imagination according to new Restorative Neurology and Neuroscience ReportPatients with relapsing-remitting multiple sclerosis (RR-MS), the most common form of the...
  • To shrink or not to shrink what will I remember

    Multiple Sclerosis Research
    MouseDoctor
    2 Sep 2015 | 11:00 pm
    Rocca MA, Morelli ME, Amato MP, Moiola L, Ghezzi A, Veggiotti P, Capra R, Pagani E, Portaccio E, Fiorino A, Pippolo L, Pera MC, Comi G, Falini A, Filippi M. Regional hippocampal involvement and cognitive impairment in paediatric multiple sclerosis.Mult Scler. 2015 Aug. pii: 1352458515598569. [Epub ahead of print]OBJECTIVES:We assessed global and regional hippocampal volume abnormalities in pediatric multiple sclerosis (MS) patients and their correlations with clinical, neuropsychological and magnetic resonance imaging metrics.METHODS: From 53 paediatric MS patients and 18 healthy…
  • Epstein Barr treatment?

    ThisIsMS - News
    vesta
    30 Aug 2015 | 12:08 pm
    General Discussion Statistics : 2 Post || 239 Views Post by vesta
  • Unrelated Blogger Comments-September 2015

    Multiple Sclerosis Research
    MouseDoctor
    31 Aug 2015 | 11:00 pm
         Want to say something unrelated to the posts. This is the place for you
  • ResearchSpeak: brain plasticity in early MS

    Multiple Sclerosis Research
    Gavin Giovannoni
    3 Sep 2015 | 1:24 am
    Is MS shredding your reserve capacity? #ResearchSpeak #MSBlog"What protects MSers from noticing cognitive and physical impairments early in the course of their disease are compensatory mechanisms that adjust for the damage that has already accumulated from MS. The ability to compensate is dependent on so called brain, or neuronal, reserve. With increasing damage the reserve capacity gets exhausted and MSers then notice their disabilities and enter the clinically-apparent progressive phase of the disease. Using reserve systems to compensate for damage does come with a downside,…
 
 
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    multiple sclerosis

  • GlaxoSmithKline flips an MS project to Novartis for up to $1B

    Damian Garde
    21 Aug 2015 | 4:36 am
    Novartis is paying GlaxoSmithKline as much as $1 billion for the rights to a mid-stage multiple sclerosis treatment, betting it can develop an heir to the blockbuster Gilenya, soon to lose patent protection.
  • UPDATED: Roche heralds PhIII successes for MS, but some tough rivals lie in wait

    John Carroll
    30 Jun 2015 | 5:03 am
    Roche heralded the late-stage success of two big trials for its multiple sclerosis drug ocrelizumab today, which they say puts them on a straight road to regulatory filings for the injectable in early 2016. But even under the best-case scenario for the future, the Big Pharma player will face a tough task squaring off against the new oral drugs that have been divvying up this big market recently.
  • Ablynx adds Genzyme to roster of big-name collaborators

    Nick Paul Taylor
    21 May 2015 | 12:51 am
    Ablynx has entered into a collaboration with Sanofi's Genzyme to investigate the use of its single-domain antibodies against a target involved with multiple sclerosis. The deal gives Genzyme the exclusive right to test the antibodies in models relevant to multiple sclerosis.
  • Biogen's novel MS drug shows promise of repairing nerve tissue

    Damian Garde
    15 Apr 2015 | 8:50 am
    Biogen's latest treatment for multiple sclerosis helped repair damaged nerve tissue in a Phase II study, an incremental victory for a novel therapy that has a long way to go.
  • Biogen's future: Bigger bets on CNS, smaller name

    Damian Garde
    23 Mar 2015 | 6:43 am
    Biogen's latest evolution is more than just a nominal shift, according to its CEO, as the Big Biotech lops the Idec from its name and hopes to parlay its success in multiple sclerosis into some tough-to-treat diseases.
 
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    Life With Multiple Sclerosis

  • Taking MS One Day at a Time

    Trevis Gleason
    2 Sep 2015 | 6:35 am
    It’s now the beginning of September, and I realize that we didn’t have our monthly check-in in August. Between my wife, Caryn’s, injury at the beginning of the month, and my cognitive adventures brought on by an infection, the month simply got past me. As for trying to rate my own multiple sclerosis (MS) symptoms on our Life With Multiple Sclerosis Self-Evaluation Scale (LWM3S), I’m not sure I could come up with a rating for the month of August as a whole. The LWM3S is a scale I invented in which: 1= The best my symptoms have felt since my diagnosis with MS 10= The worst my…
  • Oh, to Sand and Refinish My Myelin Sheaths

    Trevis Gleason
    27 Aug 2015 | 6:58 am
    The house in which we live is about 10 years old. It’s not particularly “Irish” in its design, nor is it “American.” The floor plan is open and easy to maneuver, so even on my more difficult days I can make it from point A to point B without too much trouble. Though there are a couple of different flooring types on the ground floor, the transitions are smooth and easy. People living with MS-related drop foot will know how important that can be to our safety at home and elsewhere. Several parts of the house have wooden floors. These are not the hardwood oak or maple boards I knew…
  • Minor Injury Leads to Major MS Relapse

    Trevis Gleason
    25 Aug 2015 | 9:09 am
    “If you prick us, do we not bleed?” asks Shylock in Shakespeare’s Merchant of Venice. To which I reply, “Yes… and then get an infection, and then all hell breaks loose!” On Saturday, August 15, I was readying a bag of rubbish for the bin man and in doing so cut my finger on a shard of glass that had once been our French coffee press (it had lasted nearly two years, a record with my fumbling hands). It was a deep enough cut to bleed but surely — I thought — not deep enough to need professional medical attention. That the offending glass fragment had been in the garbage…
  • Got a Minute? Take a 60-Second Break From MS

    Trevis Gleason
    20 Aug 2015 | 9:38 am
    When someone from the press asks you if you’ve got 60 seconds, you either run away from, or run toward, the questioner. I actually thought that the editor of Corca Dhuibhne Beo (West & Mid Kerry Live) wanted to chat with me about something related to our town’s upcoming food festival or something when he asked me that question the other day. So I pulled my bicycle over to the curb and asked how I could help. “Have you got 60 seconds?” he asked again with one index finger raised. “I have. What would you like to talk about?” I replied. Then it hit me when he replied, “Do you…
  • When ‘Invisible’ MS Symptoms Become Visible

    Trevis Gleason
    19 Aug 2015 | 6:02 am
    While I’m officially diagnosed with the secondary-progressive form of multiple sclerosis, I still have times that feel a lot like relapses: when new symptoms creep in or old ones suddenly make themselves more pronounced. Pins-and-needles can go from annoying prickle to painful bee stings, fatigue can progress from mind-numbing to soul-crushing, or my speech pattern can go from normal to stammered overnight. Slammed by Cog-Fog This morning, what is normally one of my invisible symptoms of MS — cognitive fog, or cog-fog for short — hit me in a way that was far from invisible to me or…
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    Brass and Ivory: Life with MS and RA

  • How to Take As Needed Medications

    20 Aug 2015 | 9:18 am
    What does “as needed” mean?Medications that are taken “as needed” are used only when necessary to treat a specific situation or symptom, such as pain, the common cold, allergies, constipation, anxiety, or fatigue. Some of these medications might be prescribed for you by a doctor while others can be purchased “over the counter” at your local pharmacy.“Pro re nata” is a Latin phrase that means in the circumstances or as the circumstance arises. In medicine, pro re nata is abbreviated as p.r.n or PRN and means taken as needed or as the situation arises.PRN medications are taken…
  • 10 Lessons I’ve Learned Since Being Diagnosed with MS

    13 Aug 2015 | 9:13 am
    1. Be patient with yourself and others. Just like a baby isn’t born with the skills to run, jump, or do calculus, you are not suddenly equipped with all the knowledge and skills you need to handle every challenge caused by multiple sclerosis (MS). It takes time to grow and mature into living a good life with chronic illness, but doing so becomes easier more quickly if you don’t try to do it alone. 2. Don’t expect others to know what you need, what you are thinking, or what you are experiencing unless you share that information and are willing to talk about it openly and honestly.
  • Maximize Your Treatment Value

    11 Aug 2015 | 9:10 am
    1. Choose medication that fits your lifestyle and priorities.With 13 disease-modifying therapies available, MS patients and neurologists in the US have more options than ever to slow down progression of the disease. Before choosing a medication, it is important to evaluate the benefits and risks of each option to determine which one(s) more closely matches your personal needs, priorities, and concerns. Don’t forget to factor in your lifestyle preferences as you will only gain the greatest benefit from a treatment plan if you are able to follow it as directed.2. Use medication as…
  • FDA Warns of PML in Patients Taking Gilenya (fingolimod)

    6 Aug 2015 | 12:26 pm
    The FDA warns that a case of definite progressive multifocal leukoencephalopathy (PML) and a case of probable PML have been reported in patients taking fingolimod (Gilenya, Novartis) for multiple sclerosis. “These are the first cases of PML reported in patients taking Gilenya who had not been previously treated with an immunosuppressant drug for MS or any other medical condition,” said an FDA statement released yesterday. “As a result, information about these recent cases is being added to the drug label.”Gilenya is an immunomodulator shown to benefit patients with relapsing forms of…
  • Do You Take Medications As Prescribed?

    4 Aug 2015 | 12:22 pm
    In a recent TEDxTalk in Basel, Switzerland, Silja Chouquet, a healthcare consultant and personal friend of mine, discussed the complexity of prescribed medications, why people don’t take their medication, and what we should do about it. Silja is passionate about the role that healthcare companies, including pharma, can play in moving beyond the pill to helping patients become more ‘compliant’ or better yet, empowered."If we could develop something to get people to take the medicine we prescribe them, it would have a greater benefit to society than any new drug we could develop."…
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    MS Trust Recent Story List

  • Telephone support for symptoms

    1 Sep 2015 | 4:00 pm
    An American study found that a telephone delivered education programme for people with MS with pain, fatigue and depressed mood reduced the impact of symptoms by about half. National MS Society (USA) Pain - A to Z of MS Fatigue - A to Z of MS Depression - A to Z of MS
  • Impact of parental MS on childhood development

    30 Aug 2015 | 4:00 pm
    A Canadian study found that having a parent with MS did not affect a 5 year old's physical health and wellbeing, social competence, emotional maturity, language and cognitive development, and communication skills and general knowledge. However, having a parent with mental health issues (inc anxiety or depression) did have a negative effect. Canadian MS Society Talking with your kids about MS Depression - A to Z of MS
  • Breastfeeding and relapses

    30 Aug 2015 | 4:00 pm
    Women who only breastfed in the two months following a birth had fewer relapses in the six months postpartum than women who used other approaches. Medical Xpress Breastfeeding - A to Z of MS
  • Vitamin D and MS onset

    24 Aug 2015 | 4:00 pm
    A study has found that people with genes that cause them to have low levels of vitamin D were more to develop MS. The researchers call for more studies to see if supplementation delays onset of MS. Daily Telegraph Guardian MS Research Australia Vitamin D - A to Z of MS
  • Sleep disturbance and fatigue

    17 Aug 2015 | 4:00 pm
    A review of previous studies by the Kessler Foundation concludes that sleep disturbances were a major element of MS related fatigue. Medical News Today Sleep - A to Z of MS
 
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    The Lesion Journals

  • 7 great things accomplished by patient powered iConquerMS

    Christie @ the Lesion Journals
    1 Sep 2015 | 5:56 am
    I am so delighted to share that the iConquerMS initiative has made a lot of progress these last few months. Membership keeps rising and a lot has been achieved in a short time. What a great team to be a part of!The focus continues to be facilitating research on stuff that matters most to us, folks living with Multiple Sclerosis. And, it involves MSers across the entire process: idea building, collaboration, protocol development, project results, and sharing of final research results.  Pretty cool, right?So, I thought I would share some of the recent highlights. Here are seven great…
  • Perhaps I am stronger than I think

    Christie @ the Lesion Journals
    22 May 2015 | 8:07 am
    Perhaps I am stronger than I think. Thomas Merton
  • The day I met Jack Osbourne

    Christie @ the Lesion Journals
    19 May 2015 | 11:00 am
    A couple of weeks ago, we had the honor of traveling up to LA to attend the Race to Erase MS Spring Forum and Expo on behalf of iConquerMS. We drove up the night before and stayed in the same hotel where the 22nd Annual Race to Erase MS Gala was happening.Everything was a buzz as guests arrived for the Gala that night. With the hope to catch a glimpse of some Hollywood stars, we hung out in the hotel lobby bar to watch the action. As you might guess, the excited noise of laughter, chatter, music, and clinking of glasses filled the hallways.We saw a few stars come through the crowded lobby and…
  • LA artist raises awareness about MS through gorgeous mural

    Christie @ the Lesion Journals
    12 Apr 2015 | 7:39 am
    I recently came across this CBS report that highlights LA artist Lydia Emily. Lydia created this amazing mural in downtown LA, hoping to spread awareness about living with Multiple Sclerosis.Have a watch and be prepared to be inspired!
  • You’re invited to share your MS inspired tattoo with Healthline.com

    Christie @ the Lesion Journals
    5 Apr 2015 | 7:50 am
    Getting inked can be a powerful reminder that you are stronger than your MS, and a great way to raise awareness. While I don’t have a tattoo myself (reason being is that I cannot decide for the life of me what to ink myself with – I am forever contemplating the perfect design), I think what our friends over at Healthline are doing is pretty cool. They are hosting the “My MS tattoo” campaign and are looking for tattoos inspired by your fight with MS.Here’s how to participate:Send a clear photo of your tattoo (at least 285x285 in .jpg or .png format) to nlascurain@healthline.com with…
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    Wheelchair Kamikaze

  • Thoughts Formed While Staring At The Ceiling

    The Wheelchair Kamikaze
    1 Sep 2015 | 9:58 pm
    I’m baaaaack! Due to circumstances beyond my control, it’s been quite a while since I posted anything to this blog. My long absence from the blogosphere (is there an uglier word in the English language?) was not due to alien abduction, time travel, or simple lack of interest, but rather because I was, in a word, sick. Sicker than normal, that is. So sick that I could barely get out of bed for about six weeks, feeling, as they say in the hallowed halls of medicine, horrendously yucky. Turns out that my case of the horrendous yuckies was caused not so much by my mysterious and ever…
  • Moments of Clarity – Repost

    The Wheelchair Kamikaze
    28 Jul 2015 | 9:25 pm
    (Sorry I've been scarce lately, been fighting a really bad case of the creeping cruds that has kept me in bed the last few weeks. Fever, no appetite, weakness, all on top of the progressive MS stuff. Needless to say, not much fun at all. Just started my second round of antibiotics, so I expect things will get better soon. In the meantime, lest you think I simply vanished into the ether, here's a favorite old Wheelchair Kamikaze post of mine, back from December 2009, when this blog was not yet one year old. Rereading this essay after all these years reminded me that I really need to get back…
  • Back from the NIH: Unfortunately, Nothing Dramatic to Report

    The Wheelchair Kamikaze
    5 Jul 2015 | 9:02 pm
    Well, I’m back from my sojourn to the nation’s capital in search of answers regarding my ever progressing and relentlessly stubborn illness. Sorry it’s taken so long to report back, but the trip left me pretty exhausted, and for the last week or so I just haven’t been myself. Oddly, I think I’ve been Ethel Merman, but that’ll have to be a subject for another blog post… On the evening of June 23, Karen and I packed ourselves into a rented wheelchair accessible van and hoofed it down to Bethesda, Maryland (just outside of Washington DC) for a visit to the National Institutes of…
  • I’m Off to the National Institutes Of Health…

    The Wheelchair Kamikaze
    22 Jun 2015 | 9:23 pm
    Just wanted to check in lest anybody think I vaporized or otherwise met with misfortune. I’ll have to keep this relatively short, as I’m scrambling to get ready to go to the National Institutes of Health (NIH) Clinical Center, in Bethesda Maryland. The NIH is the US government’s primary medical research organization, and they maintain a state-of-the-art clinical complex on a sprawling campus just outside of Washington DC. I’ve been seen by the doctors/researchers at the National Institutes of Health (NIH) three times since 2009, when I was part of an NIH study that sought to identify…
  • Recent Research on HSCT, the Stem Cell Therapy That May Soon Change the MS Treatment Landscape.

    The Wheelchair Kamikaze
    4 Jun 2015 | 9:22 pm
    (Please note: the following article is quite long. Though it covers a very important topic and I’ve tried to make it as accessible as possible, I’d suggest getting comfy and grabbing a nice beverage before diving in…) Over the last six months or so, there has been a wave of new and encouraging research published regarding HSCT (Hematopoietic Stem Cell Therapy) for the treatment of multiple sclerosis. HSCT is the type of stem cell therapy in which a patient’s existing immune system is completely eradicated through the use of powerful chemotherapy drugs and is then rebooted via an…
 
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    Life in Spite of MS Blog

  • NADEAM POSTER AWARD - TEXAS

    1 Sep 2015 | 10:24 pm
    I posted Rise Above in March. With many friends and family I was encouraged to participate in the NDEAM (sp correction) Art competition here in Texas.
  • Help Us Help Him - Share

    27 Aug 2015 | 8:07 am
    I recently received this letter from Dr. Picone and would love to help out his campaign. Please join with me in promoting and sharing his site and soon to launch Indiegogo campaign. MSers and their loved ones can use all the help and support they can get. Right? Thank you Dr. Picone, and good luck! "My name is Dr. Picone and I have been treating patients with MS for 20 years. The reason I am reaching out today is to humbly ask for your support for an upcoming Indiegogo Campaign I am launching at the end of August. I have been investing a lot of time in money over the last 8 months getting…
  • Help Us Help Him - Share

    27 Aug 2015 | 8:07 am
    I recently received this letter from Dr. Picone and would love to help out his campaign. Please join with me in promoting and sharing his site and soon to launch Indiegogo campaign. MSers and their loved ones can use all the help and support they can get. Right? Thank you Dr. Picone, and good luck! "My name is Dr. Picone and I have been treating patients with MS for 20 years. The reason I am reaching out today is to humbly ask for your support for an upcoming Indiegogo Campaign I am launching at the end of August. I have been investing a lot of time in money over the last 8 months getting…
  • Someone's Story....

    27 Aug 2015 | 7:38 am
    ...and Life with Multiple Sclerosis I found out I had MS when I was 34 years old when my daughter was 10 months old and she was about to have surgery
  • 50 years old!! Life changing

    23 Jul 2015 | 9:43 pm
    I'm still a lot confused with symptoms and what to look for in a relapse. I'm off for an MRI on brain and spine and to compare them with last years.
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    Multiple Sclerosis Research

  • ResearchSpeak: brain plasticity in early MS

    Gavin Giovannoni
    3 Sep 2015 | 1:24 am
    Is MS shredding your reserve capacity? #ResearchSpeak #MSBlog"What protects MSers from noticing cognitive and physical impairments early in the course of their disease are compensatory mechanisms that adjust for the damage that has already accumulated from MS. The ability to compensate is dependent on so called brain, or neuronal, reserve. With increasing damage the reserve capacity gets exhausted and MSers then notice their disabilities and enter the clinically-apparent progressive phase of the disease. Using reserve systems to compensate for damage does come with a downside,…
  • To shrink or not to shrink what will I remember

    MouseDoctor
    2 Sep 2015 | 11:00 pm
    Rocca MA, Morelli ME, Amato MP, Moiola L, Ghezzi A, Veggiotti P, Capra R, Pagani E, Portaccio E, Fiorino A, Pippolo L, Pera MC, Comi G, Falini A, Filippi M. Regional hippocampal involvement and cognitive impairment in paediatric multiple sclerosis.Mult Scler. 2015 Aug. pii: 1352458515598569. [Epub ahead of print]OBJECTIVES:We assessed global and regional hippocampal volume abnormalities in pediatric multiple sclerosis (MS) patients and their correlations with clinical, neuropsychological and magnetic resonance imaging metrics.METHODS: From 53 paediatric MS patients and 18 healthy…
  • Cannabis does not affect electrophysiological response in spasticity

    MouseDoctor
    1 Sep 2015 | 11:00 pm
    Leocani L, Nuara A, Houdayer E, Schiavetti I, Del Carro U, Amadio S, Straffi L, Rossi P, Martinelli V, Vila C, Sormani MP, Comi G. Sativex® and clinical-neurophysiological measures of spasticity in progressive multiple sclerosis. J Neurol. 2015 Aug. [Epub ahead of print]Despite the proven efficacy of Sativex® (9-delta-tetrahydrocannabinol plus cannabidiol) oromucosal spray in reducing spasticity symptoms inmultiple sclerosis (MS), little is known about the neurophysiological correlates of such effects. The aim of the study was to investigate the effects of Sativex on…
  • ResearchSpeak: treating end-organ failure requires combination therapies

    Gavin Giovannoni
    1 Sep 2015 | 10:54 pm
    Will Novartis transfer what they have learnt in cardiac failure to progressive MS? #ResearchSpeak #MSBlogWhen will we realise progressive MS requires a combination therapy approach?  #ResearchSpeak #MSBlog"In the moneyed world of big Pharma the biggest news this year has the been the licensing of a new combination therapy to treat cardiac failure. Novartis the company behind the development of this combination therapy are ecstatic. Their drug, Entresto, is a first in class medicine, or more importantly a combination therapy, (an ARNI, Angiotensin Receptor Neprilysin Inhibitor)…
  • Unrelated Blogger Comments-September 2015

    MouseDoctor
    31 Aug 2015 | 11:00 pm
         Want to say something unrelated to the posts. This is the place for you
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