Multiple Sclerosis

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    Google News: Multiple Scelrosis

  • Akron-Canton Dinner of Champions - Suburbanite

    21 Nov 2009 | 8:49 am
    Akron-Canton Dinner of ChampionsSuburbaniteStrauss was then recognized for his commitment to community service with the Norman Cohn Hope Award, the National Multiple Sclerosis Society's highest honor

  • Multiple sclerosis not a risk in pregnancy: Study - TheMedGuru

    21 Nov 2009 | 4:50 am
    TheMedGuruMultiple sclerosis not a risk in pregnancy: StudyTheMedGuruby Neharika Sabharwal - November 21, 2009 Los Angeles, CA, November 20 -- According to a recent research, multiple sclerosis (MS) has little effect on Reassuring pregnancy findings for women with MSguardian.co.ukMultiple sclerosis and pregnancy risks 'very small'Barchester HealthcareMultiple sclerosis, epilepsy don't raise pregnancy risks: StudyZee NewseMaxHealth -Los Angeles Times -Science Daily (press release)all 54 news articles »

  • Cyclist stops in Evansville on 57th campaign for National MS Society - Evansville Courier & Press

    20 Nov 2009 | 11:21 pm
    Cyclist stops in Evansville on 57th campaign for National MS SocietyEvansville Courier & PressBOB GWALTNEY / Courier & Press Thomas Beasley points out some of the features on the bike he is riding to raise money for Multiple Sclerosis. and more »

  • Researcher's labour of love leads to breakthrough in treating MS - Globe and Mail

    20 Nov 2009 | 6:11 pm
    Globe and MailResearcher's labour of love leads to breakthrough in treating MSGlobe and MailThey were classic signs of multiple sclerosis, a potentially debilitating neurological disease. It was 1995 and her husband, Paolo Zamboni, a professor of W5 investigates intriguing new theory about MSCTV.caCTV current affairs program W5 reports on radical and experimental MS treatmentPictou Country Nova Scotia NewsMS breakthrough profiled on W5Toronto Sunall 9 news articles »

  • Regents Vote Down Stem Cell Restrictions - KPTM-TV

    20 Nov 2009 | 2:37 pm
    Times OnlineRegents Vote Down Stem Cell RestrictionsKPTM-TVAlan Worth, a Multiple Sclerosis patient, says the vote means promise for the 400000 Americans suffering from his illness. "Some of the hopes for the Expanded stem-cell research OK'dOmaha World-Herald"Adult Stem Cells Saved My Life"Blogger News Network (blog)Speaker: Embryonic stem cell research isn't a magic cureRapid City JournalLincoln Journal Starall 547 news articles »
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    MedicalNewsToday: Multiple Sclerosis

  • Drug Studied As Possible Treatment For Spinal Injuries

    21 Nov 2009 | 12:00 am
    Researchers have shown how an experimental drug might restore the function of nerves damaged in spinal cord injuries by preventing short circuits caused when tiny "potassium channels" in the fibers are exposed. The chemical compound also might be developed as a treatment for multiple sclerosis.

  • Good News On Multiple Sclerosis And Pregnancy

    19 Nov 2009 | 3:00 am
    There is good news for women with multiple sclerosis (MS) who are pregnant or thinking about becoming pregnant. A new study shows that pregnant women with multiple sclerosis are only slightly more likely to have cesarean deliveries and babies with a poor prenatal growth rate than women who do not have MS.

  • Early Research Into The Role Of Vitamin D Suggests It May Ease Symptoms Of MS

    19 Nov 2009 | 2:00 am
    Australian researchers have presented findings at a national scientific conference for medical research in Hobart, Australia that suggests vitamin D may play a role in preventing relapses in people with multiple sclerosis (MS). The research, which is yet to be published in a peer-reviewed scientific journal, may form the basis of a larger clinical trial that would take several years to complete.

  • MS Is More Aggressive In Children But Slower To Cause Disability Than In Adults

    18 Nov 2009 | 2:00 am
    Magnetic resonance images (MRI) of patients diagnosed with multiple sclerosis in childhood show that pediatric onset multiple sclerosis is more aggressive, and causes more brain lesions, than MS diagnosed in adulthood, researchers at the University at Buffalo have reported. Interestingly, however, patients with pediatric-onset MS -- which comprise up to 5 percent of total MS cases -- develop disabilities at a slower pace than patients with adult-onset MS, the data showed.

  • Smoking May Now Be Considered An Established Risk Factor For ALS, Also Known As Lou Gehrig's Disease

    18 Nov 2009 | 2:00 am
    While previous studies have indicated a "probable" connection between smoking and ALS, a new study published in the Nov. 17, 2009 issue of Neurology®, the medical journal of the American Academy of Neurology, states that smoking may now be considered an "established" risk factor for Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease. The findings come from Baystate Medical Center neurologist Dr.
 
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    ScienceDaily: Multiple Sclerosis

  • Good news on multiple sclerosis and pregnancy

    18 Nov 2009 | 11:00 pm
    There is good news for women with multiple sclerosis (MS) who are pregnant or thinking about becoming pregnant. A new study shows that pregnant women with multiple sclerosis are only slightly more likely to have cesarean deliveries and babies with a poor prenatal growth rate than women who do not have MS.

  • Multiple sclerosis is more aggressive in children but slower to cause disability than in adults

    15 Nov 2009 | 9:00 pm
    Magnetic resonance images of patients diagnosed with multiple sclerosis in childhood show that pediatric onset multiple sclerosis is more aggressive, and causes more brain lesions, than MS diagnosed in adulthood, researchers have reported.

  • Teenage obesity linked to increased risk of multiple sclerosis

    15 Nov 2009 | 8:00 am
    Teenage women who are obese may be more than twice as likely to develop multiple sclerosis as adults compared to female teens who are not obese, according to a new study.

  • Men Leave: Separation And Divorce Far More Common When The Wife Is The Patient

    10 Nov 2009 | 2:00 pm
    A woman is six times more likely to be separated or divorced soon after a diagnosis of cancer or multiple sclerosis than if a man in the relationship is the patient, according to a study that examined the role gender played in so-called "partner abandonment." The study also found that the longer the marriage the more likely it would remain intact.

  • Modifying Neural Stem Cells Improves Their Therapeutic Efficacy

    1 Nov 2009 | 9:00 pm
    Stem cells isolated from the brain of adult mice (adult neural stem cells [aNSCs]) have shown very modest therapeutic effects in a mouse model of the chronic inflammatory neurodegenerative disease multiple sclerosis. But now, researchers have developed an approach to enhance the therapeutic effects of aNSCs in this model of multiple sclerosis, something that they hope might increase the chance that aNSC-based therapies might one day be developed for clinical use.
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    This is MS

  • Oral Therapy Laquinimod to Start Phase III Trials for RRMS

    The race for an oral multiple sclerosis medication took one further step today, when Teva and Active Biotech announced that they were going to begin the final Phase of clinical testing for their pill candidate, called laquinimod. This followed the successful conclusion of Phase II, as well as consultations with the US FDA. Drugmakers are cautious... Story continues, please click "read more"...

  • MS Walking Improvement Drug Gets FDA Help

    Most of the MS therapies in the drug development pipeline, or even available today, are targeted at reducing relapses and decreasing disability progression. Which makes Acorda Therapeutics'' Fampridine-SR quite interesting. In Phase III trials, it is targeted specifically at one particularly onerous aspect of the MS burden-- impact on walking ability. Acorda and the United States Food and Drug Administration recently reached an agreement on a pathway to getting Fampridine approved for this indication. In addition to a Phase III trial currently underway, Acorda will work with the FDA''s…

  • Daclizumab Shows Promise in Phase II Trial for Relapsing Remitting MS

    Just over a year ago, PDL Pharmaceuticals partnered with MS giant Biogen (Avonex, Tysabri) to bring a drug known as daclizumab through trials for MS. Daclizumab is today used for the prevention of kidney transplant rejection, under the marketing name Zenapax (r). The partnership seems to be bearing fruit, as the companies announced that Daclizumab hit its targets in its first Phase II multiple sclerosis trial. Please click ''read more''

  • Minimal Changes in Cognitive Function of Relapsing-Remitting MS''ers in a 10-year

    The question of cognitive decline as a result of MS is a serious one. If the ac*****ulation of physical disability is a hallmark of the condition, its affect on cognitive dysfunction is not always so obvious. In fact, in a recent trial for Copaxone (glatiramer acetate) observing cognitive scores, the placebo group improved just as much as the Copaxone-treated group over two years. Perhaps 2 years was too short to see a difference, so a new study observed a group of MS''ers over TEN years. Please click ''read more'' to see the rest of the story...

  • PML Seen with Rituxan for Lupus

    Our old nemesis, progressive multifocal leukoencephalopathy, or PML, has reared its ugly head yet again, this time in association with another of Biogen''s drugs, Rituxan. PML, if you recall, was implicated in the multiple deaths associated with Tysabri last year, leading to its temporary suspension. After much analysis and an unprecedented patient board hearing by the FDA... Story continues, please click ''read more''
 
 
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    L.A. Times: Multiple Sclerosis

  • Obesity in adolescence may increase girls' MS risk

    MedWorm: Consumer Health News
    NEW YORK (Reuters Health) - A woman's risk of developing multiple sclerosis (MS) during her lifetime is doubled if she was obese at age 18, new research shows. (Source: Reuters: Health)

  • Drug Studied As Possible Treatment For Spinal Injuries

    MedWorm: Consumer Health News
    Researchers have shown how an experimental drug might restore the function of nerves damaged in spinal cord injuries by preventing short circuits caused when tiny "potassium channels" in the fibers are exposed. The chemical compound also might be developed as a treatment for multiple sclerosis. (Source: Health News from Medical News Today)

  • Study: Few pregnancy complications with MS

    MedWorm: Consumer Health News
    STANFORD, Calif., Nov. 20 (UPI) -- Pregnant women with multiple sclerosis are slightly more likely to have Cesarean deliveries and babies with poor prenatal growth rate, U.S. researchers say. (Source: Health News - UPI.com)

  • Good News On Multiple Sclerosis And Pregnancy

    MedWorm: Consumer Health News
    There is good news for women with multiple sclerosis (MS) who are pregnant or thinking about becoming pregnant. A new study shows that pregnant women with multiple sclerosis are only slightly more likely to have cesarean deliveries and babies with a poor prenatal growth rate than women who do not have MS. (Source: Health News from Medical News Today)

  • Early Research Into The Role Of Vitamin D Suggests It May Ease Symptoms Of MS

    MedWorm: Consumer Health News
    Australian researchers have presented findings at a national scientific conference for medical research in Hobart, Australia that suggests vitamin D may play a role in preventing relapses in people with multiple sclerosis (MS). (Source: Health News from Medical News Today)
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    About.com: Multiple Sclerosis

  • My H1N1 (Swine Flu) Vaccine Experience

    18 Nov 2009 | 1:30 am
    I am happy to report that this will be one of the most boring posts that I will write, because my H1N1 vaccine experience was completely and utterly unremarkable. Last Friday, I took my children in to a local clinic to get their second dose of the H1N1 nasal mist vaccine 28 days after they received their first dose (it is recommended that all children younger than 10 receive 2 doses of H1N1 vaccine to achieve optimal immunity). When I went up to sign them in at the reception desk, I casually asked when they thought that they would be receiving the shot version of the H1N1 vaccine (it is…

  • Multiple Sclerosis and Divorce: Interesting Gender Gap Uncovered

    17 Nov 2009 | 6:18 am
    There are all sorts of statistics about divorce among people with chronic illnesses like multiple sclerosis (MS). Although the exact numbers vary, depending on the study, divorce and separation rates are consistently higher in couples where one person has a disability or chronic illness. A recent study from the Fred Hutchinson Cancer Research Center decided to look a little deeper into the situation and found some pretty amazing things. Looking at 515 people (about equal numbers of men and women) who had brain tumors, cancer or MS, and were married at the time of their diagnosis, the…

  • One of Our Own: A Photo Essay of Multiple Sclerosis

    11 Nov 2009 | 2:28 am
    Even though I have never met Patricia Lay Dorsey, I like this woman. A lot. Ms. Lay Dorsey has been living with primary progressive multiple sclerosis since 1988. Like many of us with MS, the disease not only resulted in physical symptoms, but started to do something even more evil - it made her feel less beautiful and ashamed. Instead of covering up her flaws, she fought back by looking at them more closely through a camera lens. Now she is sharing them with the world and guess what? Those "flaws" are no longer flaws, but elements in a composition, beauty in the way that they reveal this…

  • H1N1 (Swine Flu) and Seasonal Flu Vaccine and Multiple Sclerosis Drugs

    11 Nov 2009 | 2:02 am
    As many have read, I am strongly advocating that people with MS get the H1N1 and seasonal flu vaccines, as many of us have decreased lung function that makes us susceptible to pneumonia, which is the biggest risk associated with infection from the H1N1 virus. In response to my last blog post about the H1N1 vaccine for people with MS, I got the following comment: "I am hoping that the person you are responding to does not take one of the current 5 choices of medicines to help control their MS. As I am sure you are aware they work by keeping the immune system busy and therefore not attacking…

  • Q. Am I more susceptible to H1N1 because I have multiple sclerosis?

    3 Nov 2009 | 4:01 pm
    I recently got the following e-mail: "I have MS and I guess that means that I have a weak immune system because I seem to catch every cold that is going around. Once I get a cold, it turns into something worse and I end up coughing for a long time. Does this mean that I should not get the H1N1 vaccine, because is it dangerous to me with my compromised immune system?" A. There are a couple of things going on here and I will try to clarify some points: 1. People with MS do NOT have weak or compromised immune systems. Quite the opposite, actually - our immune systems are overactive and are…
 
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    Down the MS Path

  • Research Studies

    16 Nov 2009 | 2:47 am
    Want to volunteer for a medical research study?UT Soutwestern sent a press release about ResearchMatch where volunteers can be matched — online — to a scientific research project, or clinical trial, for which they might qualify. The National Institute of Health gave UT Southwestern a grant to help quickly move laboratory discoveries into actual therapies. This new allows the medical community "to cast a wider net into a deeper pool of potential subjects.” Both healthy people and those with illnesses and conditions can take advantage of this opportunity!

  • MS and Evils

    14 Nov 2009 | 10:29 pm
    One of my favorite online friends Michael B. Gerber doesn't write in his blog about MS, he writes about life. His happens to be a life with MS, so MS sneaks in there now and again. You may notice his blog "Perspective Is Everything" in my "Favorite MSer Sites" list.Last week Michael sent me a story about medication and side effects. He asked if I had something to add, but it was good, as his writing is. I did, however, manage to throw in a word or two and make a change here or there. Read our post here: The Lesser of Two EvilsHis is a blog certainly worth reading. While you're there, look…

  • Pain and MS, Yes, It Hurts

    6 Nov 2009 | 2:18 pm
    I wrote a series of articles for Health Central on Pain and MS, covering the types of pain and treatments. These are general, just to give you an idea. I am sure there are some pains as well as some treatments that have been left out. Please let me know! The best idea is to talk with your doctor about any pain and how to treat it. Here is the article series — Pain and MS Is MS painless? When I was first diagnosed with MS, it was common for the MS literature to refer to it as a painless disease. I was dealing with a new diagnosis of a disease I did not yet understand and was wondering what…

  • Biking for MS

    16 Oct 2009 | 2:30 pm
    The National MS Society sponsors 100 bike events to raise funds for MS. All of the participating bikers have one destination — A World Free from MS! Sounds like a place I would like to go there one day. How about you? My friend, my college roommate many years ago, has a friend who was ready to bike, so she dedicated her ride to me. We met only online. Georgia sent these fabulous pictures of her with her New Orleans team on their ride. Unfortuneately, they were unable to complete the ride as scheduled because of Louisiana's famous weather. Too bad.They had fun and MS appreciates their…

  • Health Central

    16 Sep 2009 | 3:28 am
    Health Central is a network that provides information about 40 or more specific diseases and conditions. The information includes blogs and personal stories by people actually living with or touched by those conditions.I write for the multiple sclerosis section. Each condition also has a section for questions -- any question -- answered by others who may have experience with the question topic.Browse the site, share your stories or ask a question. I'll see you there!
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    Blindbeard's MS Blog

  • Fabric Of My Soul

    8 Nov 2009 | 4:21 am
    If you could take apart yourself, strip everything down to just your soul, what would be the very core of who you are? Your biggest passions in life. What makes you you, or makes you tick. The very fabric of my soul is 3 things. Just these 3 things that if I got rid of all the superfluous stuff would be left.BOOKS!The printed word is -- pardon the pun -- printed on my soul. I cannot be without a book or I get restless and crabby. I am a huge reader and will read anything if I can't get my hands on something better, even Sugarbowl's teen crap or my older sister's sappy romances. I never read…

  • I Have Absolutely Nothing To Say

    4 Nov 2009 | 3:36 am
    And I want to say it to you. I haven't been on here because I have nothing of interest to say about anything. We are all jogging along in our same old ruts that have been worn smooth by now. I have been suffering with the flu the last few days and between moaning, "H1N1, take me away!" and stoking the flames of my addiction to The Price Is Right game, I have not been even slightly busy. I am not even sure that I do have H1N1, but I like to tell Sugarbowl that she gave me the pig flu because she is such a pig. To which she threatens to punch me in the butt for saying because she hates being…

  • So Dude-ing Dumb

    21 Oct 2009 | 8:42 am
    Sorry for not getting back here for so long -- I'm sure you all had the hounds out looking for me -- but I have just fought off the last vestiges of a hideous, dark, ugly depression. My older sister is getting ready to have surgery tomorrow and I have been helping her get ready to be laid up for a while. She's having a hysterectomy and has that pre-surgery "must get everything done NOW" going on. My mom is coming down to spend the next 2 weeks with her to help out. I live just down the street and can't wait for my mommy to be here and spend 2 weeks with us. I would end that sentence with…

  • I Don't Get It

    8 Oct 2009 | 4:20 am
    I don't get a lot of things. I have come to terms with this. I am used to getting the joke last, not finding the deep hidden meaning to things everyone else saw immediately, and so on. So it should be of no surprise to anyone that when I just did a search about pronunciation to some of the names in the book I am currently enjoying, I stumbled across a deep intellectual discussion about the meaning of every little thing that happens in the book. There was a big argument about the author I am currently reading and an author of the same nationality and who was better. I read through the comments…

  • 2 Really Good Excuses

    1 Oct 2009 | 4:12 am
    I have 2 really good excuses for why I have not been blogging much lately. 2 Exceptional and jealousy-inspiring excuses... maybe I shouldn't share them, I don't want a price put on my head for being such an object of envy. But I am willing to put myself in harm's way to keep up the integrity of honesty in the blog-o-sphere.I have been is such a slump lately. I can't seem to shake off this apathy and depression that has wrapped itself around me. I'm having a terrible case of the "this-is-my-life?!" going on right now. I just can't care that my laundry is backed up and the house is threatening…
 
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    Trevis's MS Blog

  • Neuropathic Pain From Multiple Sclerosis

    admin
    20 Nov 2009 | 12:11 pm
    Multiple sclerosis can hurt! Pain is a real part of life with MS for over half of us. Pain can come in several forms and affect several areas of the body.  The pain I’d like to proffer for our consideration in this post is called neuropathic pain or neuropathy. This is a pain which is caused by a dysfunction of the peripheral nervous system (PNS).  Owing to the fact that we have a disease of the central nervous system (CNS), many of us may not be familiar with the PNS. These are the nerves which connect the limbs and organs to the CNS. While there is not suspected demyelination of the…

  • MS Recipe For Success: Apple Pie Oats

    admin
    18 Nov 2009 | 8:33 am
    Breakfast: It’s the most important meal of the day. We’ve all heard that and, at some level, we understand that eating a good breakfast is good for us.  We also all know that, MS or no MS, we don’t always do that which is good for us… Each month we take one of our posts here at Life With MS and chat about food.  This month, I have a special recipe from my friend Heather Nucifora R.D.  Heather and I have been part of a team teaching nutrition, sanitation, menu planning/shopping and cooking to home health aides these past few months. Home Health Aides are trained assistants that help…

  • A New Warning Label for Tysabri

    admin
    9 Nov 2009 | 2:23 pm
    Tysabri has been a popular topic here on the Life with MS Blog for several years.  In fact, one post on the subject has nearly 1,300 comments and is still an active source for people taking or thinking about taking the drug more than three years after we posted that blog. Events of this past month, and this past weekend specifically, bring the topic to the fore once again. In early October of this year, the pharmaceutical companies that make and market Tysabri were acknowledging 13 cases of the rare and potentially fatal condition progressive multifocal eukoencephalopathy (PML) Last week it…

  • Multiple Sclerosis On The Radio

    admin
    6 Nov 2009 | 12:06 pm
    As many of you remember, I’ve been lucky enough to host several webcasts on the topic of living with multiple sclerosis over the past few years.  This weekend, I’ll be on the other side of the microphone. Along with my MS specializing neurologist, Dr James Bowen, I will be a guest on the Saturday morning health program, Real Medicine with Carrie Curtiss. The program airs at noon on Saturday, November 7th (good grief…is it November already?) and we’ll be on for an hour (maybe a bit more if there are loads of questions). For those of you in the greater Seattle area, you can listen on…

  • Speaking of November, How is Your MS Today?

    admin
    4 Nov 2009 | 1:27 pm
    I love the folk song January Man by Dave Goulder.  The first time I heard the song was in a version sung by Christy Moore while driving a back road of County Kerry, in Ireland. In this song, each month is represented by a man.  “The poor November Man” as the song goes, “Sees fire and wind and mist and rain and winter air.” Good Grief…the November Man has MS! Each month we take time in the first week to allow for an ongoing discussion of how your multiple sclerosis is treating you.  This is a popular spot for comments and an open exchange of ideas and issues. I love to go back and…
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    The MS Recovery Diet

  • Pumpkin /winter squash Pudding Cake

    Judi B
    7 Nov 2009 | 1:31 pm
    Still using up my pumpkins...try this for Thanksgiving day dessert. Preheat oven to 350 degrees- serves 8 This is a dessert so do not consider it a daily event- if you want it to be a mildly sweet bread, use the loaf pan, a little more flour and less sweetener. Allow the bread to cool completely before serving it cut into thick slices or it will be a crumbly mess- still tasty though! dry ingredients: 1 ¼ cups mixed non-gluten flours (a mix of rice, buckwheat, oat, millet, quinoa, chestnut, coconut, and/or sorghum can be used) 3 teaspoons Egg Replacer or two Tablespoons ground flax seeds with…

  • Pumpkin and Winter Squash Season

    Judi B
    1 Nov 2009 | 12:21 pm
    There are two squash/pumpkin soup recipes in the book already but here I add anther suggestion. I had many volunteer pumpkin and squash this year (I didn’t plant any from seed- they grew out of our compost pile with imported manure from a local farm) and so I am using these vegetables up as fast as I can before they begin to show signs of becoming too ripe. So far I have used them in soups, stews, breads, and pudding. Roasted Pumpkin and Pepper Soup- serves 4 Wash 2 red and/or yellow peppers (remove labels) – and hold with tongs over a gas flame, or directly on your grill or on a broiler…

  • Spam should now be under control!

    Judi B
    15 Oct 2009 | 8:12 am
    For the moment we seem to have found way to foil the spammers- hooray! and we look forward to more of your wonderful contributions without being subsumed by the unwanted messages. Thanks for your patience.

  • Vitamin D in the Fall

    Judi B
    7 Oct 2009 | 7:39 am
    As the hours of sunlight decline in the fall season, this vitamin is in the news all over- not only as a preventative and aid for osteoporosis, but also for autism, breast, colon, esophageal and prostate cancers, slowing down age-related losses in memory and other cognitive functions, helping to support better breathing in asthma sufferers, support for diabetes, high blood pressure and MS and other immune system illnesses; it turns out to be a critical factor for the support of many healthy functions in many body systems. Most all cells in the body have receptors for Vitamin D. I just heard a…

  • Nori Rolled Stuffed Fish recipe

    Judi B
    1 Oct 2009 | 2:24 pm
    Nori Rolled Stuffed Fish serves 2 I bought 4 fillet of sole not realizing I already had about ¾ cup of leftover steamed salmon from a birthday celebration. So I thought…. Ingredients: 4 fillet of sole or other fairly thin mild white fish fillet approximately 7- 8 inches long (depending on thickness, the cooking time may vary) ¾ cup cooked seafood 2 toasted Nori sheets (seaweed pressed in flat sheets- see Kathi's Sushi Rolls pp 322 in MS Recovery Diet book) 2 teaspoons capers or minced olives minced garlic clove ½ teaspoon dried or 1 tablespoon chopped fresh dill and/or chopped parsley or…
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    My Journey: Living well with MS

  • Menopause ... what's that??

    14 Nov 2009 | 4:49 pm
    It's been a remarkable healing period and I have been able to avoid hot-flashes with the use of an Estraderm .05 patch (Estradiol). I like it because it is "plant based" and I am a bit more comfortable with that. Needless to say, it's working! I had my surgery on the 28th of October and it has been over two weeks and I have been able to hold the hot flashes and night sweats at bay. That is awesome! I would have expected what I experienced from my Lupron shots -- wicked hot flashes and night sweats but they have not happened. So I am a very happy camper.As I heal from this surgery and work on…

  • The Autoimmune Odyssey

    6 Nov 2009 | 7:40 am
    I am healing wonderfully from my abdominal surgery and I cannot believe that it has been a little over a week since my surgery. Since that time, I have spent my days moving around and trying to do as much as I can without stressing out my muscles. My pre-op bicycle rides definitely helped me a lot. I thought my right hip pain was gone ... but today the tightness and soreness is back. I am hoping it's just because of healing and overuse.I spoke with my new MS neuro Dr. Krupa Pandey about various autoimmune blood tests that she ordered. One of them was for Devic's Disease (which came back…

  • Post-Op and Doing Well

    1 Nov 2009 | 1:24 pm
    I had my abdominal surgery (oopherectomy and appendectomy) and am home healing, keeping hot flashes at bay with an .05 Estraderm patch. The doctor told me that I will need two weeks to really get the feel to see if they will work for the hot flashes. So far, so good.Now, simply healing and glad to be home.

  • Neuromyelitis Optica - Devic's Disease

    19 Oct 2009 | 3:25 pm
    I met my new neurologist and she is really a cracker jack. She is young and is on top of the research. She spotted what she thought were a couple of very small lesions on my May 09 MRI but they were tiny. My neuro testing went really well and she wanted to do some blood test on me for something called Neuromyelitis Optica (NMO) or Devic's Disease. This affects the eyes the most and this seems to be where my MS has concentrated the most. NMO is a cousin of MS.The blood test was developed by the Mayo Clinic and it is a very understudied "subset" of MS. My neurologist - Dr. Pandey - called it a…

  • Saying Farewell to Lyrica -- and the extra Pounds (I hope)

    13 Oct 2009 | 8:38 am
    Lyrica has been a fair and foul weather friend for me. But has it really been that much of a friend? Let's evaluate ...I have been taking Lyrica since 2006 or 2007. Since that time I have packed on 40 horrific pounds and moved through wardrobe sizes like no one's business. I was happy to be a 12--very, very happy. Then a 14, then a 16 and most recently for my Dad's funeral, I think my suit was an 18. That's a nightmare for me ... a complete and absolute nightmare!!!I have been juggling medications and a bunch of them are weight gainers. But the one that leads the list is Lyrica. Google…
 
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    My Journey with MS

  • Here we go again......

    Kimberly
    17 Nov 2009 | 11:31 am
    Here I go again. I'm doing my best Katherine Hepburn imitation without even trying and my skin is so hypersensitive it feels like I've rubbed an entire container of Icy Hot on my legs. Just in time for Thanksgiving. I absolutely, positively am NOT calling my Neurologist because I am not doing steroids. I simply refuse to be sick over the holidays! For that matter I refeuse to have an exacerbation right now either. Mind over MS, Mind over MS, Mind over MS!!!!

  • Trip to the ER

    Kimberly
    15 Nov 2009 | 10:03 am
    Ahhh...the opportunity to spend a nice quiet Sunday. Go the church then home to relax. NOT! I took a tumble this morning (My balance is always worse in the morning. Not that it's really good any time), and injured my right thumb and wrist. I called my MD and she met me at her office. (Imagine a Doctor that meats you on a Sunday in their office)! She sent me over to the ER for xray's. She will get the report tomorrow. I don't think the wrist is broken but the thumb hurst like the blazes. My hand is a bit swollen as well. Go figure. The oys of MS!

  • I'm baack with a question for you.

    Kimberly
    10 Nov 2009 | 2:45 pm
    Yes, I know. As several of you have pointed out through email, I dropped off the radar for a bit. I've had some stressfull life "things" going on and withdrew to deal with them for awhile. My world has now "righted" itself back on it's axis and for now, all is well. I'm, like the rest of you, starting to get busy with the holidays. My shopping is just about completed (thanks to the internet) and I've managed to do it without exhausting myself. The challenge is always how to manage off the holiday stress. Even when it's something you enjoy the stress and MS can rear up and bite you on the hind…

  • Happy Monday :0)

    Kimberly
    26 Oct 2009 | 6:49 am
    It's FINALLY here.....not Monday, heck that rolls around once a week. FALL is here to stay! Te days have been crisper and the nights down right cold. We actually put our winter quilt on the bed yesterday. After Fall dancing in and out all month, it's finally settled in for the season. I'm just about finished with my grandaughters quilt. Just putting the decorative buttons on and it will be finished. Since I had extra material I went ahead and made a pillowcase to match the quilt. I'll snap a few pictures when it's all done. Another week begins. This will be my last quiet week until the…

  • Can I get off now?

    Kimberly
    21 Oct 2009 | 11:28 am
    I often visualize MS as a Carousel. Not one of those brightly colored kiddie-go-rounds but a dark menacing one. One that you would see in your nightmares. The horses are all grey and dark, their mouths open in a mancing manor.  The riders are all stapped on. Unable to free themselves and get off the ride that spins out of control. Pretty dark huh? Well, so is MS at times. (However, believe it or not my mood is actuallly pretty good today. Reflective, but good). Often the frustrations I feel related to MS are self induced. Mostly from trying to figure out how to second guess and "beat"…
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    My MS Journal

  • Resting

    19 Nov 2009 | 1:57 pm
    Sorry that it has been a little while since I last posted. I have been extremely tired lately. I was told that the less steroids you are on the more fatigue you can experience and so I am guessing that is what is happening with me right now. However, this whole process does a number on the body and it just may be that my body has needed more rest in order to heal. Whatever the case may be it is quite the adjustment. Also being back at home is quite the adjustment. As happy as I am to be here, I never realized how difficult it could be. It is hard to be home and mentally feel as if I should be…

  • I'm Home! :)

    9 Nov 2009 | 12:59 pm
    I am happy to report that I am home! I had my MRI and last appointments on Friday then hit the road. It was pretty late when we got home and I was tired on Saturday, most likely from the traveling. I unpacked a few of the boxes but most of it still needs to be put away. I'm taking my time. Mainly because I am doing some reorganizing and have decided to just take it slow....I really don't want to over do things my first week home. Plus, it has been nice to just hang out with the family. Most of the weekend was spent with my son and we picked Buddy up Saturday morning. He was SO excited to see…

  • Hair Loss, Nausea.....fun times with chemo.

    29 Oct 2009 | 6:44 pm
    The other day I decided to try out one of my wigs. It was the first time that I actually wore one and I have to say it wasn't too bad. You see, I haven't really felt like wearing one because well, I thought they would be uncomfortable and I was blessed to be given some really cute hats and scarves, so that's what I have been wearing. Anyway, I have this really cute hat that just doesn't look right without hair and let me tell you, I really have NO hair....okay some fuzzies just starting to come in, but for the most part NONE! LOL I was not so sure about the idea of a wig at first because I…

  • Getting Ready to Go HOME!!! :)

    28 Oct 2009 | 6:45 pm
    That's right, I get to go home soon and I almost can't wait. It will be SO nice to be back at home, in my own home, own bed, with my own things. Not to mention to be around my whole family....no longer needing my family to come back and forth and trade off so that I am covered. So this week is not too busy. Actually I'm done for the week. I had bloodwork and clinic on Monday, an appointment with my Endocrinologist yesterday and a Long-Term Follow-Up/Discharge class today. Next week will be BUSY though. Not only do we need to pack up our belongings and clean the apartment (which is actually…

  • Day 32!

    23 Oct 2009 | 3:26 pm
    I have officially made it past the one month mark! WHOO HOO!!!! For the most part things are going really well. I had a couple bad days this week but I'm blaming the steroids for that. I don't really know if it was the steroids, but that's what I'm going with. LOL Anyway, Tuesday and Wednesday were really bad for me. My blood pressure was high and my blood sugars were REALLY high. I am currently tapering off the steroids and there are all kinds of side effects that can happen with that so I'm assuming that's all it is. Tuesday was so bad that my head was spinning, I was having headaches....it…
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    I'm an MS Activist

  • Chat with White House Advisor Valerie Jarrett

    28 Oct 2009 | 11:27 am
    You are invited to an online chat with White House Senior Advisor Valerie Jarrett to discuss how health insurance reform will impact minority communities and all Americans.3:30 p.m. EST, Monday, November 2Click here to submit your questions today. Join on Monday at WhiteHouse.gov or at Facebook.com/WhiteHouse.

  • In the News: Oregon Politician Lives with Multiple Sclerosis

    26 Oct 2009 | 6:53 am
    Bill Bradbury isn't just running for Oregon governor. He's zipping — on a Segway.Using the personal transporter is one way the Democratic politician deals with the effects of multiple sclerosis. He was diagnosed with the disease 30 years ago, but that hasn't stopped him from becoming one of the most exuberant and popular figures on Oregon's political scene.Tall and lanky, he glides into campaign events on his electric standup vehicle, his booming laugh often heralding his arrival. The disease has affected his physical skills, he says, but not his mental abilities or his capacity to…

  • In the News: City Officials in Wheelchairs for a Day

    20 Oct 2009 | 8:37 am
    As he approached the elevator doors in town hall, Edison Mayor Jun Choi swung his wheelchair around and backed his way in. From there, he pushed the metal wheels from the tax office to the clerk's desk, out the front door and over to the courtroom and police station.Choi isn't disabled. Nor is Edison Police Chief Thomas Bryan. But the two rolled around town hall in manual wheelchairs yesterday to see how well the building is adapted to the handicapped. Following them in a motorized chair was Jackie Jackson, a South Plainfield disability activist who organizes the accessibility tours in…

  • Support Affordable Access to Prescription Medications

    16 Oct 2009 | 6:58 am
    On Tuesday, Congressman Hank Johnson (GA-4) introduced a bill that improves prescription drug coverage, under both public (Medicare Part D) and private plans. The legislation is titled the Affordable Access to Prescription Medications Act of 2009 (H.R. 3799). This is companion legislation to S.1630 that was introduced by Senator Jay Rockefeller (D-WV).People with multiple sclerosis could save thousands of dollars a year on their disease modifying therapies through this reform. The measure would cap monthly out-of-pocket costs for prescription drugs at $200 per prescription, or $500 per month…

  • In the News: For Kilroy, MS Makes the Message Stronger

    6 Oct 2009 | 7:45 am
    It was literally a pain in her neck that started Rep. Mary Jo Kilroy’s (D-Ohio) problems in 2003. Then the pain spread to her shoulder and her arm, and she became more and more worried about what was wrong. “Oh, there were all kinds of theories, and I was one of those bad patients who used to, like, wake up in the middle of the night and worry about what it was and go on WebMD and get a diagnosis myself,” she recalled last week, laughing. The problems accelerated until one night when Kilroy, a Franklin County commissioner at the time, was at a meeting of the Ohio Democratic Party…
 
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    activisMS

  • Partnership to Fight Chronic Disease

    16 Nov 2009 | 10:20 am
    On Friday, MS Activist Alex O'Connor attended the The Old North State Medical Society's Leadership Summit. Dr. Ken Thorpe, Executive Director of the Partnership to Fight Chronic Disease was honored for his work on health care reform. Here are Alex's take home points from Dr. Thorpe's speech on passing health care reform:In 1993, during the debate on health care, Thorpe described the attitude of policy makers was to get your first choice and if you could not have your first choice you chose the status quo. This time around, Thorpe said no one will get their first choice, instead changing the…

  • Register Now to learn the latest about Health Care Reform

    2 Nov 2009 | 1:02 pm
    On Wednesday, November 4 at 7pm, US Representative Bob Etheridge will hold a teleconference to discuss the latest House Health Care Reform bill which was unveiled last week. Rep. Etheridge serves on the US House of Representatives' Ways and Means Committee. The Ways And Means Committee is one of the three US House Committees that has worked on health care reform legislation. Click HERE to register for the call. Your information must be submitted by noon, Tuesday, November 3, to participate in Rep. Etheridge's Teleconference Town Hall Meeting. Health care reform is one of the most pressing…

  • How does Ore. candidate roll? With MS, on a Segway

    26 Oct 2009 | 7:25 am
    Enjoyed this Associated Press article about Oregon Gubernatorial candidate, Bill Bradbury, living and "Segwaying" with MS. While I do not know Mr. Bradbury, I do know many other people advocating for people living with MS. Thank you.

  • Listen to a Quick Clip on Health Care Reform

    23 Oct 2009 | 7:52 am
    The North Carolina Chapters of the National MS Society are very lucky to have the policy and political expertise of Mike Daisley. Mike is a long-time Trustee of the Mid-Atlantic Chapter and has served on the Chapters' statewide Government Relations Committee since it formed in 2001. Because of Mike's expertise, Charlotte radio station, WBT often asks Mike to comment on local, state and federal elections as well as important policy topics. Check out Mike's commentary on Health Insurance Reform.

  • Senate Votes No to Public Option in Health Care Bill

    30 Sep 2009 | 9:39 am
    On September 29, 2009 the US Senate’s Finance Committee voted against two amendments for a public health care option. Opponents to the public option plan believe that government would eventually have full control over health care, leaving private insurers to go out of business. However, Public Option proponents reject this claim, stating that public option would provide needed competition for private insurers while making health coverage accessible to millions of people currently lacking health insurance.The Finance Committee is the last congressional panel to consider health care…
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    MS Musings

  • Imitating Humpty, Mr. Humpty Dumpty

    ABQboarder
    31 Oct 2009 | 11:56 am
      Last month I had what I consider my first official MS fall—almost four years to the day of my first relapse. Now I’ve had falls before, but they were “planned” falls, where I knew my hosed legs weren’t going to get me far enough—the resulting teetering crash and burns were wholly expected. And the “falls” were more collapses of exhaustion than true face plants. But this one fall, it was as if a gremlin reached out and grabbed my left leg. I clunked down in such dramatic fashion that Humpty himself would have been proud. I surveyed my splayed-out body for damage…

  • “Your drugs aren’t working”

    ABQboarder
    12 Aug 2009 | 10:45 am
    When I heard my MS specialist say that, it was like a swift kick in the stomach. And the dude giving me said kick was wearing metal-tipped baseball spikes. Oomph. That hurt. Over the past few years, I’ve given myself well over a thousand injections. And honestly it’s been super easy. Zero side effects, rare injection site reactions, and only the once-in-a-blue-moon painful jab that elicits a cursing. But a relapse in May, my second in just over a year, was a sobering experience, and not just because I had to lay off beer while I was taking 1,200 milligrams a day of prednisone. It called…

  • I Shaved My Head

    ABQboarder
    30 Jul 2009 | 7:08 am
    On July 7—an auspicious day in many cultures—I went drug free in preparation of going on a new treatment within the next couple of months. To commemorate this next stage of my battle with this disease, I thought about getting a tattoo or piercing. And then I thought about how much needles and pain freak me out. A HELLA LOT. (Heck, I gave up watching medical shows years ago for the sole reason of seeing too many needles stuck in too many arms.) I considered the henna thing, which I did in Morocco, but that seemed too transient and too, well, girly. Skydiving entered my mind and then…

  • Seizing the moment… and not letting go

    14 May 2009 | 1:05 pm
    The other day I was reading about a fellow MSers dilemma. Recently diagnosed, he wondered if he should go with his son on a long-planned camping trip—in the heat, no refrigeration for his meds, and an uncertainty about how he would fare in the back country. There should have been no dilemma. If you think you can do it, do it. Don’t wait. Don’t delay. Don’t ever look back and say, “I should have.” Multiple sclerosis is an unpredictable beast that can be as mild as a bell pepper or as nasty as India’s Naga Jolokia, the world’s hottest chile pepper. So last month when Wolf Creek…

  • If you know more about MS than your neuro…

    16 Apr 2009 | 10:42 pm
    When you first get diagnosed with multiple sclerosis (or at least when the doc seriously suspects it), there are a number of different coping mechanisms. You might try to see just how many tears you can cry before your eyeballs dehydrate and start to deflate. You might watch a marathon of Happy Days episodes just because of the show’s ironic title, but when they sing the theme song at the beginning of every half hour, you substitute Crappy for Happy (sing along with me now, Sunday-Monday Crappy Days, Tuesday-Wednesday Crappy Days, blah, blah, jeeze that’s an annoying song). You…
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    Carole's MS Blog

  • Follow Up On Some Research

    21 Nov 2009 | 6:13 am
    Here is a very good summary about "Research into Blood Flow in the Brain and Venous Insufficiency, or CCSVI, in MS".This research was in the news a couple of months ago and several bloggers did discuss it. I find this article is written in plain language. Well, as plain as any scientific research can be made. There is also a FAQ list that you might find helpful.My understanding is that blood flow problems may be causing the inflammations that result in myelin damage. The researchers are building on studies that were abandoned years ago, as MS research moved toward studying the immune system…

  • The Results

    19 Nov 2009 | 2:25 pm
    The neuro appointment went smoothly My balance is not so great and my reflexes aren't either, otherwise physically, things aren't that bad. My doctor wants to try mega doses of vitamin D. This seems to be the latest treatment for MS. I have to have a blood test first and then will most likely take about 4,000 units a day to start. I was just too tired to go for the blood test today. I'm already taking 1,000 units a day as a supplement, so I'm part way there. I don't know what the big deal was about the Health Canada report. The doctor there DID, recommend for me to work at home and my neuro…

  • I Said Doctor, Doctor, Mr MD

    18 Nov 2009 | 7:01 pm
    Have my Neuro appointment in the morning. Not exactly over the moon about that.What's the point? At least I will finally get my hands on the Health Canada report I had to fight so hard to get released. Tonight I don't feel like a bag of bones. I feel like a piece of raw bacon lying around.You want a nice, no whining blog ? Sorry, guess you will have to go elsewhere.

  • Dignitas

    17 Nov 2009 | 7:04 pm
    Not much in the mood for writing. Way too tired. Here's an interesting article about the Dignitas clinic in Switzerland. 80% of people who get permission to end their life decide not to That's how effective the counseling is. We need to have a dialogue here in Canada to allow assisted suicide No I'm not contemplating it. I just think it would be worthwhile to know that if things were really bad I could die with dignity.

  • It Started With A Mirror

    15 Nov 2009 | 9:23 pm
    Watching the silent version of "The Thief of Bagdad' with Douglas(hunk) Fairbanks.These silents films have been given a boost with new music soundtracks It started with the installation of a new mirror. I was at a discount decorating store on Saturday looking for Christmas cards, and noticed a dusty mirror sitting in a corner. It was such a good deal I couldn't resist. Oval shaped with an ornate antique gold coloured frame. Today I put it up and it looks pretty snazzy. Had one of those rare bursts of energy, so next thing you know I'm practically reorganizing the entire upstairs of my house.
 
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    Carnival of MS Bloggers

  • Carnival of MS Bloggers #49

    19 Nov 2009 | 7:00 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Sherry (aka momdukes) blogs at HealthCentral. She is one to always share a kind word or two and often makes me smile. I hope you enjoy her Walk Through Photographs.MS through photographs, tell me your thoughts.......Butterfly KissesEach morning regardless of MS, a kiss is what wakes me up!Come Sit With MeSometimes when I am feeling down, I find a nice place to sit and to be alone with my thoughts.The Lone BenchSometimes when I need a place to go and gather…

  • Carnival of MS Bloggers #48

    5 Nov 2009 | 10:20 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Sherry (aka Have Myelin?), who blogs at Words Salads: The Demyelination of Me and Postcards of My Life, recently did a little Four Wheelin' and has brought back some great photos. I hope you enjoy this sampling as much as I have.Life is like this: a journey of unknowns with many bumpy mistakesSometimes it's a long climb backWhere the wild things areMLK: “Carve a tunnel of hope through the dark mountain of disappointment"India Arie: "Beautiful Flowers", a…

  • Carnival of MS Bloggers #47

    23 Oct 2009 | 10:54 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Poetry, Positivity, and BattlesHaiku - Caretaker Exchange by Judy of Peace Be With You I have MS butMy caretaker broke his hand.I am caretaker.Marriage vows promisedIn sickness, in health, rich, poorPartnership defined.I am nurse and cookDizzy, foot dragging, stumblingA delicate act. Staying Positive is Hard! by Maryann of azoyizes and MSI'm finding it hard to stay positive. Okay, I started Tysabri and I've only had one infusion. I did notice that I had…

  • Carnival of MS Bloggers #46

    8 Oct 2009 | 9:46 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Disability, Poetry, and SuperpowersAre We Disabled? by Jackie of MSunderstoodSo I have struggled with this question often, mostly when its simply put on a form or something. Disabled...check yes or no. If only it were that easy.I have this inner battle whenever I see this question put so nonchalantly on a piece of paper or a radio box online. I want more than a yes or no. I want lines. I want a "maybe" option. I want a "sometimes" option. I want a "depends…

  • Carnival of MS Bloggers #45

    24 Sep 2009 | 9:52 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Inspiration, Humor, Good News, and ImmortalityMS: What Will the Neighbors Think? by Jen of MS StrengthI’m remembering back when I lived with my friend more than a decade ago. She had a townhouse and was very mature: she also had a stable job, a mortgage that she financed on her own, a pet, a decent car—okay, she was 8 years my senior so it made perfect sense– but what I most recall about my time there was the family next door. A husband and wife in…
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    Living! with MS

  • After the darkness there is sunshine

    21 Nov 2009 | 10:22 am
    It seemed I dwelled in shadow. Work ended but the shadow it cast was long. I felt sick in my soul. How could a place that looks so nice from the distance be so cancerous inside? It seems to suck the very souls and humanity from those who enter its doors. I have seen horrors this year that I could hardly even have imagined. Yet I keep going back, to fight another day. I am not ready to give in and let apathy and negativity destroy a large part of my world.I came home and let sleep obliterate all things. I awoke from the fog of an afternoon nap, still sick in my body and soul. I tried to forget…

  • I dream of weekend

    19 Nov 2009 | 5:45 pm
    It's almost all I can think about. One more day, one more day... My formal teaching observation is tomorrow but I am unconcerned, I just want it done and the work week to be over. No crazy weekend plans but I am ready to just lay around and chill out. Then, two days of work and five days off. I'm so ready--

  • Graduate School Part Deux

    15 Nov 2009 | 2:39 pm
    I have decided I want to embark on another round of graduate school. This time I thought I would focus on the pursuit of a frivolous masters degree that will in no way serve a definitive career track (LOL). I now see that is the only way for me to do it. I have decided to apply for an online MFA in Creative Writing at Naropa in Boulder.Today I looked over the application process. It is lengthy and involved and the suggested deadline is January 15th. Piece of Cake, right? Then I looked at what is involved. There is the ususal application and transcript stuff. There are the letters of…

  • In case the Spoon Theory fails you...

    14 Nov 2009 | 9:55 am
    Joan from a Short in the Cord just sent this great link to me. It is the Spoon Theory for all the lushes in your life. I love the Spoon Theory but The Beer Theory really works for me. Check it out!

  • All the Blogs are Updated!

    10 Nov 2009 | 6:19 pm
    It was a long and busy weekend. Really, busier than I hoped for but good. I have just finished updating all four of my blogs so drop by and check out my latest work.Be sure to check out Poems from the Blue Plane and get smothered by love. Denver Refashionista offers advice on "Age and occasion appropriate dress" this week. My Firebird Yoga site offers a rationale for "Pushing in Yoga."While you're browsing, be sure to visit the sites of some of my "Followers" on this blog. It's also worthwhile to check out all the links to great blogs featured on this page. Wherever your surfing my take you,…
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    Maggsbunny

  • Photo’s and a vlog! All comments welcome ;-P

    maggsbunny
    17 Nov 2009 | 2:15 am
    I’ve been meaning to take a video of Beary greeting Michael when he gets home from the office, because it is too darn cute. No-one can resist an animal that gives you such a super-duper royal welcome home! Anyway, so a couple of days ago I took the video. Turns out Beary is just as bad as I am at making eye-contact with the camera! Please notice, in the beginning, how she jumps up on the window-sill to see his car arriving, and appreciate why I had to get shorter lace curtaining My mom has seen the  couch-jumping festivities, and all she had to say was that she hopes we are saving for…

  • Aw….

    maggsbunny
    14 Nov 2009 | 4:41 am
    …Michael left the sweetest comment on my last post… “You and Beary are clearly the prettiest roses in the garden “ Ooh, that does earn him a brownie point or two. Just as well, because he lost a few yesterday… We have a CD in the car with Foster & Allen’s Maggie on it. I do ♥ that song. When I was a little girl, my dad told me that that song was written especially for me. And I believed it for quite a few years, lol. (I didn’t pay attention to the actual words, just the constant repetition of my name). Anyway, now I think the words are rather…

  • Scraping the bottom of the barrel…

    maggsbunny
    10 Nov 2009 | 8:13 am
    *sigh* Beary is not the drawcard that she once was. Not even one comment on her vlog. Shame. She keeps checking if someone wrote something nice about her, but nothing doing. And as if that isn’t bad enough, there is a fat ginger cat flaunting itself on the other side of the fence and it’s driving her nuts. The insolence of that cat is too much to be born. On the upside, at least it’s distracting her from the lack of comments on her vlog, lol. Anyhoo, you know blogging fodder is thin on the ground when you are reduced to posting photo’s of yourself like this: I take a…

  • Another vlog, starring…Beary! :-)

    maggsbunny
    7 Nov 2009 | 12:32 pm
    I’ve read before that Chows are a somewhat lethargic breed. They’re known for being good apartment dogs. Beary, on the other hand, is calm enough for most of the day, but every now and then she gets this spurt of energy that needs urgently to be dissipated. We do take her for walks very regularly. This week has been very rainy, however, and she hasn’t gotten out much. Now, for your viewing pleasure, is rare footage of the mythical Crazy Beary. Observe how small our garden is, and how expertly she navigates it at great speed, in the rain…and in between rose-bushes with…

  • Quick pop in on BlogWorld…

    maggsbunny
    6 Nov 2009 | 7:40 am
    I have started working on one of my grade eight pieces, Chopin’s Grande Valse Brilliantine. So far, so good. I was afraid I wouldn’t be able to handle the virtuosity of grade 8level. But as far as I can tell, the main difference between that and my old buddy, grade 7 is the workload, more than anything else. The Grand Waltz is 9 jam-packed pages of sheet-music. Yay! I only hope my fingers don’t drop off after I’ve finished playing that sucker in one sitting. Actually, therein lies another story of me bragging about how much I have recovered, how much more stamina my…
 
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    Brass and Ivory

  • RA and Heart Disease

    21 Nov 2009 | 10:02 am
    What does cardiovascular disease look like in rheumatoid arthritis? The chronic inflammation which damages joints also takes its toll on the heart and arteries. The doctors at Johns Hopkins provide a summary of recent studies focused on RA and heart disease. Compared to the general population, rheumatoid arthritis patients have a significantly increased risk of heart attack and stroke and a shorter life expectancy. • Heart attacks are twice as common among women with rheumatoid arthritis as among those without the disease.• Atherosclerosis ("hardening of the arteries”) starts early and…

  • Carnival of MS Bloggers #49

    19 Nov 2009 | 7:00 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Sherry (aka momdukes) blogs at HealthCentral. She is one to always share a kind word or two and often makes me smile. I hope you enjoy her Walk Through Photographs.MS through photographs, tell me your thoughts.......Butterfly KissesEach morning regardless of MS, a kiss is what wakes me up!Come Sit With MeSometimes when I am feeling down, I find a nice place to sit and to be alone with my thoughts.The Lone BenchSometimes when I need a place to go and gather…

  • Patients for a Moment at ChronicBabe

    18 Nov 2009 | 7:36 am
    The 12th edition of Patients for a Moment is hosted by Jenni of Chronic Babe. Do go check out 24 of the best patient blogger posts of recent weeks.Thanks, Jenni, for including my post at HealthCentral about the FDA, Social Media, and Pharmaceutical Advertising.

  • Report Adverse Events to MedWatch (FDA)

    17 Nov 2009 | 3:05 pm
    The FDA Safety Information and Adverse Event Reporting Program “Your FDA gateway for finding clinically important safety information and reporting serious problems with human medical products.” Consumers and the Food and Drug Administration (FDA) Consumers play an important public health role by reporting to the FDA any adverse events (unexpected side effects) after using a medical product, or other problems with any products that the agency regulates. Timely reporting allows the agency to take prompt action. There are a number of ways you can report problems to the agency, depending on…

  • Welcome to the MS Blogging Community

    16 Nov 2009 | 12:42 pm
    MS Day DreamerAn ordinary person, an ordinary day dreamer, who happens to have MS.From what I read, I'm lucky. I'm not seriously impacted, I have some annoying symptoms but I can live with that. From the way my Dr talks that may be all i have for a long long time. He seems to think that today's newly diagnosed patients aren't as apt to suffer all the severe symptoms and disabilities as those that have had the disease for a long time, and/or haven't taken any of the meds to prevent things from getting worse. yet, I don't find anyone like me online. maybe that is because the ones that are…
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    A Short in the Cord

  • Delaware Area MS Chat Friday: Music as Therapy

    11 Nov 2009 | 7:00 am
    Delaware Area MS On-line ChatFriday 13 November, 7:00 - 9:00 pm (eastern time)Chat Topic: Music as TherapyThe Fall 2009 edition of Momentum, the NMSS magazine, has an article about the therapeutic effects of music. What do you think? Does music energize you? Soothe or relax you? Do you use music as a complimentary approach to symptom management?Let's chat about this and anything else that comes up.If you want to connect on-line with others with Multiple Sclerosis in Delaware and surrounding areas, please join us THIS FRIDAY any time between 7:00 - 9:00 pm. Show up when you want, leave when…

  • Modified Chat Schedule for Nov and Dec

    1 Nov 2009 | 8:58 am
    Delaware Area MS Chat - Modified Schedule 2009 (Next Chat: Nov 13)There will be ONE chat per month for November and December, on the second Friday, 7:00 – 9:00 pm (or longer if people want to stay).Future Topics: November 13: Music as TherapyThe Fall 2009 edition of NMSS' magazine Momentum has an article about the therapeutic effects of music. What do you think? Does music energize you? Soothe or relax you? Do you use music as a complimentary approach to symptom management?December 11: Managing Holiday StressYes, it's that time of year when the world falls apart. As Mandy Crest notes: "The…

  • Delaware Area MS Chat Friday: Halloween Party

    21 Oct 2009 | 8:09 am
    Delaware Area MS ChatFriday 23 Oct, 7:00 - 9:00 pm (east coast time)Virtual Halloween Party Let's have some fun! Come in virtual costume and bring virtual treats and drinks. We will have virtual prizes for the most imaginative imaginary costume and treats.If we feel like it, let's talk about the masks we wear. Do you mask your symptoms? Do you hide your problems or symptoms to protect your family and friends or yourself?Again I will refer to a quote from Shauna's Bugs Bikes and Brains : "Anyone who has ever gone through a serious illness has probably been told that they are "so strong," when…

  • Another Fun Chat!

    10 Oct 2009 | 11:05 am
    Thanks to the eight chatters who kept me laughing last night! We had two new chatters from Delaware, Gina and Cheryl.Among other things, we discussed transportation options (from DART Paratransit to vehicle modifications), Medicare (had lots of questions but no answers), and the University of Delaware MS Assessment clinic (lots of positive feedback for that program). There was also some discussion about boning a duck and power tools, which sent me into fits of laughter. I guess you had to be there...As promised, here is additional information about a few of the topics.Go to the DART…

  • Delaware Area MS Chat Friday: Transportation

    7 Oct 2009 | 6:00 am
    Delaware Area MS On-line ChatFriday 9 October, 7:00 - 9:00 pmChat Topic: TransportationDo you have transportation issues? Do you still drive with no problems, or do you need alternative transportation options? Do you have modifications in your car? Do you use paratransit? What success stories can you share?Let's chat about this and anything else that comes up.If you want to connect on-line with others with Multiple Sclerosis in Delaware and surrounding areas, please join us THIS FRIDAY any time between 7:00 - 9:00 pm. Show up when you want, leave when you want. Chat from the comfort of your…
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    Navigating the Journey of MS

  • go away negativity

    18 Nov 2009 | 10:25 am
    I recently noticed how many people in my life are so negative. Surely there is something in your life that makes you even a little happy?If not, please just go away.I, like all of you other MSer's, have our times when we just want to be left alone. Times when we feel awful but forced to put that smile on our faces. Times when our workload is too much we want to pull our hair out.But even during these times we can muster a smile, a giggle, maybe even a hearty belly laugh.Things have been crazy busy in my life lately. I don't have time to give up. I turn on my Ipod and sing. Of course, the dogs…

  • Bring back customer service...please

    14 Nov 2009 | 8:42 am
    Last night we attempted to go out for dinner. Something we rarely do because we both like to cook and we like to eat healthy.Our first attempt was a favorite hangout for us both. Great food and just an overall fun atmosphere. Well we couldn't find an open parking space and we even tried on street parking so we decided to try restaurant #2.This next place is in a hotel. We walked in and we waited for the hostess. and we waited and we waited. She could see us but for some reason decided to pretend she couldn't. You know the situation where the employee will oversell the people she is with…

  • another credit card nightmare

    10 Nov 2009 | 11:02 am
    Yesterday we received a letter from our credit card company that our card had "been compromised" and for security they were cancelling the card and reissuing one.We also received the new cards. So I have spent all morning changing the credit card # on our accounts that bill autmoatically each month. The newspaper, MSN, a few other accounts.I got to the last one and would not update online. I called customer service and they couldn't figure it out and they told me to call the bank.I called the bank and they called the one account with me to resolve it only to find out the security code was…

  • Our weekend

    9 Nov 2009 | 11:02 am
    Saturday we ran a bunch of errands including going to the grocery store. Mark also fixed a bunch of stuff around the house. Yippee !Sunday morning we decided to do the power shop thing and went to the outlet mall before the Packers game ( which I could have missed )I was feeling good so I brought the walker but only used it in one store. Otherwise I just used my cane. Which was quite a site wth my broken toe. haha !I was proud of myself. I tend to analyze things so much that my fear of falling exists when I am sitting. I didn't fall, I hardly wobbled. Other than the good leg and its broken…

  • busy busy busy

    6 Nov 2009 | 1:18 pm
    I have been so busy lately I have been ignoring my blog.Thanks for the emails reminding me of it. haha !Business is good so I have been wrapped up in orders and such.Mark is in town ( for once) so we are trying to get caught up on all thestuff I need to get done but need assistance with.We had a pile of brances from a bush Mark cut down and couldn't find anyonewho wanted to earn a few bucks to haul it the dump for us.All these people out of work, with a truck, and nobody would get off yheir lazyrear end to earn a few bucks. Yesterday I called everybody I knew begging for help.Well, I know…
 
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    Chain Reaction

  • Anxiety, High Blood Pressure and Stress

    20 Nov 2009 | 8:20 am
    Yup. It's back. I have been doing so well at work for 4 months now that I've taken on much more responsibility including some management. My mind loves it, my body doesn't. I've been through this so many time with my past 2 jobs and I just can't figure out the balance. The Ying/Yang. More than anything I think the negativity at these jobs just pushes me over the limit.My Boss was away this week so I was in charge of 11 people. 11 people who are working somewhere they don't want to be and are unfulfilled. 11 people who just complain all day about the heavy workload and the lack of help they…

  • The Color of Life

    13 Nov 2009 | 6:56 pm
    Gerber DaisiesI'm walking through the mall with my friend "K", taking in all the bright colorful clothes and shiny jewelry. Looking for a new perfume we stop in the Macy's fragrance department and ask for samples. Alas, the clerk informs us that the perfume companies are cutting back and she has very few samples. So, we go around spraying scent after scent until they all blend together and we can't smell anything but a mix of perfume in the air. I determine there is one scent I like, called Daisy by Marc Jacobs. Ironically, my favorite flowers are Gerber Daisies and my dog is named Daisy.

  • How These Five People Fight MS

    19 Oct 2009 | 8:12 pm
    Here is an excellent new website with some superb bloggers talking about how they live victoriously with MS. Check it out - http://www.howifightms.info/

  • October is my favorite Month...

    4 Oct 2009 | 7:45 am
    Hello! Long time no "see". Life is finally calming down a bit for me now so I am going to blog on the latest and greatest.MoveWe've been officially moved in with my in-laws for 1 full week now and so far so good. We'll see if I feel the same way after 1 month of living here. Last minute issues like my in-laws telling us "No you can't store your furniture and stuff here" lead to more money spent on a storage unit and such but hey, at least we have a roof over our heads and the apartment complex who was going to sue us for last months rent has agreed for us to just pay in payments.Job(s)My job…

  • Boxes, Boxes and more Boxes

    10 Sep 2009 | 5:38 pm
    Hubs and I have begun packing up our belongings to move in with my inlaws in 2 weeks. Not the ideal situation, but we are completely out of options. Hubs is still unemployed and my salary cannot support us. This is the most humbling experience EVER. Our age and having to accept help from family, God is constantly teaching us lessons I suppose. Selling off furniture so we don't have to store it, going from a place of our own with just us and our dogs to living in a small ranch house with PARENTS. If only we had another option.I will have to drive about 90 miles each day round trip for…
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    Jim's DEEP Thoughts

  • God is really teaching me lately.......

    21 Nov 2009 | 10:55 am
    In relation to justification and sanctification, there is a substantial difference and that Luther did not protest in vain. Scripture teaches that justification is a declarative act of God, not a process. Jesus promised immediate salvation to believers: “He who hears My word, and believes Him who sent Me, has eternal life, and does not come into judgment, but has passed out of death into life” (Jn. 5:24). That verse clearly states that on the basis of faith alone, sinners pass out of death and into eternal life. Sanctification is a result, not a prerequisite. “We are His workmanship,…

  • Sin and Grace

    26 Oct 2009 | 4:00 pm
    I am thinking of my life and I am sure this is affecting many other Christians. Why is it that so many us professing Christians make no spiritual progress, and indeed make no efforts to grow in grace? Is it possible to be a Christian and yet ignore the desire to grow in grace? If I have no concern to grow in grace then I am not abiding in Christ. Grace is the enabling gift of God not to sin. Grace is power, not just pardon. Grace does not grant permission to live in the flesh; it supplies power to live in the Spirit. Sometimes I am too apt to rest on faith, and to think that this will save me…

  • I am still spiritually ignorant.........

    24 Oct 2009 | 8:49 am
    We have to remember that its not the scriptures that are corrupted so before we blame, we are to lay blame where it is deserved. This is where we should have a serious responsibility in this matter to search in our hearts about our motives when we try to glorify God. Paul said, "But if we judged ourselves, we would not come under judgment" (1 Corinthians 11:31). We can learn from others who believe such doctrines and examine our own. We are to allow the Holy Spirit to lead us and convict us the truth. Often flesh's desires gets in the way of spirit-lead truth. Spiritual truth is so necessary…

  • The more I know God's love letters to us (Bible), the more I struggle

    24 Oct 2009 | 8:02 am
    with understanding my sins against Him. Martin Luther's Quote: The great difference between doctrine and life is obvious, even as the difference between heaven and earth. Life may be unclean, sinful, and inconsistent; but doctrine must be pure, holy, sound, unchanging ... not a tittle or letter may be omitted, however much life may fail to meet the requirements of doctrine. This is so because doctrine is God's Word, and God's truth alone, whereas life is partly our own doing.... God will have patience with man's moral failings and imperfections and forgive them. But He cannot, will not, and…

  • Chief Evangelist

    18 Oct 2009 | 6:54 pm
    The Scriptures say that God Himself is the chief evangelist. For the Spirit of God is the Spirit of truth, love, holiness and power, and evangelism is impossible without Him. It is He who anoints the messenger, confirms the word, prepares the hearer, convicts the sinful, enlightens the blind, gives life to the dead, enables us to repent and believe, unites us to the body of Christ, assures us that we are God’s children, leads us into Christ-like character and service, and sends us out in our turn to be Christ’s witnesses. In all this the Holy Spirit’s main preoccupation is to glorify…
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    Word Salads,the Demyelination of Me and the Breakdown of a Marriage

  • Come Saturday morning...

    Have Myelin?
    21 Nov 2009 | 4:43 am
    I forgot all about the Sandpipers. Dory Previn co-wrote this song long ago. She is what one would consider extreme-angst. It's hard to find her music (heck it's hard to find HER) but I do have one of her CD's and a couple of LP's from my high school days. I am not into angst-y music now, my life is enough. I seek out music that is more uplifting, more hopeful. I seek solace, hope and good tidings.But this song reminds me of Saturdays long gone by. Christmas is coming and the usual family chaos is missing. Today is Saturday and I was trying to remember the last time Nicole and I went Christmas…

  • Medical MJ

    Have Myelin?
    20 Nov 2009 | 3:27 pm
    Colorado (especially Colorado Springs) is engaged in a heavy medical mj debate. Our local district attorney has decided against the wishes of the voters of Colorado to bother the heck out of everyone. Ya know? He is doing things like imposing taxes on medical mj (we don't tax medications, do we?) and other crazy things. He is getting out of control...gosh.I am going to be 55 years old. I not your typical medical mj user. If I had my way, I'd make my way to Walgreen's and stand in line with my prescription D card and watch myself fall in and out of donut holes. But there is not anything else…

  • The post office needs a bail out?

    Have Myelin?
    20 Nov 2009 | 5:56 am
    Didn't I talk yesterday about the post office?http://www.cbsnews.com/stories/2009/11/19/politics/main5711797.shtmlAre you sure you want our government in health care?We need more of us in the middle of the peninsula with waves lapping at the left and the right instead of a tsunami coming at all fronts. United we stand, divided we fall.Already I see a difference in my standard of health care with Medicare vs private insurance sooooo no, I am not thrilled to be on this one-way path. If Congress would vote to put themselves on it along with me I'd feel better. If it's good enough for me it…

  • It is ...

    Have Myelin?
    19 Nov 2009 | 12:15 pm
    1:15 pm and I haven't figured out where to give myself the shot. HA! I am eyeballing a small area on the left of my right thigh but owie.... and I really want to get it done. :-> If I don't come back today and complain I didn't take my shot then I accomplished something!

  • Health care?

    Have Myelin?
    19 Nov 2009 | 5:54 am
    First of all- I believe all people should have health care. Period. Now how to pay for it is another issue and one I do not pretend to have the answers so do not ask...it is not my field of expertise. I do know that our government has never been successful with any program they have. Look at social security, medicare, medicaid, the postal service, yadda, yadda you name it but will you happily claim it as one of our country's personal success stories? I didn't think so.I would love to see the post office be turned over to private enterprise. You know UPS and FedEX would put the USPS to shame…
 
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    MS Maze

  • Inside the Maze 11/20/09

    You write something in your own voice, but readers will read it in their own. You've got to be careful, or a misfire can change the meaning entirely, as I wrote in Will They Read It the Way I Wrote It?, posted on Women on the Verge just last week. ...

  • Senate Health Care Bill: Who and What it’s all About

    The Senate health care bill (Patient Protection and Affordable Care Act) was unveiled this week and, according to Senator Harry Reid (D - Nev), it "makes health care more affordable while reducing the federal deficit." He went on to say, "We can’t afford to overlook what this is really all ...

  • New Mammogram Guidelines: How many deaths are enough?

    Seventeen percent of deaths from breast cancer occur in women who are diagnosed in their 40s. The American Cancer Society estimates that in 2009 there will be 192,370 new cases of invasive breast cancer in the United States, causing 40,170 deaths. That’s a lot of deaths, and no one is ...

  • Great American Smokeout: Make the Pledge, Live Longer, Live Better

    Quit smoking and you’ll not only live longer, but you’ll live better. November 19 is the American Cancer Society’s 34th Great American Smokeout. Smokers are encouraged to use this day to quit smoking altogether, or to finally put that action plan into place. Smokers who quit at age 35 gain ...

  • Mutinous Body, Thriving Soul

    If you have multiple sclerosis, does it invade your dreams? Years ago, during an interview with Larry King, the late Christopher Reeve said, "you know, as a matter of fact, in my dreams — I have never been disabled in my dreams — so my subconscious insists that I am whole, ...
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    The Myelin Repair Foundation Blog

  • The importance of understanding the mechanics/processes of MS.

    Shivani Bhargava
    18 Nov 2009 | 7:36 am
    In Clayton Christensen’s “Innovator’s Prescription” he highlights a chart which shows a correlation between how treatable common diseases and conditions are versus how much current science understands the disease/condition. Current map of common medical conditions from "Innovator's Prescription" by Clayton M. Christensen and how the Myelin Repair Foundation wants to move "multiple sclerosis" up the continuum of understanding and of effective treatments. As you can see, multiple sclerosis is one of the more complex diseases that isn’t yet…

  • “Broken Feather” Supports the Myelin Repair Foundation with Music

    Justine Lam
    17 Nov 2009 | 7:48 am
    Rick Bone and Deb Kelson are two musicians with multiple sclerosis (MS) who recently found the Myelin Repair Foundation on MySpace and on Facebook. Rick was Dx’ed with Relapsing/Remitting MS in 1999 and Deb  was Dx’ed in 2004 with Primary Progressive MS. They met on MySpace in a MS support room about 4 and a half years ago. Before they were diagnosed, Rick played in many bands during the late 70’s and early eighties and Deb was a background singer for local bands in the late 90’s up until 2005. The Healing Power of Music For Rick, MS left the left half of his body…

  • Seeking a Shorter Path to New Drugs

    Carol Menaker
    16 Nov 2009 | 4:03 pm
    New York Times reporter Natasha Singer reports on an MIT initiative to streamline drug research. For MIT’s New Drug Development Paradigms program to work “some drug companies that have been fierce rivals will have to play nicer. Think of it not so much as swords into plowshares but as silos into platform-sharing.” Though the MRF research model offers an end-to-end solution by addressing barriers across the value chain, the MIT program is one of a number of bottom-up initiatives designed to accelerate drug research at single points along that value chain. Thank you Natasha for helping to…

  • The winner of the Myelin Poem contest is…

    Justine Lam
    13 Nov 2009 | 1:48 pm
    Diane Standiford Diane Standiford from the blog A Stellarlife!  Her winning myelin poem is: Myelin, sweet Myelin Can’t you feel my impulse comin’? My nerves are cold without you Myelin, my leg won’t lift without you Please come back and wrap around Oh, how I miss you, Myelin Diane was Dx’ed with MS in 1990, and now had secondary progressive MS and needs myelin repair more than DMD drugs. Her blog, A Stellarlife, is about living a life with multiple sclerosis and all the rest. She includes her views on current events, disability issues, entertainment and silliness, politics,…

  • MRF Aims for First Phase 1 Clinical Trial in 2014

    Carol Menaker
    11 Nov 2009 | 6:00 am
    November 10, 2009 – Saratoga, CA– The Myelin Repair Foundation today released its first five-year report that includes a new set of ambitious goals for the second 5 years of its myelin repair research program. The Promises Made, Promises Kept report summarizes the MRF’s scientific achievements as well as its advances in demonstrating that its Accelerated Research Collaboration™ model has effectively accelerated the rate of target discovery. “We know two things today that we did not know five years ago,” says MRF Founder and President Scott Johnson. “First, we know that myelin…
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