Multiple Sclerosis

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  • Discovery of a new type of immune cells offers potential for future treatment of multiple sclerosis

    Multiple Sclerosis News From Medical News Today
    28 Nov 2014 | 12:00 am
    A multi-disciplinary research team from the National University of Singapore (NUS) has made a breakthrough discovery of a new type of immune cells that may help in the development of a future...
  • Gilenya: My Third Year Anniversary

    A Short in the Cord
    5 Nov 2014 | 1:16 pm
    Wow, I can't believe that it's been three years since I decided to change my direction and switch my disease modifying drug to Gilenya.I revisited my old blog posts about the long road leading to the "First Dose Observation." I had forgotten about all the tests required before getting the drug, wrangling with insurance, finding a location to be monitored for the first six hours after swallowing one tiny orange and white pill. I had forgotten how really worried I was the night before. Now that three years have passed, I'm pleased to report that I'm doing very well. I…
  • Tecfidera vs no med

    ThisIsMS - News
    SARABAND
    26 Nov 2014 | 6:26 am
    Tecfidera (BG-12, dimethyl fumarate) Statistics : 1 Post || 141 Views Post by SARABAND
  • Inspirational story of teenage girl with MS

    ThisIsMS - News
    David1949
    27 Nov 2014 | 8:39 am
    General Discussion Statistics : 1 Post || 97 Views Post by David1949
  • Please Join Me at iConquerMS™

    Brass and Ivory: Life with MS & RA
    22 Nov 2014 | 9:44 am
    The news is out!! The Accelerated Cure Project for MS (ACP), a nonprofit organization based in Boston that was started in 2001 by a person living with MS, has launched an exciting new patient-centered research initiative called iConquerMS™.iConquerMS™is a Multiple Sclerosis Patient-Powered Research Network (MS-PPRN) established with a grant from the Patient-Centered Outcomes Research Institute (PCORI), an independent, nonprofit organization authorized by Congress in 2010. PCORI’s mission is to fund research that will provide patients, caregivers, and clinicians with the…
 
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    Multiple Sclerosis Research News -- ScienceDaily

  • Key protein can reduce severity of disease equivalent to multiple sclerosis in mice

    11 Nov 2014 | 11:22 am
    Researchers have identified a key protein that is able to reduce the severity of a disease equivalent to multiple sclerosis in mice. This molecule, Del-1, is the same regulatory protein that has been found to prevent inflammation and bone loss in a mouse model of gum disease.
  • Recognizing emotions, and what happens when this is interrupted

    10 Nov 2014 | 5:35 am
    Recognizing the emotions other people feel is crucial for establishing proper interpersonal relations. To do so, we look at (amongst other things) facial expressions and body posture. Unfortunately, in some neurological disorders this ability is heavily impaired. This happens, for example, in multiple sclerosis where scientific evidence shows that people affected by the disease often have trouble recognizing expressions that communicate emotions. A new study now demonstrates that the same difficulty may also be encountered with emotions conveyed by posture.
  • High prevalence of vitamin D deficiency across the board in neuromuscular disease

    31 Oct 2014 | 5:19 am
    More credence has been added to a growing awareness of the high prevalence of vitamin D deficiency in neuromuscular disease by newly presented research. Vitamin D supplementation has been suggested to improve function in frail elderly patients at risk for falls, as well as individuals with myasthenia gravis and Parkinson's. The impact of vitamin D deficiency and supplementation on function in other neurologic conditions has yet to be explored.
  • New clinical trial data: Multiple sclerosis drug candidate also shows promise for ulcerative colitis

    28 Oct 2014 | 5:21 am
    Positive new clinical data have been released on a drug candidate for ulcerative colitis. In the study, 199 patients with active, moderate to severe disease, the drug candidate RPC1063 has potential to significantly improve the treatment paradigm for ulcerative colitis patients. The latest results show that, after eight weeks of treatment with a 1 mg dose of RPC1063, 16.4 percent of patents were in clinical remission, as compared to 6.2 percent of patients on placebo.
  • Cells from placentas safe for patients with multiple sclerosis, study shows

    29 Sep 2014 | 6:02 am
    Patients with Multiple Sclerosis (MS) were able to safely tolerate treatment with cells cultured from human placental tissue, according to a study. “This is the first time placenta-derived cells have been tested as a possible therapy for multiple sclerosis,” said the lead investigator of the study. “The next step will be to study larger numbers of MS patients to assess efficacy of the cells, but we could be looking at a new frontier in treatment for the disease.”
 
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    MS-UK Latest MS News

  • NUS researchers make breakthrough discovery that could lead to future treatment for multiple sclerosis

    26 Nov 2014 | 1:01 am
    The latest findings may provide an avenue for therapeutic intervention of multiple sclerosis. A multi-disciplinary research team from the National University of Singapore (NUS) has made a breakthrough discovery of a new type of immune cells that may help in the development of a future treatment for multiple sclerosis (MS).............
  • Major MS cognitive rehabilitation trial funded by NHS

    21 Nov 2014 | 7:20 am
    The Cognitive Rehabilitation for Attention and Memory trial (CRAMMS), a major study to be conducted on patients suffering from multiple sclerosis, was recently awarded £1,167,000 by the National Health Service (NHS), through its Health Technology Assessment (HTA) Programme.The study, which is expected to be the largest trial of its kind in the United Kingdom, is designed to examine MS patients’ cognitive rehabilitation capacities and determine if a group of cognitive rehabilitation programs is able to improve patients’ quality of life.....
  • A new mouse model for Multiple Sclerosis fatigue?

    21 Nov 2014 | 1:12 am
    Researchers presented a new mouse model for fatigue at the 2014 Society for Neuroscience meeting. The model is the first of its kind and works by manipulating the pro-inflammatory cytokine interleukin-1β.There’s a new animal model coming down the pike that may be of use to multiple sclerosis researchers. At the Society for Neuroscience (SfN) annual meeting in Washington, D.C., researchers announced that they have developed a new mouse model for fatigue. This is the first mouse model to isolate fatigue from other symptoms.....
  • Could alcohol reduce the risk of getting MS?

    21 Nov 2014 | 12:17 am
    A study by Dr. Anna Karin Hedström and a team of researchers from Sweden's Karolinska Intstitute  have discovered a possible link between alcohol consumption and a reduction in the risk of having multiple sclerosis, the degenerative disease of the central nervous system. According to the abstract of the study published in the Journal of the American Medical Association, the researchers' goal was to “investigate the possible association of alcohol consumption with the risk of developing MS and to relate the influence of alcohol to the effect of smoking.........
  • Tongue shocks hasten healing

    20 Nov 2014 | 5:59 am
    A little-known fact: the tongue is directly connected to the brain stem. This anatomical feature is now being harnessed by scientists to improve rehabilitation.A team at the University of Wisconsin–Madison recently found that electrically stimulating the tongue can help patients with multiple sclerosis (MS) improve their gait. MS is an incurable disease in which the insulation around the nerves becomes damaged, disrupting the communication between body and brain. One symptom is loss of muscle control.....
 
 
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    Life With Multiple Sclerosis

  • Thankful Even Without a Thanksgiving Holiday

    Trevis Gleason
    26 Nov 2014 | 7:52 am
    When Caryn and I moved to the wilds of West Kerry, we had neither intention nor desire to be a part of an expat community. I have lived in other parts of the world where I welcomed the comfort of fellow dislocated countrymen. We wanted to live with and as the Irish on this journey. To that, there are a few things that we miss about our native land and country of our continued citizenship… and some we surely do not. As I look out from my window and see kale and Brussels sprouts ready for harvest and the late-autumn remains of several perennial herbs, I am thankful I’ll not be standing on…
  • MS Lesson No. 1: Control Is an Illusion, so Go for Broke

    Trevis Gleason
    25 Nov 2014 | 8:19 am
    Today marks the two-year anniversary of the day we said goodbye to the vast majority of our friends and family in America. The party we threw was the culmination of about three months of farewell lunches, dinners, and weekends away. By the time we actually got out of Seattle, Caryn and I were knackered and didn’t really feel ready. I’ve often said that I don’t give credit to MS for the lessons I’ve learned. When I look back at that time, however, I can see that there were MS “skills” that were employed to get us through that manic period in 2012. First and foremost we…
  • MS International: 9 Years of Blogging, 4 Blogs, 3 Nations

    Trevis Gleason
    21 Nov 2014 | 7:45 am
    It’s hard for me to believe that our first Life With MS Blog posted nearly nine years ago. A Yank’s Life with MS (for the MS Society of the UK) is more than three years old, and  The Unspeakable Bits from a Life with MS (for the National MS Society) leaves the terrible twos next month. Where does the time go? Well, this past week MS & Me –  the group blog for the Multiple Sclerosis Society of Ireland for which I am a fortunate contributor – also had a birthday.  We turned 1 year old. As you can see from the link above, it has been quite a year for our cadre of bloggers.
  • How’s Your MS Today? I’ve Got Nerve Pain and Fatigue

    Trevis Gleason
    19 Nov 2014 | 11:29 am
    After writing these How’s your MS today posts for a good many years (goodness, are we really sneaking up on a nine-year anniversary?), there comes a time each month when I start to wonder.  I take stock of how things are on one particular day, or maybe over a week.  I think about the previous month and gauge myself versus my memory of the prior four weeks or so. Then I look back at the previous month’s check-in blog. This month I’d have to say that some symptoms are worse. I’ve been experiencing intense new pain and reawakening of some old pain. I believe it to be MS related as 1)…
  • Now, About This New MS Drug: Lemtrada

    Trevis Gleason
    17 Nov 2014 | 9:37 am
    It doesn’t seem like that long ago – and in the scheme of pharmaceutical development it really hasn’t been – that we had the ABC drugs for multiple sclerosis treatment and that was it.  With the backdoor approval of the latest MS disease-modifying therapy, Lemtrada (alemtuzumab), people diagnosed with multiple sclerosis now have 11 medication choices. “ABC” became “ABCR” not long after I was diagnosed, and some of us anagrammed them and began calling them the “CRAB” drugs (for Copaxone, Rebif, Avonex, and Betaseron). Now I guess we have a choice of drugs we could call…
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    Carnival of MS Bloggers

  • Carnival of MS Bloggers #162

    23 Nov 2014 | 7:00 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Suffering Disappears, Love Remainsby Meagan at Multiple Sclerosis, Motherhood, and other Traumatic ExperiencesDo you ever have days when you feel like it has all become too overwhelming?My grandparents, both in uniform during WWIIMy grandparents were a living example of heroism and true love despite devastating life circumstances. Have you seen those movies with an unbelievable love story, overcoming all odds?This is a true story.When I feel weak, I think of…
  • Carnival of MS Bloggers #161

    6 Nov 2014 | 10:34 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Creating a World of My Ownby Melissa L. Cook of MSsymptoms.mePapers stacked high, email flags a mile long, a budget to reconstruct on my desk, a teacher in for an evaluation, and it was already 2:30 pm - I would be home late again tonight. Double-timing as I navigated the halls of the school touching base with each of the teachers to see if they needed anything - support, supplies, a travel request. On to instruct an after school teacher inservice and then I…
  • Carnival of MS Bloggers #160

    2 Oct 2014 | 10:32 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.I Hate Good Enoughby Lisa EmrichGrowing up, I learned several things: take care and pride in the things that you do, pay attention to details, follow established or recommended procedures, but be creative and flexible enough to find more efficient and effective ways of accomplishing tasks. In other words, don’t expect things to just happen on their own and be willing to improve upon past efforts.Each of us have responsibilities and must take an active role…
  • Carnival of MS Bloggers #159

    4 Sep 2014 | 10:31 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Gut healthfrom MirandasMSBlogBacteria and DigestionI quite often get asked about bloating. But did you know that you don’t have to have digestive symptoms to be suffering from ‘dysbiosis’ or wrong bacteria in the gut? It might be easy to think of this as something that’s just a minor inconvenience. However – gut problems are not just miserable & uncomfortable, they can also possibly play a role in auto-immune diseases like MS. In fact…
  • Carnival of MS Bloggers #158

    7 Aug 2014 | 10:16 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Going Under the Knifeby Jennifer DigmannWhen Cooper alluded in his last post that neither Dan nor I have been writing for our blog, I felt the need to explain what I’ve been doing.It was three weeks ago Wednesday, July 30, that I had Gamma-Knife Radiosurgery.This was the aggressive measure I needed to take in hopes it could control my Trigeminal Neuralgia (TN) and potentially open the doors for an equally aggressive treatment of…
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    Brass and Ivory: Life with MS & RA

  • Carnival of MS Bloggers #162

    23 Nov 2014 | 7:00 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Suffering Disappears, Love Remainsby Meagan at Multiple Sclerosis, Motherhood, and other Traumatic ExperiencesDo you ever have days when you feel like it has all become too overwhelming?My grandparents, both in uniform during WWIIMy grandparents were a living example of heroism and true love despite devastating life circumstances. Have you seen those movies with an unbelievable love story, overcoming all odds?This is a true story.When I feel weak, I think of…
  • Please Join Me at iConquerMS™

    22 Nov 2014 | 9:44 am
    The news is out!! The Accelerated Cure Project for MS (ACP), a nonprofit organization based in Boston that was started in 2001 by a person living with MS, has launched an exciting new patient-centered research initiative called iConquerMS™.iConquerMS™is a Multiple Sclerosis Patient-Powered Research Network (MS-PPRN) established with a grant from the Patient-Centered Outcomes Research Institute (PCORI), an independent, nonprofit organization authorized by Congress in 2010. PCORI’s mission is to fund research that will provide patients, caregivers, and clinicians with the…
  • Lemtrada (alemtuzumab) Approved by the FDA for Relapsing-Remitting MS in the US

    14 Nov 2014 | 6:31 pm
    The FDA approves Lemtrada for the treatment of relapsing-remitting MS. Read the press release below. The drug will be priced at $158,000 for two courses of treatment over two years, reports The Boston Globe. Lemtrada is administered by infusion over 5 consecutive days followed by infusions given over 3 consecutive days 12 months later. The Boston Globe continues, "Rebif, a competing drug compared with Lemtrada in clinical studies, costs $134,600 for a similar treatment regimen, or 17 percent less. But the Genzyme executives pointed out that patients on Lemtrada suffered 50 percent fewer…
  • Military Service, Multiple Sclerosis, and Veterans Benefits

    11 Nov 2014 | 9:02 am
    Did you know that multiple sclerosis (MS) has been associated with military service? The Department of Veterans Affairs (VA) recognizes that multiple sclerosis may be classified as a service-connected disability eligible for VA benefits. Includes in the resources section at the end of this article (posted on HealthCentral) are several studies published during the past decade examining aspects of MS diagnosis, symptoms, and treatment in US Veterans.Established in 2003, the VA MS Centers of Excellence (MSCoeE) is dedicated to furthering the understanding of multiple sclerosis, its…
  • When is It Time to Change RA Treatments?

    8 Nov 2014 | 5:09 pm
    Common considerations for altering treatmentAs near remission or low disease activity are common goals of RA treatment plans, signs of disease activity would indicate that your plan may need adjustment. However, minor flare-up of symptoms, such as sudden and temporary increases in painful, swollen, tender or red joints, may indicate the need for corticosteroids to reduce and control inflammation or an increase in the dosage of your current medication. If you have many flare-ups, consider talking to your doctor about adding or changing to a more effective DMARD or biologic.The early symptoms…
 
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    A Short in the Cord

  • Gilenya: My Third Year Anniversary

    5 Nov 2014 | 1:16 pm
    Wow, I can't believe that it's been three years since I decided to change my direction and switch my disease modifying drug to Gilenya.I revisited my old blog posts about the long road leading to the "First Dose Observation." I had forgotten about all the tests required before getting the drug, wrangling with insurance, finding a location to be monitored for the first six hours after swallowing one tiny orange and white pill. I had forgotten how really worried I was the night before. Now that three years have passed, I'm pleased to report that I'm doing very well. I…
  • A Scary Scooter Story

    31 Oct 2014 | 5:16 am
    This is a scary story about fear and dread.  No, it's not another Halloween story.  It's an adventure story.  A silly story, really.Last weekend, The Husband treated me to a weekend at Rehoboth Beach for the Sea Witch festival. Sea Witch Balloon"Oh dear, is the witch that scary?" Nah, the Sea Witch is actually the name of a really fast clipper ship that navigated Delaware waters, and a clever woman developed a way to bring people to the shore after Labor Day by blending this nautical theme and Halloween into a huge festival.   But there is a really scary Sea Witch balloon…
  • Beyond Bone Tired

    16 Oct 2014 | 6:48 pm
    After my last post, The Biscuit Week, about getting hit with bad fatigue, I discovered an article posted to the On Being website that I want to discuss.Because I've been dealing with bone-crushing fatigue for years, I have studied how to get help when needed.  I've even lectured on the subject.  Step one: determine what you need. Step Two:  ASK.  This is drastically oversimplified, but you get the idea. Asking for help is hard, often because I don't know what I need. If I do, I usually can't explain.When I'm that tired, I forget everything I've learned.So I was very…
  • The Biscuit Week

    14 Oct 2014 | 7:10 am
    Wow, the MS fatigue is really bad right now, and I’m blaming last week.What would seem like a busy week for anybody was a significantly challenging week for me. On Monday, I had a medical appointment. On Tuesday, I spent a few hours with an architect reviewing plans for a sunroom. On Wednesday, another medical appointment. On Thursday, a discussion group in the evening. On Friday morning, a two-hour home repair for women class. On Saturday, a two-hour study hall.For most people, this may seem like just a full week. But for me, this was a week from hell. Each of these events…
  • MS is a Global Disease

    28 Sep 2014 | 2:30 pm
    After a sojourn to other topics on my social media outlets (complaining about the NFL's wimpy response to domestic violence, getting inspiration from Scotland's vote on independence, and being disappointed that the Asian Games in South Korea would not allow Muslim women to play basketball wearing their headscarves), I feel that I will go back to writing about Multiple Sclerosis for a little while.It's not that those other topics are not important; to the contrary, they are very important.Too important.  Globally important.  I like being an informed citizen of the globe, I feel…
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    Navigating the Journey of MS

  • Happy Thanksgiving

    26 Nov 2014 | 6:14 am
    Hope everybody has a happy and safe thanksgivingThis is our first thanksgiving togetherMike and I will spend the day togetherWe we're suppose to host his family his kids his grandkidsBut traveling is tough in winter in Wisconsin And so my new family will have to wait celebrate thanksgiving TogetherMy step kids to be and my grandkids to be I love you MikeAnd I'm looking to forward to spend every day of our lives togetherNo matter how short or how long we will be there for each other
  • The holiday season

    23 Nov 2014 | 7:10 am
    As the holidays get closer things get BusyMy to do list is growing and I'm trying not To get overwhelmedNow that I'm in a serious relationship I have A new familyWhich is good because my family is Selfish and inconsiderate 
  • Yikes it's global warming

    19 Nov 2014 | 7:37 am
    Yesterday it was 7 degrees when I took the dogs out40 degrees below where we should be this time of yearAnd YETI still hear about this global warming crapSomebody is going to get as now shovel up their butt -just saying
  • Busy time of year

    18 Nov 2014 | 12:55 pm
    No it's jot necessarily the holidays ( although they will be busy )But taxes for the businessUp to my eyeballs with excel spreadsheet preparedFor my accountant Taxes get complicated after a divorce and owning a business
  • eBay boutique

    11 Nov 2014 | 7:02 am
    So my annual holiday boutique is doing well on eBay. PlusTrying to run the business Stack of orders to do this morningPlus just added new items on eBay Going to be a busy a holiday seasonNot sure if I'm hosting thanksgiving yetBut Mike and I are having a small cocktail party
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    wordsalads

  • space saving bedroom ideas

    Retno Wati
    14 Nov 2014 | 7:31 am
    space saving bedroom ideas - You require to review this short article if you've got a restricted quantity of space in your bedroom and still desire to make the many of it. We're going to take a look at 3 small bedroom ideas for saving space however still getting complete usage of your space.Among the most significant downsides of having a restricted quantity of space in your bedroom is the absence of storage and closet space. Many smaller sized bed rooms just have a small closet, with very little space for hanging and keeping clothing.The very best method to obtain the optimum usage from your…
  • flower bedroom wallpaper

    Retno Wati
    14 Nov 2014 | 7:03 am
    flower bedroom wallpaper - Bring a flower yard indoors to attain a uplifting and bright girls bedroom! With simply a couple of fast and simple actions, you can have your very own growing yard in simply a brief time!1) Pick a wonderful quilt or comforter to begin your style. There are lots of charming bedspreads so let your slightly lady choose her favored!2) Start with a fantastic wall color - I repainted the walls an intense pink utilizing Benjamin Moore Color Pink Ladies 1347. It's finest to match the wall color to the comforter/quilt you are making use of.3) Purchase some white picket…
  • master closet design ideas

    Retno Wati
    11 Nov 2014 | 6:27 pm
    master closet design ideas - Bedroom closets can be found in lots of types. Some rooms have one closet either big or little while other bed rooms have his and her closets. Some bed rooms do not even have integrateded closet area. No matter the kind or size of closet you have there are a wide variety of bedroom closet design ideas. Prefabricated closet organizers are popular options and there are a number of on the marketplace to pick from. Customizeded shelving and storage is another possibility and can be done by an expert specialist or as a do it yourself job.Smaller sized closet area has…
  • kitchen pantry closet design ideas

    Retno Wati
    11 Nov 2014 | 7:59 am
    kitchen pantry closet design ideas - Have you been shopping lately for new sets of clothes and now it frets you because you don't have enough area to hang your new clothes? Or would you similar to to include a brand-new layer of closets for shoes or other devices?You need not fret because there are brand-new closet designs which can fit your room. There are various sizes and styles which you can pick from. It is not like in the past when closets were just poles and ledge put together.Room closet designs now have different designs, sizes and colors. There are likewise various products utilized…
  • bedroom with closet design

    Retno Wati
    11 Nov 2014 | 7:29 am
    bedroom with closet design - Organizing your cabinet is an excellent job. Bulk of people is pleased and not satisfied regarding their closets. Principally, they believe that they do not have enough area to keep and hang their clothes and devices. In truth, the majority of cabinets do not use successfully the spaces. With the usage of the bedroom closet organizers, you can be able to double virtually the rack and the hanging areas in the closet. To have a stunning and organized closet you do not have to take away a wall or make a major modifying job.If you want any bedroom decoration ideas…
 
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    MS Trust Recent Story List

  • Telemedicine rewarded

    25 Nov 2014 | 4:00 pm
    The winning poster at the MS Trust conference was by the team from Swansea who have used iPads to monitor people who were less able to get to appointments at the hospital. CSP
  • Respite in Northern Ireland

    24 Nov 2014 | 4:00 pm
    The Northern Ireland Health Minister has announced a consultation on the proposed closure of the MS respite unit at Dalriada Hospital. Opponents call the decision a 'fudge'. Belfast Newsletter BBC Respite - A to Z of MS
  • Diet and MS

    24 Nov 2014 | 4:00 pm
    A review of issues and problems in studying diet in MS. MS Discovery Forum Diet - A to Z of MS
  • Haematopoietic stem cell transplants

    23 Nov 2014 | 4:00 pm
    A researcher in Oregon talks about his caution with a stem cell approach to treating MS, which he has studied in humans, including people with MS, for the last 14 years. Portland Business Journal Stem cells - A to Z of MS
  • Racial differences in MS

    18 Nov 2014 | 4:00 pm
    Research has found that thinning of nerve fibres in the eye happens faster and to a greater extent in African Americans with MS than in Caucasians, adding weight to the view that black people tend to have a more severe course of MS. National MS Society (USA) Latest MS research updates
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    The Lesion Journals

  • Walking around in style with my Top & Derby walking stick

    Christie @ the Lesion Journals
    16 Nov 2014 | 3:29 pm
    Who says assistive devices have to be drab, ugly, and without color? Not me. And two award winning companies agree: meet Omhu and Top and Derby who infuse the mobility sector with color, design, and cool looking walking sticks. I jotted up a post a while ago about Omhu. They bring us totally rad canes, made from natural wood and high-strength bicycle-grade aluminum materials, in six gorgeous colors. Our friends over at Top and Derby make a great cane, too, and I think you’ll agree that this is a really nice departure from the usual cold and clinical ones.Check it out.Top and Derby feel like…
  • My exams may be unimpressive but I feel pretty lucky

    Christie @ the Lesion Journals
    1 Nov 2014 | 9:50 am
    “Your exam is really quite unimpressive”, says my neurologist this past week during my annual exam. These are the words I love to hear. Having someone tell me I’m “unimpressive” otherwise may actually hurt my feeling (wait, what? I’m not special?) yet during my exam, I love hearing this. Unimpressive means no new lesions per my last MRI, a normal physical examination (for an MSer anyway) and validates that the big T flowing through my veins every month is working and doing its magic.Yes! Fist pump in the air.The physical examination* is pretty standard for MSers. I read tiny…
  • Clouds come floating in

    Christie @ the Lesion Journals
    7 Sep 2014 | 6:18 pm
    “Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky.” - Rabindranath TagoreI just love this quote because it serves as a great reminder that, yes, the clouds will roll in, bringing in the darkness that MS sometimes carries, yet, somehow, through the storm, there is something good and positive to look for. Dwelling on all of the bad stuff that may come with an MS diagnosis will really drive us crazy as we chant “why me, why me.” Some things are not meant to be understood and we should try to move on. I do this by focusing on…
  • What does an MSer need to know about financial stability? A lot

    Christie @ the Lesion Journals
    3 Sep 2014 | 6:25 am
    I was just made aware of an upcoming financial webinar series, "Financial Wellness Webinar Series", designed by the National Disability Institute, for those of us living with Multiple Sclerosis. This looks like a great resource with a focus on taxes, employment, social security and credit. No doubt we can all use financial advice from time to time and this is a great way to learn more about planning and maintaining financial stability. Did you know that a lot of MSers do not plan for our financial future? Based on a 2011 online survey of 3,000 MSers, 67% reported that their…
  • Working It Out

    Christie @ the Lesion Journals
    27 Aug 2014 | 6:04 am
    Hello, hello! Below is another great video from our friends over at Shift.ms that talks about the challenges of MS in the workplace. They put together a great list of tips, too. Have a watch.Take care!Christie
 
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    Wheelchair Kamikaze

  • iConquerMS – Your Chance to Help Bloody the Beast

    The Wheelchair Kamikaze
    22 Nov 2014 | 9:09 pm
    Okay, my fellow MSers, are you sick of sitting on the sidelines like powerless spectators observing a do or die contest that will determine your very own fate, waiting anxiously for neurologists, researchers, and pharmaceutical companies to ride to the rescue? Are you, like me, sick and tired of being sick and tired, weary of having very little ability to do anything about the situation except listen to the same old same old, held hostage by a status quo that offers more questions than answers? Do you just for once want to pick up a club and give MS a good smash in the kisser, to kick the…
  • Bits and Pieces: Multiple Universes Edition (includingLemtrada,theMS-Gut Connection, Progressive MS, Pharma to Doctor Payola,andmore…)

    The Wheelchair Kamikaze
    16 Nov 2014 | 9:08 pm
    (For those receiving this via email, this post contains videos which can be viewed on the Wheelchair Kamikaze website – click here) I’ve been reading about the very real possibility of the existence of multiple universes, a collection of hypotheses which state that our universe is actually part of a Multiverse made up of perhaps an infinite number of parallel or alternate universes (click here). As fantastical as this might sound, more and more physicists and cosmologists are coming to accept the notion that our universe is but one of many. In fact, most of the latest cosmological…
  • Patient Taking Tecfidera Develops PML, Later Dies – Outlier or Harbinger of Things to Come?

    The Wheelchair Kamikaze
    29 Oct 2014 | 9:34 pm
    Last week, in disclosing the company’s quarterly financial report, pharmaceutical giant Biogen revealed that a patient taking its oral MS drug Tecfidera had developed the dreaded brain infection PML and later died of pneumonia (click here). This news understandably created much anxiety in the MS population, particularly among those patients currently taking Tecfidera and those considering starting the drug. Let’s take a careful look at the details of this unfortunate news and try to properly assess its impact. In the roughly 18 months since it was first approved by the FDA, Tecfidera has…
  • My Body, My Self

    The Wheelchair Kamikaze
    16 Oct 2014 | 10:17 pm
    In Mel Brooks’ 1981 comedy “The History of the World, Part 1”, a scene set during the French Revolution features a member of the aristocracy rushing to tell King Louis XVI, “It is said that the people are revolting!” His Majesty quickly replies, “You said it, they stink on ice”. The exchange is an amusing play on words that succinctly and humorously sums up the crux of the social upheaval engulfing France at the end of the 18th century. Substitute me for the King of France and the words “your body” for “the people”, and you’ll get a pretty good idea of what’s…
  • Bits and Pieces: Autumn Equinox Edition (also Tysabri, MS and HIV,viruses, relapse rates, misdiagnoses, diet, and asinine research)

    The Wheelchair Kamikaze
    29 Sep 2014 | 6:22 pm
    Personification of Autumn (Currier & Ives lithograph, 1871) (Photo credit: Wikipedia) Well, according to the full scale replica of Stonehenge that I have sitting in my living room (which is right next to my exact copy of the Sphinx and down the hall from my faux Taj Mahal – it’s incredible what you can fit in a 900 ft.² apartment with a little ingenuity) summer is over and autumn is now upon us. Time for packing away the seersucker, preparing for the harvest, and getting ready for the ceremonial sacrificing of virgins. Luckily, there are no virgins available in my apartment, so…
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    ms another way

  • Electric Shock to the Tongue

    msanotherway
    21 Nov 2014 | 9:42 am
    Here’s an interesting article about using an electrical shock to the tongue to help alleviate MS symptoms: http://www.dailymail.co.uk/sciencetech/article-2841156/Could-electric-shock-tongue-help-MS-patients-walk-Stimulating-muscle-improve-balance.html#readerCommentsCommand-message-fieldFiled under: EM, esclerosis multiple, MS, Multiple Sclerosis, Uncategorized Tagged: EM, Esclerosis Multiple, MS, Multiple Sclerosis
  • Everybody Is Different; and So Is Their MS

    msanotherway
    29 Aug 2014 | 10:10 am
    Following the advice from a wonderful book I came across recently for people with MS, I put my feet in a (washing up) bowl of cold water first thing one morning and last thing that same night. The book professed that this was a great way to improve blood circulation - by dipping your feet in cold water for ten […]
  • Health First; Friends and Family Later

    msanotherway
    21 Jul 2014 | 6:50 am
    Friends and family have always been important to me, but this year’s spring clean has also involved filtering out harmful relationships. I am very lucky; most of my friends have been extremely supportive of my decision to treat my MS without the use of steroids or disease modifying drugs. One of these friends is a doctor who prescribes allopathic medicine on a daily basis. […]
  • Slow Down!!!

    msanotherway
    3 Jul 2014 | 5:23 am
    June? Already??!! We are half way through 2014, and I was asked to reflect on it, but do find it a strange time of year to already be doing so. Usually June is busy, not reflective. By June we are all fixed in our routines, and (in Britain at least) dreaming of the promised sunshine. Thinking back […]
  • Free Books on Alternative Treatment of MS in the UK

    msanotherway
    5 Jun 2014 | 10:28 am
    Overcoming MS (Prof george jelinek) and Recovering from MS – two books I have read and recommend, especially the first one, are being sent to people for free for a limited time only in the UK. All you need to do is write to: omsuk@overcomingms.org Tell them you saw a leaflet about the two above […]
 
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