Multiple Sclerosis

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  • Scientists Find First Evidence a 'Rogue Protein' Drives MS

    Healthline News: Multiple Sclerosis
    Jeri Burtchell
    18 Dec 2014 | 12:00 am
    MS has more in common with Parkinson’s, Alzheimer’s, and ALS than researchers previously thought. A new discovery shows the disease process may be driven by a misfolded protein.
  • Winter’s Discontents

    Wheelchair Kamikaze
    The Wheelchair Kamikaze
    11 Dec 2014 | 9:52 pm
    (Apologies to The Mamas and The Papas) All the leaves are brown, and the sky is gray I needed to go outside, on a winter’s day Struggled with socks, sweater, coat; but when all was done and said Barely had the strength, to just get back into bed… Please excuse the above bad poetry (actually, it’s a gross disservice to poems to even call it poetry), but I just couldn’t resist. Here in New York City, winter is once again upon us, and along with the season’s cold and inclement weather, for us gimps the winter months are chock full of hurdles and obstacles that the able-bodied need give…
  • Electric Shock to the Tongue

    ms another way
    msanotherway
    21 Nov 2014 | 9:42 am
    Here’s an interesting article about using an electrical shock to the tongue to help alleviate MS symptoms: http://www.dailymail.co.uk/sciencetech/article-2841156/Could-electric-shock-tongue-help-MS-patients-walk-Stimulating-muscle-improve-balance.html#readerCommentsCommand-message-fieldFiled under: EM, esclerosis multiple, MS, Multiple Sclerosis, Uncategorized Tagged: EM, Esclerosis Multiple, MS, Multiple Sclerosis
  • Just a Vent!

    ThisIsMS - News
    Pele
    18 Dec 2014 | 8:58 pm
    Undiagnosed Statistics : 1 Post || 33 Views Post by Pele
  • Can Tryptophan help improve memory in Multiple Sclerosis patients?

    MS-UK Latest MS News
    18 Dec 2014 | 3:05 am
    Have you ever eaten a turkey dinner and afterwards someone says that the feeling of drowsiness is caused by the tryptophan in the meat? According to Texas A&M University Professor Dr. Nicolaas Deutz, “This story about tryptophan in turkey is just kind of a running joke, it has nothing to do with the tryptophan.” Sleepiness probably has more to do with eating a big meal, according to Deutz............
 
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    Multiple Sclerosis Research News -- ScienceDaily

  • Myelin linked to speedy recovery of human visual system after tumor removal

    10 Dec 2014 | 2:13 pm
    An interdisciplinary team of neuroscientists and neurosurgeons has used a new imaging technique to show how the human brain heals itself in just a few weeks following surgical removal of a brain tumor. The team found that recovery of vision in patients with pituitary tumors is predicted by the integrity of myelin -- the insulation that wraps around connections between neurons -- in the optic nerves.
  • How-to exercise pamphlet for people with MS developed

    10 Dec 2014 | 9:14 am
    Fatigue and pain, along with other symptoms, prevent many people with multiple sclerosis from exercising. But a new how-to guide for a home-based exercise program offers a way for people with MS to stay more physically active.
  • Toxin from tobacco smoke could increase pain in spinal cord injury

    3 Dec 2014 | 1:11 pm
    A neurotoxin called acrolein found in tobacco smoke that is thought to increase pain in people with spinal cord injury has now been shown to accumulate in mice exposed to the equivalent of 12 cigarettes daily over a short time period.
  • Multiple sclerosis: First evidence of a rogue protein

    2 Dec 2014 | 3:33 pm
    A rogue protein has been identified in multiple sclerosis, which attacks the body's central nervous system. Reporting for the first time, researchers believe this finding could pave the way for better understanding of multiple sclerosis and new treatments against neurodegenerative diseases.
  • Impact of traumatic brain injury on longterm memory explored

    1 Dec 2014 | 4:16 pm
    A new article provides insight into the variable impact of traumatic brain injury on long-term memory. Memory impairment affects 54% to 84% of individuals with TBI. While the variable impact of TBI on long-term memory has been recognized, the underlying cognitive mechanisms have not been detailed in this population. This variability in impairment among individuals with comparable injuries has been explained, in part, by the theory of cognitive reserve, i.e., higher intellectual enrichment confers a protective effect on long-term memory. To test the role of working memory in the protective…
 
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    MS-UK Latest MS News

  • Can Tryptophan help improve memory in Multiple Sclerosis patients?

    18 Dec 2014 | 3:05 am
    Have you ever eaten a turkey dinner and afterwards someone says that the feeling of drowsiness is caused by the tryptophan in the meat? According to Texas A&M University Professor Dr. Nicolaas Deutz, “This story about tryptophan in turkey is just kind of a running joke, it has nothing to do with the tryptophan.” Sleepiness probably has more to do with eating a big meal, according to Deutz............
  • AAN calls for more research on medical marijuana for brain diseases

    18 Dec 2014 | 3:02 am
    The American Academy of Neurology (AAN) is calling for more research on the use of medical marijuana for brain, spine and nervous system disorders in a new position statement released by the AAN, the world’s largest association of neurologists with more than 28,000 members....
  • Study tests whether vibrating insoles improve MS balance

    17 Dec 2014 | 1:00 am
    A new Multiple Sclerosis pilot study was awarded a $39,000 grant by the US National Multiple Sclerosis Society to investigate how patients’ sensation in their feet while standing impacts balance and whether their ability to walk is improved through the use of vibrating insoles....
  • Big data project to capture the experience of multiple sclerosis patients

    15 Dec 2014 | 12:14 am
    Researchers will track the lives of people with multiple sclerosis (MS) in unprecedented detail in a project to improve the evaluation of treatments.......
  • Soldiers go the distance for charity

    10 Dec 2014 | 2:12 am
    Soldiers have covered the equivalent distance from Colchester’s Merville Barracks to the top of the Eiffel Tower in Paris in just over three hours to raise money for charity.A challenge in aid of Multiple Sclerosis charity MS-UK saw troops from 13 Air Assault Support Regiment Royal Logistic Corps (13 AA Sp Regt RLC) competing to run 112 miles to Dover, row 21 miles across the Channel, cycle 181 miles to Paris and then 1,710 steps up the Eiffel Tower in the quickest time.The unit’s four Colchester-based squadrons were each given 10 fitness machines at the Budd VC Gymnasium today…
 
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    Life With Multiple Sclerosis

  • Why Doesn’t Reality TV Reflect My Reality? Living With a Disability

    Trevis Gleason
    17 Dec 2014 | 10:04 am
    At the gym today I was working with our trainer on a new adaptation of exercise. As I live in a small town where mostly “healthy” people go to the gym to work out, I have to pretty much adapt on my own. It’s not a bother, but it’s one of the times I miss connection to a larger MS community. As I worked out on some cardio machinery, I started to think about how under-represented those of us with disabilities are in media – with few exceptions – particularly television and film. I realize that most of the characters portrayed aren’t real people, real families, or have much reality…
  • Happy Holiday Fatigue: Making a List, Trimming It Down

    Trevis Gleason
    15 Dec 2014 | 9:15 am
    ‘Tis the season for a trip over the river and through the woods, making dozens of mince pies, wrapping silly stocking stuffers, addressing greeting cards, and so many other holiday traditions. Our third Christmas in our little town of West Kerry has us enjoying new holiday routines. Along with these annual habits comes a realization as to how much more difficult they can be to complete. Perhaps this is a macro look whereas our monthly ‘How’s your MS today?’ blog is the micro-view. We invest so much in these annual memory-stirring events that how we’re able to complete them (and…
  • Chef Interrupted, My Book About Living With Multiple Sclerosis

    Trevis Gleason
    12 Dec 2014 | 9:29 am
    Funny, really. After writing nearly 1,100 Life With MS blog posts over nearly 10 years, I’m finding it hard to put into words what I’d like to share today. I guess I’ll just blurt it out. My memoir — Chef Interrupted: Discovering Life’s Second Course in Ireland with Multiple Sclerosis — is being published on March 1, 2015, by Coffeetown Press! As odd as it might sound, after the years it took me to write the book, the months of editing, and the two-year search to find the right publisher, I’m finding it a little difficult to write about it. . . So I’ll just tell you that the…
  • Patient-Driven MS Research: An Idea We Should All Get Behind

    Trevis Gleason
    10 Dec 2014 | 10:00 am
    If there is one thing I hear and read more than anything else about MS research participation, it’s that we are frustrated when research doesn’t take place near us. I think many of us would like to participate in MS research, and some of us feel we have an obligation to participate. How can we if we’re not near a research facility? Well, iConquerMS is now helping to answer that question. Our pal Lisa Emrich from the Brass & Ivory blog sent me a note about this new research platform. Lisa is the chair of the volunteer communications committee for the site and I was thrilled to…
  • Multiple Sclerosis on a Fine Irish Morning

    Trevis Gleason
    8 Dec 2014 | 10:14 am
    Yesterday was one of those days you think of as mid-winter in the wilds of western Ireland. The clouds hovered low and vacillated between heron and pewter in shade. The wind was light but couldn’t decide on a direction. Though rain threatened all day long, only soft mist fell until the setting sun pulled it in earnest from the then-dark sky. Well above freezing, the temperature combined with the damp strode the razor’s edge between fresh and biting. And everyone I encountered remarked what a glorious day it was. After a couple of days of sequester due to those days we all know MS can…
 
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    Carole's MS blog

  • RAMBLES FROM MY CHAIR: Rambling towards Christmas

    6 Dec 2014 | 1:30 pm
    RAMBLES FROM MY CHAIR: Rambling towards Christmas
  • Christmas Season 2015

    6 Dec 2014 | 1:20 pm
    Here's  a pic of the very first Christmas wreath that I have made myself, and all from scratch.It's funny how things work out sometimes. I  was accepted to be a mentor at the local community college, New Brunswick Community College. It's to help people who want to start their own business and need some free advice. I'll be writing a separate post about that program  as soon as I get permission from the college and my mentee.  Anyway, one thing led to another, and I was asked to join a wreath making course.What fun it was and great to learn how simple the technique is.
  • Proudly Canadian?

    6 Sep 2014 | 7:20 am
    Here is one of the few things left that is made in Canada and owned  and operated by Canadians.Medical Marijuana!!  This is how I get my weed  now; from a licensed producer, purchased online, and  delivered to my door by express post. Amazing that it comes from the other side of Canada; British Colombia, in less than two days.  They also have custom strains of marijuana for different needs. I use the ones for pain relief, muscle spasms , anxiety, and for sleep.  MS fatigue  is bad enough and insomnia only makes it worse. My fatigue can actually be…
  • Spring in New Brunswick

    12 Jun 2014 | 4:38 pm
    Here's a little crab that was found on the beach during a field trip to Bouctouche Dunes in New Brunswick.I do mentoring with grade three kids  at  the local public school where I live and they asked me to join them on this class outing .It felt good  today to be out breathing the ocean air.  I have to say that the  first year  of my new life has turned out pretty good. My physical health is  much  improved and my MS is under control.  I have lost weight and toned up my body, thanks to the  indoor swimming pool that is right across the…
  • Junior Senior and Pot Woes

    20 Dec 2013 | 10:11 am
    Some crows decided to attack my garbage during a snowstorm. The garbage is now  buried under a huge pile of snow. I dread the melt.Here I am at the end of 2013. It's been a year of big changes for me.I retired in April, fixed up my house and sold it in June, then packed up my gear and moved to Miramichi, New Brunswick. I have never been so tired!Now I have to figure out what I'm going to do with my life as a " junior senior" . I think you are classed as a junior from age 55- 70. After that, you're just old.. It's a strange feeling for me to have time on my hands. To know that I can…
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    Carnival of MS Bloggers

  • Carnival of MS Bloggers #163

    4 Dec 2014 | 10:35 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.The Spiritual Side of Multiple Sclerosisby Bill Walker at MS and BeyondWhen I think about myself as an individual in this lifetime experience, I always have to separate my reality, into two unique pieces which quite simply is a body and a soul. And strangely enough this is of great comfort to me when I start to think about my Multiple Sclerosis diagnosis. I understand that MS is a physical (body) ailment that has little to do with the soul part of my…
  • Carnival of MS Bloggers #162

    23 Nov 2014 | 7:00 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Suffering Disappears, Love Remainsby Meagan at Multiple Sclerosis, Motherhood, and other Traumatic ExperiencesDo you ever have days when you feel like it has all become too overwhelming?My grandparents, both in uniform during WWIIMy grandparents were a living example of heroism and true love despite devastating life circumstances. Have you seen those movies with an unbelievable love story, overcoming all odds?This is a true story.When I feel weak, I think of…
  • Carnival of MS Bloggers #161

    6 Nov 2014 | 10:34 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Creating a World of My Ownby Melissa L. Cook of MSsymptoms.mePapers stacked high, email flags a mile long, a budget to reconstruct on my desk, a teacher in for an evaluation, and it was already 2:30 pm - I would be home late again tonight. Double-timing as I navigated the halls of the school touching base with each of the teachers to see if they needed anything - support, supplies, a travel request. On to instruct an after school teacher inservice and then I…
  • Carnival of MS Bloggers #160

    2 Oct 2014 | 10:32 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.I Hate Good Enoughby Lisa EmrichGrowing up, I learned several things: take care and pride in the things that you do, pay attention to details, follow established or recommended procedures, but be creative and flexible enough to find more efficient and effective ways of accomplishing tasks. In other words, don’t expect things to just happen on their own and be willing to improve upon past efforts.Each of us have responsibilities and must take an active role…
  • Carnival of MS Bloggers #159

    4 Sep 2014 | 10:31 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Gut healthfrom MirandasMSBlogBacteria and DigestionI quite often get asked about bloating. But did you know that you don’t have to have digestive symptoms to be suffering from ‘dysbiosis’ or wrong bacteria in the gut? It might be easy to think of this as something that’s just a minor inconvenience. However – gut problems are not just miserable & uncomfortable, they can also possibly play a role in auto-immune diseases like MS. In fact…
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    Brass and Ivory: Life with MS & RA

  • Multiple Sclerosis Without Evidence of Demyelination?

    10 Dec 2014 | 1:55 pm
    People who are in the process of being tested for multiple sclerosis often have many questions. Some of the most common questions surround the subjects of MRIs and lesions. Magnetic Resonance Imaging (MRI) is a powerful tool used to help diagnosis MS as well as measure disease progression. Lesions are the scars caused by demyelination which can be detected by MRI scan.There have been many occasions where people in the process of being diagnosed with MS ask whether it is possible to have MS and not have brain lesions. The short answer is an unequivocal YES. When I first experienced blinding…
  • Winter Survival Tips

    9 Dec 2014 | 2:03 pm
    Surviving winter is about more than keeping warm taking extra pain medication with you live with RA, it is about being proactive and keeping ahead of the dangers and/or negative effects of winter.Gloves vs. mittens. Avoid gloves that are too tight as they can restrict blood circulation and aggrevate Raynaud’s syndrome. Consider wearing mittens instead. Mittens allow your fingers to warm each other and provide extra room in which you can insert disposable “hand warmers” to keep arthritis joints warm and toasty.Exercise. Too easily, people can become less active during the winter…
  • Carnival of MS Bloggers #163

    4 Dec 2014 | 11:02 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.The Spiritual Side of Multiple Sclerosisby Bill Walker at MS and BeyondWhen I think about myself as an individual in this lifetime experience, I always have to separate my reality, into two unique pieces which quite simply is a body and a soul. And strangely enough this is of great comfort to me when I start to think about my Multiple Sclerosis diagnosis. I understand that MS is a physical (body) ailment that has little to do with the soul part of my…
  • November 2014 Round-Up of MS News and Research

    26 Nov 2014 | 1:51 pm
    Details of PML Death to be Added to Tecfidera Prescription LabelFDA Reverses Previous Rejection and Approves MS Drug LemtradaNew Italian Study: Azathioprine is Not Inferior to Beta Interferon in Treating RRMSOther Studies of InterestRead this post in its entirety:Hot Topics and MS Research News for November 2014
  • Carnival of MS Bloggers #162

    23 Nov 2014 | 7:00 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Suffering Disappears, Love Remainsby Meagan at Multiple Sclerosis, Motherhood, and other Traumatic ExperiencesDo you ever have days when you feel like it has all become too overwhelming?My grandparents, both in uniform during WWIIMy grandparents were a living example of heroism and true love despite devastating life circumstances. Have you seen those movies with an unbelievable love story, overcoming all odds?This is a true story.When I feel weak, I think of…
 
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    A Short in the Cord

  • And So I Choose... Sad

    17 Dec 2014 | 4:42 pm
    This is a reprint of a post from last December.  Please read all the way to the end before posting a comment telling me not to be sad; the punch line explains the title.  Happy and healthy holidays to everyone!Oh, Christmastime. So full of merriment.  Parties with lots of people, houses dripping with decorations, wrapped presents under trees and in stockings.  Gatherings, caroling, late nights.  What’s not to love?Well, let me tell you…Christmas involves activities that I find exhausting, like shopping for presents. When I simply go grocery shopping, I have to put…
  • Gilenya: My Third Year Anniversary

    5 Nov 2014 | 1:16 pm
    Wow, I can't believe that it's been three years since I decided to change my direction and switch my disease modifying drug to Gilenya.I revisited my old blog posts about the long road leading to the "First Dose Observation." I had forgotten about all the tests required before getting the drug, wrangling with insurance, finding a location to be monitored for the first six hours after swallowing one tiny orange and white pill. I had forgotten how really worried I was the night before. Now that three years have passed, I'm pleased to report that I'm doing very well. I…
  • A Scary Scooter Story

    31 Oct 2014 | 5:16 am
    This is a scary story about fear and dread.  No, it's not another Halloween story.  It's an adventure story.  A silly story, really.Last weekend, The Husband treated me to a weekend at Rehoboth Beach for the Sea Witch festival. Sea Witch Balloon"Oh dear, is the witch that scary?" Nah, the Sea Witch is actually the name of a really fast clipper ship that navigated Delaware waters, and a clever woman developed a way to bring people to the shore after Labor Day by blending this nautical theme and Halloween into a huge festival.   But there is a really scary Sea Witch balloon…
  • Beyond Bone Tired

    16 Oct 2014 | 6:48 pm
    After my last post, The Biscuit Week, about getting hit with bad fatigue, I discovered an article posted to the On Being website that I want to discuss.Because I've been dealing with bone-crushing fatigue for years, I have studied how to get help when needed.  I've even lectured on the subject.  Step one: determine what you need. Step Two:  ASK.  This is drastically oversimplified, but you get the idea. Asking for help is hard, often because I don't know what I need. If I do, I usually can't explain.When I'm that tired, I forget everything I've learned.So I was very…
  • The Biscuit Week

    14 Oct 2014 | 7:10 am
    Wow, the MS fatigue is really bad right now, and I’m blaming last week.What would seem like a busy week for anybody was a significantly challenging week for me. On Monday, I had a medical appointment. On Tuesday, I spent a few hours with an architect reviewing plans for a sunroom. On Wednesday, another medical appointment. On Thursday, a discussion group in the evening. On Friday morning, a two-hour home repair for women class. On Saturday, a two-hour study hall.For most people, this may seem like just a full week. But for me, this was a week from hell. Each of these events…
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    Navigating the Journey of MS

  • Party

    8 Dec 2014 | 12:30 pm
    Mike and I hosted our first cocktail partySaturday nightIt was a lot of funWe ate we drank had a good timeThanks to who brought food and giftsHappy holidays
  • Police

    2 Dec 2014 | 6:32 pm
    The other day the door bell rings and it's thePoliceSeems they were getting 911 calls from one of those Throwaway phonesThey ran it thru GPS and It came up with my houseHmmm could it be the park nex door????Officer was a dick. They can't help me in a domestic violenceSituation 
  • Happy Thanksgiving

    26 Nov 2014 | 6:14 am
    Hope everybody has a happy and safe thanksgivingThis is our first thanksgiving togetherMike and I will spend the day togetherWe we're suppose to host his family his kids his grandkidsBut traveling is tough in winter in Wisconsin And so my new family will have to wait celebrate thanksgiving TogetherMy step kids to be and my grandkids to be I love you MikeAnd I'm looking to forward to spend every day of our lives togetherNo matter how short or how long we will be there for each other
  • The holiday season

    23 Nov 2014 | 7:10 am
    As the holidays get closer things get BusyMy to do list is growing and I'm trying not To get overwhelmedNow that I'm in a serious relationship I have A new familyWhich is good because my family is Selfish and inconsiderate 
  • Yikes it's global warming

    19 Nov 2014 | 7:37 am
    Yesterday it was 7 degrees when I took the dogs out40 degrees below where we should be this time of yearAnd YETI still hear about this global warming crapSomebody is going to get as now shovel up their butt -just saying
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    MS Trust Recent Story List

  • Athletes with MS

    15 Dec 2014 | 4:00 pm
    Kadeena Cox, a young sprinter who has recently diagnosed with MS, has been featured on Adrian Chiles' show on Radio 5. They also talked to Trish Deykin, a triathlete with MS. BBC Triathlon gold for Trish Deykin - news item, 6 June 2013
  • Cannabis e-cigarette

    15 Dec 2014 | 4:00 pm
    The authorities in France are considering the legality of an e-cigarette that contains cannabidiol - an extract from cannabis. A company is planning to launch the product and suggest it could be used to help people with MS and cancer manage pain, though it is not being launched as a medical device. Daily Mail AFP Cannabis - A to Z of MS
  • Exercise for people with MS

    15 Dec 2014 | 4:00 pm
    American researchers have developed a 24 week exercise programme that helps people to build up routines. It has been tested with 30 women with MS. This article is about the research and doesn't include any of the exercises. Medical News Today Exercises for people with MS
  • Collecting data on people with MS

    14 Dec 2014 | 4:00 pm
    The OPTIMISE project will collect data on people with MS including brain scans, genes, blood samples and quality of life measures. The project is a collaboration between Imperial College London and Biogen Idec. Medical News Today Prevalence and incidence - A to Z of MS
  • Risk to bone health

    14 Dec 2014 | 4:00 pm
    A review of 11 previous studies found that people with MS had lower bone mineral density and that longer duration of MS, level of steroid use and higher EDSS were associated with lower bone mineral density in the back and neck, but not in the hips. MS Research Australia Osteoporosis - A to Z of MS
 
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    The Lesion Journals

  • I'm conquering MS, 'wanna join me?

    Christie @ the Lesion Journals
    10 Dec 2014 | 6:21 am
    From time to time groundbreaking stuff happens on the planet that gets us really jazzed up and the launch of iConquerMS.orgis no exception. As someone who lives with Multiple Sclerosis, this project is so very near and dear to my heart and I am super proud to be part of iConquerMS team and watch this go live.So, you might be wondering, “Who/what exactly is iConquerMS.org?”iConquer MS.org is a patient driven initiative that focuses on using ‘big data’ in the form of research suggestions and health data, to tackle all kinds of issues important to the MS community, including finding that…
  • Walking around in style with my Top & Derby walking stick

    Christie @ the Lesion Journals
    16 Nov 2014 | 3:29 pm
    Who says assistive devices have to be drab, ugly, and without color? Not me. And two award winning companies agree: meet Omhu and Top and Derby who infuse the mobility sector with color, design, and cool looking walking sticks. I jotted up a post a while ago about Omhu. They bring us totally rad canes, made from natural wood and high-strength bicycle-grade aluminum materials, in six gorgeous colors. Our friends over at Top and Derby make a great cane, too, and I think you’ll agree that this is a really nice departure from the usual cold and clinical ones.Check it out.Top and Derby feel like…
  • My exams may be unimpressive but I feel pretty lucky

    Christie @ the Lesion Journals
    1 Nov 2014 | 9:50 am
    “Your exam is really quite unimpressive”, says my neurologist this past week during my annual exam. These are the words I love to hear. Having someone tell me I’m “unimpressive” otherwise may actually hurt my feeling (wait, what? I’m not special?) yet during my exam, I love hearing this. Unimpressive means no new lesions per my last MRI, a normal physical examination (for an MSer anyway) and validates that the big T flowing through my veins every month is working and doing its magic.Yes! Fist pump in the air.The physical examination* is pretty standard for MSers. I read tiny…
  • Clouds come floating in

    Christie @ the Lesion Journals
    7 Sep 2014 | 6:18 pm
    “Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky.” - Rabindranath TagoreI just love this quote because it serves as a great reminder that, yes, the clouds will roll in, bringing in the darkness that MS sometimes carries, yet, somehow, through the storm, there is something good and positive to look for. Dwelling on all of the bad stuff that may come with an MS diagnosis will really drive us crazy as we chant “why me, why me.” Some things are not meant to be understood and we should try to move on. I do this by focusing on…
  • What does an MSer need to know about financial stability? A lot

    Christie @ the Lesion Journals
    3 Sep 2014 | 6:25 am
    I was just made aware of an upcoming financial webinar series, "Financial Wellness Webinar Series", designed by the National Disability Institute, for those of us living with Multiple Sclerosis. This looks like a great resource with a focus on taxes, employment, social security and credit. No doubt we can all use financial advice from time to time and this is a great way to learn more about planning and maintaining financial stability. Did you know that a lot of MSers do not plan for our financial future? Based on a 2011 online survey of 3,000 MSers, 67% reported that their…
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    Wheelchair Kamikaze

  • Winter’s Discontents

    The Wheelchair Kamikaze
    11 Dec 2014 | 9:52 pm
    (Apologies to The Mamas and The Papas) All the leaves are brown, and the sky is gray I needed to go outside, on a winter’s day Struggled with socks, sweater, coat; but when all was done and said Barely had the strength, to just get back into bed… Please excuse the above bad poetry (actually, it’s a gross disservice to poems to even call it poetry), but I just couldn’t resist. Here in New York City, winter is once again upon us, and along with the season’s cold and inclement weather, for us gimps the winter months are chock full of hurdles and obstacles that the able-bodied need give…
  • iConquerMS – Your Chance to Help Bloody the Beast

    The Wheelchair Kamikaze
    22 Nov 2014 | 9:09 pm
    Okay, my fellow MSers, are you sick of sitting on the sidelines like powerless spectators observing a do or die contest that will determine your very own fate, waiting anxiously for neurologists, researchers, and pharmaceutical companies to ride to the rescue? Are you, like me, sick and tired of being sick and tired, weary of having very little ability to do anything about the situation except listen to the same old same old, held hostage by a status quo that offers more questions than answers? Do you just for once want to pick up a club and give MS a good smash in the kisser, to kick the…
  • Bits and Pieces: Multiple Universes Edition (includingLemtrada,theMS-Gut Connection, Progressive MS, Pharma to Doctor Payola,andmore…)

    The Wheelchair Kamikaze
    16 Nov 2014 | 9:08 pm
    (For those receiving this via email, this post contains videos which can be viewed on the Wheelchair Kamikaze website – click here) I’ve been reading about the very real possibility of the existence of multiple universes, a collection of hypotheses which state that our universe is actually part of a Multiverse made up of perhaps an infinite number of parallel or alternate universes (click here). As fantastical as this might sound, more and more physicists and cosmologists are coming to accept the notion that our universe is but one of many. In fact, most of the latest cosmological…
  • Patient Taking Tecfidera Develops PML, Later Dies – Outlier or Harbinger of Things to Come?

    The Wheelchair Kamikaze
    29 Oct 2014 | 9:34 pm
    Last week, in disclosing the company’s quarterly financial report, pharmaceutical giant Biogen revealed that a patient taking its oral MS drug Tecfidera had developed the dreaded brain infection PML and later died of pneumonia (click here). This news understandably created much anxiety in the MS population, particularly among those patients currently taking Tecfidera and those considering starting the drug. Let’s take a careful look at the details of this unfortunate news and try to properly assess its impact. In the roughly 18 months since it was first approved by the FDA, Tecfidera has…
  • My Body, My Self

    The Wheelchair Kamikaze
    16 Oct 2014 | 10:17 pm
    In Mel Brooks’ 1981 comedy “The History of the World, Part 1”, a scene set during the French Revolution features a member of the aristocracy rushing to tell King Louis XVI, “It is said that the people are revolting!” His Majesty quickly replies, “You said it, they stink on ice”. The exchange is an amusing play on words that succinctly and humorously sums up the crux of the social upheaval engulfing France at the end of the 18th century. Substitute me for the King of France and the words “your body” for “the people”, and you’ll get a pretty good idea of what’s…
 
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    Life in Spite of MS Blog

  • US Pain Foundation needs your help

    14 Dec 2014 | 9:26 am
    Dear Mr. Williams Thank you for being a great inspiration. I am the founder and president of a national foundation helping people with pain. We are US
  • Instant Stay at Home Dad

    19 Aug 2014 | 9:55 pm
    I had a seizure that led me to get a brain MRI, a diagnosis of MS, and no driving for six months without a seizure. I have been building houses and remodeling
  • FOR THE LOVE OF DOING IT!

    19 Aug 2014 | 9:22 pm
    Oh, I have loved art since I was a child, but I didn't get to start truly exploring my love of art until after I was diagnosed with MS. My MS progressed
  • My (Almost 2 Year) Journey with MS

    5 Aug 2014 | 11:23 pm
    While I initially thought the numbness on the entire left side of my face was a symptom of recent disc problems in my neck, I contacted my Physiotherapist.
  • My Dance

    5 Aug 2014 | 6:41 pm
    Everyday is a new dance with my invisible partner MS. Sometimes we flow like the white rapids and others like a hurricane. Waking is for sure the
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    ms another way

  • Electric Shock to the Tongue

    msanotherway
    21 Nov 2014 | 9:42 am
    Here’s an interesting article about using an electrical shock to the tongue to help alleviate MS symptoms: http://www.dailymail.co.uk/sciencetech/article-2841156/Could-electric-shock-tongue-help-MS-patients-walk-Stimulating-muscle-improve-balance.html#readerCommentsCommand-message-fieldFiled under: EM, esclerosis multiple, MS, Multiple Sclerosis, Uncategorized Tagged: EM, Esclerosis Multiple, MS, Multiple Sclerosis
  • Everybody Is Different; and So Is Their MS

    msanotherway
    29 Aug 2014 | 10:10 am
    Following the advice from a wonderful book I came across recently for people with MS, I put my feet in a (washing up) bowl of cold water first thing one morning and last thing that same night. The book professed that this was a great way to improve blood circulation – by dipping your feet in cold water for ten […]
  • Health First; Friends and Family Later

    msanotherway
    21 Jul 2014 | 6:50 am
    Friends and family have always been important to me, but this year’s spring clean has also involved filtering out harmful relationships. I am very lucky; most of my friends have been extremely supportive of my decision to treat my MS without the use of steroids or disease modifying drugs. One of these friends is a doctor who prescribes allopathic medicine on a daily basis. […]
  • Slow Down!!!

    msanotherway
    3 Jul 2014 | 5:23 am
    June? Already??!! We are half way through 2014, and I was asked to reflect on it, but do find it a strange time of year to already be doing so. Usually June is busy, not reflective. By June we are all fixed in our routines, and (in Britain at least) dreaming of the promised sunshine. Thinking back […]
  • Free Books on Alternative Treatment of MS in the UK

    msanotherway
    5 Jun 2014 | 10:28 am
    Overcoming MS (Prof george jelinek) and Recovering from MS – two books I have read and recommend, especially the first one, are being sent to people for free for a limited time only in the UK. All you need to do is write to: omsuk@overcomingms.org Tell them you saw a leaflet about the two above […]
 
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