Multiple Sclerosis

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  • MS in the movies

    MS Trust Recent Story List
    13 Mar 2015 | 5:00 pm
    In the new film X-Y, Rafe Spall's character has multiple sclerosis. The actor has met people with MS in Hampstead to learn more. Independent
  • NIH researchers develop database on healthy immune system

    Multiple Sclerosis News From Medical News Today
    17 Mar 2015 | 12:00 am
    Resource may help identify mechanisms of immune-related diseasesAn extensive database identifying immune traits, such as how immune cell function is regulated at the genetic level in healthy...
  • ms and pneumonia

    ThisIsMS - News
    28 Mar 2015 | 6:50 pm
    General Discussion Statistics : 2 Post || 61 Views Post by Hoody
  • Endothelin-1 discussed at ISNVD 2015

    ThisIsMS - News
    28 Mar 2015 | 4:43 pm
    Chronic Cerebrospinal Venous Insufficiency (CCSVI) Statistics : 3 Replies || 47 Views Post by Cece
  • “I knew what was going to happen if I did nothing [...]"

    ThisIsMS - News
    28 Mar 2015 | 5:21 pm
    Chronic Cerebrospinal Venous Insufficiency (CCSVI) Statistics : 1 Post || 62 Views Post by Cece
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    MS-UK Latest MS News

  • £1.1m study to reduce cognitive problems in people with MS

    26 Mar 2015 | 6:59 am
    Experts in Nottingham are leading a major new study into how people with multiple sclerosis (MS) could overcome problems with attention and memory associated to their condition.The Cognitive Rehabilitation for Attention and Memory in people with Multiple Sclerosis (CRAMMS) trial will evaluate the effectiveness of new strategies to improve and compensate for these difficulties and aims to improve the quality of life for the patient.....
  • Exercise may improve cognitive performance in people with MS

    25 Mar 2015 | 7:16 am
    Background Cognitive impairment is a major debilitating feature of multiple sclerosis, and is estimated to occur in more than 50% of people living with MS at some point during the disease. These cognitive impairments can appear as difficulties with learning and memory, and deterioration of executive functions, such as planning or decision-making, focusing attention, multi-tasking, and problem-solving.  People living with cognitive deficits can experience greatly diminished quality of life and loss of independence while facing the realization that treatment options are…
  • Researchers welcome new funding to investigate link between virus and MS

    24 Mar 2015 | 6:30 am
    Murdoch University researchers have received funding to investigate the link between the Epstein-Barr virus infection, more commonly known as glandular fever or the ‘kissing disease’, and the debilitating disease Multiple Sclerosis (MS).....
  • Promising prevention method found

    17 Mar 2015 | 1:03 pm
    Scientists at the Walter and Eliza Hall Institute in Australia have developed a new drug-like molecule which can halt inflammation and has shown promise in preventing the progression of MS, reports Business Insider Australia.....
  • Can emotional health influence MS treatment outcomes?

    16 Mar 2015 | 11:54 am
    Emotional health is important when battling any illness, writes Multiple Sclerosis News Today, but despite this sometimes the benefits of emotional health are overlooked by healthcare providers. Excessive stress can lead to anxiety and depression, which increases hormones such as adrenalin and glucocorticoids that shut down the immune system. Glucocorticoids have well-known negative effects on the nervous system......
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    multiple sclerosis

  • Biogen's future: Bigger bets on CNS, smaller name

    Damian Garde
    23 Mar 2015 | 6:43 am
    Biogen's latest evolution is more than just a nominal shift, according to its CEO, as the Big Biotech lops the Idec from its name and hopes to parlay its success in multiple sclerosis into some tough-to-treat diseases.
  • Google, Biogen team up on MS research: report

    John Carroll
    27 Jan 2015 | 7:42 am
    Looking for some insights into the way that environment and biology influence the development of multiple sclerosis, Biogen Idec will team up with Google to sift through a mountain of data on the topic, according to a report from Bloomberg.
  • UPDATED: Biogen Idec's remyelination drug raises hopes--and fears--in PhII

    John Carroll
    8 Jan 2015 | 5:23 am
    Shares of Biogen Idec were buoyed this morning after the big biotech highlighted positive data from its mid-stage study of anti-LINGO-1, a closely watched drug that raises the potential for spurring remyelination--repairing the damage done by diseases like multiple sclerosis. But a careful second look at the results also underscores just how challenging this development program is for Biogen Idec.
  • GeNeuro snags a $455M deal, inks MS drug pact with Servier

    John Carroll
    2 Dec 2014 | 4:19 am
    Geneva-based GeNeuro, a spinout of the Institut Mérieux, has come up with a licensing deal that will deliver $47 million needed to complete a Phase IIb study of its experimental therapy for multiple sclerosis. And France's Servier gets an option on ex-U.S. and Japanese rights that's tied to a $408 million package of milestones along with a chance to buy an equity stake in the biotech sometime in the next year.
  • FDA reverses an embarrassing rejection of Sanofi's Lemtrada, OKs MS drug

    John Carroll
    15 Nov 2014 | 12:51 pm
    Late on Friday the FDA put out the word that it has reversed its earlier decision against Sanofi's multiple sclerosis drug Lemtrada, agreeing to allow the pharma giant the right to market the treatment--with some tight controls on just who will get this drug for the relapsing form of the disease.
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    Life With Multiple Sclerosis

  • Guinness Cured My Multiple Sclerosis — Sort Of

    Trevis Gleason
    27 Mar 2015 | 12:48 pm
    Guinness cured my MS. Not really, but I did feel better than I had in years during the winter of 2005-2006. That’s the period I write about in Chef Interrupted when I was living in a small town on the Irish coast… and I drank a fair good bit of the black stuff. I had also finished a course of some pretty heavy-duty MS medication, was eating very low on the food chain, and was exercising more than I had since my diagnosis. Whatever the reason, I felt better. Now, when I got back from Ireland and had follow-up exams and test, my disease hadn’t stopped progressing.  In fact, my symptoms…
  • How to Live a Passionate Life With MS

    Trevis Gleason
    23 Mar 2015 | 9:57 am
    I was honored to participate in a Google Hangout with Meredith Vieira last December. We talked during that event (which you can watch here) about managing life with MS and the support systems some of us find helpful. It was great fun and, I thought, an informative half hour. (You can watch that hangout here.) Now, I’ve been asked back as a guest of another “hangout” with Vieira later this week! On Wednesday, March 25, I’ll join Maureen Manley — founder of Spirits in Motion — and Van DiBernardo — founder of Coolture — on a special program in honor of MS Awareness Month. The…
  • Living in the Minefield That Is MS

    Trevis Gleason
    20 Mar 2015 | 8:48 am
    After a whirlwind two weeks in the Pacific Northwest to launch my new book, Chef Interrupted, I am back home with my pack and trying to adjust to the time zone and enjoying a slower pace. While in Seattle, I had the opportunity to spend some time with a film crew from the local NBC affiliate, KING5.  We recorded a short piece about living with MS for their program, Evening Magazine.  Two hours of taping for one of these things ends up as two-and-a-half minutes on air. I always find it interesting which parts of the whole story stay in when someone edits. The spot aired on St Patrick’s Day…
  • At Multiple Sclerosis Poker Night, All Bets Are Off

    Trevis Gleason
    11 Mar 2015 | 5:32 pm
    There have been a lot of bright, shiny moments in my life. For a good long time after my diagnosis with multiple sclerosis it seemed that those sparkles of life were no longer in my cards, but they did come back. Last night I experienced great warmth and pride when I visited Poker Night, the National MS Society self-help group I co-led for several years. Poker Night was established back in 2004 as the nation’s first all-male support group, and was set up for men in the Seattle area by the Greater Washington Chapter of the NMSS. It was an honor to help start the group and run it with my…
  • Multiple Sclerosis and the Expectation Game

    Trevis Gleason
    9 Mar 2015 | 11:35 am
    “Why don’t they understand?!” I hear many of us say over and over when it comes to family and friends and their expectations of us and our abilities. Some close to us expect that we can and will do all of the wonderful things we used to, with not a step lost because of MS. Others say they understand but seem not to practice sympathy in their expectations. Oftentimes we set ourselves up for this misunderstanding when we don’t set or project realistic expectations for ourselves. I’m one week into a very (okay, ridiculously) full schedule of launching my book, Chef Interrupted. I’ve…
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    A Short in the Cord

  • Want to Help Me Have a Very Happy Birthday?

    26 Mar 2015 | 9:30 pm
    Yes, it's that dreaded day again. No, not the arrival of the day that reminds me that I am one year older. Although I am one year older today, I am grateful that I am lucky enough to have this complaint.Rather, this is the arrival of the day every year when I ask you to donate to my fundraising efforts for Multiple Sclerosis research and programs.  Yes, this is the equivalent of an NPR fundraising campaign.Will you consider making a tax-deductible donation to my MS Walk fundraising efforts?  Every donation will make me very, very happy. And very, very grateful!If so, you can…
  • Fundraising: One Step at a Time

    24 Mar 2015 | 8:45 am
    Believe me, I know first-hand how challenging it is to ask for help or ask for money.  It’s uncomfortable, it’s scary. It fills you with dread. You don’t want to beg.  I can hear the groaning coming from your belly. "Please, please, please don't make me do this," you plead.The most important thing to remember is that many people actually WANT to help in some way. It makes them feel good about themselves. You are raising money to help find a cure for a disease that debilitates thousands of people in our area. You are raising money to provide programs for people who need help…
  • Thank You Wobbler Supporters!

    18 Mar 2015 | 5:56 pm
    A big shout-out to everyone who supported the Wheeler's Wobblers' MS Walk Team fundraisers at Ruby Tuesday. Between the Main Street MS Support Group moving its monthly meeting there last week, to the Unitarian Universalist Fellowship of Newark (UUFN) takeover on St. Patrick's Day, and the Adam's Run neighborhood subdued family night tonight, a lot of personal connections were made. Because every connection counts, that's why we do this. THANK YOU!UUFN Takeover of Ruby TuesdayHome
  • A Different Way to Celebrate St. Patrick's Day

    16 Mar 2015 | 7:37 pm
    One of the legends of St. Patrick is that he drove all the snakes out of Ireland.  To celebrate St. Patrick's day, then, let's work to drive out Multiple Sclerosis from our lifetime!  As you know, I'm raising money for the National Multiple Sclerosis Society through my MS Walk Team, Wheeler's Wobblers. The NMSS supports research to stop and repair damage caused by MS as well as providing services to people struggling with MS.  Will you support the cause in honor of St. Patrick's Day?  To make a tax-deductible contribution, go to my walk page…
  • A Challenge From Wheeler's Wobblers

    13 Mar 2015 | 5:22 pm
    Hello readers of A Short in the Cord, If you follow my MS Walk Team, Wheeler's Wobblers, on Facebook, you already know that I've issued a challenge for Saturday, March 14th:  On Saturday (3-14-15), let's get 3.14 people to join the team for Wilmington (Delaware) MS Walk coming up on April 11. OR let's get 314 people to make a donation ($3.14, $31.41, $314, $3,141, or any other number of choice). Rounding UP is acceptable.Let's see if we can get $314 in donations on Saturday. Can you join in the challenge?Happy Pi Day! Wobble on... To join or donate, go to:…
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    MS Trust Recent Story List

  • Coping with memory problems

    24 Mar 2015 | 5:00 pm
    Researchers in Nottingham are running a study to strategies to cope with poor memory and concentration is people with MS. The trial will involve 440 people in Swansea, Nottingham, Sheffield, Liverpool and Birmingham. Eureka Alert Cognition and cognitive symptoms - A to Z of MS
  • Salt consumption and autoimmune diseases

    14 Mar 2015 | 5:00 pm
    Looks at several studies including research at Yale University that is looking at the effect of salt consumption on MS. Guardian Diet - A to Z of MS
  • MS in the movies

    13 Mar 2015 | 5:00 pm
    In the new film X-Y, Rafe Spall's character has multiple sclerosis. The actor has met people with MS in Hampstead to learn more. Independent
  • New genetic risk factor for MS in women identified

    12 Mar 2015 | 5:00 pm
    A new genetic variation that significantly increases the risk of developing multiple sclerosis in women has been discovered by a team from Chicago who identified a new genetic variant through a woman who, along with her four siblings – a brother and three sisters, including twins – had all been diagnosed with MS. Multiple Sclerosis News Today Risk of developing MS - A to Z of MS
  • Hidden symptoms of MS

    12 Mar 2015 | 5:00 pm
    A former dancer, Shana, talks about her experience, diagnosis, and the impact of her MS in the context of Trishna Bharadia's, appearance in The People's Strictly dance competition for Comic Relief. Independent Living life to the full Trishna is one of the people featured in this video from Making Sense of MS a resource for people recently diagnosed with multiple sclerosis
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    The Lesion Journals

  • Call your neurologist on Monday morning and ask for guidance on Vitamin D

    Christie @ the Lesion Journals
    29 Mar 2015 | 8:47 am
    There was a common theme at a couple of events I attended recently yet what I heard was nothing new to us, especially if you are reading the news, set up on Google Alerts for Multiple Sclerosis, and hanging out in social media chat rooms. What’s the advice from our favorite neurologists, professors, nurses, MSers, and friends of the MS community?If you live with MS and are not already taking the "sunshine vitamin", call your neurologist on Monday morning and ask for guidance on Vitamin D. The benefits of the sunshine vitamin have been talked about for a while and if you cannot relocate to…
  • Now you can have a gorgeous cane and support Multiple Sclerosis awareness!

    Christie @ the Lesion Journals
    1 Mar 2015 | 9:53 am
    "Canes for a Cure" from Top and DerbyMy friends over at Top and Derby have done it again. They’ve gone ahead and made another gorgeous, design inspired cane. This one is truly special because it is a limited edition Chatfield cane featuring the color of Multiple Sclerosis – Pantone 158 (or, in other words, MS orange!), just in time for the kick off of Multiple Sclerosis Awareness Month that began today. Know what’s even better? These are “canes for a cure” as proceeds from each sale will be supporting research and awareness for Multiple Sclerosis.These guys are awesome. I just love…
  • Orange is the new black via the #Orange4MSF campaign

    Christie @ the Lesion Journals
    28 Feb 2015 | 9:23 am
    Multiple Sclerosis Awareness month kicks off on March 1 and there is no shortage of awareness campaigns out there. The first one that caught my eye is the #Orange4MSF campaign which invites everyone to take a selfie with an orange. Why an orange? Orange is the official color of Multiple Sclerosis awareness and we’re really amped to make orange the new pink, the new black.The Multiple Sclerosis Foundation (MSF) launched this fun effort and its main mission is to spread the word about Multiple Sclerosis, educating the public and building hope for those living with this often debilitating and…
  • If I can bicycle, I bicycle

    Christie @ the Lesion Journals
    15 Feb 2015 | 7:39 am
    Cycling is something that brings me pure joy and helps me forget that, if even for a few moments, that I am someone living with Multiple Sclerosis. For me, that can be one of the greatest benefits  – not to be consumed by life with a chronic illness as I fly by the ocean waves, pedaling as hard as I can, on my bicycle. It is pure happiness.Certainly there are days when I cannot ride, those days when the fatigue kicks in full blast. I simply rest through these moments, reminding myself that tomorrow is a new day and on that new day, if I can bicycle, I bicycle.Take care,Christie
  • iConquerMS™: Our Voices. Our Data. Our Power.

    Christie @ the Lesion Journals
    5 Feb 2015 | 10:27 am
    Hey everyone -iConquerMS has been hitting the national scene and invites you to participate in this incredibly important research project. If you want more information, there is a great (and free!) webinar coming up on February 9th that explains it all. Hope to "see" you there.Check it out:On Monday, February 9, 2015 at 2:30 PM EST, Robert McBurney, PhD, President and CEO of the Accelerated Cure Project for MS and the Principal Investigator for iConquerMS™, and Laura Kolaczkowski, the Lead Patient Representative for the initiative, will talk about iConquerMS™ and what it means…
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    Wheelchair Kamikaze

  • Bits and Pieces: Short-Term Memory Edition (including MS drug news, restless genitals, natural remedies, Oscar Wilde, ancient viruses, and nauseating MS studies)

    The Wheelchair Kamikaze
    23 Mar 2015 | 4:42 pm
    (For those readers who receive these posts via email, the following contains lots of multimedia eye and ear candy that can’t be accessed via email. I wouldn’t want you to miss out on all of the good stuff, so (click here) to view this post on the Wheelchair Kamikaze website) Over past year or so, I felt like I was experiencing lapses of memory and that I just wasn't as mentally sharp as I used to be. Although my disease continues to decimate my body, it has pretty much left my mind alone, and I thankfully haven’t previously suffered from any of the cognitive difficulties that plague so…
  • National MS Society Decision Makers Take Big Bucks from Big Pharma

    The Wheelchair Kamikaze
    9 Mar 2015 | 8:39 pm
    As I detailed in two recent Wheelchair Kamikaze essays, the American National Multiple Sclerosis Society has repeatedly rejected grant proposals to help fund the only FDA approved human MS stem cell trial currently being conducted in the US, which is now underway at the Tisch Multiple Sclerosis Research Center of New York (click here and here). These two previous posts resulted in a flood of email and phone calls to the powers that be at the NMSS (thank you, dear readers), who responded by saying that the Society makes decisions regarding which research projects to fund based on the…
  • Interview With A Kamikaze

    The Wheelchair Kamikaze
    23 Feb 2015 | 9:48 pm
    I was recently contacted and asked for an interview by fellow MSer Meagan Freeman, who writes the excellent blog “Multiple Sclerosis, Motherhood, and Other Traumatic Experiences: The Life of a Nurse Practitioner With MS”. After checking out Meagan’s blog and making sure she wasn’t part of the vast government conspiracy intent on siphoning off my Cosmic MS Mojo for use in covert attempts to transform reptilian aliens into characters on the “Real Housewives” reality TV shows (you didn’t think those people were actual human beings, did you), I readily agreed. Meagan asked me a…
  • National MS Society FAIL: UPDATE – The NMSS Responds

    The Wheelchair Kamikaze
    9 Feb 2015 | 10:26 pm
    First, I’d like to thank all who helped contribute to the online dialogue (some might even call it a brouhaha) spurred by my last post on this blog (click here), which detailed the American National Multiple Sclerosis Society’s repeated refusals to fund the only current ongoing FDA approved stem cell trial being done on MS patients in the nation, at The Tisch Multiple Sclerosis Research Center of New York. Your response has been a personal inspiration to me, and your comments and sharing of the article on social media have definitely been noticed by the powers that be. Several readers…
  • National MS Society FAIL! Repeatedly Refuses to Fund Only Ongoing FDA Approved MS Stem Cell Trial…

    The Wheelchair Kamikaze
    6 Feb 2015 | 12:34 am
    The National Multiple Sclerosis Society (NMSS), by far the largest MS nonprofit organization in the US, has three times rejected grant applications from the Tisch Multiple Sclerosis Research Center of New York, which were submitted in an effort to procure funding for what is now the only FDA approved regenerative stem cell trial being conducted on MS patients in the nation. The trial in question uses a very sophisticated approach to this experimental therapy, arrived at after over a decade of development in the laboratory, in an attempt to repair nervous system tissues damaged by multiple…
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    Life in Spite of MS Blog

  • MS Caption Contest No. 2

    26 Mar 2015 | 6:53 pm
    MS Caption Contest No. 2 by Akrista (Life in Spite of MS) Here it is. The first MS Caption Contest cartoon. What does it say to you as an MSer? Can
  • Potty Mouth Book Review

    22 Mar 2015 | 1:34 pm
    Potty Mouth by Renae Clare is a book by a woman who "meets life's challenges with courage, wisdom and a profane sense of humor." You won't regret reading it.
  • Play the MS Caption Contest!

    19 Mar 2015 | 10:22 pm
    Play the MS Caption Contest! Look at the cartoon. How does it relate to your MS? Answer the question - You know you have MS when...? Submit your caption. Vote to see who wins!
  • Answer to Dottie

    19 Mar 2015 | 10:16 pm
    An Answer to Dottie who asked a question and was never answered. Your question is very important and we'd still like to address it.
  • Primary Demyelination

    19 Mar 2015 | 11:58 am
    After 2 years of being told by a Falls Clinic Doctor, I have had mini strokes 4 of them, without any scan proof My GP finally ordered a second MRI. I am
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