Multiple Sclerosis

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  • Treatment follow-up reveals positive results for MS patients

    ThisIsMS - News
    MSUK
    21 May 2015 | 7:23 am
    Betaseron Statistics : 1 Post || 83 Views Post by MSUK
  • DLA will become PIPs

    ThisIsMS - News
    MSUK
    22 May 2015 | 2:17 am
    General Discussion Statistics : 1 Post || 36 Views Post by MSUK
  • Ifn-lambda, a natural anti-viral with potential for pwms

    ThisIsMS - News
    Anonymoose
    22 May 2015 | 11:06 am
    General Discussion Statistics : 1 Post || 3 Views Post by Anonymoose
  • "The Real Diet of Man", now available as a free PDF

    ThisIsMS - News
    ElliotB
    22 May 2015 | 2:30 am
    General Discussion Statistics : 1 Post || 43 Views Post by ElliotB
  • Attacked by a Three-Headed Beast

    Wheelchair Kamikaze
    The Wheelchair Kamikaze
    13 May 2015 | 6:20 pm
    When I first started writing Wheelchair Kamikaze back in 2009 I had very little idea of what these pages might eventually evolve into, but I did know that I didn’t want the blog to take the form of an illness diary, a simple journal of my MS symptoms and day-to-day experiences with the disease. Instead, I wanted to concentrate more on the emotional and perceptual impact of dealing with a progressive crippling disease, of being forced to slowly watch one’s body being consumed from within while trying not to lose one’s head in the process. I also thought the blog would be a good place to…
 
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    Multiple Sclerosis Research News -- ScienceDaily

  • Discovery of a treatment to block the progression of multiple sclerosis

    20 May 2015 | 5:26 am
    A drug that could halt the progression of multiple sclerosis may soon be developed thanks to a new discovery.
  • Multiple sclerosis: Scientists identify cause of movement, balance problems

    19 May 2015 | 9:22 am
    New research into the causes of the excessive inflammation that drives multiple sclerosis has identified a faulty 'brake' within immune cells, a brake that should be controlling the inflammation. This points to a potential target for developing new therapies to treat multiple sclerosis and could have important implications for other autoimmune diseases, such as the colon disease colitis and the chronic skin condition atopic dermatitis.
  • Antiviral compound may protect brain from pathogens, West Nile virus, study shows

    15 May 2015 | 11:13 am
    An antiviral compound may protect the brain from invading pathogens, researchers have found. Studying West Nile virus infection in mice, scientists showed that interferon-lambda tightens the blood-brain barrier, making it harder for the virus to invade the brain.
  • Cytokine may play major role in multiple sclerosis

    29 Apr 2015 | 7:10 am
    Multiple sclerosis (MS) is caused by immune cells that activate a cascade of chemicals in the brain, attacking and degrading the insulation that keeps neuronal signals moving. These chemicals, called cytokines, drive the inflammation in the brain, attracting more immune cells, and causing the debilitating disease marked by loss of neurological function. Researchers have now discovered the role of a major cytokine in multiple sclerosis that could be a target for new therapy against the disease.
  • Potential new treatment for multiple sclerosis

    27 Apr 2015 | 7:16 am
    Scientists have discovered a way to prevent the development of multiple sclerosis in mice. Using a drug that blocks the production of a certain type of immune cell linked to inflammation and autoimmunity, the researchers successfully protected against the onset of MS in an animal model of the disease. The scientists say the next step is to test this strategy using other autoimmune disorders.
 
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    MS-UK Latest MS News

  • Disability Living Allowance will become Personal Independence Payments (PIP)

    22 May 2015 | 6:13 am
    If you already claim Disability Living Allowance (DLA), from 25 May 2015 if you live in the postcode areas for Bristol, Cambridge, Colchester, Dartford, Gloucester, Milton Keynes, Paisley, Romford Swindon, Spalding or Southend you will be asked to claim ‘Personal Independence Payment’ instead...
  • Treatment follow-up reveals positive results for Multiple Sclerosis patients

    21 May 2015 | 11:19 am
    Results from the BENEFIT11 trial has found that early treatment with IFNB-1b leads to improvements in cognition and fatigue in the long-term, as well as sustained employment and favourable magnetic resonance imaging (MRI) outcomes, measured at the 11-year mark, according to the study Long-Term Impact Of Early MS Treatment With Interferon Beta-1b: Clinical, MRI, Employment And Patient-Reported Outcomes (PROs) at the 11-Year Follow-up of BENEFIT (BENEFIT 11)......
  • Scientists identify cause of balance problems

    20 May 2015 | 6:33 am
    New research into the causes of the excessive inflammation that drives multiple sclerosis has identified a faulty "brake" within immune cells, a brake that should be controlling the inflammation. This points to a potential target for developing new therapies to treat MS and could have important implications for other autoimmune diseases, such as the colon disease colitis and the chronic skin condition atopic dermatitis, say researchers....
  • Discovery of a treatment to block MS progression

    20 May 2015 | 6:21 am
    A drug that could halt the progression of MS may soon be developed thanks to a discovery by a team at the CHUM Research Centre and the University of Montreal...........
  • Genzyme and Ablynx form MS pact

    18 May 2015 | 12:01 pm
    Sanofi group Genzyme and Belgian biotech Ablynx have formed a pact to investigate the latter’s nanobodies against a target that plays an important role in MS, in the hope of targeting the neurodegeneration linked with the condition....
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    multiple sclerosis

  • Ablynx adds Genzyme to roster of big-name collaborators

    Nick Paul Taylor
    21 May 2015 | 12:51 am
    Ablynx has entered into a collaboration with Sanofi's Genzyme to investigate the use of its single-domain antibodies against a target involved with multiple sclerosis. The deal gives Genzyme the exclusive right to test the antibodies in models relevant to multiple sclerosis.
  • Biogen's novel MS drug shows promise of repairing nerve tissue

    Damian Garde
    15 Apr 2015 | 8:50 am
    Biogen's latest treatment for multiple sclerosis helped repair damaged nerve tissue in a Phase II study, an incremental victory for a novel therapy that has a long way to go.
  • Biogen's future: Bigger bets on CNS, smaller name

    Damian Garde
    23 Mar 2015 | 6:43 am
    Biogen's latest evolution is more than just a nominal shift, according to its CEO, as the Big Biotech lops the Idec from its name and hopes to parlay its success in multiple sclerosis into some tough-to-treat diseases.
  • Google, Biogen team up on MS research: report

    John Carroll
    27 Jan 2015 | 7:42 am
    Looking for some insights into the way that environment and biology influence the development of multiple sclerosis, Biogen Idec will team up with Google to sift through a mountain of data on the topic, according to a report from Bloomberg.
  • UPDATED: Biogen Idec's remyelination drug raises hopes--and fears--in PhII

    John Carroll
    8 Jan 2015 | 5:23 am
    Shares of Biogen Idec were buoyed this morning after the big biotech highlighted positive data from its mid-stage study of anti-LINGO-1, a closely watched drug that raises the potential for spurring remyelination--repairing the damage done by diseases like multiple sclerosis. But a careful second look at the results also underscores just how challenging this development program is for Biogen Idec.
 
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    Life With Multiple Sclerosis

  • Are You Stronger Than MS?

    Trevis Gleason
    21 May 2015 | 6:42 am
    May 27is World MS Day, and the hashtag #strongerthanMS will be used to raise awareness around the globe. The theme of this year’s celebration centers around access. Why access? Because each person with multiple sclerosis is affected differently but we all want to feel that we are allowed to do the things we choose and are able to do. Events around the world will focus on the people living with MS and those close to us who help us live our best lives. But is it just preaching to the choir? Here in tiny little Ireland, 25 events are planned around the country, and the United States lists 16…
  • Fingers and Feet, Don’t Fail Me Now

    Trevis Gleason
    20 May 2015 | 7:00 am
    Two years ago this month we published the first entry in our MS Symptom Thesaurus. In the ensuing 24 months we’ve posted nearly as many entries on topics from pain to drop foot, and on to depression, “cog fog,” and so many more. The concept is for you to leave your synonyms, adjectives, adverbs, descriptions, accounts, representations, narratives, etc., of the multiple sclerosis symptom topic in the comments section. I don’t know of another patient-driven symptom thesaurus for multiple sclerosis and I have been told by many that your comments have helped countless numbers of our MS…
  • Vision Quest: Have You Had Your Eyes Checked Lately?

    Trevis Gleason
    15 May 2015 | 11:30 am
    Don’t love wearing glasses? I doubt that anyone does. That said, I do love my glasses. Beyond allowing me to see better, the frames I have are the only fashionable accessory statement I make. Silly as it may sound, it’s likely that it’s because I really like these spectacles that I haven’t gone in for an eye test in a fair good few years. Well, today I had an appointment with my local optometrist for the full-on exam and a new prescription for glasses. Now, I haven’t been wholly irresponsible when it comes to my eyes. I’ve had regular neuro-ophthalmologist checks on the state…
  • Feel Bad? Maybe Things Are Better Than You Think

    Trevis Gleason
    13 May 2015 | 11:58 am
    In January 2014, we changed the way we asked our monthly question: How’s your MS today?  That’s when we started using the Life With Multiple Sclerosis Self-Evaluation Scale (LWM3S). It’s a simple 1-10 scale. 1= The best I’ve felt my symptoms since diagnosis with MS 10= The worst I’ve felt my symptoms since diagnosis with MS It’s obviously a subjective scale, but you are the subject. You are the only one living inside of your head, your body, and your spirit. You are the only one who can answer this question. We’ve found that many of you like this scale as it places our…
  • Can’t Afford Your Prescriptions? Here’s How to Get Help

    Trevis Gleason
    8 May 2015 | 6:40 am
    Earlier this week I wrote about the price of multiple sclerosis drugs in the United States. That piece was on the heels of a report published in Neurology that told of the out-of-control rise in the costs of disease-modifying therapies for MS. The blog was shared hundreds of times by our readers on social media sites. I thank you for your generosity, and I share your alarm at the current state of things. That said, and until we all work to find a change to the system, there is some help for those struggling to pay for their meds. We must first note, of course, that some people choose not to…
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    Carole's MS blog

  • Good Riddance Winter!!

    27 Apr 2015 | 7:14 am
    Here's how I amused myself this winter.  I had to do something to relieve the monotony of a really  cold, snowy, miserable, affair . At least I was able to cheer up some neighbours and passers-by with my spray painted flowers. When you look outside and only see white for months it can get to you.Its' over now and good riddance.  I felt like I had a curse on me.  In March I fell  on a tiny piece of ice the size of  a cookie, banged my head on the metal edge of the door frame, and seriously messed up my leg. No broken bones no head injury. I'm stupid though. I…
  • 2014 The Highs and Lows

    31 Dec 2014 | 1:08 pm
    That's me December 31, 2014 12:00 p.m.  I was saying good bye to this year at the Multicultural Association office where I do mentoring. OK, even though I don't normally go for these year in review summaries,  I decided to write one for my blog, because 2014 really was an interesting time. So here they are, the highs and lows  of 2014.Highs I lost 30 lbs.  thanks to a low cab diet and plenty of swimming at the Golden Hawk recreation centre.  This regime has also greatly improved my walking and my strength. My neighbours have commented on how much better I'm…
  • RAMBLES FROM MY CHAIR: Rambling towards Christmas

    6 Dec 2014 | 1:30 pm
    RAMBLES FROM MY CHAIR: Rambling towards Christmas
  • Christmas Season 2015

    6 Dec 2014 | 1:20 pm
    Here's  a pic of the very first Christmas wreath that I have made myself, and all from scratch.It's funny how things work out sometimes. I  was accepted to be a mentor at the local community college, New Brunswick Community College. It's to help people who want to start their own business and need some free advice. I'll be writing a separate post about that program  as soon as I get permission from the college and my mentee.  Anyway, one thing led to another, and I was asked to join a wreath making course.What fun it was and great to learn how simple the technique is.
  • Proudly Canadian?

    6 Sep 2014 | 7:20 am
    Here is one of the few things left that is made in Canada and owned  and operated by Canadians.Medical Marijuana!!  This is how I get my weed  now; from a licensed producer, purchased online, and  delivered to my door by express post. Amazing that it comes from the other side of Canada; British Colombia, in less than two days.  They also have custom strains of marijuana for different needs. I use the ones for pain relief, muscle spasms , anxiety, and for sleep.  MS fatigue  is bad enough and insomnia only makes it worse. My fatigue can actually be…
 
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    Maggsbunny

  • Time to pick up the ol’ blog…

    Maggie
    14 May 2015 | 7:50 am
    Bet everyone will be surprised to see a post from me in their blog feed reader. Haha. But yes, it is time to start blogging again. I am losing too many precious memories by not journaling. And blogging seems to be the best way for me to journal. For a lot of us I’m surprised I haven’t been blogging more, because it has been going really bad with my MS, and that is usually a trigger for me to blog. But the thing is, I have been feeling too bad to blog. It has taken till now for me to be able to type reasonably again. At a stage it was almost impossible, that’s how badly my…
  • 3 months old today

    Maggie
    17 Oct 2014 | 1:49 pm
    In honour of Vivienne’s three month anniversary, I decided to start up my blog again. I have so much to share, all of it very good at this point. I survived the pregnancy, obviously, although it was pretty rough going. Not something I am going to repeat in a hurry. Or ever. But I am SO glad I did it. So glad it happened; so glad this little angel was sent to us. I have never been happier in my life. Vivienne, who we are calling Vivi, is just the most amazing baby. She has the sweetest personality and she is just so easy. Everything that a good baby should do, she does. She eats well,…
  • Tomorrow is V-day!

    Maggie
    16 Jul 2014 | 8:53 am
    Finally. My little Vivi Rosebud’s birth day has arrived. I am so ready to not be pregnant anymore. My right foot looks like a sausage and I have a cankle. This was enough of a worry to have a doppler test done to check for thrombosis yesterday. Luckily, I got the all-clear on that. Gynaecologist said anaesethiologist is not happy giving me a spinal block because of the MS. I have been worried about this too. So it will be general anaesthetic. I feel happier about this. To my dear little Vivienne: I wish you a safe passage to the outside world tomorrow, my little sweetheart. I…
  • 6 Nights to go :-)

    Maggie
    11 Jul 2014 | 8:02 am
    Beary dog has been studiously ignoring my belly for months now But she is not leaving my side for long. I know both dogs are going to be so delighted to have a little one in the house. We won’t ever have to have an Au Pair, because Vivienne will have her own two Au Bears Time getting short now before our little sweetheart arrives! The last two nights I have snored Michael awake when I turn on my back, lol. I guess no-one said pregnancy was all glamour These past couple of days have been so cold. People’s water pipes have been bursting. We will tell Vivi one day of the freezing…
  • 7 nights to go…

    Maggie
    10 Jul 2014 | 9:08 am
      Only 7 nights to go until we meet our little Vivienne Rose. Getting very exciting now!! Check out my pregnancy ticker: 38 weeks, currently. It’s been a long haul, but Vivi-bunny and I have come so far. And is little missy ever active at night! Daddy has to spoon us, and talk to us, and then it’s just knees and bum and feet, making such bumps in my tummy. I do love it. So glad we are getting to experience it.
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    Brass and Ivory: Life with MS & RA

  • Through the Roof: The Unbridled Cost of MS Drugs

    29 Apr 2015 | 1:06 pm
    The rate of price increases of specialty drugs have outpaced those of traditional medications for years. For example, in 2014 the overall expense of specialty drugs increased 30.9 percent while traditional drugs increased 6.4 percent, according to the 2014 Express Scripts Drug Trend Report, published March 2015.In the early years of MS drugs (1993-2002), prices remained stable. After Rebif was launched in 2002 with a price of $15,262, it took three years before the average price of MS drugs rose to $15,792 in 2005. Tysabri was relaunched in 2006 with a price tag of $25,850 after which it took…
  • To Complete Your Current Drug List: Add Contraindications

    24 Apr 2015 | 1:11 pm
    This past Monday I consulted my primary care physician (PCP) about a suspected urinary tract infection. I’d been feeling progressively not well, although I’ll admit that I’ve been burning the proverbial candle from every angle imaginable and have earned fatigue and increased MS symptoms. But after experiencing sudden leg weakness, I thought that it was time to take action. If infection was causing a pseudoexacerbation, there was something we could do about it.My PCP prescribed an antibiotic which I started taking immediately. The next morning I had a routine appointment with my…
  • Glatopa: Generic Copaxone Approved by FDA

    18 Apr 2015 | 1:15 pm
    Before lengthy legal battles between Teva Pharmaceuticals and drug manufacturers eager to claim a portion of the lucrative MS drug market have been completely resolved, the FDA announced late on Thursday, April 16, 2015, approval of the first generic version of Copaxone (glatiramer acetate injection). Sandoz, a subsidiary of Novartis, has received FDA approval to market Glatopa, a generic version of glatiramer acetate in a 20 mg/ml daily injection. Developed in collaboration with Momenta Pharmaceuticals and produced entirely in the US, Glatopa is indicated for the treatment of patients with…
  • Ask Congress to Sponsor the #NeuroData Bill

    17 Apr 2015 | 1:22 pm
    The Neurological Diseases Act of 2015:Requires the Centers for Disease Control and Prevention (CDC)to enhance and expand infrastructure and activities to track the epidemiology of neurological diseases; andto incorporate information obtained through such activities into a statistically-sound, scientifically-credible, integrated surveillance system, to be known as the National Neurological Diseases Surveillance System.Requires the Department of Health and Human Services (HHS) to ensure that the System facilitates further research on neurological diseases.Requires HHS to provide for the…
  • Multiple Sclerosis Cooling Programs

    13 Apr 2015 | 1:26 pm
    Multiple sclerosis advocacy organizations want to help you deal with the summer heat and provide free cooling equipment to those who meet eligibility criteria. Different types of cooling vests, neckties, wristbands, bandanas, baseball hats, and more are available. The time to apply for these programs is RIGHT NOW as supplies may be limited.The Multiple Sclerosis Foundation Cooling Program opens each year on February 1st and continues through June 1st. Applications, which require income verification and a doctor’s note, can be submitted online or by postal mail. Applications are confidential…
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    A Short in the Cord

  • We'll Pause Now for This Station Break

    15 May 2015 | 11:01 am
    2015 has been a whirlwind already.  As I noted in an earlier blog ("I Can Do This"), I over committed to activities and, believe it or not, I am STILL paying for it physically and mentally.  It was all good stuff, but even the little tasks that only take one or two hours a week or happen only once a month will add up to a demanding, energy-draining schedule. Just yesterday, I forgot my fundamental rule for personal energy management: "Do no more than one event a day."  I had blood drawn in the morning, then saw my PCP in the afternoon, then had to spend time at the…
  • Wheeler's Wobblers MS Walk Results

    11 May 2015 | 10:44 am
    RESULTS FROM THE TWO 2015 WHEELER'S WOBBLERS MS WALKS IN DELAWARE: We raised $11,000 (and 72 cents). WOW is all I can say over and over. THANK YOU!Wilmington (21 walkers): $6,777.72Newark (34 walkers): $4,223  WOW!
  • Leap and the Net Will Appear

    9 May 2015 | 11:32 am
    Quote from John Burroughs, American author and naturalist:"Leap and the net will appear"Today, this Eastern Bluebird finally got up the courage to leap from the comfort and safety of its nest box, where it had hatched about two weeks ago. But on the way out, it stumbled and caught itself on the edge of the box. After flapping madly, it landed on the top of the baffle under the box.  It finally flew away to the safety of the trees while its sibling watched from inside the box.It takes courage to try something new, to leave the comfort of the known.  But sometimes that effort will…
  • Diverse Groups - One Goal

    1 May 2015 | 4:33 pm
    Our Newark (Delaware) Wheeler's Wobblers MS Walk team is made up of diverse groups that at first glance seem to have nothing in common.For example, the 5th and 6th grade "Roots and Shoots" children from the Unitarian Universalist Fellowship of Newark will be walking along with members from the University of Delaware wrestling team;Dax, a dog from the Canine Companions for Independence we be walking alongside a woman who has run numerous marathons;Friends from the Newark Main Street Multiple Sclerosis support group and Middletown Lunch Bunch MS support group will be walking (rolling/being…
  • I Can Do This!

    27 Apr 2015 | 11:56 am
    The last few months have really challenged my energy management. Between MS walk fundraisers, MS walks, speaking engagements, conducting a workshop, yada yada yada, I lost my routine for rest, exercise, meditation, and proper nutrition.  The tank has been empty for a few weeks. When I get this exhausted, I go on auto-pilot where I can push through the fatigue but not remember anything that I did. Then my body gets back at me with a rerun of all the MS symptoms I've ever experienced all at once. And just for fun, it drops a boulder on me just to show me who's really running this show. I…
 
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    MS Trust Recent Story List

  • Barriers to treating pain

    15 May 2015 | 4:00 pm
    A study by Pain Concern has identified the main barriers to effective treatment of chronic pain are organisational issues, limited treatment options, patient wellbeing and difficulty in talking about the nature of the symptom. Scotsman Pain - A to Z of MS
  • Problem drinking

    10 May 2015 | 4:00 pm
    A Canadian study of 140 people with MS has found that one in six drinks to excess. These people also had a higher prevalence of anxiety and suicidal ideation (but not low mood or depression). They were also more likely to have other substance abuse problems and a family history of mental illness. MS News Today Anxiety - A to Z of MS
  • Young person with MS

    10 May 2015 | 4:00 pm
    An article raising awareness of MS in children features Lucy Wood who was diagnosed six years ago at the age of 5. Daily Telegraph Children with multiple sclerosis - A to Z of MS
  • Mental Health Awareness Week

    10 May 2015 | 4:00 pm
    May 11-17 is the Mental Health Foundation's Mental Health Awareness Week, which is focussing on mindfulness. Mental Health Foundation Independent Depression - A to Z of MS Mindfulness and meditation - A to Z of MS
  • Exercise helps with cognition

    6 May 2015 | 4:00 pm
    Australian research has found that a home-based stepping exercise improves balance and cognition in people with MS. MS Research Australia Cognition - A to Z of MS Exercises for people with MS
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    MS Trust Stop Press

  • Exercise through gaming helps people with MS to improve balance

    7 May 2015 | 4:00 pm
    Two studies have recently been published which use videogame technology or "exergaming" to improve balance in people with MS. One study used Nintendo Wii Fit and the other used an electronic sensor floor mat connected to a TV screen in a rhythm stepping video game. Impaired balance can be one of the most disabling aspects of MS and can increase the risk of falls.
  • Mindfulness beneficial for low mood in progressive multiple sclerosis

    5 May 2015 | 4:00 pm
    A study of mindfulness in people with primary and secondary progressive MS showed that it had beneficial effects on levels of distress. It was also found to reduce levels of pain, fatigue, anxiety and depression.
  • MS Awareness Week 2015

    26 Apr 2015 | 4:00 pm
    MS Awareness Week 2015 begins today. This year at the MS Trust we're focusing on the importance of MS specialist services to people affected by MS with our Heart of MS Care campaign.
  • London Marathon 2016 ballot opens on Monday 4 May

    25 Apr 2015 | 4:00 pm
    If you would like to run the Virgin Money London Marathon on 24 April 2016 to support people affected by multiple sclerosis, don't forget to enter the public ballot for a place when it opens on Monday 4 May. You can also contact the MS Trust if you'd like to apply for a Gold Bond charity place.
  • MS nurses – the good, the busy and the gaps in services

    22 Apr 2015 | 4:00 pm
    At the MS Trust we believe that everyone with MS should have access to an MS nurse. MS specialist nurses provide clinical advice and support on most aspects of MS. They often act to co-ordinate services for people with MS, referring someone on to a doctor, therapist, or other appropriate services. Many people with MS consider them to be a lifeline but, sadly, we know this is not the case for everyone.
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    The Lesion Journals

  • Perhaps I am stronger than I think

    Christie @ the Lesion Journals
    22 May 2015 | 8:07 am
    Perhaps I am stronger than I think. Thomas Merton
  • The day I met Jack Osbourne

    Christie @ the Lesion Journals
    19 May 2015 | 11:00 am
    A couple of weeks ago, we had the honor of traveling up to LA to attend the Race to Erase MS Spring Forum and Expo on behalf of iConquerMS. We drove up the night before and stayed in the same hotel where the 22nd Annual Race to Erase MS Gala was happening.Everything was a buzz as guests arrived for the Gala that night. With the hope to catch a glimpse of some Hollywood stars, we hung out in the hotel lobby bar to watch the action. As you might guess, the excited noise of laughter, chatter, music, and clinking of glasses filled the hallways.We saw a few stars come through the crowded lobby and…
  • LA artist raises awareness about MS through gorgeous mural

    Christie @ the Lesion Journals
    12 Apr 2015 | 7:39 am
    I recently came across this CBS report that highlights LA artist Lydia Emily. Lydia created this amazing mural in downtown LA, hoping to spread awareness about living with Multiple Sclerosis.Have a watch and be prepared to be inspired!
  • You’re invited to share your MS inspired tattoo with Healthline.com

    Christie @ the Lesion Journals
    5 Apr 2015 | 7:50 am
    Getting inked can be a powerful reminder that you are stronger than your MS, and a great way to raise awareness. While I don’t have a tattoo myself (reason being is that I cannot decide for the life of me what to ink myself with – I am forever contemplating the perfect design), I think what our friends over at Healthline are doing is pretty cool. They are hosting the “My MS tattoo” campaign and are looking for tattoos inspired by your fight with MS.Here’s how to participate:Send a clear photo of your tattoo (at least 285x285 in .jpg or .png format) to nlascurain@healthline.com with…
  • Call your neurologist on Monday morning and ask for guidance on Vitamin D

    Christie @ the Lesion Journals
    29 Mar 2015 | 8:47 am
    There was a common theme at a couple of events I attended recently yet what I heard was nothing new to us, especially if you are reading the news, set up on Google Alerts for Multiple Sclerosis, and hanging out in social media chat rooms. What’s the advice from our favorite neurologists, professors, nurses, MSers, and friends of the MS community?If you live with MS and are not already taking the "sunshine vitamin", call your neurologist on Monday morning and ask for guidance on Vitamin D. The benefits of the sunshine vitamin have been talked about for a while and if you cannot relocate to…
 
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    Wheelchair Kamikaze

  • Attacked by a Three-Headed Beast

    The Wheelchair Kamikaze
    13 May 2015 | 6:20 pm
    When I first started writing Wheelchair Kamikaze back in 2009 I had very little idea of what these pages might eventually evolve into, but I did know that I didn’t want the blog to take the form of an illness diary, a simple journal of my MS symptoms and day-to-day experiences with the disease. Instead, I wanted to concentrate more on the emotional and perceptual impact of dealing with a progressive crippling disease, of being forced to slowly watch one’s body being consumed from within while trying not to lose one’s head in the process. I also thought the blog would be a good place to…
  • Glimmers of Hope for Progressive MS: Human Stem Cell Trial, Biotin Study Both Show Efficacy

    The Wheelchair Kamikaze
    26 Apr 2015 | 7:05 pm
    Progressive multiple sclerosis is a particularly horrendous and intractable illness. Unlike the relapsing remitting form of the disease, for which there are currently 12 approved treatment options (however imperfect these may be), there is tragically little available for progressive MS patients (one very flawed treatment option for SPMS and none for PPMS). At the recent American Academy of Neurology meetings, held last week in Washington DC, some rays of hope for progressive MS finally shone through, among them studies done on honest-to-goodness human progressive MS patients – as opposed to…
  • A Stranger in Strange Lands

    The Wheelchair Kamikaze
    13 Apr 2015 | 6:47 pm
    Way back in the summer of 1989, just about a month before my 26th birthday, I unintentionally found myself living in South Florida. An unfortunate confluence of bad decisions on my part, ill will on the part of others, and an ample dose of plain old rotten luck landed me in an environ in which I never intended to land. Without getting into the gory details, suffice it to say that for me Florida was a refuge of last resort, a place I had visited fairly often (I’d long had family living there) but one which I’d never even considered a spot in which I might one day actually reside. In fact,…
  • Bits and Pieces: Short-Term Memory Edition (including MS drug news, restless genitals, natural remedies, Oscar Wilde, ancient viruses, and nauseating MS studies)

    The Wheelchair Kamikaze
    23 Mar 2015 | 4:42 pm
    (For those readers who receive these posts via email, the following contains lots of multimedia eye and ear candy that can’t be accessed via email. I wouldn’t want you to miss out on all of the good stuff, so (click here) to view this post on the Wheelchair Kamikaze website) Over past year or so, I felt like I was experiencing lapses of memory and that I just wasn't as mentally sharp as I used to be. Although my disease continues to decimate my body, it has pretty much left my mind alone, and I thankfully haven’t previously suffered from any of the cognitive difficulties that plague so…
  • National MS Society Decision Makers Take Big Bucks from Big Pharma

    The Wheelchair Kamikaze
    9 Mar 2015 | 8:39 pm
    As I detailed in two recent Wheelchair Kamikaze essays, the American National Multiple Sclerosis Society has repeatedly rejected grant proposals to help fund the only FDA approved human MS stem cell trial currently being conducted in the US, which is now underway at the Tisch Multiple Sclerosis Research Center of New York (click here and here). These two previous posts resulted in a flood of email and phone calls to the powers that be at the NMSS (thank you, dear readers), who responded by saying that the Society makes decisions regarding which research projects to fund based on the…
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    Life in Spite of MS Blog

  • Meet Kym Sellers!

    9 May 2015 | 7:36 pm
    Meet Kym Sellers - a local Cleveland, Ohio radio personality. Kym has always been a fighter, so fighting MS in order to help others, as well as herself, comes naturally.
  • Severe Onset MS

    7 May 2015 | 6:35 am
    Severe onset MS is when multiple sclerosis comes on suddenly with severe symptoms that can cause anything from blindness to paralysis. Can you come back from this type of MS? Read Breea's story
  • We have a...., NEW FORUM!

    29 Apr 2015 | 9:00 pm
    Sorry for shouting, but I'm very excited to announce our new forum - The Link II - right here, and there's a Chat Room! Yes. I kid you not. We've taken the steps to provide this resource for you, our most valued visitors. Share, Tweet, and Tell everyone you know that it's finally here! Just follow the link below to register and join. Once you're approved (a minor technicality) you'll be good to go. We've already added a few members from The Link (I) and hope they find their way here. Please Note: Your first 5 posts will need to be approved - (to make sure you're not a robot or spammer) - then…
  • We have a...., NEW FORUM!

    29 Apr 2015 | 9:00 pm
    Sorry for shouting, but I'm very excited to announce our new forum - The Link II - right here, and there's a Chat Room! Yes. I kid you not. We've taken the steps to provide this resource for you, our most valued visitors. Share, Tweet, and Tell everyone you know that it's finally here! Just follow the link below to register and join. Once you're approved (a minor technicality) you'll be good to go. We've already added a few members from The Link (I) and hope they find their way here. Please Note: Your first 5 posts will need to be approved - (to make sure you're not a robot or spammer) - then…
  • Hello Mr. Montel

    28 Apr 2015 | 12:02 am
    Thank you for your books and speaking about MS. I was diagnosed 10 years ago with this disease. I have Ann Baroke's book and try to follow what she has
 
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