Multiple Sclerosis

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  • PML case reported for dimethyl fumarate (Tecfidera)

    MS Trust Stop Press
    22 Oct 2014 | 4:00 pm
    A case of PML (progressive multifocal leukoencephalopathy) has been reported in a person who had been taking dimethyl fumarate (Tecfidera).
  • Does Multiple Sclerosis Start with Faulty Gut Bacteria?

    Healthline News: Multiple Sclerosis
    Jeri Burtchell
    19 Oct 2014 | 12:00 am
    A new study comparing intestinal bacteria in healthy volunteers to bacteria found in people with MS shows a stark contrast in the number and type of microbes each group carries.
  • Dimethyl fumarate (Tecfidera) and PML

    MS Trust Recent Story List
    21 Oct 2014 | 4:00 pm
    Someone has died with the brain infection PML whilst taking dimethyl fumarate (Tecfidera) to treat MS. The person had lymphopenia, which reduces the number of white blood cells and the body's ability to control the virus that causes PML. Boston Globe Reuters PML (Progressive multifocal leukoencephalopathy) - A to Z of MS
  • Man reported missing from Saskatoon group home

    MULTIPLE SCLEROSIS - Yahoo News Search Results
    24 Oct 2014 | 6:37 am
    A man with multiple sclerosis has been reported missing from a Saskatoon group home.
  • FDA approves label change for oral MS drug Aubagio

    MS-UK Latest MS News
    21 Oct 2014 | 12:52 am
    The US Food and Drug Administration (FDA) approved Genzyme’s application to include new information about its multiple sclerosis drug teriflunomide (Aubagio) on its label.The new labeling content is efficacy and safety data from two Phase III trials of the drug. One trial, a study known as TOPIC is described in the Sept., 2014 issue of The Lancet Neurology. In it Aaron Miller, MD and colleagues report that in 618 relapsing-remitting multiple sclerosis patients assigned to the drug or placebo those who got the drug had a significantly reduced risk of relapse.  The patients got a…
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    Multiple Sclerosis Research News -- ScienceDaily

  • Cells from placentas safe for patients with multiple sclerosis, study shows

    29 Sep 2014 | 6:02 am
    Patients with Multiple Sclerosis (MS) were able to safely tolerate treatment with cells cultured from human placental tissue, according to a study. “This is the first time placenta-derived cells have been tested as a possible therapy for multiple sclerosis,” said the lead investigator of the study. “The next step will be to study larger numbers of MS patients to assess efficacy of the cells, but we could be looking at a new frontier in treatment for the disease.”
  • Promising results obtained with multiple sclerosis vaccine

    23 Sep 2014 | 12:21 pm
    Thanks to new insights related to dendritic cell vaccines, researchers are investigating a potential vaccine for MS treatment and prevention. If future research supports early findings, the study could mark an important first in that it attacks MS early while preserving the immune system.
  • Benefits of wellness program for people with multiple sclerosis demonstrated in pilot study

    22 Sep 2014 | 12:17 pm
    A pilot study has shown the benefits of a 10-week psychoeducational wellness program in people with multiple sclerosis. Improvements were seen in mood, overall mental health, perceived stress, and pain, researchers report.
  • Multiple sclerosis drug candidate shows new promise

    19 Sep 2014 | 6:27 am
    Positive new data have been released on a drug candidate, RPC1063, for relapsing multiple sclerosis. According to the results from a six-month Phase 2 study of 258 multiple sclerosis patients, the drug candidate reduced the annualized relapse rate of participants with multiple sclerosis by up to 53 percent, compared with placebo. The potential therapy also decreased the emergence of new brain damage seen by MRI by more than 90 percent.
  • Slowed processing speed linked with executive deficits in multiple sclerosis

    16 Sep 2014 | 10:25 am
    A new study supports the role of slowed processing speed in the executive deficits found in individuals with multiple sclerosis. Following this study, experts say that MS cognitive research should focus on two key domains -- processing speed and memory.
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    MS-UK Latest MS News

  • Canadian collaboration advances promising research targeting progressive Multiple Sclerosis

    22 Oct 2014 | 4:17 am
    Development of new therapies for progressive multiple sclerosis (MS) is getting a boost this fall as the first project funded through the MS Society of Canada-Centre for Drug Research and Development (CDRD) collaboration is launched. The study, which was selected from over thirty applications from around the world, will be led by Canadian researcher Dr. Craig Moore (Memorial University, Newfoundland). The six-month project will identify and validate new drug targets for progressive MS, with a particular focus on understanding how inflammation in the brain leads to subsequent tissue injury and…
  • Study explores link between MS and uveitis

    22 Oct 2014 | 3:55 am
    A joint study by researchers from Germany and the US has found that nearly 60% of patients with multiple sclerosis (MS) and uveitis were diagnosed with each condition within five years....
  • FDA approves label change for oral MS drug Aubagio

    21 Oct 2014 | 12:52 am
    The US Food and Drug Administration (FDA) approved Genzyme’s application to include new information about its multiple sclerosis drug teriflunomide (Aubagio) on its label.The new labeling content is efficacy and safety data from two Phase III trials of the drug. One trial, a study known as TOPIC is described in the Sept., 2014 issue of The Lancet Neurology. In it Aaron Miller, MD and colleagues report that in 618 relapsing-remitting multiple sclerosis patients assigned to the drug or placebo those who got the drug had a significantly reduced risk of relapse.  The patients got a…
  • Study suggests vaccines do not appear to increase risk of Multiple Sclerosis

    21 Oct 2014 | 12:37 am
    Scientists looked at about 4,700 people who received vaccines against hepatitis B (Hep B) and the human papillomavirus (HPV), and found no long-term risk of developing multiple sclerosis (MS) or similar nervous-system diseases.....
  • Estimating typical Multiple Sclerosis disability progression speed from clinical observations

    20 Oct 2014 | 2:16 am
    Murray G. Brown,  Mark Asbridge, Vern Hicks, Sarah Kirby, Thomas J. Murray, Pantelis Andreou, Dong LinAbstractIntroductionMultiple sclerosis (MS) is a chronic disease of the central nervous system. Estimates of MS natural history (NH) disability progression speed from clinical observations vary worldwide. This may reflect, in part, variance in censoring-bias) (missing observations) and assumptions about when irreversible disability progression events occurred. We test whether estimates of progression speed which assume midpoint survival time at irreversible disability endpoints are…
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    Life With Multiple Sclerosis

  • MS Symptom Thesaurus: The MS Hug

    Trevis Gleason
    24 Oct 2014 | 7:39 am
    It’s been a while since we opened the MS Symptom Thesaurus. This concept sprung from our 12 lessons blog in early 2013. In it, you have shared words and descriptions that have helped an uncountable number of people trying to explain their symptoms. Today, we open the pages to “The MS Hug.” Official MS sites list the MS Hug as “constriction around the abdomen, a tight band around the chest or – as the name implies – a full-body hug.” My experiences with the MS Hug left me thinking “panic attack,” “Iron maiden,” “boa constrictor,” “gasping for breath,”…
  • Spring Forward or Fall Back: How’s Your MS Today?

    Trevis Gleason
    22 Oct 2014 | 7:51 am
    Greetings from my local Internet café. We’re in the midst of another phone/Internet outage in my corner of Ireland. The remnants of hurricane Gonzalo or some other force may have had a hand, but it reminds me to ready for the winter to come. The upcoming change back to standard time has me thinking of the long, dark nights of the next few months as well. All of it reminds me that it’s time for our monthly check-in. How’s your MS today? The short days make it even more important for me to get out of the house. Rain, wind, even snow, and a little fresh air helps my mood if not my…
  • A Cup of Coffee and 10 Tips for a Successful Nap

    Trevis Gleason
    17 Oct 2014 | 2:25 pm
    Many people – MS and otherwise – find themselves in need of a rest during the day.  My energy usually wanes around 2 p.m.  Sometimes it’s just a dull ache of tiredness and others it’s lay-down-or-fall-down, mind-crushing MS fatigue. Sometimes these kips turn into full-on MS sleeps and I wake hours later in the same position I started.  In the midst of an exacerbation of my multiple sclerosis, this kind of sleep might be required.  For the ‘everyday’ fatigue, however, sleeping for that long can muck up that night’s sleep and send me into an awkward sleep deprivation spiral.
  • Silly Little MS Mistakes

    Trevis Gleason
    14 Oct 2014 | 8:33 am
    “If I didn’t laugh, I’d cry… and I’ve cried enough over MS.” I say it quite often.  I often get a little titter at myself when I walk into the wrong room, walk into a wall, or simply turn and fall.  I’ve made a fool of myself in front of the bathroom mirror by using toothpaste to try to shave, or in small groups when I go on “MS mental holidays.” This past weekend, however, I had a little hiccup that embarrassed me in front of thousands. Every Sunday for the past good while, I post a simple little meme on our Life with MS Facebook page.  Sometimes it’s my…
  • Comorbidity: Living With MS and…

    Trevis Gleason
    8 Oct 2014 | 9:26 am
    It’s either the health equivalent of the domino theory or some deeper involvement of our whole immune system makeup, but people living with MS (or any other autoimmune condition) seem to be more likely to acquire a second condition than “healthy” people are to suffer from a first. Even in these pages, we have heard from the Life With MS community about conditions like diabetes, autoimmune allergies, rheumatoid arthritis, relapsing polychondritis, and many more. Everyday Health columnist Brad Mann lives with MS and narcolepsy. It’s one of the reasons why organizations like…
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    Living! with MS

  • Still flying

    18 Oct 2014 | 4:27 pm
    I rarely do any writing these days. I am very busy teaching and performing and I only have one day off a week if I am lucky. When that day arrives, like today, I am exhausted: physically, emotionally and on bad days, spiritually as well. In many ways, I am living my passion and my dreams. My only real complaint: my day job and the need to make a good living to take care of my family keeps me working a job I care little about. I find myself at work daydreaming about circus life, distracted from my actual work by looking at aerial pictures and videos, updating my Firebird Moving Arts page on…
  • Patience

    3 Jan 2014 | 12:01 pm
    Embrace the sunshine when the sun shines. I am still not ready to write something of or about Cara but I feel a pull to write, to just let words spill out on the page and see where they lead. Every year in my yoga classes right after new year's I talk about letting go of the old to make room for the new. Now I ask myself, "What layers must I shed? What do I seek in the year ahead?" I think until June that there is little I want to change in my external realities but much I seek to change internally. I have only one "resolution" but it is massive, not a resolution I expect to excel at or to…
  • What comes after

    30 Dec 2013 | 3:38 pm
    My close friend and acro yoga partner died in a car crash on Friday. Since then I have been thinking to write something but then I find either I can't, or I am not willing to put memories to the page because then they have a way of becoming my truth and I am still sorting out my truth. When each of my grandmothers passed away I was almost instantly able to write something that captured the things I wanted to capture. Not so now... I think I feel different because my friend was so young. I just saw her, just talked, just practice acro and she was healthy and happy... My grandmothers each lived…
  • Decision reached for now

    9 Sep 2013 | 4:59 pm
    As I sat worrying the other night about what to do with my Copaxone situation, it occured to me that if the choice had involved my anti-depressant, there would have been no choice. I would have just bought my med with credit and a prayer. It also occurred to me that my physical health is as important to me as my mental health. I would spend every cent in my arsenal in order to keep doing aerial dance. Once I had this realization, my choice was clear, start stripping (JK). Actually, I knew that I would contact the drug company to get help with my copay. I also decided that even if I could not…
  • Please advise

    6 Sep 2013 | 5:29 pm
    Fellow MSers, I really need some good advice right now from some people like myself who understand... I went to get my Copaxone today on my health plan from my new school district. When I went to the counter to pick it up the woman told me it would be $250.00. I thought I had heard her wrong but I had not. I decided not to buy my Copaxone today so I could go home to troubleshoot. I signed up for the same Kaiser plan I had in my old district where I only had to pay $10.00 copay each time. Apparently even the same plan is not the same in each district and does not cover the same stuff. I came…
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  • 3 months old today

    17 Oct 2014 | 1:49 pm
    In honour of Vivienne’s three month anniversary, I decided to start up my blog again. I have so much to share, all of it very good at this point. I survived the pregnancy, obviously, although it was pretty rough going. Not something I am going to repeat in a hurry. Or ever. But I am SO glad I did it. So glad it happened; so glad this little angel was sent to us. I have never been happier in my life. Vivienne, who we are calling Vivi, is just the most amazing baby. She has the sweetest personality and she is just so easy. Everything that a good baby should do, she does. She eats well,…
  • Tomorrow is V-day!

    16 Jul 2014 | 8:53 am
    Finally. My little Vivi Rosebud’s birth day has arrived. I am so ready to not be pregnant anymore. My right foot looks like a sausage and I have a cankle. This was enough of a worry to have a doppler test done to check for thrombosis yesterday. Luckily, I got the all-clear on that. Gynaecologist said anaesethiologist is not happy giving me a spinal block because of the MS. I have been worried about this too. So it will be general anaesthetic. I feel happier about this. To my dear little Vivienne: I wish you a safe passage to the outside world tomorrow, my little sweetheart. I…
  • 6 Nights to go :-)

    11 Jul 2014 | 8:02 am
    Beary dog has been studiously ignoring my belly for months now But she is not leaving my side for long. I know both dogs are going to be so delighted to have a little one in the house. We won’t ever have to have an Au Pair, because Vivienne will have her own two Au Bears Time getting short now before our little sweetheart arrives! The last two nights I have snored Michael awake when I turn on my back, lol. I guess no-one said pregnancy was all glamour These past couple of days have been so cold. People’s water pipes have been bursting. We will tell Vivi one day of the freezing…
  • 7 nights to go…

    10 Jul 2014 | 9:08 am
      Only 7 nights to go until we meet our little Vivienne Rose. Getting very exciting now!! Check out my pregnancy ticker: 38 weeks, currently. It’s been a long haul, but Vivi-bunny and I have come so far. And is little missy ever active at night! Daddy has to spoon us, and talk to us, and then it’s just knees and bum and feet, making such bumps in my tummy. I do love it. So glad we are getting to experience it.
  • Vivienne’s song

    26 Jun 2014 | 12:37 pm
    Apparently one is supposed to sing to one’s unborn baby. Oh, I had such plans for this pregnancy. I was going to listen to loads of classical music, sings songs, be ultra-relaxed, eat so well, exercise gently for the whole nine months… Alas, the MS had other ideas. It has broken me down. Still, I do try and sing her her little song a couple of times a day… (to the tune of Twinkle, Twinkle Little Star) Twinkle. twinkle Vivi-bun, Such a special little one. Deep inside my tummy-tum, Gonna have a lot of fun! Twinkle, twinkle Vivi-bun, what a special little one
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    A Short in the Cord

  • Beyond Bone Tired

    16 Oct 2014 | 6:48 pm
    After my last post, The Biscuit Week, about getting hit with bad fatigue, I discovered an article posted to the On Being website that I want to discuss.Because I've been dealing with bone-crushing fatigue for years, I have studied how to get help when needed.  I've even lectured on the subject.  Step one: determine what you need. Step Two:  ASK.  This is drastically oversimplified, but you get the idea. Asking for help is hard, often because I don't know what I need. If I do, I usually can't explain.When I'm that tired, I forget everything I've learned.So I was very…
  • The Biscuit Week

    14 Oct 2014 | 7:10 am
    Wow, the MS fatigue is really bad right now, and I’m blaming last week.What would seem like a busy week for anybody was a significantly challenging week for me. On Monday, I had a medical appointment. On Tuesday, I spent a few hours with an architect reviewing plans for a sunroom. On Wednesday, another medical appointment. On Thursday, a discussion group in the evening. On Friday morning, a two-hour home repair for women class. On Saturday, a two-hour study hall.For most people, this may seem like just a full week. But for me, this was a week from hell. Each of these events…
  • MS is a Global Disease

    28 Sep 2014 | 2:30 pm
    After a sojourn to other topics on my social media outlets (complaining about the NFL's wimpy response to domestic violence, getting inspiration from Scotland's vote on independence, and being disappointed that the Asian Games in South Korea would not allow Muslim women to play basketball wearing their headscarves), I feel that I will go back to writing about Multiple Sclerosis for a little while.It's not that those other topics are not important; to the contrary, they are very important.Too important.  Globally important.  I like being an informed citizen of the globe, I feel…
  • I'd Rather Be a Bimbo

    20 Sep 2014 | 4:51 pm
    Before the recent NFL domestic abuse problems were uncovered, I had already decided to limit watching NFL games.  I still enjoy the game, but I just got sick of all the commercials.  The play stops for booth reviews and measurements and lots more commercials.  Then there's the bone-crunching sounds from players smashing into each other.  And then more commercials.  Then pans of mostly naked women shaking pom-poms on the sidelines.  Crunch, commercials, repeat.  Superbowl? Who cares about the game, we want to watch the commercials!Now with the NFL's lame…
  • Let Us Dwell on the Distance We Have Traveled

    19 Sep 2014 | 4:38 am
    Scotland has voted to stay in the United Kingdom.  As I was reading the reports from BBC, I found some meaningful quotes that I want to share.  I think the world can learn from this event.  I know I can.From Alistair Darling, who led the winning Better Together (against independence) movement, "As we celebrate, let us also listen."From First Minister Alex Salmond, who led the movement to declare independence from UK, "Today of all days as we bring Scotland together, let us not dwell on the distance we have fallen short, let us dwell on the distance we have traveled..."That last…
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    Navigating the Journey of MS

  • May tag repairman

    15 Oct 2014 | 6:35 am
    Yesterday I had someone take a look at my washing machineAnd although it's not really a Maytag it's an eluctoluxToday the dogs went to the groomerSupposed to go to grocery store tomorrow but cancelled becauseIt's not in the budget Who needs food anyway ?Still trying to come up with plan to pay for upcoming medicalBillsGoing to talk to hospital about a payment planI'm sure they will help me
  • Rough.night

    14 Oct 2014 | 9:02 am
    OMG this weather is killing meI knew the storm would be bad but I had no idea how badTried to sleep downstairs last night but was in so much painMy oldest dog was really struggling to get up rampShe gave it everything she hadDried them off and cuddled under big blanket til they were able to fallAsleepI'm in a lot of pain today but dealing with itBecause that's what adults doHeheheHugs and silly faces from the dogs helps ( love my furballs )Worked on taxes for business this morning and repairman Came for washing machine
  • Paying bills decisions

    13 Oct 2014 | 6:36 am
    Today I'm paying bilks yuckDecisions Do I pay Dr bills or food ?Too bad we all don't qualify for the " freeloader " plan
  • New meds

    12 Oct 2014 | 11:02 am
    Yesterday I started a best medI was so nervous but Mike was here incase I had a bad reactionI actually slept really wellHope these mess are what the doctor ordered and they helpNeed to get some MS symptoms under controlSay a prayer they work
  • Jerky and jerks

    10 Oct 2014 | 6:49 am
    EToday I'm making jerky in my new dehydrator Seems like a good idea since the family " jerk"is butting his noseInto my life againCan we say jeolousy ???
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  • Going Home? Don't Leave Your Tax Behind!

    10 Oct 2014 | 5:13 am
    Suitcase packed? Ticket bought? Said goodbye to friends? There is a lot to organise if you decide to leave the UK to go back to your home country. And here is something else you should put on your to-do list: claim back tax.Most of us, if we were working temporarily in the UK and leave before the end of the tax year (5 April) are entitled to claim back some overpaid tax. Here is why:Your personal allowanceIf you are resident in the UK (that is, if you meet the statutory residence tests), then you will most likely be entitled to a personal allowance. This is the amount of money you can earn…
  • VPN - A Preeminent Solution to Your Communication Needs

    7 Sep 2014 | 7:56 am
    Over the last few years, virtual private networks (VPNs) have emerged as a major networking technology for businesses. It enables the users to hook up to a private network via the internet. The major advantage that the users get from this networking system is that they are not required to be present physically at the place where a private network is set up. People whose jobs demand travelling on a regular basis have to be in touch with their workplaces in order to coordinate well. They may at anytime need to access particular files or documents that are to be stored on their workplace…
  • Luxury Private Yacht Industry Experiences Massive Global Growth

    5 Sep 2014 | 11:41 am
    Luxury Private Yacht Industry Experiences Massive Global GrowthGlobal demand for private luxury yachts has been increasing steadily over the last five years. Marinas are at saturation point in many parts of the Mediterranean as well as the Caribbean with even Egypt experiencing a rapid rise in Red Sea marina developments. This growth is due to the largest demand for leisure boats ever seen.Recreational boat ownership is currently a $25 billion international industry and sales are growing annually at 5-10%. According to Showboats International, a publication that tracks vessel construction, in…
  • Digital Printing - Easy, Cheap and Attractive

    3 Sep 2014 | 5:50 am
    In this 21st century where the technology has improved on a great scale, the printing field has also taken a great leap with the advent of digital printing. Digital printing allows you to print photos and other images, in a wide palette of colors, all by using a computer and special inks.There are many factors which make digital printing more popular. First of all, it is very fast. All your data can be scanned or put in a USB flash drive or downloaded from the internet and added to a computer, edit it then and there and printed out in less than a minute. There is automatic mixing of colors…
  • Ask Before Getting Into Work From Home Opportunities and Franchises

    1 Sep 2014 | 6:12 am
    The popularity of franchising as an entire industry on its own has certainly reached a high peak. More and more people get interested in buying franchises. Who would not be, right? It is the most convenient way there is to own a business without having to start from scratch. Operating it is easy due to the already available system and materials. The financial returns are just as good as guaranteed, with the many positive testimonials expressed everywhere.But as business experts always advise, you have to research well to determine if you are ready for the franchising business. There are a lot…
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    MS Trust Recent Story List

  • Employment Support Allowance (ESA) assessment concerns

    22 Oct 2014 | 4:00 pm
    A Freedom of Information request shows that almost 8,000 people with long-term progressive conditions such as MS and Parkinson's have been awarded the level of Employment Support Allowance (ESA) that designed for people expected to recover enough to be able to work again. For about 5,000 of these people, the assessors reported that their being in employment is "unlikely in the longer term". Independent Benefits and tax credits - A to Z of MS
  • Dimethyl fumarate (Tecfidera) and PML

    21 Oct 2014 | 4:00 pm
    Someone has died with the brain infection PML whilst taking dimethyl fumarate (Tecfidera) to treat MS. The person had lymphopenia, which reduces the number of white blood cells and the body's ability to control the virus that causes PML. Boston Globe Reuters PML (Progressive multifocal leukoencephalopathy) - A to Z of MS
  • Seasonal effect on relapses

    20 Oct 2014 | 4:00 pm
    Australian research that studied data on 9,811 people from 55 countries found that there were more relapses in the spring and there was also found that prevalence of MS increases with distance from the equator. The paper suggests an association with vitamin D and exposure to ultraviolet light from sunshine. MSRA Vitamin D - A to Z of MS
  • Vaccines and MS

    19 Oct 2014 | 4:00 pm
    A study found no association between hepatitis B and human papillomavirus (HPV) vaccines and an increased risk of MS up to three years after vaccination. Medical News Today Science 2.0 Vaccination and immunisation - A to Z of MS
  • Foot drop - a new approach

    16 Oct 2014 | 4:00 pm
    In a small study of dorsiflexion assist orthosis, a new approach to managing foot drop, Australian researchers found that the elastic device reduced the energy needed to walk though did not increase the distance walked or the perceived level of fatigue. Healio MSRA Foot drop - A to Z of MS
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    MS Trust Stop Press

  • Thousands of people with progressive conditions deemed 'fit to work in future'

    23 Oct 2014 | 4:00 pm
    A Freedom of Information request has revealed that almost 8,000 people with long-term progressive conditions such as MS and Parkinson's have been awarded the level of Employment and Support Allowance (ESA) intended for people expected to recover enough to be able to work again. About 5,000 of these people were placed in this category despite assessors noting on reports that a return to employment is "unlikely in the longer term".
  • PML case reported for dimethyl fumarate (Tecfidera)

    22 Oct 2014 | 4:00 pm
    A case of PML (progressive multifocal leukoencephalopathy) has been reported in a person who had been taking dimethyl fumarate (Tecfidera).
  • No link between vaccination and risk of MS

    20 Oct 2014 | 4:00 pm
    This new study found no long term association between any vaccines, including hepatitis B and HPV (human papillomavirus), and an increased risk of developing MS, for up to three years following vaccination.
  • New NICE Guideline information for the public now available

    14 Oct 2014 | 4:00 pm
    Following the recent publication of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186), NICE have now published their information for the public.
  • Fingolimod (Gilenya) eligibility extended in Scotland

    13 Oct 2014 | 4:00 pm
    The Scottish Medicines Consortium (SMC), which issues guidance on whether treatments should be funded by NHS Scotland, has announced that fingolimod can now also be prescribed for people with rapidly evolving severe relapsing remitting MS (RES RRMS).
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    Wheelchair Kamikaze

  • My Body, My Self

    The Wheelchair Kamikaze
    16 Oct 2014 | 10:17 pm
    In Mel Brooks’ 1981 comedy “The History of the World, Part 1”, a scene set during the French Revolution features a member of the aristocracy rushing to tell King Louis XVI, “It is said that the people are revolting!” His Majesty quickly replies, “You said it, they stink on ice”. The exchange is an amusing play on words that succinctly and humorously sums up the crux of the social upheaval engulfing France at the end of the 18th century. Substitute me for the King of France and the words “your body” for “the people”, and you’ll get a pretty good idea of what’s…
  • Bits and Pieces: Autumn Equinox Edition (also Tysabri, MS and HIV,viruses, relapse rates, misdiagnoses, diet, and asinine research)

    The Wheelchair Kamikaze
    29 Sep 2014 | 6:22 pm
    Personification of Autumn (Currier & Ives lithograph, 1871) (Photo credit: Wikipedia) Well, according to the full scale replica of Stonehenge that I have sitting in my living room (which is right next to my exact copy of the Sphinx and down the hall from my faux Taj Mahal – it’s incredible what you can fit in a 900 ft.² apartment with a little ingenuity) summer is over and autumn is now upon us. Time for packing away the seersucker, preparing for the harvest, and getting ready for the ceremonial sacrificing of virgins. Luckily, there are no virgins available in my apartment, so…
  • Supplements, My Supplements

    The Wheelchair Kamikaze
    11 Sep 2014 | 7:38 pm
    Arabic herbal medicine guidebook (Photo credit: Wikipedia) Using natural supplements to help treat MS is always a topic of much interest amongst patients. In the face of the sometimes daunting side effect profiles of the pharmaceutical drugs approved to combat the disease, the use of herbs and other natural substances, widely perceived as being more benign than the immunosuppressant/immunomodulating pharmaceutical products, holds great appeal for many dealing with Multiple Sclerosis. MS research headlines regularly trumpet one natural remedy or another as having been discovered to slay or at…
  • The Problem with Progression, Revisited

    The Wheelchair Kamikaze
    26 Aug 2014 | 8:02 pm
    English: Cropped version of :Image:Domino effect.jpg (Photo credit: Wikipedia) The good folks who administer the website (click here) and I have reached an agreement to publish 20 essays from the Wheelchair Kamikaze archives on their site. is a wonderful resource for MS patients and those who love them, filled with the latest MS news as well as insightful articles and essays by folks dealing with the disease in all its forms. Lots of good stuff there, all of it high-quality. Best as I can figure, the fact that they decided to include some of my essays must be due…
  • Man Bites Dog (or, MS Patient Beats Insurance Company after Stem Cell Transplant, to the Tune of $400,000)

    The Wheelchair Kamikaze
    10 Aug 2014 | 9:00 pm
    (c) GoGraph / lhfgraphics Oh, the many pleasures of Multiple Sclerosis. In addition to the physical and psychological toll taken by the disease, MSers also have to deal with a medical establishment that at times seems purposely set up to make being sick as hard as possible. Here in the USA, one of the most infuriating components of that medical establishment is quite often the private health insurance companies, upon whose whims many patients rely on to pay for such superfluous luxuries as vital medications, essential treatments, and indispensable mobility devices. In my 11-year career as a…
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