Multiple Sclerosis

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    MS News Today

  • FDA delays ruling on Acorda’s MS drug until 1/2010

    caroline
    23 Oct 2009 | 5:41 am
    October 22, 2009 6:38 AM ET HAWTHORNE, N.Y. (AP) – Acorda Therapeutics Inc. said Thursday the Food and Drug Administration delayed a ruling on its multiple sclerosis drug candidate Fampridine-SR by three months. The agency was due to make a decision by Thursday, but the ruling is now due by Jan. 22, 2010. Acorda said the FDA extended its review because it recently submitted new information on its risk evaluation strategy for the drug. Acorda sent in the additional information following a meeting with an FDA panel on Oct. 14. The panel recommended that Fampridine-SR receive FDA approval.

  • Newly Published Data Show Copaxone Promoted Remyelination of Damaged Axons

    caroline
    20 Oct 2009 | 5:59 am
    The purpose of this study was to examine the effect of glatiramer acetate on oligodendrogenesis (the formation of myelin-producing glial cells in the central nervous system) and myelin formation in damaged nerve cells in mice The mice were subjected to lysolecithin-induced demyelination of the spinal cord, then treated daily for seven days with a 2mg injection of glatiramer acetate After only three days, mice treated with glatiramer acetate experienced an increase in insulin-like growth factor-1 (IGF-1) After seven days, and throughout the 28-day trial, resultant myelination was higher in…

  • Teva Sues Mylan Over MS Drug Copaxone

    caroline
    19 Oct 2009 | 5:37 am
    Teva Pharmaceutical Industries Ltd. issued a press release last week discussing the abbreviated new drug application (ANDA) containing a Paragraph IV certification for COPAXONE® (glatiramer acetate injection), filed by Mylan Pharmaceuticals Inc. Teva announced that it has filed a lawsuit against Mylan Pharmaceuticals, Inc., Mylan Inc. and Natco Pharma Ltd. for patent infringement in the U.S. District Court for the Southern District of New York. Mylan’s filing of an ANDA for what they are calling a generic version of COPAXONE® was not unexpected, as the company announced its intention to…

  • A New Cause for MS?

    caroline
    16 Oct 2009 | 2:38 am
    By Henry L. Davis NEWS MEDICAL REPORTER October 15, 2009, 6:36 AM Buffalo physicians announced Wednesday that they have started a large study that could overturn thinking about the generally accepted cause for multiple sclerosis. MS is believed to stem from an abnormal response of the body’s immune system directed against the fatty sheath that surrounds nerve fibers in the brain and spinal cord. But no one knows for sure, and recent research suggests an altogether different explanation for the disabling disease — narrowing of the primary veins outside the skull, a condition called chronic…

  • What’s the Point of Extavia?

    caroline
    16 Oct 2009 | 2:28 am
    Featured Story Oct. 16, 2009 By Angela Maas, Managing Editor Another drug in the self-injected multiple sclerosis (MS) class recently came onto the marketplace. But many within the pharmaceutical industry are saying that other than giving Novartis an entry into the MS market before its oral MS therapy gains FDA approval, it is unclear what significant advantages the drug Extavia (interferon beta-1b) — identical clinically to Betaseron (interferon beta-1b), which has been on the market for more than 16 years — offers over the other products. And health plans are likely to react…
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    Google News: Multiple Scelrosis

  • Vail Daily letter: What a name can do - Vail Daily News

    6 Nov 2009 | 11:21 pm
    Vail Daily letter: What a name can doVail Daily NewsI have read with interest the ongoing conversation regarding the name change of The Heuga Center for Multiple Sclerosis to Can Do MS.

  • New label says Tysabri risks increase over time - Boston Globe

    6 Nov 2009 | 7:32 pm
    New label says Tysabri risks increase over timeBoston Globes Tysabri is more likely to occur the longer patients use the multiple sclerosis drug, new prescribing information says. The rate of the disease, Biogen Updates Tysabri Label To Reflect Risk With Longer UseWall Street JournalElan updates Tysabri label to warn of risks of brain diseaseIrish Timesall 4 news articles »

  • Early Relapse of MS May Mean Fewer Issues Later - U.S. News & World Report

    6 Nov 2009 | 2:07 pm
    Early Relapse of MS May Mean Fewer Issues LaterU.S. News & World Report6 (HealthDay News) -- New research suggests that people with multiple sclerosis who have relapses within five years of developing the disease are more and more »

  • Teva, In Turnabout, Sues to Protect Its Multiple Sclerosis Drug Copaxone - BNET

    6 Nov 2009 | 1:55 pm
    Teva, In Turnabout, Sues to Protect Its Multiple Sclerosis Drug CopaxoneBNETTeva alleges patent infringement of its flagship multiple sclerosis drug Copaxone, and reiterates that intellectual property rights covering chemical

  • Help Drive Away Multiple Sclerosis by Donating Your Vehicle - PR Urgent

    6 Nov 2009 | 11:31 am
    Help Drive Away Multiple Sclerosis by Donating Your VehiclePR UrgentOne hundred percent of the proceeds from each vehicle benefit the National MS Society and help fund programs for clients living with multiple sclerosis. Charlotte Volunteers Receive National Recognition from National MS SocietyThe Lincoln TribuneOklahoma victory party to mark Bike MS riders' workNewsOK.comall 3 news articles »
 
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    MedicalNewsToday: Multiple Sclerosis

  • Real-Time Observation Sheds New Light On Multiple Sclerosis

    6 Nov 2009 | 5:00 am
    In diseases such as multiple sclerosis, cells of the immune system infiltrate the brain tissue, where they cause immense damage. For many years, it was an enigma as to how these cells can escape from the bloodstream. This is no trivial feat, given that specialized blood vessels act as a barrier between the nervous system and the bloodstream. Until now, tissue sections provided the sole evidence that the immune cells really do manage to reach the nerve cells.

  • Multiple Sclerosis: What Part Do Relapses Play In Severe Disability?

    5 Nov 2009 | 4:00 am
    People with multiple sclerosis (MS) who have relapses within the first five years of onset appear to have more severe disability in the short term compared to people who do not have an early relapse, according to a new study published in the November 4, 2009, issue of Neurology®, the medical journal of the American Academy of Neurology. The study is one of the first to examine how MS relapses affect people during different time periods of the disease.

  • Modifying Neural Stem Cells Improves Their Therapeutic Efficacy

    3 Nov 2009 | 3:00 am
    Stem cells isolated from the brain of adult mice (adult neural stem cells [aNSCs]) have shown very modest therapeutic effects in a mouse model of the chronic inflammatory neurodegenerative disease multiple sclerosis. But now, Guang-Xian Zhang and colleagues, at Thomas Jefferson University, Philadelphia, have developed an approach to enhance the therapeutic effects of aNSCs in this model of multiple sclerosis.

  • New Tool To Accelerate Discovery Of Autoimmune Disease Mechanisms And Therapies

    31 Oct 2009 | 1:00 am
    Currently, 5 - 8% of the U.S. population is afflicted with an autoimmune disease. Many of these are chronic and require life-long care. Moreover, different autoimmune diseases aggregate within a single family, suggesting they are caused by disruptions in common biological pathways. To help researchers investigate these common pathways, The Jackson Laboratory has published Pathways to Discovery: Autoimmune Diseases (

  • 26 New Research Projects Launched Totaling $9.2 Million To Propel Multiple Sclerosis Research

    27 Oct 2009 | 8:00 am
    The National MS Society has just committed $9.2 million to launch 26 new MS research projects as part of its comprehensive research program and commitment to move research forward. This investment comes despite a challenging economic environ¬ment, and is the latest in the Society's relentless research effort to stop MS, restore function, and end this disease forever.
 
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    This is MS

  • Oral Therapy Laquinimod to Start Phase III Trials for RRMS

    The race for an oral multiple sclerosis medication took one further step today, when Teva and Active Biotech announced that they were going to begin the final Phase of clinical testing for their pill candidate, called laquinimod. This followed the successful conclusion of Phase II, as well as consultations with the US FDA. Drugmakers are cautious... Story continues, please click "read more"...

  • MS Walking Improvement Drug Gets FDA Help

    Most of the MS therapies in the drug development pipeline, or even available today, are targeted at reducing relapses and decreasing disability progression. Which makes Acorda Therapeutics'' Fampridine-SR quite interesting. In Phase III trials, it is targeted specifically at one particularly onerous aspect of the MS burden-- impact on walking ability. Acorda and the United States Food and Drug Administration recently reached an agreement on a pathway to getting Fampridine approved for this indication. In addition to a Phase III trial currently underway, Acorda will work with the FDA''s…

  • Daclizumab Shows Promise in Phase II Trial for Relapsing Remitting MS

    Just over a year ago, PDL Pharmaceuticals partnered with MS giant Biogen (Avonex, Tysabri) to bring a drug known as daclizumab through trials for MS. Daclizumab is today used for the prevention of kidney transplant rejection, under the marketing name Zenapax (r). The partnership seems to be bearing fruit, as the companies announced that Daclizumab hit its targets in its first Phase II multiple sclerosis trial. Please click ''read more''

  • Minimal Changes in Cognitive Function of Relapsing-Remitting MS''ers in a 10-year

    The question of cognitive decline as a result of MS is a serious one. If the ac*****ulation of physical disability is a hallmark of the condition, its affect on cognitive dysfunction is not always so obvious. In fact, in a recent trial for Copaxone (glatiramer acetate) observing cognitive scores, the placebo group improved just as much as the Copaxone-treated group over two years. Perhaps 2 years was too short to see a difference, so a new study observed a group of MS''ers over TEN years. Please click ''read more'' to see the rest of the story...

  • PML Seen with Rituxan for Lupus

    Our old nemesis, progressive multifocal leukoencephalopathy, or PML, has reared its ugly head yet again, this time in association with another of Biogen''s drugs, Rituxan. PML, if you recall, was implicated in the multiple deaths associated with Tysabri last year, leading to its temporary suspension. After much analysis and an unprecedented patient board hearing by the FDA... Story continues, please click ''read more''
 
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    Yahoo! News: Multiple Sclerosis

  • Bridge For MS Patient Replaced By Good Samaritans (FOX 2 News St. Louis)

    7 Nov 2009 | 4:48 am
    The young man trapped in his home in Festus since last Friday is finally able to get out of the house. The teenager has multiple sclerosis, and a sudden rainstorm washed away his bridge to the outside world. Everything has changed for Cody Lott since last Friday. The 18-year-old, who is confined to a wheel chair, is finally getting out of the house after a flash flood washed his old bridge away.

  • Vail Daily letter: What a name can do (The Vail Trail)

    7 Nov 2009 | 4:23 am
    Vail Daily letter: What a name can do Patsy McGaughy Vail, CO, Colorado newsroom@vaildaily.com I have read with interest the ongoing conversation regarding the name change of The Heuga Center for Multiple Sclerosis to Can Do MS. As someone who has been connected to The Heuga Center for MS for 15 years as a donor, a volunteer and a beneficiary of its programs, I feel ...

  • Biogen Updates Tysabri Label To Reflect Risk With Longer Use (Nasdaq)

    6 Nov 2009 | 3:17 pm
    NEW YORK -(Dow Jones)- Biogen Idec Inc. (BIIB) amended the U.S. label of multiple sclerosis treatment Tysabri, sold with Elan Corp. PLC (ELN), on Friday to reflect that the risk of a rare brain infection rises with longer usage.

  • Early Relapse of MS May Mean Fewer Issues Later (HealthDay via Yahoo! News)

    6 Nov 2009 | 1:04 pm
    FRIDAY, Nov. 6 (HealthDay News) -- New research suggests that people with multiple sclerosis who have relapses within five years of developing the disease are more likely to suffer from severe limitations in the short term than others with the condition.

  • Real-Time Observation Sheds New Light On Multiple Sclerosis (Medical News Today)

    6 Nov 2009 | 8:17 am
    In diseases such as multiple sclerosis, cells of the immune system infiltrate the brain tissue, where they cause immense damage. For many years, it was an enigma as to how these cells can escape from the bloodstream. This is no trivial feat, given that specialized blood vessels act as a barrier between the nervous system and the bloodstream.
 
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    About.com: Multiple Sclerosis

  • Q. Am I more susceptible to H1N1 because I have multiple sclerosis?

    3 Nov 2009 | 4:01 pm
    I recently got the following e-mail: "I have MS and I guess that means that I have a weak immune system because I seem to catch every cold that is going around. Once I get a cold, it turns into something worse and I end up coughing for a long time. Does this mean that I should not get the H1N1 vaccine, because is it dangerous to me with my compromised immune system?" A. There are a couple of things going on here and I will try to clarify some points: 1. People with MS do NOT have weak or compromised immune systems. Quite the opposite, actually - our immune systems are overactive and are…

  • Julie's Low Dose Naltrexone Journal: Month 6

    2 Nov 2009 | 9:43 am
    There is bad news and good news to report about my experiences with low dose naltrexone (LDN) to help with my symptoms of multiple sclerosis (MS). As those of you who have been following my LDN journey know, I have relapsing-remitting MS and have been taking Copaxone for over 3 years. I began taking LDN 6 months ago, starting with a 3.0 mg dose, which I increased to 4.5 mg after 3 months. Here is the bad news: I really don't feel like the LDN at 4.5 mg is helping me much these days. I feel pretty much like I did before I started taking it. I have fatigue that I wake up with and that can…

  • Occupational Therapy for People with Multiple Sclerosis

    27 Oct 2009 | 2:35 pm
    The first time I ever heard the term "occupational therapy" was when my 6-month-old nephew was having trouble adapting to solid foods, so was sent to an occupational therapist (OT). She prescribed a little schedule for introducing foods in a certain order, showed his mom how to feed him so that he would have the best chance at success and even recommended a certain spoon. The term "occupational therapy" made sense when it was explained to me as help to do the things that "occupy" our lives - eating, grooming, doing leisure activities - basically taking care of our needs and living our lives.

  • Q. When Should I Get a Cane if I Have Multiple Sclerosis?

    20 Oct 2009 | 2:14 pm
    A. Maybe immediately, maybe never. Like everything else surrounding MS, this is a question that is highly individual (and may change on different days or when we are in different moods). You probably know if you definitely need to get a cane or some other kind of "helper," such as a walker, crutch, scooter or wheelchair. You probably know if you don't need a cane right now - you don't have any symptoms at the moment that have impacted your balance or leg strength and have really never been too affected by these things. Then there are lots of people who fall somewhere in the middle. You were…

  • Some H1N1 Fun Reading for My MS Friends

    13 Oct 2009 | 1:43 pm
    As many of you know, I am guest blogging on About.com's Infectious Disease site (I am an infectious disease epidemiologist by training). I thought that you, my MS friends, might be interested in some of the stuff I am uncovering, so I have brought this list to you. It is not really MS-specific, although many of the topics apply to us all. Also, I would like to think that I am arming people with MS out there to be the smartest, most current guests at any cocktail party they might attend... That said, here are the most recent posts (in reverse chronological order): Some Facts, Plain and Simple,…
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    Down the MS Path

  • Pain and MS, Yes, It Hurts

    6 Nov 2009 | 2:18 pm
    I wrote a series of articles for Health Central on Pain and MS, covering the types of pain and treatments. These are general, just to give you an idea. I am sure there are some pains as well as some treatments that have been left out. Please let me know! The best idea is to talk with your doctor about any pain and how to treat it. Here is the article series — Pain and MS Is MS painless? When I was first diagnosed with MS, it was common for the MS literature to refer to it as a painless disease. I was dealing with a new diagnosis of a disease I did not yet understand and was wondering what…

  • Biking for MS

    16 Oct 2009 | 2:30 pm
    The National MS Society sponsors 100 bike events to raise funds for MS. All of the participating bikers have one destination — A World Free from MS! Sounds like a place I would like to go there one day. How about you? My friend, my college roommate many years ago, has a friend who was ready to bike, so she dedicated her ride to me. We met only online. Georgia sent these fabulous pictures of her with her New Orleans team on their ride. Unfortuneately, they were unable to complete the ride as scheduled because of Louisiana's famous weather. Too bad.They had fun and MS appreciates their…

  • Health Central

    16 Sep 2009 | 3:28 am
    Health Central is a network that provides information about 40 or more specific diseases and conditions. The information includes blogs and personal stories by people actually living with or touched by those conditions.I write for the multiple sclerosis section. Each condition also has a section for questions -- any question -- answered by others who may have experience with the question topic.Browse the site, share your stories or ask a question. I'll see you there!

  • MS Survey

    10 Sep 2009 | 3:36 am
    Do you want a voice in MS research? Here's a chance. Lisa Emrich of Brass and Ivory posted this yesterday and asked that we copy and post it. The link to the survey is included. It took me less than 10 minutes. There was no space specifically designated for comments, but I put them in the spaces provided for "other." Will they be read? I hope so.Here is Lisa's post:Share Your Thoughts on MS and Genetic Research!! HereEarlier today, I was contacted by Virginia Hughes who is a freelance science writer with a special interest in genomics and disease, specifically autism and schizophrenia.She is…

  • Living with MS

    8 Sep 2009 | 2:50 pm
    I got this from Mike Deegan on Facebook. It takes only one minute and is a good illustration of life with MS.
 
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    Blindbeard's MS Blog

  • I Have Absolutely Nothing To Say

    4 Nov 2009 | 3:36 am
    And I want to say it to you. I haven't been on here because I have nothing of interest to say about anything. We are all jogging along in our same old ruts that have been worn smooth by now. I have been suffering with the flu the last few days and between moaning, "H1N1, take me away!" and stoking the flames of my addiction to The Price Is Right game, I have not been even slightly busy. I am not even sure that I do have H1N1, but I like to tell Sugarbowl that she gave me the pig flu because she is such a pig. To which she threatens to punch me in the butt for saying because she hates being…

  • So Dude-ing Dumb

    21 Oct 2009 | 8:42 am
    Sorry for not getting back here for so long -- I'm sure you all had the hounds out looking for me -- but I have just fought off the last vestiges of a hideous, dark, ugly depression. My older sister is getting ready to have surgery tomorrow and I have been helping her get ready to be laid up for a while. She's having a hysterectomy and has that pre-surgery "must get everything done NOW" going on. My mom is coming down to spend the next 2 weeks with her to help out. I live just down the street and can't wait for my mommy to be here and spend 2 weeks with us. I would end that sentence with…

  • I Don't Get It

    8 Oct 2009 | 4:20 am
    I don't get a lot of things. I have come to terms with this. I am used to getting the joke last, not finding the deep hidden meaning to things everyone else saw immediately, and so on. So it should be of no surprise to anyone that when I just did a search about pronunciation to some of the names in the book I am currently enjoying, I stumbled across a deep intellectual discussion about the meaning of every little thing that happens in the book. There was a big argument about the author I am currently reading and an author of the same nationality and who was better. I read through the comments…

  • 2 Really Good Excuses

    1 Oct 2009 | 4:12 am
    I have 2 really good excuses for why I have not been blogging much lately. 2 Exceptional and jealousy-inspiring excuses... maybe I shouldn't share them, I don't want a price put on my head for being such an object of envy. But I am willing to put myself in harm's way to keep up the integrity of honesty in the blog-o-sphere.I have been is such a slump lately. I can't seem to shake off this apathy and depression that has wrapped itself around me. I'm having a terrible case of the "this-is-my-life?!" going on right now. I just can't care that my laundry is backed up and the house is threatening…

  • Shallow Thoughts By Blindbeard

    24 Sep 2009 | 4:27 am
    What would I do for a Klondike Bar? Not much. They really aren't my thing. If I'm going to do anything for any sweets, it would be for a Peppermint Pattie so I could ski on my coffee table. Of course, to ski on my coffee table I would have to move my record player and records and I'm not willing to sacrifice them even for the joy of skiing on that humble table.Denver Refashionista's recent status on Facebook of being who she is with no apologies got me thinking about how, like Popeye, I too "yam what I yam" with no apologies. Well, I will apologize if I trip over you or spray spittle all over…
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    Trevis's MS Blog

  • Multiple Sclerosis On The Radio

    admin
    6 Nov 2009 | 12:06 pm
    As many of you remember, I’ve been lucky enough to host several webcasts on the topic of living with multiple sclerosis over the past few years.  This weekend, I’ll be on the other side of the microphone. Along with my MS specializing neurologist, Dr James Bowen, I will be a guest on the Saturday morning health program, Real Medicine with Carrie Curtiss. The program airs at noon on Saturday, November 7th (good grief…is it November already?) and we’ll be on for an hour (maybe a bit more if there are loads of questions). For those of you in the greater Seattle area, you can listen on…

  • Speaking of November, How is Your MS Today?

    admin
    4 Nov 2009 | 1:27 pm
    I love the folk song January Man by Dave Goulder.  The first time I heard the song was in a version sung by Christy Moore while driving a back road of County Kerry, in Ireland. In this song, each month is represented by a man.  “The poor November Man” as the song goes, “Sees fire and wind and mist and rain and winter air.” Good Grief…the November Man has MS! Each month we take time in the first week to allow for an ongoing discussion of how your multiple sclerosis is treating you.  This is a popular spot for comments and an open exchange of ideas and issues. I love to go back and…

  • Voting and Multiple Sclerosis

    davidf
    2 Nov 2009 | 11:41 am
    Worry not!  This isn’t a blog posting about something/someone I think you should or should not vote for.  Rather, I want to bring up the topic of voting, as in the act of going to the polls. I’ve always enjoyed the experience of going to my local polling place on Election Day. When I could, I would walk to the polls, stand on line (sometimes for great periods of time), cast my vote, and walk home a fully engaged member of the Republic. Now, however, my county is 100% vote by mail for all elections. I’m not going to say I don’t miss the activity of fulfilling my civic duty alongside…

  • Give Us Generic Drugs For Our MS Treatment!

    admin
    30 Oct 2009 | 12:00 pm
    The first therapy for MS (Interferon beta-1b) was made available to us nearly 20-years-ago now.  It was followed, in relatively rapid succession (over the next ten years) by two other interferon therapies and Glatiramer acetate.  Most recently, a monoclonal antibody has been added to our MS arsenal. These are all compounds known as biologic drugs, meaning that they are grown, not synthesized.  They must be grown from living cell cultures in a controlled environment with great care and at great cost. These drugs are not the “$500 Million for the first pill, $.05 for the rest.” A cost…

  • How Do You Cope on a Bad Multiple Sclerosis Day?

    admin
    28 Oct 2009 | 2:34 pm
    I have good days and bad days.  I don’t suffer from multiple sclerosis; I live with MS.  I’m a healthy person with MS.  And, the ever popular,  I have MS, MS doesn’t have me! OK, these are lines we use to comfort others and to get ourselves through.  I have no problem with them; I use them myself.  They’re slogans, if you will, that we use to get through/past that part of a conversation.  Slogans may be trite and glib but they’ve helped elect officials, sell products and recruit militaries for centuries. So, what about the days that are “bad days,” the days we do suffer…
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    Conquer Multiple Sclerosis

  • In Case You Missed It Again

    admin
    16 Oct 2009 | 8:39 am
    Gosh your a lucky duck!!  In case you missed the telelconference I did on this past Thursday night with Kris Murray from http://www.daycarehotline.com kris-murray-teleseminar

  • Special Guest for Wednesday

    admin
    13 Oct 2009 | 6:57 am
    Hello:   Tomorrow I’ll be revealing some important information and welcoming a new guest to my teleseminar.   You’ll meet Kris Murray,  a business coach who has created a  backyard “munee tree”.   Yes, you heard me.  A little tree in your backyard that makes you munee.   On this very important call you’ll learn:   * How to find new opportunities and make munee and mind the diamonds in your very own backyard   *How to balance your life, health, and get everything you want.   * How to save 30-50 % on taxes and protect yourself from getting attacked…

  • Last Night’s Teleconference

    admin
    9 Oct 2009 | 8:55 am
    Just in case you missed it last night, here is a copy of my teleconference with Tim Black.  teleconference-with-tim-black1

  • Your Body is Smarter Than You Think

    admin
    7 Oct 2009 | 7:42 am
    The other day I had the fortunate experience talking to one of my mentors.Someone who changed my life for the better- shall we say an angel that God sent from above. We had a long conversation about health, business, mind, body, and spirit. My belief is we don’t understand just how “smart” our bodies are. That we DO have the ability to heal ourselves. But I’m here to tell you we also have the ability to make ourselves sick. Our emotions and thoughts have great influence over our lives.They influence our health, our mind, body, spirit AND Our financial well being. So if you believe…

  • Free Teleconference

    admin
    5 Oct 2009 | 8:12 am
    On Thursday I will be unveiling some very special information on a FREE teleconference.   I’ve invited you!  And you’ll have the opportunity to find out how you can discover the Secret to What’s Holding You Back From Achieving True Financial Success.   Sign-Up For this Free Teleconference at:  http://www.conquerms.com/teleconference       On this FREE 1-hour call you will learn: *How to find new opportunities to make money and mine the diamonds in your very own backyard. *How to balance your life, business, and health while getting everything you want. *How to save…
 
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    The MS Recovery Diet

  • Pumpkin and Winter Squash Season

    Judi B
    1 Nov 2009 | 12:21 pm
    There are two squash/pumpkin soup recipes in the book already but here I add anther suggestion. I had many volunteer pumpkin and squash this year (I didn’t plant any from seed- they grew out of our compost pile with imported manure from a local farm) and so I am using these vegetables up as fast as I can before they begin to show signs of becoming too ripe. So far I have used them in soups, stews, breads, and pudding. Roasted Pumpkin and Pepper Soup- serves 4 Wash 2 red and/or yellow peppers (remove labels) – and hold with tongs over a gas flame, or directly on your grill or on a broiler…

  • Spam should now be under control!

    Judi B
    15 Oct 2009 | 8:12 am
    For the moment we seem to have found way to foil the spammers- hooray! and we look forward to more of your wonderful contributions without being subsumed by the unwanted messages. Thanks for your patience.

  • Vitamin D in the Fall

    Judi B
    7 Oct 2009 | 7:39 am
    As the hours of sunlight decline in the fall season, this vitamin is in the news all over- not only as a preventative and aid for osteoporosis, but also for autism, breast, colon, esophageal and prostate cancers, slowing down age-related losses in memory and other cognitive functions, helping to support better breathing in asthma sufferers, support for diabetes, high blood pressure and MS and other immune system illnesses; it turns out to be a critical factor for the support of many healthy functions in many body systems. Most all cells in the body have receptors for Vitamin D. I just heard a…

  • Nori Rolled Stuffed Fish recipe

    Judi B
    1 Oct 2009 | 2:24 pm
    Nori Rolled Stuffed Fish serves 2 I bought 4 fillet of sole not realizing I already had about ¾ cup of leftover steamed salmon from a birthday celebration. So I thought…. Ingredients: 4 fillet of sole or other fairly thin mild white fish fillet approximately 7- 8 inches long (depending on thickness, the cooking time may vary) ¾ cup cooked seafood 2 toasted Nori sheets (seaweed pressed in flat sheets- see Kathi's Sushi Rolls pp 322 in MS Recovery Diet book) 2 teaspoons capers or minced olives minced garlic clove ½ teaspoon dried or 1 tablespoon chopped fresh dill and/or chopped parsley or…

  • Search Function

    Judi B
    4 Sep 2009 | 11:13 am
    We hope you make good use of the search function at the bottom of the left sidebar on the website. Just click on Search and then type in saturated fat, spelt flour, recipes, legumes, vegetarian or honey or anything else that seems like a keyword for your purposes and see what comes up. Ann and I have been blogging regularly for years and many of you have asked and had answered wonderful questions or had informative observations on the forums that will appear in answer to your query. We are grateful this makes it easier to do your personal research. Please keep your written comments coming in-…
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    My Journey: Living well with MS

  • The Autoimmune Odyssey

    6 Nov 2009 | 7:40 am
    I am healing wonderfully from my abdominal surgery and I cannot believe that it has been a little over a week since my surgery. Since that time, I have spent my days moving around and trying to do as much as I can without stressing out my muscles. My pre-op bicycle rides definitely helped me a lot. I thought my right hip pain was gone ... but today the tightness and soreness is back. I am hoping it's just because of healing and overuse.I spoke with my new MS neuro Dr. Krupa Pandey about various autoimmune blood tests that she ordered. One of them was for Devic's Disease (which came back…

  • Post-Op and Doing Well

    1 Nov 2009 | 1:24 pm
    I had my abdominal surgery (oopherectomy and appendectomy) and am home healing, keeping hot flashes at bay with an .05 Estraderm patch. The doctor told me that I will need two weeks to really get the feel to see if they will work for the hot flashes. So far, so good.Now, simply healing and glad to be home.

  • Neuromyelitis Optica - Devic's Disease

    19 Oct 2009 | 3:25 pm
    I met my new neurologist and she is really a cracker jack. She is young and is on top of the research. She spotted what she thought were a couple of very small lesions on my May 09 MRI but they were tiny. My neuro testing went really well and she wanted to do some blood test on me for something called Neuromyelitis Optica (NMO) or Devic's Disease. This affects the eyes the most and this seems to be where my MS has concentrated the most. NMO is a cousin of MS.The blood test was developed by the Mayo Clinic and it is a very understudied "subset" of MS. My neurologist - Dr. Pandey - called it a…

  • Saying Farewell to Lyrica -- and the extra Pounds (I hope)

    13 Oct 2009 | 8:38 am
    Lyrica has been a fair and foul weather friend for me. But has it really been that much of a friend? Let's evaluate ...I have been taking Lyrica since 2006 or 2007. Since that time I have packed on 40 horrific pounds and moved through wardrobe sizes like no one's business. I was happy to be a 12--very, very happy. Then a 14, then a 16 and most recently for my Dad's funeral, I think my suit was an 18. That's a nightmare for me ... a complete and absolute nightmare!!!I have been juggling medications and a bunch of them are weight gainers. But the one that leads the list is Lyrica. Google…

  • MS is the Icing on the Cake

    8 Oct 2009 | 3:46 pm
    DEAR FACEBOOK FRIENDS -- THIS IS A BLOG ENTRY FROM http://msplaques.blogspot.com -- entries appear automatically.----------------------------------------------------------------------------------------I've said it so much .... as MS'ers, we are still prone to other maladies. I could name many that I have that seem to all relate to autoimmune issues. I WISH there could be some REAL cure developed through science that helps alter that autoimmunity flaw whereby our own bodies attack different parts of itself. Allergies and asthma are one of the most common forms of this (I have both of them).
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    My Journey with MS

  • Happy Monday :0)

    Kimberly
    26 Oct 2009 | 6:49 am
    It's FINALLY here.....not Monday, heck that rolls around once a week. FALL is here to stay! Te days have been crisper and the nights down right cold. We actually put our winter quilt on the bed yesterday. After Fall dancing in and out all month, it's finally settled in for the season. I'm just about finished with my grandaughters quilt. Just putting the decorative buttons on and it will be finished. Since I had extra material I went ahead and made a pillowcase to match the quilt. I'll snap a few pictures when it's all done. Another week begins. This will be my last quiet week until the…

  • Can I get off now?

    Kimberly
    21 Oct 2009 | 11:28 am
    I often visualize MS as a Carousel. Not one of those brightly colored kiddie-go-rounds but a dark menacing one. One that you would see in your nightmares. The horses are all grey and dark, their mouths open in a mancing manor.  The riders are all stapped on. Unable to free themselves and get off the ride that spins out of control. Pretty dark huh? Well, so is MS at times. (However, believe it or not my mood is actuallly pretty good today. Reflective, but good). Often the frustrations I feel related to MS are self induced. Mostly from trying to figure out how to second guess and "beat"…

  • Announcement

    Kimberly
    19 Oct 2009 | 7:47 am
    Finally! I can announce a project which I have been excited and very proud to be a part of. Several months ago I was chosen along with four other bloggers (Jen, Bill, Lisa and Julie) to blog and video blog for a new MS web site. It went live this morning. Please check it out: http://www.howifightms.info/  Let me know what you think!

  • What happened to Fall???

    Kimberly
    18 Oct 2009 | 8:33 am
    There I was, enjoying the brisk days of early fall when suddenly Summer returned. Now I'm "enjoying" warm days in the upper 70's! (For me there is no such thing as "enjoying" temps above 70 as I'm incredibly heat intolerant).  Now, I'm back to only being outdoors in the early morning and during the evening. I feel like a vampire! Even my garden is confused. My Day Lilies are blooming again and even my husbands tomato plant has new blooms! At least I have my blogging and crafts to keep my mind busy. I'm working on drawing the quilting design on my granddaughters quilt. I figure it will…

  • Stress Relief

    Kimberly
    16 Oct 2009 | 9:04 am
    As promised above are pictures of my current quilting project.  The top picture is a work in progress I have all of the top pieced together.  Now I'll actually start on the quilting part.  I'm hoping to have it done in time to send off as a Christmas gift for my granddaughter, Rachel.  The bottom quilts is completed and is it the Christmas gift for my grandson, Kyler. Quilting, card makingand of course, photography  are my MS and life stress relievers. I think it's so important to have hobbies that you can do to help relieve your stress.  Although…
 
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    My MS Journal

  • Hair Loss, Nausea.....fun times with chemo.

    29 Oct 2009 | 6:44 pm
    The other day I decided to try out one of my wigs. It was the first time that I actually wore one and I have to say it wasn't too bad. You see, I haven't really felt like wearing one because well, I thought they would be uncomfortable and I was blessed to be given some really cute hats and scarves, so that's what I have been wearing. Anyway, I have this really cute hat that just doesn't look right without hair and let me tell you, I really have NO hair....okay some fuzzies just starting to come in, but for the most part NONE! LOL I was not so sure about the idea of a wig at first because I…

  • Getting Ready to Go HOME!!! :)

    28 Oct 2009 | 6:45 pm
    That's right, I get to go home soon and I almost can't wait. It will be SO nice to be back at home, in my own home, own bed, with my own things. Not to mention to be around my whole family....no longer needing my family to come back and forth and trade off so that I am covered. So this week is not too busy. Actually I'm done for the week. I had bloodwork and clinic on Monday, an appointment with my Endocrinologist yesterday and a Long-Term Follow-Up/Discharge class today. Next week will be BUSY though. Not only do we need to pack up our belongings and clean the apartment (which is actually…

  • Day 32!

    23 Oct 2009 | 3:26 pm
    I have officially made it past the one month mark! WHOO HOO!!!! For the most part things are going really well. I had a couple bad days this week but I'm blaming the steroids for that. I don't really know if it was the steroids, but that's what I'm going with. LOL Anyway, Tuesday and Wednesday were really bad for me. My blood pressure was high and my blood sugars were REALLY high. I am currently tapering off the steroids and there are all kinds of side effects that can happen with that so I'm assuming that's all it is. Tuesday was so bad that my head was spinning, I was having headaches....it…

  • The Good, the Bad, the Ugly.....a look back at transplant! (sorry, this is a LONG one)

    19 Oct 2009 | 7:19 pm
    Today is day 28 post-transplant and things are going pretty well. They are even talking about sending me home soon. That will be nice. I'm a little nervous of course, but they think I'm pretty much ready. I think it's important for anyone who is looking into this clinical trial (which I believe is closed now, but of course FDA usually mandates a Phase III, so there are bound to be more at a future date) to really know what this is like. Unfortunately I can only account for some of it as there is about a week in there that I have no recollection of. The brain is an amazing thing when you come…

  • Day 23.....tapering off steroids! YAY!!!

    14 Oct 2009 | 3:56 pm
    So it has been a few days since I last updated. Sorry about that. For the most part things are going well. The weekend was relatively mild. For the last week or so I have been on IV Fluids, which I think helped me a lot. Today is actually my first day without the IV Fluids, so we shall see how that goes. The best news however has been that I got my taper schedule to get off of the steroids on Day 21 (which was Monday). It is a VERY slow taper but I'm sure that is best because of all the side effects that can come along with steroids. Basically every other day I go down by 5 mg. So, I was on…
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    I'm an MS Activist

  • Chat with White House Advisor Valerie Jarrett

    28 Oct 2009 | 11:27 am
    You are invited to an online chat with White House Senior Advisor Valerie Jarrett to discuss how health insurance reform will impact minority communities and all Americans.3:30 p.m. EST, Monday, November 2Click here to submit your questions today. Join on Monday at WhiteHouse.gov or at Facebook.com/WhiteHouse.

  • In the News: Oregon Politician Lives with Multiple Sclerosis

    26 Oct 2009 | 6:53 am
    Bill Bradbury isn't just running for Oregon governor. He's zipping — on a Segway.Using the personal transporter is one way the Democratic politician deals with the effects of multiple sclerosis. He was diagnosed with the disease 30 years ago, but that hasn't stopped him from becoming one of the most exuberant and popular figures on Oregon's political scene.Tall and lanky, he glides into campaign events on his electric standup vehicle, his booming laugh often heralding his arrival. The disease has affected his physical skills, he says, but not his mental abilities or his capacity to…

  • In the News: City Officials in Wheelchairs for a Day

    20 Oct 2009 | 8:37 am
    As he approached the elevator doors in town hall, Edison Mayor Jun Choi swung his wheelchair around and backed his way in. From there, he pushed the metal wheels from the tax office to the clerk's desk, out the front door and over to the courtroom and police station.Choi isn't disabled. Nor is Edison Police Chief Thomas Bryan. But the two rolled around town hall in manual wheelchairs yesterday to see how well the building is adapted to the handicapped. Following them in a motorized chair was Jackie Jackson, a South Plainfield disability activist who organizes the accessibility tours in…

  • Support Affordable Access to Prescription Medications

    16 Oct 2009 | 6:58 am
    On Tuesday, Congressman Hank Johnson (GA-4) introduced a bill that improves prescription drug coverage, under both public (Medicare Part D) and private plans. The legislation is titled the Affordable Access to Prescription Medications Act of 2009 (H.R. 3799). This is companion legislation to S.1630 that was introduced by Senator Jay Rockefeller (D-WV).People with multiple sclerosis could save thousands of dollars a year on their disease modifying therapies through this reform. The measure would cap monthly out-of-pocket costs for prescription drugs at $200 per prescription, or $500 per month…

  • In the News: For Kilroy, MS Makes the Message Stronger

    6 Oct 2009 | 7:45 am
    It was literally a pain in her neck that started Rep. Mary Jo Kilroy’s (D-Ohio) problems in 2003. Then the pain spread to her shoulder and her arm, and she became more and more worried about what was wrong. “Oh, there were all kinds of theories, and I was one of those bad patients who used to, like, wake up in the middle of the night and worry about what it was and go on WebMD and get a diagnosis myself,” she recalled last week, laughing. The problems accelerated until one night when Kilroy, a Franklin County commissioner at the time, was at a meeting of the Ohio Democratic Party…
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    activisMS

  • Register Now to learn the latest about Health Care Reform

    2 Nov 2009 | 1:02 pm
    On Wednesday, November 4 at 7pm, US Representative Bob Etheridge will hold a teleconference to discuss the latest House Health Care Reform bill which was unveiled last week. Rep. Etheridge serves on the US House of Representatives' Ways and Means Committee. The Ways And Means Committee is one of the three US House Committees that has worked on health care reform legislation. Click HERE to register for the call. Your information must be submitted by noon, Tuesday, November 3, to participate in Rep. Etheridge's Teleconference Town Hall Meeting. Health care reform is one of the most pressing…

  • How does Ore. candidate roll? With MS, on a Segway

    26 Oct 2009 | 7:25 am
    Enjoyed this Associated Press article about Oregon Gubernatorial candidate, Bill Bradbury, living and "Segwaying" with MS. While I do not know Mr. Bradbury, I do know many other people advocating for people living with MS. Thank you.

  • Listen to a Quick Clip on Health Care Reform

    23 Oct 2009 | 7:52 am
    The North Carolina Chapters of the National MS Society are very lucky to have the policy and political expertise of Mike Daisley. Mike is a long-time Trustee of the Mid-Atlantic Chapter and has served on the Chapters' statewide Government Relations Committee since it formed in 2001. Because of Mike's expertise, Charlotte radio station, WBT often asks Mike to comment on local, state and federal elections as well as important policy topics. Check out Mike's commentary on Health Insurance Reform.

  • Senate Votes No to Public Option in Health Care Bill

    30 Sep 2009 | 9:39 am
    On September 29, 2009 the US Senate’s Finance Committee voted against two amendments for a public health care option. Opponents to the public option plan believe that government would eventually have full control over health care, leaving private insurers to go out of business. However, Public Option proponents reject this claim, stating that public option would provide needed competition for private insurers while making health coverage accessible to millions of people currently lacking health insurance.The Finance Committee is the last congressional panel to consider health care…

  • Try Transit Week 2009

    17 Sep 2009 | 7:12 am
    Next week, Sept. 28-Oct.2, Triangle Transit partners will be hosting events to encourage public transportation. All bus systems in the Triangle are committed to providing a public transportation system that everyone can use. GoTriangle.org encourages individuals with disabilities to take advantage of the independence and flexibility that is provided by our fixed route and shuttle service. Both seniors and individuals living with disabilities are entitled to discounted fares.Area Transit Partners: Capital Area Transit, Cary Transit(C-Tran), Chapel Hill Transit,Durham Area Transit Authority, NC…
 
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    MS Musings

  • Imitating Humpty, Mr. Humpty Dumpty

    ABQboarder
    31 Oct 2009 | 11:56 am
      Last month I had what I consider my first official MS fall—almost four years to the day of my first relapse. Now I’ve had falls before, but they were “planned” falls, where I knew my hosed legs weren’t going to get me far enough—the resulting teetering crash and burns were wholly expected. And the “falls” were more collapses of exhaustion than true face plants. But this one fall, it was as if a gremlin reached out and grabbed my left leg. I clunked down in such dramatic fashion that Humpty himself would have been proud. I surveyed my splayed-out body for damage…

  • “Your drugs aren’t working”

    ABQboarder
    12 Aug 2009 | 10:45 am
    When I heard my MS specialist say that, it was like a swift kick in the stomach. And the dude giving me said kick was wearing metal-tipped baseball spikes. Oomph. That hurt. Over the past few years, I’ve given myself well over a thousand injections. And honestly it’s been super easy. Zero side effects, rare injection site reactions, and only the once-in-a-blue-moon painful jab that elicits a cursing. But a relapse in May, my second in just over a year, was a sobering experience, and not just because I had to lay off beer while I was taking 1,200 milligrams a day of prednisone. It called…

  • I Shaved My Head

    ABQboarder
    30 Jul 2009 | 7:08 am
    On July 7—an auspicious day in many cultures—I went drug free in preparation of going on a new treatment within the next couple of months. To commemorate this next stage of my battle with this disease, I thought about getting a tattoo or piercing. And then I thought about how much needles and pain freak me out. A HELLA LOT. (Heck, I gave up watching medical shows years ago for the sole reason of seeing too many needles stuck in too many arms.) I considered the henna thing, which I did in Morocco, but that seemed too transient and too, well, girly. Skydiving entered my mind and then…

  • Seizing the moment… and not letting go

    14 May 2009 | 1:05 pm
    The other day I was reading about a fellow MSers dilemma. Recently diagnosed, he wondered if he should go with his son on a long-planned camping trip—in the heat, no refrigeration for his meds, and an uncertainty about how he would fare in the back country. There should have been no dilemma. If you think you can do it, do it. Don’t wait. Don’t delay. Don’t ever look back and say, “I should have.” Multiple sclerosis is an unpredictable beast that can be as mild as a bell pepper or as nasty as India’s Naga Jolokia, the world’s hottest chile pepper. So last month when Wolf Creek…

  • If you know more about MS than your neuro…

    16 Apr 2009 | 10:42 pm
    When you first get diagnosed with multiple sclerosis (or at least when the doc seriously suspects it), there are a number of different coping mechanisms. You might try to see just how many tears you can cry before your eyeballs dehydrate and start to deflate. You might watch a marathon of Happy Days episodes just because of the show’s ironic title, but when they sing the theme song at the beginning of every half hour, you substitute Crappy for Happy (sing along with me now, Sunday-Monday Crappy Days, Tuesday-Wednesday Crappy Days, blah, blah, jeeze that’s an annoying song). You…
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    Carole's MS Blog

  • Veterans Week

    6 Nov 2009 | 5:43 am
    Once again I'm a little late posting this. Here are some links to veterans week activities and Operation Legacy "Never Forget - Never Again"veterans affairsoperation legacy

  • Charles and Camilla

    5 Nov 2009 | 12:00 pm
    Well I managed to get at least one decent shot of the famous wave.

  • Marijuna for Autism

    4 Nov 2009 | 7:39 pm
    Read here about a mother's decision to give her son medical marijuana to treat his autism. I disagree with some of what she has to say. A vapourizer, although not cheap, isn't nearly as expensive as she says and it doesn't leave the house reeking of pot. Might go see the royals at Dundurn castle tomorrow. Not a fan of the monarchy. Just want to see Camilla up close, which might be possible as the public is welcome and they want it to be informal. Sir Allan McNab, the laird of the castle, was her great, great, great, grandfather.

  • Go Dad !!!

    3 Nov 2009 | 6:14 pm
    Congratulations to my Dad, on passing his driver's license test. Pretty good for a ninety year old guy. I pity the fool who tells him his license is fake! Got a new HD cable box. Oh what fun on the telephone this evening trying to get the thing activated. Me reading out two long number codes, being put on hold, rereading the codes, being put on hold, rereading the codes, until at last! The tiny light turned on, only to shut off again. The tech guy assured me that it would magically turn on again in half an hour. Here we are, three hours later, and no magic. Heard the new swine flu, public…

  • More Pointless Research

    2 Nov 2009 | 8:13 am
    Came across this story today in the Toronto Star. Read about the Marshmallow Effect.Yeah put marshmallows in front of a kid, leave the room, and then you are surprised when they eat the marshmallows, even though you promised them more if they waited.This is credible? Sorrow to tell you dear parents but your child is doomed because they couldn't wait to eat a marshmallow! Sheesh!! What next? Any wonder we still don't have cures for so many illnesses?
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    Carnival of MS Bloggers

  • Carnival of MS Bloggers #48

    5 Nov 2009 | 10:20 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Sherry (aka Have Myelin?), who blogs at Words Salads: The Demyelination of Me and Postcards of My Life, recently did a little Four Wheelin' and has brought back some great photos. I hope you enjoy this sampling as much as I have.Life is like this: a journey of unknowns with many bumpy mistakesSometimes it's a long climb backWhere the wild things areMLK: “Carve a tunnel of hope through the dark mountain of disappointment"India Arie: "Beautiful Flowers", a…

  • Carnival of MS Bloggers #47

    23 Oct 2009 | 10:54 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Poetry, Positivity, and BattlesHaiku - Caretaker Exchange by Judy of Peace Be With You I have MS butMy caretaker broke his hand.I am caretaker.Marriage vows promisedIn sickness, in health, rich, poorPartnership defined.I am nurse and cookDizzy, foot dragging, stumblingA delicate act. Staying Positive is Hard! by Maryann of azoyizes and MSI'm finding it hard to stay positive. Okay, I started Tysabri and I've only had one infusion. I did notice that I had…

  • Carnival of MS Bloggers #46

    8 Oct 2009 | 9:46 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Disability, Poetry, and SuperpowersAre We Disabled? by Jackie of MSunderstoodSo I have struggled with this question often, mostly when its simply put on a form or something. Disabled...check yes or no. If only it were that easy.I have this inner battle whenever I see this question put so nonchalantly on a piece of paper or a radio box online. I want more than a yes or no. I want lines. I want a "maybe" option. I want a "sometimes" option. I want a "depends…

  • Carnival of MS Bloggers #45

    24 Sep 2009 | 9:52 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Inspiration, Humor, Good News, and ImmortalityMS: What Will the Neighbors Think? by Jen of MS StrengthI’m remembering back when I lived with my friend more than a decade ago. She had a townhouse and was very mature: she also had a stable job, a mortgage that she financed on her own, a pet, a decent car—okay, she was 8 years my senior so it made perfect sense– but what I most recall about my time there was the family next door. A husband and wife in…

  • Carnival of MS Bloggers #44

    10 Sep 2009 | 10:57 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Please complete this survey before September 14, 2009. Thanks.HOPEA special story shared today by Judy who blogs at Peace Be With You.Hope got up that morning and breathed in the sunshine air. That’s what she called it—sunshine air, that quality of air which shines brightly and thrills with promise, of shadows remaining distant, of strength staying resolute. So she breathed in the sunshine air and thought, Oh, my, this is the day that the Lord has made.
 
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    Living! with MS

  • Neurologist Visit 11/03/09

    3 Nov 2009 | 6:18 pm
    I went to the neurologist today for the first time in a year. The visit went very well. He says I passed all the "tests" and that the yoga is working for me. He also said I do not need another MRI for a while unless I change medications but that so far, the Copaxone seems to be working well for me. Unfortunately, he is retiring but he gave me a referral so I feel satisfied.I have still been feeling a bit strange lately but we think it is a potential UTI, rather than an exacerbation. My symptoms include, back pain, abdominal cramping, urgency, inflammation, full body soreness, painful joints,…

  • Snow Day

    29 Oct 2009 | 4:57 pm
    The snow is still falling and my snow day has been everything I hoped for. I slept like 12 hours, took a nap, had a bubble bath and generally relaxed. I even watched my favorite soap. I could get used to this... I am hoping that it clears up soon because I have exciting weekend plans but I have really enjoyed this storm.Tomorrow we have professional development at work so there are no kids! It should be quick and mellow and then I am off for weekend adventures. I have my costume and I can't wait. I am also taking Monday off work so next week will also be short. The week after I think I also…

  • Sometimes MS cramps my style

    27 Oct 2009 | 5:35 pm
    I decided a few months ago that I was no longer going to live my life as though I had MS. It has been great. I make plans and don't worry about my spoon quotient. I don't question if I can make committments or take on challenges. I just do. It has been life-changing. I have been feeling good and I still believe that much of our physical state can be attributed to our mental and emotional one. However; MS does put a kink into the equation at times.Lately it has been cramping my style a bit. While I have still been doing everything I planned, it is with less than my usual energy. I am…

  • Chronicles in the life of an urban adventurer

    25 Oct 2009 | 5:29 pm
    Where can I find the time to write? I'm so freakin' busy, sometimes in a good way, sometimes not but definitely occupied. I'm making plans-- lots of them. I finally know my next steps. I'm going to get another masters degree. To be exact, I want to get a masters in fine arts with an emphasis in creative writing. I want to stay in Denver and apply to Naropa. I want to keep teaching at Harmony Yoga. As to the rest, I trust it will fall into place.So back to the chronicles of an urban adventurer. I have been having adventures aplenty. Some of them have involved, swinging from a suspended…

  • The Joys of Solitude

    19 Oct 2009 | 9:44 am
    One might think that with divorce and the fact that many of my old friends won't talk to me that I would be sad or lonely. This is not the case. I am celebrating my solitude, in fact, I crave it. Today I am at work but I wish I were home reading, studying, painting and writing poetry. I can't wait for the day to end so I can be alone again.Being alone is like oxygen for me. It is in my solitude that I find creativity and strength. I need the time to recharge and rejuvenate.I love teaching. I love to teach school and to teach yoga but in order to do it from the purest place, I must find time…
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    Maggsbunny

  • Quick pop in on BlogWorld…

    maggsbunny
    6 Nov 2009 | 7:40 am
    I have started working on one of my grade eight pieces, Chopin’s Grande Valse Brilliantine. So far, so good. I was afraid I wouldn’t be able to handle the virtuosity of grade 8level. But as far as I can tell, the main difference between that and my old buddy, grade 7 is the workload, more than anything else. The Grand Waltz is 9 jam-packed pages of sheet-music. Yay! I only hope my fingers don’t drop off after I’ve finished playing that sucker in one sitting. Actually, therein lies another story of me bragging about how much I have recovered, how much more stamina my…

  • Tying up the loose ends.

    maggsbunny
    5 Nov 2009 | 4:55 am
      Beary doesn’t have ringworm, according to the vet. We don’t know what it is, but it doesn’t appear to be spreading. Just a single little hairless lesion on her skin. I guess something could have bitten her there. Poor poochie – she picked up on it immediately when I didn’t want to fuss over her like usual. (I had ringworm when I was a kid, and I did not relish the thought of having it again). Anyway, now that it doesn’t seem to be infectious,we’re back to snuggling on the couch together, so everybear is happy again. The vet gave me a topical…

  • 4 Nov 2009 | 1:37 am

    maggsbunny
    4 Nov 2009 | 1:37 am
    Thank you for the kind comments on my last post I watched my video again and there is only one thing that can be deduced. I am a total nerd, lol. (Mind you, a brave nerd, for having the guts to air it publicly Moving on. Yesterday was a scheduled trials check-up day. We combined it with a visit to my granny, who stays only 4km away in an old-age home. The trials’ visit went very well. It was short and sweet. Basically just a short chat with the main co-ordinating neuro, and then a quick EDSS check by the other neuro. I came up with 3.5 on the scale, which is pretty good. He said I am…

  • My first vlog (video-blog)

    maggsbunny
    1 Nov 2009 | 11:20 pm
    I am feeling much better today, which is just as well because I have a lot of stuff to do today. The tension headache escalated at quite an alarming rate last night and there was not a naffing headache pill to be found anywhere in our house! Why do I only remember about our lack of Panados when I have a headache at night? Anyway, I managed to go to sleep and when I woke up it was gone, mostly. Thank Heavens for that. Youtube is back online this morning, so the video will be duly posted. I am mildly regretting mentioning it at all, but if there is one thing that I have learnt from watching my…

  • Down for maintenance

    maggsbunny
    1 Nov 2009 | 1:13 pm
    I was totally going to post a really cheesy video of me playing one of my piano exam pieces on here, but having gone to the trouble of getting Michael to take the videos with his N97 cellphone and then going to the even greater trouble of loading them onto the computer, I now find myself unable to proceed. Youtube is down for maintenance and it is too late on a Sunday night to start investigating other options. I will do it tomorrow and then you can all have a good laugh at the prissy, prissy look I have on my face while I’m playing, as well as the hoity-toity voice I use to introduce…
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    Brass and Ivory

  • Lego vs. Organ Donor

    6 Nov 2009 | 8:14 am

  • Carnival of MS Bloggers #48

    5 Nov 2009 | 10:43 am
    Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Sherry (aka Have Myelin?), who blogs at Words Salads: The Demyelination of Me and Postcards of My Life, recently did a little Four Wheelin' and has brought back some great photos. I hope you enjoy this sampling as much as I have.Life is like this: a journey of unknowns with many bumpy mistakesSometimes it's a long climb backWhere the wild things areMLK: “Carve a tunnel of hope through the dark mountain of disappointment"India Arie: "Beautiful Flowers", a…

  • Trying to Plan Ahead is Exhausting

    4 Nov 2009 | 9:09 am
    I am frustrated!! Those of you who read my blog and keep up with the personal ups and downs I experience may recall that I'm to try Rituxan to treat my RA. The neurologist gave the thumbs-up some weeks ago so my rheumatologist said it was "a go!" The only consideration I needed to make in regards to my MS was to be off of Copaxone for 2 weeks before hand.When I received that news I stopped injecting daily so I've been MS-drug free for almost 3 weeks now as of Friday. Then there were several questions which needed to be answered before the infusions could be scheduled.Does my insurance company…

  • Writing Online about Multiple Sclerosis

    3 Nov 2009 | 9:04 am
    The subject of writing to heal has been discussed in many circles of folks interested in the trend of social media and patients, including blogs, Facebook, Twitter, message boards, and communities such as ours here on Health Central. Communities are not a new phenomenon. In fact, I remember being part of a list-serve during graduate school which brought together french horn players and teachers from all over the country and the world. Some communities continue to exist in list-serve (email group) formats. Similar MS-related groups on Yahoo! still thrive. When I first had optic neuritis in…

  • Advertising and Community

    1 Nov 2009 | 10:32 am
    Hey, did everybody have a nice Halloween? Lots of trick-or-treaters? We had some but not a lot as it started raining here. And the humidity....it felt like Bloomington, Indiana in the summertime.Today I've got an observational rant brewing. So hang on tight.I participate in a program online which sends me links to surveys on occasion, based upon information which I had shared when I initially signed up. During the past year, there have been many more surveys and polls which are related to health, specifically multiple sclerosis and rheumatoid arthritis (since I have both of those).There was a…
 
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    A Short in the Cord

  • Modified Chat Schedule for Nov and Dec

    1 Nov 2009 | 8:58 am
    Delaware Area MS Chat - Modified Schedule 2009 (Next Chat: Nov 13)There will be ONE chat per month for November and December, on the second Friday, 7:00 – 9:00 pm (or longer if people want to stay).Future Topics: November 13: Music as TherapyThe Fall 2009 edition of NMSS' magazine Momentum has an article about the therapeutic effects of music. What do you think? Does music energize you? Soothe or relax you? Do you use music as a complimentary approach to symptom management?December 11: Managing Holiday StressYes, it's that time of year when the world falls apart. As Mandy Crest notes: "The…

  • Delaware Area MS Chat Friday: Halloween Party

    21 Oct 2009 | 8:09 am
    Delaware Area MS ChatFriday 23 Oct, 7:00 - 9:00 pm (east coast time)Virtual Halloween Party Let's have some fun! Come in virtual costume and bring virtual treats and drinks. We will have virtual prizes for the most imaginative imaginary costume and treats.If we feel like it, let's talk about the masks we wear. Do you mask your symptoms? Do you hide your problems or symptoms to protect your family and friends or yourself?Again I will refer to a quote from Shauna's Bugs Bikes and Brains : "Anyone who has ever gone through a serious illness has probably been told that they are "so strong," when…

  • Another Fun Chat!

    10 Oct 2009 | 11:05 am
    Thanks to the eight chatters who kept me laughing last night! We had two new chatters from Delaware, Gina and Cheryl.Among other things, we discussed transportation options (from DART Paratransit to vehicle modifications), Medicare (had lots of questions but no answers), and the University of Delaware MS Assessment clinic (lots of positive feedback for that program). There was also some discussion about boning a duck and power tools, which sent me into fits of laughter. I guess you had to be there...As promised, here is additional information about a few of the topics.Go to the DART…

  • Delaware Area MS Chat Friday: Transportation

    7 Oct 2009 | 6:00 am
    Delaware Area MS On-line ChatFriday 9 October, 7:00 - 9:00 pmChat Topic: TransportationDo you have transportation issues? Do you still drive with no problems, or do you need alternative transportation options? Do you have modifications in your car? Do you use paratransit? What success stories can you share?Let's chat about this and anything else that comes up.If you want to connect on-line with others with Multiple Sclerosis in Delaware and surrounding areas, please join us THIS FRIDAY any time between 7:00 - 9:00 pm. Show up when you want, leave when you want. Chat from the comfort of your…

  • Changing of the Guard

    27 Sep 2009 | 10:12 am
    The summer clothes have been washed, ready to be put away.Where once there were cheese and fruit plates for dinner, now there are hot soups and casseroles.Pansies have replaced petunias.Time to set up the light box to ward of seasonal affective disorder that comes when daylight savings time ends in November, and review energy management techniques for the upcoming holidays.Although Autumn came a few weeks ago, it is beginning to feel like it. Welcome, October.PS. I took this photo with my Olympus camera that lets me get close ups of cute things.Home
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    Navigating the Journey of MS

  • busy busy busy

    6 Nov 2009 | 1:18 pm
    I have been so busy lately I have been ignoring my blog.Thanks for the emails reminding me of it. haha !Business is good so I have been wrapped up in orders and such.Mark is in town ( for once) so we are trying to get caught up on all thestuff I need to get done but need assistance with.We had a pile of brances from a bush Mark cut down and couldn't find anyonewho wanted to earn a few bucks to haul it the dump for us.All these people out of work, with a truck, and nobody would get off yheir lazyrear end to earn a few bucks. Yesterday I called everybody I knew begging for help.Well, I know…

  • Sweatshirts are here !!!

    4 Nov 2009 | 4:24 pm
    I just added warm and cozy sweatshirts to my website www.TheMSShoppe.com.They are available in two styles : I DO SHOTS ! and I do the MS Walk every day !I also added 4 XL too my stock as I have been asked many times to special orders these. Some colors may be slightly different but I will try and keep those stock for you.Thank you for asking me for them.I have lots of new stuff going up shortly. Lots of great tiems made by MSer's that would make fabulous Holiday Gifts.Let me know if you are looking for something and I will try and hunt it down for you.Have a great day everybody…

  • Packers

    1 Nov 2009 | 6:04 am
    I'm so ready for some football !!!! Packers vs Vikings Lambeau Field !!Yesterday was flip flop day in Green Bay and alot of resaurants are serving waffle fries.

  • The craziness continues

    29 Oct 2009 | 11:27 am
    Yesterday I was finally starting feel better. Went to my personal trainer and tried a bunch of new stuff.I like learning new things. This cold has created some breathing problems and asthma related issues but we managed to get a good workout and I was walking so well.I tried to get caught up on a few things around the house without wearing myself out.I got some laundry done ( so I could be ready for the massive load Mark will be bringing home tonight from France)Got some orders out so I was caught up with the business. I still have to make a bracelet though.The sweatshirts will be here next…

  • Cold be gone

    27 Oct 2009 | 11:04 am
    So I am finally starting to feel better.This cold really knocked me off my feet and flat on my back in bed.It has been a very long time since I have had a cold but as all you MS ers know it doesn't take much to throw your MS into a tizzy.On bad days my legs feel like they weigh 100 pounds. With a cold they felt like they weighed 1000 pounds each.I am seeing the light at the end of the tunnnel.Thank you all for the emails offering encouragment and "cold tips".some were very funny and I am sure that was the intention to make me laugh.The dogs have been attached to me. It is awfully cute how a…
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    Chain Reaction

  • How These Five People Fight MS

    19 Oct 2009 | 8:12 pm
    Here is an excellent new website with some superb bloggers talking about how they live victoriously with MS. Check it out - http://www.howifightms.info/

  • October is my favorite Month...

    4 Oct 2009 | 7:45 am
    Hello! Long time no "see". Life is finally calming down a bit for me now so I am going to blog on the latest and greatest.MoveWe've been officially moved in with my in-laws for 1 full week now and so far so good. We'll see if I feel the same way after 1 month of living here. Last minute issues like my in-laws telling us "No you can't store your furniture and stuff here" lead to more money spent on a storage unit and such but hey, at least we have a roof over our heads and the apartment complex who was going to sue us for last months rent has agreed for us to just pay in payments.Job(s)My job…

  • Boxes, Boxes and more Boxes

    10 Sep 2009 | 5:38 pm
    Hubs and I have begun packing up our belongings to move in with my inlaws in 2 weeks. Not the ideal situation, but we are completely out of options. Hubs is still unemployed and my salary cannot support us. This is the most humbling experience EVER. Our age and having to accept help from family, God is constantly teaching us lessons I suppose. Selling off furniture so we don't have to store it, going from a place of our own with just us and our dogs to living in a small ranch house with PARENTS. If only we had another option.I will have to drive about 90 miles each day round trip for…

  • The Open Road

    3 Sep 2009 | 2:52 pm
    We are hitting the open road! Nothing like a Road Trip to forget your troubles! My family has been nice enough to fund a trip for Matt and I to drive to PA for a visit this holiday weekend. We both need to get away SO bad that I am very thankful for this. It will be good to see them as we haven't seen them since New Years. See my niece Asia play high school field hockey, play with the boys, Darius (5), Braylon (4) and Marcus (2) and just relax, cook-outs, visit some of my favorite Lehigh Valley haunts and DO NOTHING.Alas - Tuesday I'll have to come back to reality, but that leaves me with 4…

  • Disability

    30 Aug 2009 | 8:06 pm
    Hello All: I am going to meet with a few disability lawyers this week. What questions do I ask? What information do I need to make sure is covered. My life working FT right now and dealing with my MS symptoms kicking my ass is preventing me from doing alot of research, so if you have advice, please leave it in the comments.Matt's mom is going in for a Cardiac Cath tomorrow morning, he is still unemployed and all but one of his leads has fallen through and the 1 that he has is taking their good ole time making a decision. I had to leave work early 2 days last week because I was so fatigued and…
 
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    Jim's DEEP Thoughts

  • Sin and Grace

    26 Oct 2009 | 4:00 pm
    I am thinking of my life and I am sure this is affecting many other Christians. Why is it that so many us professing Christians make no spiritual progress, and indeed make no efforts to grow in grace? Is it possible to be a Christian and yet ignore the desire to grow in grace? If I have no concern to grow in grace then I am not abiding in Christ. Grace is the enabling gift of God not to sin. Grace is power, not just pardon. Grace does not grant permission to live in the flesh; it supplies power to live in the Spirit. Sometimes I am too apt to rest on faith, and to think that this will save me…

  • I am still spiritually ignorant.........

    24 Oct 2009 | 8:49 am
    We have to remember that its not the scriptures that are corrupted so before we blame, we are to lay blame where it is deserved. This is where we should have a serious responsibility in this matter to search in our hearts about our motives when we try to glorify God. Paul said, "But if we judged ourselves, we would not come under judgment" (1 Corinthians 11:31). We can learn from others who believe such doctrines and examine our own. We are to allow the Holy Spirit to lead us and convict us the truth. Often flesh's desires gets in the way of spirit-lead truth. Spiritual truth is so necessary…

  • The more I know God's love letters to us (Bible), the more I struggle

    24 Oct 2009 | 8:02 am
    with understanding my sins against Him. Martin Luther's Quote: The great difference between doctrine and life is obvious, even as the difference between heaven and earth. Life may be unclean, sinful, and inconsistent; but doctrine must be pure, holy, sound, unchanging ... not a tittle or letter may be omitted, however much life may fail to meet the requirements of doctrine. This is so because doctrine is God's Word, and God's truth alone, whereas life is partly our own doing.... God will have patience with man's moral failings and imperfections and forgive them. But He cannot, will not, and…

  • Chief Evangelist

    18 Oct 2009 | 6:54 pm
    The Scriptures say that God Himself is the chief evangelist. For the Spirit of God is the Spirit of truth, love, holiness and power, and evangelism is impossible without Him. It is He who anoints the messenger, confirms the word, prepares the hearer, convicts the sinful, enlightens the blind, gives life to the dead, enables us to repent and believe, unites us to the body of Christ, assures us that we are God’s children, leads us into Christ-like character and service, and sends us out in our turn to be Christ’s witnesses. In all this the Holy Spirit’s main preoccupation is to glorify…

  • Living in the Word as in Living in Spirit

    17 Oct 2009 | 7:55 pm
    I have to remind myself that in terms of "living in the Word", every one of us have different interpretation of the Word. When (we interpret Scripture by focusing) on our inner voice, we risk losing the original voice of Scripture. The task of hermeneutics is to discover the meaning of the text in its proper setting; to draw meaning from Scripture rather than reading one’s presuppositions into it. A person who intends to manage his own affairs, maintain his pride, and secure esteem and glory from his fellow human beings will twist the words of Jesus to support his own self-esteem. Compare…
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    Word Salads,the Demyelination of Me and the Breakdown of a Marriage

  • I used to play leap frog

    Have Myelin?
    6 Nov 2009 | 1:41 pm
    And eat homemade ice cream. Catch lightening bugs cuz it was fun. Had a playhouse behind my grandparents house. Climbed trees. Life was carefree. Living on Robinhood Lane in a neighborhood called Sherwood Forest triggered a secret love affair with Robin Hood and Lady Marian. Nobody knew but me and the local library.I am sorry if at times my blog seems like it's a blog about death and dying. It's not. It is about Living Single with MS because this is my life as a single woman right now.I don't like it at all but you can't hurry grief.

  • Remember The Lion King Song?

    Have Myelin?
    4 Nov 2009 | 3:57 pm
    ...from The Lion King? Circle of Life? I believe it was nominated (I am too lazy to google, sorry) for best song in the 1990's but I am not a betting woman anymore. Every one of my bets went bad.My son Andrew was very into The Lion King back in the early 90's. His whole bedroom was done in The Lion King theme. Sheets, pillowcases, posters, you name it he had it. The Lion King ruled! The Simpsons came after lovable/un-lovable Homer and who can forget "Bart, with $10,000 we’d be millionaires! We could buy all kinds of useful things like…love!"Now Marge is posing in Playboy. Call me lost on…

  • The apple, the tulip, mj and the potato

    Have Myelin?
    3 Nov 2009 | 5:13 am
    Did you know there is a two hour program AND a book covering those four plants? And only those four plants? It's The Botany of Desire.Now, now, now...don't let your minds go there. It's not about sexual desire. =) There's plenty of information on the internet for that.A suggestion: it's better to figure it out yourself or you'll end up on a seedy path to nowhere as the internet is like the wild west. Be careful where you click-click or you'll end up some place dark and unsavory- you'll fall like Humpty Dumpty and all the King's horses and for sure the King's woman will abandon you.I also…

  • Four wheelin' is good medicine

    Have Myelin?
    1 Nov 2009 | 5:01 pm
    Today was the first time my Big Girl Wheels had been out 4-wheelin'.She's still covered in mud and quite proud of it.The expressly customized Colorado facial will do her good. We slightly-used but still good to go girls like our facials.All the carbon build-up can't be good for her pores n' pistons, no. Give me Liberty or give me mud flaps! My belly hurts. My stomach muscles and rib cage hurt. It is because today I laughed a lot! More than I have in a long time.... :->Alex and I, along with the daschie Gini went up to Cripple Creek, (no gambling; only popcorn and a potty break!) headed…

  • Stuff I read today

    Have Myelin?
    30 Oct 2009 | 10:33 am
    A magazine on MS arrived and as I read through it a couple of things jumped out at me. One especially poignant clip: the section covering the personal highlights of the comedian Anthony Griffith who has MS. He said one of his personal highlights was "Being a father to my daughter, Brittany, who died of leukemia when she was 3 years old." I think that is more of a personal strength when he words it like that.On to another topic.The handicap parking police were at it again. Those who use HC Parking that don't look disabled. What does that mean anyway? In this particular situation we are talking…
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    MS Maze

  • Inside the Maze 11/6/09

    How much do you know about diabetes? Learn the warning signs and find out what you can do to stay healthy: Diabetes Awareness Month: Not Always a Silent Killer. It’s been a crazy week in health policy. The CDC recommends that we sneeze into our elbow or shoulder rather than on ...

  • Drama on the Hill: Health Care and Dachau

    Fresh with backing from the American Medical Association (AMA) and the AARP, the House health care bill was set for a rare Saturday vote, but not without plenty of drama. On Tuesday, the Tea Party protesters rallied on the hill, shouting, "Kill the bill!" and "Waterboard Congress!" and warning of a ...

  • Diabetes Awareness Month: It’s not always a silent killer

    It causes approximately 72,499 deaths in the United States every year. The risk of dying from diabetes is about twice that of people without diabetes of similar age. Although in many cases of type 2 diabetes, its victims are unaware that they have it, in others it is most definitely ...

  • Swine Flu in the Workplace: No sick days? Sneeze into your elbow

    [caption id="attachment_1494" align="alignright" width="193" caption="Photo:CDC"][/caption] There’s the cashier who sneezes into her hand before handing you your change; and the guy one cubicle over who sounds like he’s hacking up a lung; and the nose blower stuffing a tissue into her pocket before waiting on a customer. You can’t be sure if ...

  • Challenging What We Know About Multiple Sclerosis

    What causes multiple sclerosis? There are plenty of theories, but researchers have yet to hone in on the answer. Researchers at the Buffalo Neuroimaging Analysis Center at the University of Buffalo will be looking into the possibility that MS results from narrowing of the primary veins outside the skull -- chronic ...
 
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    MS News Today

  • FDA delays ruling on Acorda’s MS drug until 1/2010

    caroline
    23 Oct 2009 | 5:41 am
    October 22, 2009 6:38 AM ET HAWTHORNE, N.Y. (AP) – Acorda Therapeutics Inc. said Thursday the Food and Drug Administration delayed a ruling on its multiple sclerosis drug candidate Fampridine-SR by three months. The agency was due to make a decision by Thursday, but the ruling is now due by Jan. 22, 2010. Acorda said the FDA extended its review because it recently submitted new information on its risk evaluation strategy for the drug. Acorda sent in the additional information following a meeting with an FDA panel on Oct. 14. The panel recommended that Fampridine-SR receive FDA approval.

  • Newly Published Data Show Copaxone Promoted Remyelination of Damaged Axons

    caroline
    20 Oct 2009 | 5:59 am
    The purpose of this study was to examine the effect of glatiramer acetate on oligodendrogenesis (the formation of myelin-producing glial cells in the central nervous system) and myelin formation in damaged nerve cells in mice The mice were subjected to lysolecithin-induced demyelination of the spinal cord, then treated daily for seven days with a 2mg injection of glatiramer acetate After only three days, mice treated with glatiramer acetate experienced an increase in insulin-like growth factor-1 (IGF-1) After seven days, and throughout the 28-day trial, resultant myelination was higher in…

  • Teva Sues Mylan Over MS Drug Copaxone

    caroline
    19 Oct 2009 | 5:37 am
    Teva Pharmaceutical Industries Ltd. issued a press release last week discussing the abbreviated new drug application (ANDA) containing a Paragraph IV certification for COPAXONE® (glatiramer acetate injection), filed by Mylan Pharmaceuticals Inc. Teva announced that it has filed a lawsuit against Mylan Pharmaceuticals, Inc., Mylan Inc. and Natco Pharma Ltd. for patent infringement in the U.S. District Court for the Southern District of New York. Mylan’s filing of an ANDA for what they are calling a generic version of COPAXONE® was not unexpected, as the company announced its intention to…

  • A New Cause for MS?

    caroline
    16 Oct 2009 | 2:38 am
    By Henry L. Davis NEWS MEDICAL REPORTER October 15, 2009, 6:36 AM Buffalo physicians announced Wednesday that they have started a large study that could overturn thinking about the generally accepted cause for multiple sclerosis. MS is believed to stem from an abnormal response of the body’s immune system directed against the fatty sheath that surrounds nerve fibers in the brain and spinal cord. But no one knows for sure, and recent research suggests an altogether different explanation for the disabling disease — narrowing of the primary veins outside the skull, a condition called chronic…

  • What’s the Point of Extavia?

    caroline
    16 Oct 2009 | 2:28 am
    Featured Story Oct. 16, 2009 By Angela Maas, Managing Editor Another drug in the self-injected multiple sclerosis (MS) class recently came onto the marketplace. But many within the pharmaceutical industry are saying that other than giving Novartis an entry into the MS market before its oral MS therapy gains FDA approval, it is unclear what significant advantages the drug Extavia (interferon beta-1b) — identical clinically to Betaseron (interferon beta-1b), which has been on the market for more than 16 years — offers over the other products. And health plans are likely to react…
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    The Myelin Repair Foundation Blog

  • Dr. McFarland: “I had doubts that the MRF would ever be this successful…”

    Scott Johnson
    5 Nov 2009 | 9:34 am
    Six weeks ago at our annual research meeting held in Palo Alto, we celebrated five years of progress with nearly 60 scientists including our principal investigators, their lab staff members, members of our Scientific Advisory Board and Drug Discovery Advisory Group and a number of guests including several MS patients who shared their stories with all assembled.  During the two-day meeting I chatted with many of the participants and I asked the same question: “How did we do?” When we launched the MRF five years ago, there was at least some level of skepticism about the likelihood that we…

  • Poems to Honor our Myelin

    Justine Lam
    4 Nov 2009 | 7:42 am
    Since joining Twitter as @MRF_Justine earlier this year, I’ve been challenging all my new followers to write a poem about myelin in 140 characters or less (Twitter’s format.) I’m amazed to see the creations people have come up with. @MSInCT created cool graphics for some of these poems. Thank you for all your contributions and for helping us spread awareness and knowledge about myelin. Read them and pass them along to others via Facebook, IM messages, Tweets etc. Please also contribute a poem in the comment section below. The top poems will win a limited edition MRF…

  • Charles Wienbar is Getting Back to the Top of the Mountain.

    Beylah Redke
    2 Nov 2009 | 12:14 pm
    When Charles Wienbar was diagnosed with MS in 1994, the scariest thought for him was the possibility that he might end up in a wheelchair. For Charles, that possibility could mean a drastic change in lifestyle; it could mean the end of skiing, mountain biking, running on the beach and hikes in the woods with his family. He thought, “That’s a very scary life I could be living. I don’t know if I can do this.” For the first three years after his diagnosis Charles was symptom-free. Eventually he began to use a cane and for the last eight or nine years he has been in a wheelchair.

  • Not a Top Down Solution

    Justine Lam
    30 Oct 2009 | 10:17 am
    Scott Johnson, the founder and president of the Myelin Repair Foundation will be talking today at BIL:PIL in San Diego. His talk with be livestreamed at Medpage Today. He’s scheduled to talk around 11:30 AM Pacific Time. He will be covering the big problems in the current medical research system, why there are hindrances in the current model, the MRF’s solution and our hope for finding more “grassroots” and not “top-down” solutions. Here is Scott’s presentation uploaded onto Slideshare. Myelin Repair Foundation's BIL:PIL 2009 Presentation View…

  • We are Biotech, Are You?

    Justine Lam
    26 Oct 2009 | 8:00 am
    “I Am Biotech” is donating $25 to a charity for every story they receive from a person working in biotech. One of the charities on their list of recipients is the Myelin Repair Foundation (MRF). If you work in the biotech field (in any type of position) and you want to help speed up the process of developing therapeutics for patients, please help support the MRF and submit your own story. They are looking for written stories (500-700 words), audio or video. Your story you should cover the following: your views on the promise of biotech; your personal story of how and why you are…
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