Multiple Sclerosis

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  • Can You Pass the MS Dental Sobriety Test?

    Life With Multiple Sclerosis
    Trevis Gleason
    11 Jul 2014 | 6:12 am
    After I woke and completed my morning inventory this soft Irish day, I let the Wheatens out for their morning pee, took care of that myself, and then brushed the sleep and the garlic of last night’s Caesar salad from my teeth. It’s a fairly routine thing we do – brushing our teeth – and then again, it isn’t. Fine and gross motor skills, fatigue, spasm, swallowing issues, even medications can all have an impact on our daily oral hygiene routines and overall dental health with MS. I know that I don’t brush the way I once did. I don’t floss the same. I don’t even use the same…
  • Which Are the Safest (and Least Safe) MS Drugs on the Market?

    Healthline News: Multiple Sclerosis
    Jeri Burtchell
    2 Jul 2014 | 12:00 am
    A new comprehensive report on the safety of MS drugs may have doctors rethinking their recommendations.
  • Multiple Sclerosis as a Character in the Movie of Your Life

    Life With Multiple Sclerosis
    Trevis Gleason
    7 Jul 2014 | 11:45 am
    Someone once told me “Everyone directs their own movie.  They see life through their own lens.”  This is true on so many levels, most of which I won’t attend to in this blog. Working on a project for the past two weeks I’ve begun to see MS as a character in the story of my life.  MS is not the star – it’s not even a supporting role – but a former headliner making a cameo appearance at the most annoying times. It is a part of my story. As the director of my own film, it’s my job to keep this big-headed ego of a character from stealing the scenes, upstaging…
  • The Wahls Protocol Review

    MS Strength
    Jen
    31 Mar 2014 | 8:05 am
    I recently finished The Wahls Protocol, a diet and lifestyle book for treating autoimmune conditions. The author, Dr. Terry Wahls, was able to go from a state of progressive multiple sclerosis to a state of significant remission (enabling her to resume physical activity and bicycle many miles). I definitely appreciate that she is a medical doctor (M.D.) and that she embraces alternative approaches to treating disease.   The book presents variations of a “Wahls” diet, giving readers three levels of commitment. The diet has some of the elements of a Paleo lifestyle, including…
  • Gait changes with balance-based torso-weighting in people with MS

    MS-UK Latest MS News
    10 Jul 2014 | 2:05 am
    Individuals with multiple sclerosis (PwMS) often have mobility impairments that may lead to falls and limitations in activities. Physiotherapy interventions that could improve mobility typically take several weeks. Balance-based torso-weighting (BBTW), a system of strategically placing light weights to improve response to balance perturbations, has resulted in immediate small improvements in clinical measures in PwMS, but changes in spatiotemporal gait parameters are unknown. The purpose was to examine the effects of BBTW on gait parameters in PwMS and healthy controls. This study is a…
 
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    Multiple Sclerosis Research News -- ScienceDaily

  • New approach to treating conversion disorder reduces seizures, improves co-morbid symptoms

    2 Jul 2014 | 2:00 pm
    A cognitive behavior therapy-informed psychotherapy significantly reduces the seizures in patients with psychogenic nonepileptic seizures -- a conversion disorder present worldwide and that affects up to 400,000 people in the US -- a study finds.
  • Over-activity of enzyme HDAC6 exacerbates symptoms of Amyotrophic Lateral Sclerosis

    26 Jun 2014 | 6:46 am
    Scientists have demonstrated in fruit-flies that over-activity of the enzyme HDAC6 in the nerve ends exacerbates the symptoms of the neurodegenerative condition Amyotrophic Lateral Sclerosis (ALS / Lou Gehrig’s Disease). Inhibition of this enzyme could offer a protective effect against ALS.
  • Cognition in multiple sclerosis: Researchers publish results of one of the longest longitudinal studies

    24 Jun 2014 | 2:22 pm
    One of the longest longitudinal studies of cognition in multiple sclerosis has been completed, and its results published. These results provide insight into the natural evolution of cognitive changes over time, an important consideration for researchers and clinicians. "These longitudinal data contribute substantially to our knowledge of the course of cognitive decline in MS," noted one expert.
  • No apparent link between chronic cerebrospinal venous insufficiency, multiple sclerosis

    2 Jun 2014 | 10:22 am
    There appears to be no link between chronic cerebrospinal venous insufficiency and multiple sclerosis, according to new research. Researchers undertook a study to explore the validity of the theory that chronic cerebrospinal venous insufficiency and MS are linked. They enrolled 120 patients with MS and 60 healthy controls. A high percentage of patients (58%) and controls (63%) met one or more proposed ultrasound criteria that would help diagnose chronic cerebrospinal venous insufficiency although there were no differences seen between groups.
  • Why inflammation leads to a leaky blood-brain barrier: MicroRNA-155

    2 Jun 2014 | 7:47 am
    Until now, scientists have not known exactly how inflammation weakens the blood-brain barrier, allowing toxins and other molecules access to the brain. A new research report solves this mystery by showing that a molecule, called 'microRNA-155,' is responsible for cleaving epithelial cells to create microscopic gaps that let material through.
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    ThisIsMS - News

  • Struggling with Tecfidera side effects

    Linnibel
    11 Jul 2014 | 10:51 pm
    Tecfidera (BG-12, dimethyl fumarate) Statistics : 1 Post || 11 Views Post by Linnibel
  • Tongue fasciculations???!

    silverwings87
    11 Jul 2014 | 12:32 pm
    General Discussion Statistics : 3 Replies || 61 Views Post by silverwings87
  • Tounge Fasciculations

    silverwings87
    11 Jul 2014 | 11:14 am
    General Discussion Statistics : 1 Post || 1 Views Post by silverwings87
  • Tounge Fasciculations

    silverwings87
    11 Jul 2014 | 11:13 am
    General Discussion Statistics : 1 Post || 1 Views Post by silverwings87
  • Tounge Fasciculations

    silverwings87
    11 Jul 2014 | 11:04 am
    General Discussion Statistics : 1 Post || 1 Views Post by silverwings87
 
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    MS-UK Latest MS News

  • Gait changes with balance-based torso-weighting in people with MS

    10 Jul 2014 | 2:05 am
    Individuals with multiple sclerosis (PwMS) often have mobility impairments that may lead to falls and limitations in activities. Physiotherapy interventions that could improve mobility typically take several weeks. Balance-based torso-weighting (BBTW), a system of strategically placing light weights to improve response to balance perturbations, has resulted in immediate small improvements in clinical measures in PwMS, but changes in spatiotemporal gait parameters are unknown. The purpose was to examine the effects of BBTW on gait parameters in PwMS and healthy controls. This study is a…
  • Scottish Medicines Consortium approves Lemtrada for RRMS within NHS Scotland

    8 Jul 2014 | 6:14 am
    "Scotland has one of the highest rates of multiple sclerosis in the world, and the approval of Lemtrada in Scotland is an important step forward for people with active RRMS who remain in need of new treatment options. MS treatments have come a long way in the past twenty years and the availability of Lemtrada provides an opportunity for neurologists to offer a new therapy to people with multiple sclerosis," commented Dr. Belinda Weller, Consultant Neurologist, Western General Hospital, Edinburgh......
  • Oceans of Hope leaves Portsmouth

    7 Jul 2014 | 4:04 am
    Oceans of Hope, the 20-metre yacht undertaking the first global circumnavigation by a yacht with a working crew of people with multiple sclerosis,  set sail from Portsmouth yesterday following a four-day stopover.During the 61,000-kilometre (33,000-nautical mile) voyage, which will take 17 months to complete, the Oceans of Hope project aims to inspire people with Multiple Sclerosis (MS) around the world to find a way to follow their dreams......
  • Cytokine signature patterns provide insights into immunomodulatory drug effects

    7 Jul 2014 | 1:36 am
    The use of cytokine signature patterns: separating drug naïve, interferon and natalizumab-treated multiple sclerosis patients.O'Connell KE1, Mok T, Sweeney B, Ryan AM, Dev KK.AbstractMultiple sclerosis (MS) is an inflammatory illness characterized by demyelination and axonal neurodegeneration. Here, we used serum samples from MS patients to demonstrate if "cytokine signature" patterns can separate different patient groups better than using single cytokines....
  • Could existing common medications help restore myelin in MS patients?

    7 Jul 2014 | 12:50 am
    A common cold treatment and seven other drugs already approved for other conditions could help restore a protective coating eroded around neurons in multiple sclerosis patients, according to researchers led by a team at the University of California, San Francisco.UCSF is spearheading a 50-patient clinical trial of the most promising drug — an over-the-counter antihistamine branded by Novartis as Tavist — that is expected to be completed by the end of the year......
 
 
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    Life With Multiple Sclerosis

  • Can You Pass the MS Dental Sobriety Test?

    Trevis Gleason
    11 Jul 2014 | 6:12 am
    After I woke and completed my morning inventory this soft Irish day, I let the Wheatens out for their morning pee, took care of that myself, and then brushed the sleep and the garlic of last night’s Caesar salad from my teeth. It’s a fairly routine thing we do – brushing our teeth – and then again, it isn’t. Fine and gross motor skills, fatigue, spasm, swallowing issues, even medications can all have an impact on our daily oral hygiene routines and overall dental health with MS. I know that I don’t brush the way I once did. I don’t floss the same. I don’t even use the same…
  • MS Cog-Fog or ‘Magazine Syndrome’?

    Trevis Gleason
    9 Jul 2014 | 7:33 am
    Well, I started to write about something. Actually, I wanted to and was about to formulate the idea about something…on the way from one place to another, the idea seemed to be good enough to write about. I began by looking for the thing that sparked the idea and in that process, the idea morphed into another thought that seemed a better angle to get the whole point of the piece across. That’s when it all went wrong. An old friend used to call it “magazine syndrome.” You know – you absolutely KNOW – that you saw the thing you were looking for. You’re almost positive it was in…
  • Multiple Sclerosis as a Character in the Movie of Your Life

    Trevis Gleason
    7 Jul 2014 | 11:45 am
    Someone once told me “Everyone directs their own movie.  They see life through their own lens.”  This is true on so many levels, most of which I won’t attend to in this blog. Working on a project for the past two weeks I’ve begun to see MS as a character in the story of my life.  MS is not the star – it’s not even a supporting role – but a former headliner making a cameo appearance at the most annoying times. It is a part of my story. As the director of my own film, it’s my job to keep this big-headed ego of a character from stealing the scenes, upstaging…
  • Happy ‘Underpants Day,’ America!

    Trevis Gleason
    2 Jul 2014 | 8:57 am
    “Happy Underpants Day, Chef!” How could I possibly forget the young lad (what was he, 3 or 4?) who greeted me at a Fourth of July barbecue a number of years back? To this day, I cannot help but wish my countrymen “Happy Underpants Day!” And yet, there is a pearl in the wisdom of that boy with a hot dog in one hand and red, white, and blue cake icing on his lips. Independence and underpants have a common theme for people with multiple sclerosis. How many times haven’t I heard from people who don’t go out as much (or at all) because they feel nervous and tied to a toilet? If even a…
  • Speak Out for Improved Complementary and Alternative Medicine Coverage for MS

    Trevis Gleason
    30 Jun 2014 | 8:19 am
    Complementary and alternative medicine (CAM for short) for MS can be as simple and safe as massage and acupuncture to help with muscle stiffness, or as complex and controversial as bee sting therapy or CCSVI treatment. Though they may seem beyond the pale to many, the National Multiple Sclerosis Society reports that, “In the United States today, the vast majority of people incorporate one form or another of CAM as part of their MS management, most often in combination with their prescribed MS treatments.” Even though some complementary and alternative treatments (like vitamin D or perhaps…
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    Maggsbunny

  • 6 Nights to go :-)

    Maggie
    11 Jul 2014 | 8:02 am
    Beary dog has been studiously ignoring my belly for months now But she is not leaving my side for long. I know both dogs are going to be so delighted to have a little one in the house. We won’t ever have to have an Au Pair, because Vivienne will have her own two Au Bears Time getting short now before our little sweetheart arrives! The last two nights I have snored Michael awake when I turn on my back, lol. I guess no-one said pregnancy was all glamour These past couple of days have been so cold. People’s water pipes have been bursting. We will tell Vivi one day of the freezing…
  • 7 nights to go…

    Maggie
    10 Jul 2014 | 9:08 am
      Only 7 nights to go until we meet our little Vivienne Rose. Getting very exciting now!! Check out my pregnancy ticker: 38 weeks, currently. It’s been a long haul, but Vivi-bunny and I have come so far. And is little missy ever active at night! Daddy has to spoon us, and talk to us, and then it’s just knees and bum and feet, making such bumps in my tummy. I do love it. So glad we are getting to experience it.
  • Vivienne’s song

    Maggie
    26 Jun 2014 | 12:37 pm
    Apparently one is supposed to sing to one’s unborn baby. Oh, I had such plans for this pregnancy. I was going to listen to loads of classical music, sings songs, be ultra-relaxed, eat so well, exercise gently for the whole nine months… Alas, the MS had other ideas. It has broken me down. Still, I do try and sing her her little song a couple of times a day… (to the tune of Twinkle, Twinkle Little Star) Twinkle. twinkle Vivi-bun, Such a special little one. Deep inside my tummy-tum, Gonna have a lot of fun! Twinkle, twinkle Vivi-bun, what a special little one
  • Taking strain

    Maggie
    24 May 2014 | 10:02 am
    This pregnancy is much harder than i would have ever thought possible. I have been relaping since January, and it is getting bad now. Not helped by the dizzy spells of positional low blood pressure! On the one hand, I have my OB/GYN heartily recommending a short course of corticosteroids. On the other hand, my neurologist, who is hesitant to give the go-ahead. And then there is the sonar pic of the most beautiful little girl ever, who has stolen my heart and continues to do so with every movement in my belly. On a practical notre, I am virtually house-bound. I am also hugely dependant on…
  • 3D scan

    Maggie
    22 May 2014 | 9:43 am
    The hospital where I am delivering offers a complimentary 3D scan, as part of the package. Co-pay of R100. The doctor is considered the scan expert in town. So withoout further ado, Vivienne…
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    Brass and Ivory: Life with MS & RA

  • June 2014 Round-Up of MS News and Research

    27 Jun 2014 | 4:59 pm
    How common is sexual dysfunction in women with MS?Sexual dysfunction is very common in MS but it is not highly discussed.  Studies report that up to 84.6% of women with MS experience at least one sexual dysfunction.  Approximately 34.8% of MS women experience 5 or more sexual dysfunctions while 12.9% experience 10 or more.  Symptoms include lower sex drive, decreased lubrication, poor clitoral erection, and lack of orgasm.  Other MS symptoms, such as bladder and bowel dysfunction, spasticity, pain, fatigue, depression, anxiety, and side effects of medication often…
  • Cancer Mistaken For RA in Children

    24 Jun 2014 | 4:52 pm
    Musculoskeletal pain and nonspecific symptoms are often the initial signs of cancer in about 20% of children who develop pediatric leukemia.  Because of similar symptoms, childhood leukemia can masquerade as juvenile idiopathic arthritis, osteomyelitis, transient synovitis, or septic arthritis, resulting in delayed treatment.What is leukemia?Leukemia is a type of cancer that causes bone marrow to produce large numbers of abnormal white blood cells that enter the bloodstream and do not function properly.  Leukemia accounts for 33-41% of all malignancies in children under 15 years of…
  • Enter the #LiveBold Anti-Stigma Photo Contest

    19 Jun 2014 | 5:03 pm
    Fatigue and heat-sensitivity are my biggest hurdles to overcome during the summer months.  Each of these MS symptoms can wipe me out and sometimes I don’t feel like fighting back.  But other times, I become determined to not let them get in the way of enjoying life.  I choose to #LiveBold.During the past two weekends, Rob and I have been enjoying Saturday night after-hours viewing of classic Indiana Jones movies at the local movie theater.  Initially the thought of watching midnight showings didn’t sound appealing or realistic.  However, I made a decision; I…
  • Living with MS and Social Stigmas

    17 Jun 2014 | 5:04 pm
    Social stigmas are an unfortunate part of our society.  A social stigma is the extreme disapproval of a person or group of people based on a perception that something sets them apart from what is ‘normal’ or socially acceptable.  Social stigmas exist around mental illness, physical disability, disease, race, education, religion, ideology, and more. Removing the stigma of MS.One theory behind the many efforts to raise awareness of multiple sclerosis is to begin to remove the stigma of MS.  By educating people about the disease, we (those affected by MS) hopefully can show…
  • Diseases Easily Confused with RA

    17 Jun 2014 | 4:50 pm
    Making a diagnosis of rheumatoid arthritis is often tricky. With no single test that confirms or eliminates the disease, the diagnosis of RA is based on a physical exam, patient history, laboratory tests and often imaging. However, symptoms of RA, such as pain, swelling and fatigue, are not exclusive to the disease. And correct diagnosis is important in choosing an appropriate treatment plan.A number of diseases, such as lupus, fibromyalgia or Sjögren’s syndrome, may easily be confused with RA, or coexist in a patient. Arthritis symptoms might develop following certain infections, such as…
 
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    A Short in the Cord

  • Happy Independence Day!

    4 Jul 2014 | 6:44 am
    On this fourth of July, 2014, I'm sending up a flare of hope that we will soon declare independence from Multiple Sclerosis.  Be safe and well this holiday!
  • And They're Off!

    15 Jun 2014 | 10:20 am
    Fledgling Eastern BluebirdThe Eastern Bluebirds began leaving the nest box one-by-one this morning.  It takes a lot of courage to leave the warmth and protection of the home where you were born, then to squeeze out of a tiny hole and leap into the brightness and hope instinct kicks in and you fly into the big world.  We are still talking about the Bluebirds, right?  Back to HOME page
  • Fledge Watch

    14 Jun 2014 | 12:10 pm
    Although I don't blog much (I'll probably post the reason why in the future), I still remember that some of you love the bird posts.  Status update:Mama and Papa watching over the nestWe have five baby Eastern Bluebirds in our backyard nestbox about to fledge.  Just like any grandparent (or so I've been told), I love to show off baby pictures.  These photos were obtained carefully, using the protocols outlined in Cornell's Nestwatch Citizen Science Project, which is why they are a little fuzzy.  I didn't stay long enough to ensure focus or composition, just wanted to check…
  • Thank You, Healthline, For Selecting Mine as One of the Best MS Blogs for 2014

    30 May 2014 | 11:51 am
    HealthlineThank you, Healthline.com, for selecting A Short in the Cord as one of the Best MS Blogs of 2014.   I'm flattered by the description:"Joan Wheeler is the woman behind A Short in the CordShe was diagnosed with MS 27 years ago, and her blog chronicles her experiences with relapsing-remitting MS. Wheeler recognizes the challenges that come with living with MS, but also maintains that staying active and aware is key to health.Wheeler is a disability awareness advocate, and she’s captain of the MS Walk Team Wheeler’s Wobblers. Their tagline is “Wheelers wobble but don’t…
  • Final Results from Wheeler's Wobblers MS Walks

    21 May 2014 | 5:52 pm
    Anne raised over $500!The results are in:  Between two walks, one in Wilmington and one in Newark, the 2014 Wheeler's Wobblers MS Walk Team raised $12, 247.63! Way to wobble!For our sixth year, we had 40 walkers, 3 babies, 3 children, and 1 dog.  We had teammates from Delaware, Pennsylvania, and Maryland, including Pittsburgh and Baltimore. The Pittsburgh Connection - Sonia's familyThe Baltimore Connection - Tedd's family (my step-daughters)Some walked......some rolled...some were pushed... and some slept.Rev. Andrew with 3-week old MicahSusan and GingerWe had three teammates…
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    MS Trust Recent Story List

  • Young carers documentary

    9 Jul 2014 | 4:00 pm
    Ortise Williams of JLS has presented a documentary on young carers on Channel 4. He grew up looking after his mother who has MS. Daily Telegraph BBC Information for carers
  • Smoking and MS

    8 Jul 2014 | 4:00 pm
    Two Australian studies confirm the association between smoking and risk of MS, but finds variations depending on gender and latitude. MS Research Australia Smoking - A to Z of MS
  • The effects of stopping natalizumab (Tysabri)

    8 Jul 2014 | 4:00 pm
    An Italian study (n=130) found that people who stopped taking natalizumab after 24 doses saw an increase in disease activity. MSIF Natalizumab (Tysabri) - A to Z of MS
  • Questions to ask when diagnosed

    8 Jul 2014 | 4:00 pm
    A man with MS lists the 56 questions he asked when he was diagnosed and advocates being proactive in seeking help. Daily Telegraph Newly diagnosed with multiple sclerosis
  • Benefit changes challenged

    8 Jul 2014 | 4:00 pm
    As a court case into the legality of the PIP eligibility criteria starts, the MS Society's Policy & Campaigns Officer discusses how the changes are affecting people with a disability. Huffington Press Benefits - A to Z of MS
 
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    MS Strength

  • MS and Feeling Well Again

    Jen
    20 Jun 2014 | 7:20 pm
    http://www.msstrength.com/wp-content/uploads/2014/06/Capture_20140620.wmv
  • Quick MS Update

    Jen
    13 May 2014 | 7:39 am
    Okay, so I’m feeling a bit better. Who knows what’s going on?! Lolllll…….I need to have a sense of humor about all of this or I will go INSANE. Practicum is spread out so that I’m doing two 8-hour days with rest between them. Seems to be working at the moment and I’ll go with it……Now to head to Atlantic City overnight! Getting a break from everyday life is a great way to practice self-care.   Hope you are practicing your own self-care. : )   Jen
  • Multiple Sclerosis: One Day at a Time

    Jen
    30 Apr 2014 | 11:09 am
    So I was beginning to feel better for about three weeks and then recently my luck turned. Not so sure what is going on at this point, but I feel about as lousy as I did at the onset of this acute attack. I’m kinda disappointed and my energy is lagging again, and I need to feel better for my social work practicum (just started on Monday). However, I might not feel better for a while or maybe this will be my new normal, which of course frightens me. So I’m facing the fact that I need to take everything slowly and deliberately, and it might be on a day-to-day basis (or even an hourly…
  • The Wahls Protocol Review

    Jen
    31 Mar 2014 | 8:05 am
    I recently finished The Wahls Protocol, a diet and lifestyle book for treating autoimmune conditions. The author, Dr. Terry Wahls, was able to go from a state of progressive multiple sclerosis to a state of significant remission (enabling her to resume physical activity and bicycle many miles). I definitely appreciate that she is a medical doctor (M.D.) and that she embraces alternative approaches to treating disease.   The book presents variations of a “Wahls” diet, giving readers three levels of commitment. The diet has some of the elements of a Paleo lifestyle, including…
  • Can Diet and Exercise Improve MS?

    Jen
    18 Mar 2014 | 11:06 am
    So I’m about to start a new book pertaining to MS and better health: The Wahls Protocol by Terry Wahls, MD. I hafta admit that I’m skeptical about anyone claiming to cure their own multiple sclerosis, especially through diet and exercise alone. However, I’m always open to better eating habits and exercise ideas. This woman apparently was wheelchair-bound and through her own research found a way to recover from autoimmune disease. She can now bicycle many miles….There seems to be a correlation with the Paleo diet, which touts eating more like our ancient ancestors and…
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    The Lesion Journals

  • Top 5 Reasons Why MS SoftServe Rocks

    Christie @ the Lesion Journals
    28 Jun 2014 | 9:44 am
    Coming soon to a computer near you - MS SoftServe! In the event that you haven’t heard about the amazing work my buddy Amy Gurowitz is doing, here goes. Amy is running things over at http://www.mssoftserve.org and you’ll really be impressed. This will be the first website of its kind. Unlike any existing site with information, this site will be a completely customizable- individualized space for people to learn what they want, when they want about their unique version of Multiple Sclerosis. Without further ado…Here are the top 5 reasons why MS SoftServe rocks:MS SoftServe will empower.
  • Made Strong

    Christie @ the Lesion Journals
    16 Jun 2014 | 6:48 am
    I recently met Dominick who is running things over at Made Strong, an apparel and accessories company with an empowering message. Not only are the shirts great, a portion of the proceeds goes towards our fight against Multiple Sclerosis. He jotted up the words below to describe Made Strong’s mission and inspiration. And, be sure to visit his shop (link below). I invited him to jot up a few words about Made Strong so be sure to have a read through his guest post below.  Wearing my Made Strong bracelet during a ride - thanks!(c) cgermans photography 2014From Dominick, Made…
  • Floating away...

    Christie @ the Lesion Journals
    17 May 2014 | 8:46 am
    THE LESION JOURNALS | 5/16/14feelings(c) cgermans photography 2014Floating away...When asked, "how are you feeling today", it can be difficult to describe MS symptoms to others. I think pictures can sometimes help. This photo captures perfectly how I felt after a stressful week of scorching temperatures and a state of emergency. My brain filled with immense pressure and left me with the feeling of floating away.I snapped this photo at the car dealership, while waiting for service, and noticed this yellow balloon floating on its own, in a small patch of blue in the midst of…
  • Citizen’s Arrest! Breaking down barriers, one parking spot at a time.

    Christie @ the Lesion Journals
    11 May 2014 | 9:14 am
    This year’s theme for World MS Day is “access” and it is a great opportunity for all of us to think about the key pillar of the theme: breaking down barriers and providing MSers with access to the same tools, services and facilities as those who do not live with Multiple Sclerosis. Seems easy enough, right?You’d be surprised.Sophie Paterson, over at worldmsday.org, jotted up some examples of access issues from around the world. Have a read below. MS is complicated enough and when compounded with accessibility issues, our lives can grow very frustrating and disheartening.Examples of…
  • Seeing MS - Exposing the Invisible Disease

    Christie @ the Lesion Journals
    24 Mar 2014 | 6:18 am
    "Most symptoms of multiple sclerosis go unnoticed by everyone except the person living with them. One day they can alter your memory, the next your vision. Striking without warning and leaving no trace, they are invisible." – Seeing MSI recently came across this amazing creative project, hailing from our friends down under at the MS Society, Australia: Seeing MS. It features the work of nine photographers who worked with MSers to portray the invisibility of nine MS symptoms: fatigue, blurred vision, numbness, brain fog, spasticity, hot and cold, pain,…
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    Wheelchair Kamikaze

  • Me, In Front Of The Camera (Yikes!)

    The Wheelchair Kamikaze
    29 Jun 2014 | 8:41 pm
    (For those receiving this via email, this post contains a video which can be viewed at the Wheelchair Kamikaze website – click here) As is evidenced by the Wheelchair Kamikaze videos and photos that are part of this blog, I’m very comfortable behind a camera. In front of a camera, though, not so much. This might seem strange given the fact that I don’t have much of a problem “revealing” myself through my writing, and I’m not exactly a shrinking violet, but I usually react like I just got too close to the tail end of a flatulent moose when viewing images of myself or…
  • Must Watch TV – "When I Walk" Airing Monday, June 23

    The Wheelchair Kamikaze
    21 Jun 2014 | 9:26 pm
    Last year I wrote about a remarkable MS themed film called When I Walk that was making the rounds of local film festivals. In part funded through a Kickstarter crowdfunding campaign, When I Walk proved to be a tremendous success, winning numerous awards and garnering impressive critical praise (click here and here). Though the documentary saw some nationwide and worldwide distribution, it was screened at only a relative handful of theaters, preventing it from being seen by the widespread viewership it so richly deserves. On Monday night, June 23, When I Walk will finally get its chance to…
  • The Great Pretender

    The Wheelchair Kamikaze
    16 Jun 2014 | 8:51 pm
    (For those receiving this via email, this post contains a video that can be viewed on the Wheelchair Kamikaze website-click here) Yes, I'm the great pretender Just laughin' and gay like a clown I seem to be what I'm not, you see I'm wearing my heart like a crown – “The Great Pretender”, the Platters, 1955 It’s strange when a phrase or quote that you’ve long known takes on new meaning due to changed circumstances. Such is the case for me with the lyrics of “The Great Pretender”, a song made famous by the doo-wop/R&B group The Platters in 1955. The tune has long been a part of…
  • Remembering Robert Kennedy

    The Wheelchair Kamikaze
    4 Jun 2014 | 9:54 pm
    Image via Wikipedia (I rarely deviate from the MS/disability theme of this blog, but there are some things that are more important than multiple sclerosis. This essay was first posted three years ago, in 2011. Given the current ruinously cantankerous political climate in the United States of America, I believe the words and deeds of Robert Kennedy are more important than ever. With a few changes, perhaps a word or phrase here or there, the speech Kennedy delivers in the video at the end of this post is as relevant today as it was 46 years ago, and should be taken to heart by those of all…
  • To Work or Not to Work – Employment and MS

    The Wheelchair Kamikaze
    22 May 2014 | 9:42 pm
    (For those who receive these posts via email, this essay contains videos which can be viewed on the Wheelchair Kamikaze website – click here.) Multiple sclerosis can be a wrecking ball of a disease, its potential effects threatening to impact virtually all aspects of life. Though the newest MS therapies offer many patients the hope of extended periods of good health, MS sufferers nevertheless find themselves constantly adapting to the challenges thrown at them by the disease. In addition to obvious problems such as those related to mobility and coordination, other more invisible symptoms…
 
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    Life in Spite of MS Blog

  • But its Not You!

    5 Jul 2014 | 9:01 pm
    But it's not you, I hear him say, it's my MS and it won't go away. Yes our daughter has it too... for it is us, it is not you. How do I say I am crumbling
  • Fraser Robinson III

    5 Jul 2014 | 1:39 pm
    Question:What year was Michelle Obama's father buried? Reply: Most public records say that he died in 1991 on March 6th. I am pretty sure that is when
  • Lost White Blobs in Brain in MS

    5 Jul 2014 | 1:24 pm
    QuestionHi. I am Tina, 27 from Iran, I have MS. Please answer my question. May I lost white blobs in brain in MS???????? Thank u Reply: Hi Tina, The
  • Determined

    5 Jul 2014 | 1:01 pm
    I wake up, determined to realize the potential of today. To see my children off to school with a kiss. To make a hot breakfast for my little daughter.
  • Fox News

    5 Jul 2014 | 12:51 pm
    I saw you on Fox News today and commend you for beings true American and sticking up for all vets.
  • add this feed to my.Alltop

    ms another way

  • Slow Down!!!

    msanotherway
    3 Jul 2014 | 5:23 am
    June? Already??!! We are half way through 2014, and I was asked to reflect on it, but do find it a strange time of year to already be doing so. Usually June is busy, not reflective. By June we are all fixed in our routines, and (in Britain at least) dreaming of the promised sunshine. Thinking back […]
  • Free Books on Alternative Treatment of MS in the UK

    msanotherway
    5 Jun 2014 | 10:28 am
    Overcoming MS (Prof george jelinek) and Recovering from MS – two books I have read and recommend, especially the first one, are being sent to people for free for a limited time only in the UK. All you need to do is write to: omsuk@overcomingms.org Tell them you saw a leaflet about the two above […]
  • Chicken/Wood Pigeon Stir Fry

    msanotherway
    9 Feb 2014 | 6:09 am
    Frying without oil may seem difficult at first, but it can be just as easy and delicious. The following serves one: 50/60g chicken/wood-pigeon, 1/2 leak, 1 carrot, 1/2 onion, slice of squash, lemon/orange/lime, coriander, garlic, salt, pepper, herbs, linseed, sunflower seed, pumpkin seed - Chop the carrot and squash into cubes (I usually steam these for five […]
  • Fermenting Vegetables: How To

    msanotherway
    10 Jan 2014 | 9:21 am
    People have been fermenting foods for thousands of years, it is what they did before the invention of refrigerators! Fermenting vegetables is not only a good way to store them for longer, it also makes them tastier and has many health benefits: 1) Fermented vegetables are more nutritious, their minerals are easier for the body […]
  • Non Starchy Vegetables

    msanotherway
    10 Jan 2014 | 7:30 am
    Asparagus, French artichoke beetroot, broccoli, brussel sprouts cabbage, cauliflower, carrots, celery, courgette, cucumber garlic, green beans, green peas kale lettuce marrow, mushroom (avoid if doing an anti-Candida diet) onion parsley, peppers (all colours), pumpkin runner beans squash, spinach tomatoes, turnips watercress Legumes are difficult to digest because they contain phytic acid, lectins, enzyme inhibitors and starches […]
 
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