Multiple Sclerosis

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  • MS Is Becoming a Young Person’s Disease

    Life With Multiple Sclerosis
    Trevis Gleason
    19 Sep 2014 | 10:24 am
    In a recent conversation with my dear friend (and fellow MS activist) Emma Rogan, we were discussing some of the employment programs she is heading up for the European Multiple Sclerosis Platform (EMSP). As it often does with good friends, our chat zigged and zagged through a number of rapids, eddies, and deep pools. One of the things that kept coming up was “young people” and MS. Here in Europe, at least, the average age at diagnosis has fallen significantly for MS. We used to call MS a “prime of life” disease. When I was diagnosed, they told me that most people were…
  • Venous embryology

    ThisIsMS - News
    18 Sep 2014 | 10:04 am
    Chronic Cerebrospinal Venous Insufficiency (CCSVI) Statistics : 1 Post || 194 Views Post by Cece
  • Could an Undiagnosed Sleep Disorder be Causing Your MS Fatigue?

    Healthline News: Multiple Sclerosis
    Jeri Burtchell
    17 Sep 2014 | 12:00 am
    MS patients who suffer from fatigue may actually have a sleep disorder, such as obstructive sleep apnea, restless leg syndrome, or insomnia.
  • Elevated Liver Numbers!

    ThisIsMS - News
    20 Sep 2014 | 10:56 am
    Tecfidera (BG-12, dimethyl fumarate) Statistics : 1 Post || 46 Views Post by mmpetunia
  • Any supplements we should NOT take?

    ThisIsMS - News
    20 Sep 2014 | 7:07 am
    Natural Approach Statistics : 3 Replies || 103 Views Post by bluemoon
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    Multiple Sclerosis Research News -- ScienceDaily

  • MS drug candidate shows new promise

    19 Sep 2014 | 6:27 am
    Positive new data have been released on a drug candidate, RPC1063, for relapsing multiple sclerosis. According to the results from a six-month Phase 2 study of 258 multiple sclerosis patients, the drug candidate reduced the annualized relapse rate of participants with multiple sclerosis by up to 53 percent, compared with placebo. The potential therapy also decreased the emergence of new brain damage seen by MRI by more than 90 percent.
  • Slowed processing speed linked with executive deficits in multiple sclerosis

    16 Sep 2014 | 10:25 am
    A new study supports the role of slowed processing speed in the executive deficits found in individuals with multiple sclerosis. Following this study, experts say that MS cognitive research should focus on two key domains -- processing speed and memory.
  • Sleep disorders widely undiagnosed in individuals with multiple sclerosis

    12 Sep 2014 | 6:51 pm
    Widely undiagnosed sleep disorders may be at the root of the most common and disabling symptom of the disease: fatigue. This is the conclusion of what may be the largest study of sleep problems among individuals with multiple sclerosis, researchers report.
  • Multiple sclerosis researchers find role for working memory in cognitive reserve

    9 Sep 2014 | 1:23 pm
    Working memory may be an underlying mechanism of cognitive reserve in multiple sclerosis, research shows. This finding informs the relationships between working memory, intellectual enrichment and long-term memory in this population.
  • Scientists discover how to 'switch off' autoimmune diseases

    3 Sep 2014 | 6:21 am
    Scientists have made an important breakthrough in the fight against debilitating autoimmune diseases such as multiple sclerosis by revealing how to stop cells attacking healthy body tissue. Rather than the body's immune system destroying its own tissue by mistake, researchers have discovered how cells convert from being aggressive to actually protecting against disease.
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    ThisIsMS - News

  • My Symptoms

    20 Sep 2014 | 2:29 pm
    Undiagnosed Statistics : 1 Post || 14 Views Post by DavidBelfast
  • Elevated Liver Numbers!

    20 Sep 2014 | 10:56 am
    Tecfidera (BG-12, dimethyl fumarate) Statistics : 1 Post || 46 Views Post by mmpetunia
  • Any supplements we should NOT take?

    20 Sep 2014 | 7:07 am
    Natural Approach Statistics : 3 Replies || 103 Views Post by bluemoon
  • At this point

    19 Sep 2014 | 12:09 pm
    Undiagnosed Statistics : 6 Replies || 142 Views Post by fyother
  • Venous embryology

    18 Sep 2014 | 10:04 am
    Chronic Cerebrospinal Venous Insufficiency (CCSVI) Statistics : 1 Post || 194 Views Post by Cece
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    MS-UK Latest MS News

  • Retinal thinning parallels neurodegeneration in MS

    12 Sep 2014 | 12:13 am
    The thinning of the retina that occurs during the course of multiple sclerosis (MS) closely parallels brain atrophy and may be used to measure neurodegeneration, a new study has shown.<br><br>Presenting the data here at MSBoston 2014, the 2014 Joint Americas and European Committees for Treatment and Research in Multiple Sclerosis (ACTRIMS/ECTRIMS) meeting, Shiv Saidha, MD, Johns Hopkins Hospital, Baltimore, Maryland, explained that previous studies had correlated retinal thinning with global disability and brain atrophy, but these studies were primarily cross-sectional in…
  • No cognitive disadvantage in paediatric- vs adult-onset MS

    11 Sep 2014 | 11:57 pm
    A new study suggests no cognitive disadvantage in the long term for patients with multiple sclerosis (MS) that began in childhood vs those with adult-onset disease.Researchers are reporting that overall, cognitive outcomes were similar between the groups and that there were actually fewer patients in the pediatric-onset group, matched with adult-onset patients for age and education, who were classified as cognitively impaired. However, the difference between groups was not statistically significant...
  • Myelin measure in MS tracks patient disability

    11 Sep 2014 | 11:39 pm
    Whole-brain measures of myelin water fraction (MWF) -- reflecting the amount of myelin present in brain tissue -- correlated significantly with disease duration and disability levels in multiple sclerosis, supporting a role for MWF in patient management and as an outcome in clinical trials, a researcher said here.In a cross-sectional study of 141 MS patients and 10 neurologically healthy controls, the "skew" of one of two peaks seen in the distribution of MWF across the brain, including normal-appearing white matter as well in MS-type lesions, was associated with Expanded Disability…
  • Severe optic nerve damage in MS not a hurdle to some children

    11 Sep 2014 | 11:26 pm
    There is a clear subset of pediatric patients with demyelinating disease who have substantial damage to the nerve layer in the retina but nevertheless have no vision loss, a new study shows."Understanding how this subset of patients recover functionally after optic nerve damage could lead to great insight into best acute treatment options and a better understanding of brain plasticity and neural networking," lead author Samuel Hughes, BS, UT Southwestern Medical Center, Dallas, Texas, concluded.....
  • Plegridy two year data confirms safety and efficacy in MS patients

    11 Sep 2014 | 6:19 am
    Biogen Idec today announced new data from the second year of its Phase 3 ADVANCE clinical trial that show the positive treatment effects of Plegridy™ (peginterferon beta-1a) were maintained in people with relapsing forms of multiple sclerosis (RMS) beyond the first year of the study. These results were presented at the sixth Triennial Joint Meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis and the European Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS-ECTRIMS) in Boston....
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    Life With Multiple Sclerosis

  • MS Is Becoming a Young Person’s Disease

    Trevis Gleason
    19 Sep 2014 | 10:24 am
    In a recent conversation with my dear friend (and fellow MS activist) Emma Rogan, we were discussing some of the employment programs she is heading up for the European Multiple Sclerosis Platform (EMSP). As it often does with good friends, our chat zigged and zagged through a number of rapids, eddies, and deep pools. One of the things that kept coming up was “young people” and MS. Here in Europe, at least, the average age at diagnosis has fallen significantly for MS. We used to call MS a “prime of life” disease. When I was diagnosed, they told me that most people were…
  • It’s Almost Fall: How’s Your MS Today?

    Trevis Gleason
    17 Sep 2014 | 10:34 am
    Next week, northern summer will officially become autumn, as winter becomes spring in the south.  I will tell you that I never imagined having a forum whereby we’d be able to chat with friends in both the northern and southern hemispheres on a regular basis. Seasonal changes can raise Cain with the symptoms of multiple sclerosis. We’ll take this opportunity to ask our monthly question: How’s your MS today? For a good few months now, we’ve been using the Life With Multiple Sclerosis Symptom Scale (LWM3S) to judge our disease.  This scale uses your total experience with MS.  On the…
  • Connection, Disconnection, Reconnection: How Do You Cope?

    Trevis Gleason
    15 Sep 2014 | 8:22 am
    If you can read this, I’ve figured out how to “reconnect.” After a morning of visiting the shops (and visiting with shopkeepers); an afternoon of important phone calls to sort, arrange, and organize; and, an old fashioned evening connecting with new and old friends gathered in the cozy library of an historic home in our town on Thursday, we awoke the next morning without Internet service in our cottage. Living in a rural area of a town on the western edge of the country, it’s not that uncommon for service to drop due to scores of reasons – better than half of which I don’t even…
  • Ice Bucket Challenge, Part 2: It’s for ALS and MS

    Trevis Gleason
    10 Sep 2014 | 8:08 am
    You may remember that a couple of weeks ago I took the ALS Ice Bucket Challenge.  It was good fun for a good cause and, as I stated in the blog about it, could help MS research as well. In my video, I challenged the president of MS Ireland, the founders of Shift.MS, and the chief research officer of the National MS Society to take some ice for the team.  I thought you might like to see the updates. As of today, we have videos from all three organizations! Ava Battles of MS Ireland had already done taken her bucket of ice as she has a personal connection to motor neuron disease.  She sent…
  • Do You Know the People in Your Neighborhood (Who Have MS)?

    Trevis Gleason
    8 Sep 2014 | 6:55 am
    It’s not much of a secret that I live with multiple sclerosis.  Most days I use a cane (if not a more advanced assistive device), it’s not a subject that Caryn and I avoid, and, let’s face it, I’m kind of out there on the subject. About a week ago I walked into a local business with which I’d had a week-long regular custom for a project.  By whatever means – I think I’d given the man my business card or something – the gentleman I’d been working with found out that I lived with MS. “I’d seen the cane, but didn’t put two and two together,” he said He then…
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    Carole's MS blog

  • Proudly Canadian?

    6 Sep 2014 | 7:20 am
    Here is one of the few things left that is made in Canada and owned  and operated by Canadians.Medical Marijuana!!  This is how I get my weed  now; from a licensed producer, purchased online, and  delivered to my door by express post. Amazing that it comes from the other side of Canada; British Colombia, in less than two days.  They also have custom strains of marijuana for different needs. I use the ones for pain relief, muscle spasms , anxiety, and for sleep.  MS fatigue  is bad enough and insomnia only makes it worse. My fatigue can actually be…
  • Spring in New Brunswick

    12 Jun 2014 | 4:38 pm
    Here's a little crab that was found on the beach during a field trip to Bouctouche Dunes in New Brunswick.I do mentoring with grade three kids  at  the local public school where I live and they asked me to join them on this class outing .It felt good  today to be out breathing the ocean air.  I have to say that the  first year  of my new life has turned out pretty good. My physical health is  much  improved and my MS is under control.  I have lost weight and toned up my body, thanks to the  indoor swimming pool that is right across the…
  • Junior Senior and Pot Woes

    20 Dec 2013 | 10:11 am
    Some crows decided to attack my garbage during a snowstorm. The garbage is now  buried under a huge pile of snow. I dread the melt.Here I am at the end of 2013. It's been a year of big changes for me.I retired in April, fixed up my house and sold it in June, then packed up my gear and moved to Miramichi, New Brunswick. I have never been so tired!Now I have to figure out what I'm going to do with my life as a " junior senior" . I think you are classed as a junior from age 55- 70. After that, you're just old.. It's a strange feeling for me to have time on my hands. To know that I can…
  • Tech Fails

    1 Nov 2013 | 7:43 pm
    Here is the Shediac lobster.  In New Brunswick  you can get  lobster really cheap, but milk is nearly double the price I paid in  Ontario.  The rent is  reasonable, but heating oil is very expensive and the only type of heating.  Still, I think I'm way ahead financially and most definitely emotionally.  Haven't updated the old blog in awhile and today just seemed  the right time  to do it. Everything else is a huge fail with  plenty of tech woes!One of those days when things go wrong and nothing seems to work. I won't bore…
  • Atlantic Airshow

    29 Aug 2013 | 6:35 pm
    Here's one of the members of the Sky Hawks team, performing at the Atlantic Airshow, which was right in my backyard. The retirement community I live in was formerly Chatham Air Force Base. The runway still operates as part of the Miramichi airport and that's where they held the Airshow this year. Kind of cool to be able to just cross the road and go see  it.And here I am getting   autographs from a few more Sky Hawks.Ah to be twenty again! Not really, because then I wouldn't be able to live in what I think is one of the best retirement places ever! I'm quitting now because…
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    A Short in the Cord

  • I'd Rather Be a Bimbo

    20 Sep 2014 | 4:51 pm
    Before the recent NFL domestic abuse problems were uncovered, I had already decided to limit watching NFL games.  I still enjoy the game, but I just got sick of all the commercials.  The play stops for booth reviews and measurements and lots more commercials.  Then there's the bone-crunching sounds from players smashing into each other.  And then more commercials.  Then pans of mostly naked women shaking pom-poms on the sidelines.  Crunch, commercials, repeat.  Superbowl? Who cares about the game, we want to watch the commercials!Now with the NFL's lame…
  • Let Us Dwell on the Distance We Have Traveled

    19 Sep 2014 | 4:38 am
    Scotland has voted to stay in the United Kingdom.  As I was reading the reports from BBC, I found some meaningful quotes that I want to share.  I think the world can learn from this event.  I know I can.From Alistair Darling, who led the winning Better Together (against independence) movement, "As we celebrate, let us also listen."From First Minister Alex Salmond, who led the movement to declare independence from UK, "Today of all days as we bring Scotland together, let us not dwell on the distance we have fallen short, let us dwell on the distance we have traveled..."That last…
  • Time to "Weigh In" on the MS Diet Discussion

    14 Sep 2014 | 3:13 pm
    The MS Connection Blog recently posted from 2014 Joint ACTRIMS-ECTRIMS conference about a lecture that certain diets have shown to make no difference when it comes to developing MS.  Go to their post at "Is diet a risk factor for MS" Now that an MS diet has risen to the attention of such a large collection of Multiple Sclerosis experts from all over the world, I decided to share my thoughts.Over the years, I've listened to people insisting that there must be a diet (way of eating) for MS.  I have heard people claim that they've cured their MS or significantly reduced their…
  • Happy Independence Day!

    4 Jul 2014 | 6:44 am
    On this fourth of July, 2014, I'm sending up a flare of hope that we will soon declare independence from Multiple Sclerosis.  Be safe and well this holiday!
  • And They're Off!

    15 Jun 2014 | 10:20 am
    Fledgling Eastern BluebirdThe Eastern Bluebirds began leaving the nest box one-by-one this morning.  It takes a lot of courage to leave the warmth and protection of the home where you were born, then to squeeze out of a tiny hole and leap into the brightness and hope instinct kicks in and you fly into the big world.  We are still talking about the Bluebirds, right?  Back to HOME page
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  • Digital Printing - Easy, Cheap and Attractive

    3 Sep 2014 | 5:50 am
    In this 21st century where the technology has improved on a great scale, the printing field has also taken a great leap with the advent of digital printing. Digital printing allows you to print photos and other images, in a wide palette of colors, all by using a computer and special inks.There are many factors which make digital printing more popular. First of all, it is very fast. All your data can be scanned or put in a USB flash drive or downloaded from the internet and added to a computer, edit it then and there and printed out in less than a minute. There is automatic mixing of colors…
  • Ask Before Getting Into Work From Home Opportunities and Franchises

    1 Sep 2014 | 6:12 am
    The popularity of franchising as an entire industry on its own has certainly reached a high peak. More and more people get interested in buying franchises. Who would not be, right? It is the most convenient way there is to own a business without having to start from scratch. Operating it is easy due to the already available system and materials. The financial returns are just as good as guaranteed, with the many positive testimonials expressed everywhere.But as business experts always advise, you have to research well to determine if you are ready for the franchising business. There are a lot…
  • Problems With Wireless Networks and Solutions for Cell Phones

    27 Aug 2014 | 1:05 am
    Problems With Wireless Networks and Solutions for Cell PhonesWe are seeing fewer wires now, thanks to the introduction of wireless networks. Cell phones have already replaced landlines to a great extent and WI-FI is on the verge of overtaking wired networks.There are many reasons why so many people are welcoming this service with open arms. Some advantages of wireless networks are:· Give mobility to the device, which is in fact the biggest benefit.· Cheaper than wire networks. One saves a lot of money on line rent, wires and their installation.· Easily accessible and reachable. Wires are…
  • What is Your Reason to Wear T-Shirts?

    20 Aug 2014 | 11:10 pm
    Different people do different things to look unique. Some adopt different types of hairstyles whereas others choose different type of dressing. When it comes to dressing, you can find people using different types of tee shirts to look unique.T-shirts has always been popular amongst all types of people. T-shirts are worn by people of all ages in all parts of the world. Due to this universality feature, you can find several websites offering amazing t-shirts to people living in any part of the world.What's so special about t-shirts?There are lots of people who don't like to wear t-shirts.
  • How Much to Spend on a Luxury Watch

    20 Aug 2014 | 10:55 am
    How Much to Spend on a Luxury WatchLuxury watches are a great way to show that you have made something of yourself. Also, luxury watches make fantastic gifts for anybody who is special in your life. Whatever the case, if you are in the situation where you need to purchase a luxury watch, you need to consider just how deluxe you want that watch to be.You can get a high quality watch for between five hundred and one thousand dollars, but if you really want to get something truly prestigious, like a Rolex watch, you will need to drop at least five thousand dollars. That sounds like a lot of…
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    MS Trust Recent Story List

  • Social care spending

    17 Sep 2014 | 4:00 pm
    Figures show that spending on social care by local councils fell for the first time last year. The amount spent was unchanged from the previous year but is down if inflation is factored in. Cuts are greatest for people not in residential care. Daily Telegraph

    16 Sep 2014 | 4:00 pm
    A review of some of the research from the recent ACTRIMS/ECTRIMSconference, including daclizumab, generic glatiramer acetate, a fingolimod similar, body temperature, cholesterol, comorbidities, stem cells, cognition, genetics, vitamin D and diet. National MS Society (USA) Latest MS research updates
  • Home adaptations

    15 Sep 2014 | 4:00 pm
    The BBC's £100k House programme featured a couple affected by MS looking to future proof their home with improvements to take account of current and possible future symptoms. BBC Housing adaptations and grants
  • Diet and risk of MS onset

    14 Sep 2014 | 4:00 pm
    American research reviewing data on more than 185,000 nurses collected over 20 years showed that following one of four 'healthy' diets had no apparent impact on the risk of developing MS. The study didn't look at eating patterns before adulthood. Reported at the ACTRIMS/ECTRIMS conference. MedPage Today Diet - A to Z of MS
  • CIS conversion to MS

    12 Sep 2014 | 4:00 pm
    A study of risk factors found that the older someone is when they present with their first episode of neurological symptoms (CIS), the less likely they are to have a second attack and be diagnosed with MS. Showing lesions on MRI or oligoclonal bands were indicators that CIS was more likely to become MS. Treatment with a disease modifying drug reduced the risk of CIS becoming MS. Reported at the ACTRIMS/ECTRIMS conference. Internal Medicine News Clinically isolated syndrome (CIS) - A to Z of MS
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    MS Trust Stop Press

  • Atlantic Lions prepare for the toughest rowing race on earth

    12 Sep 2014 | 4:00 pm
    In December 2015 four friends who met at the University of Birmingham are going to attempt to row across the Atlantic in aid of the MS Trust. The Talisker Whisky Atlantic Challenge is a 3000 mile race from La Gomera, Canary Islands to Antigua in the Caribbean and has been dubbed the 'toughest rowing race on earth'.
  • Communication between people with MS and neurologists

    11 Sep 2014 | 4:00 pm
    Neurologists tend to underestimate people's discomfort in talking about common MS symptoms and overestimate difficulty in discussing more sensitive issues according to a new survey.
  • New research into progressive MS

    11 Sep 2014 | 4:00 pm
    The Progressive MS Alliance - a group set up to coordinate global research into progressive MS - has announced the first 22 studies that will receive funding. This includes work in the UK in London, Cambridge, Plymouth and Edinburgh.
  • Treating MS: Study day for people affected by MS, 26 September, Twickenham

    10 Sep 2014 | 4:00 pm
    People with MS are invited to attend the Imperial College MS study day on 26 September at Twickenham Stadium. The event is being run by the MS team based at Charing Cross Hospital.
  • Potential new way to treat MS

    4 Sep 2014 | 4:00 pm
    Recent laboratory research carried out by scientists at the University of Bristol has provided encouraging evidence that MS could be treated by retraining the immune system so that it doesn't attack myelin.
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    The Lesion Journals

  • Clouds come floating in

    Christie @ the Lesion Journals
    7 Sep 2014 | 6:18 pm
    “Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky.” - Rabindranath TagoreI just love this quote because it serves as a great reminder that, yes, the clouds will roll in, bringing in the darkness that MS sometimes carries, yet, somehow, through the storm, there is something good and positive to look for. Dwelling on all of the bad stuff that may come with an MS diagnosis will really drive us crazy as we chant “why me, why me.” Some things are not meant to be understood and we should try to move on. I do this by focusing on…
  • What does an MSer need to know about financial stability? A lot

    Christie @ the Lesion Journals
    3 Sep 2014 | 6:25 am
    I was just made aware of an upcoming financial webinar series, "Financial Wellness Webinar Series", designed by the National Disability Institute, for those of us living with Multiple Sclerosis. This looks like a great resource with a focus on taxes, employment, social security and credit. No doubt we can all use financial advice from time to time and this is a great way to learn more about planning and maintaining financial stability. Did you know that a lot of MSers do not plan for our financial future? Based on a 2011 online survey of 3,000 MSers, 67% reported that their…
  • Working It Out

    Christie @ the Lesion Journals
    27 Aug 2014 | 6:04 am
    Hello, hello! Below is another great video from our friends over at that talks about the challenges of MS in the workplace. They put together a great list of tips, too. Have a watch.Take care!Christie
  • Follow my blog with Bloglovin

    Christie @ the Lesion Journals
    13 Aug 2014 | 5:50 am
    Good day all. I'm just playing around with this post as I just joined the Bloglovin community. Pay no mind unless you'd like to leave word and say 'hello, hello'. Hugs and hope y'all are feeling okay, as okay as it is possible. Follow my blog with Bloglovin
  • Without you is something I cannot imagine

    Christie @ the Lesion Journals
    3 Aug 2014 | 8:18 am
    Hand Heart(c) Claire Louise at www.puppyfat.comDear Friends,Today is National Friendship Day and I want to celebrate you as I truly value our relationship. You are all important to me as we navigate, together, the journey of living with this intense neurological disease, Multiple Sclerosis. This blog started off as I place for me to express the emotions and feelings that came up for me during this “new normal”, as a sort of cathartic process. Turns out, I made a lot of new friends along the way, ones for whom I am truly grateful. So, thank you! Thank you for the love, support…
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    Wheelchair Kamikaze

  • Supplements, My Supplements

    The Wheelchair Kamikaze
    11 Sep 2014 | 7:38 pm
    Arabic herbal medicine guidebook (Photo credit: Wikipedia) Using natural supplements to help treat MS is always a topic of much interest amongst patients. In the face of the sometimes daunting side effect profiles of the pharmaceutical drugs approved to combat the disease, the use of herbs and other natural substances, widely perceived as being more benign than the immunosuppressant/immunomodulating pharmaceutical products, holds great appeal for many dealing with Multiple Sclerosis. MS research headlines regularly trumpet one natural remedy or another as having been discovered to slay or at…
  • The Problem with Progression, Revisited

    The Wheelchair Kamikaze
    26 Aug 2014 | 8:02 pm
    English: Cropped version of :Image:Domino effect.jpg (Photo credit: Wikipedia) The good folks who administer the website (click here) and I have reached an agreement to publish 20 essays from the Wheelchair Kamikaze archives on their site. is a wonderful resource for MS patients and those who love them, filled with the latest MS news as well as insightful articles and essays by folks dealing with the disease in all its forms. Lots of good stuff there, all of it high-quality. Best as I can figure, the fact that they decided to include some of my essays must be due…
  • Man Bites Dog (or, MS Patient Beats Insurance Company after Stem Cell Transplant, to the Tune of $400,000)

    The Wheelchair Kamikaze
    10 Aug 2014 | 9:00 pm
    (c) GoGraph / lhfgraphics Oh, the many pleasures of Multiple Sclerosis. In addition to the physical and psychological toll taken by the disease, MSers also have to deal with a medical establishment that at times seems purposely set up to make being sick as hard as possible. Here in the USA, one of the most infuriating components of that medical establishment is quite often the private health insurance companies, upon whose whims many patients rely on to pay for such superfluous luxuries as vital medications, essential treatments, and indispensable mobility devices. In my 11-year career as a…
  • HSCT – Will This Form of Stem Cell Therapy Soon Become the Standard ofCare for Many MS Patients?

    The Wheelchair Kamikaze
    28 Jul 2014 | 9:15 pm
    English: Cervical spine MRI with enhancement showing multiple sclerosis (Photo credit: Wikipedia) Hematopoietic Stem Cell Therapy, now there’s a mouthful. More commonly known by its initials, HSCT, this form of stem cell treatment, first tried on MS patients back in the mid-1990s, is beginning to demand widespread attention from doctors and patients alike. Why? Well, one recent study found that when applied to properly selected patients, nearly 80% showed no sign of multiple sclerosis disease activity five years after treatment (click here). No relapses, no new MS lesions, no disease…
  • Bits and Pieces: Writer's Block Edition (Also: Tecfidera, Crying Jags, the Price of MS Drugs, Underwater Wheelchairs, Asinine Research, and Some Funky Stuff)

    The Wheelchair Kamikaze
    13 Jul 2014 | 2:18 am
    Cover of Gojira [Blu-ray](For those who receive Wheelchair Kamikaze via email, this post contains videos that can be viewed on the Wheelchair Kamikaze website – click here. They're really good videos, so I encourage you to check them out.) I usually start these Bits and Pieces posts with thoughts and/or observations that have been rattling around inside my brain pan for the last several days or weeks, but somehow as I sit down to write this I’m experiencing nary a rattle. Truth be told I've been struggling with some writers block these last few weeks, pretty much for the first time since…
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    ms another way

  • Everybody Is Different; and So Is Their MS

    29 Aug 2014 | 10:10 am
    Following the advice from a wonderful book I came across recently for people with MS, I put my feet in a (washing up) bowl of cold water first thing one morning and last thing that same night. The book professed that this was a great way to improve blood circulation – by dipping your feet in cold water for ten […]
  • Health First; Friends and Family Later

    21 Jul 2014 | 6:50 am
    Friends and family have always been important to me, but this year’s spring clean has also involved filtering out harmful relationships. I am very lucky; most of my friends have been extremely supportive of my decision to treat my MS without the use of steroids or disease modifying drugs. One of these friends is a doctor who prescribes allopathic medicine on a daily basis. […]
  • Slow Down!!!

    3 Jul 2014 | 5:23 am
    June? Already??!! We are half way through 2014, and I was asked to reflect on it, but do find it a strange time of year to already be doing so. Usually June is busy, not reflective. By June we are all fixed in our routines, and (in Britain at least) dreaming of the promised sunshine. Thinking back […]
  • Free Books on Alternative Treatment of MS in the UK

    5 Jun 2014 | 10:28 am
    Overcoming MS (Prof george jelinek) and Recovering from MS – two books I have read and recommend, especially the first one, are being sent to people for free for a limited time only in the UK. All you need to do is write to: Tell them you saw a leaflet about the two above […]
  • Chicken/Wood Pigeon Stir Fry

    9 Feb 2014 | 6:09 am
    Frying without oil may seem difficult at first, but it can be just as easy and delicious. The following serves one: 50/60g chicken/wood-pigeon, 1/2 leak, 1 carrot, 1/2 onion, slice of squash, lemon/orange/lime, coriander, garlic, salt, pepper, herbs, linseed, sunflower seed, pumpkin seed - Chop the carrot and squash into cubes (I usually steam these for five […]
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