Multiple Sclerosis

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  • extreme athletics

    ThisIsMS - News
    jerrygallow
    16 Apr 2014 | 10:09 pm
    General Discussion Statistics : 1 Post || 37 Views Post by jerrygallow
  • reengaging w/ ms stuff

    ThisIsMS - News
    SleepingMonkey
    17 Apr 2014 | 5:41 am
    Introductions Statistics : 1 Post || 3 Views Post by SleepingMonkey
  • Deep brain stimulation for tremor

    MS Trust Recent Story List
    13 Apr 2014 | 4:00 pm
    A Hartlepool man with MS has had deep brain stimulation surgery to help with tremor. Daily Mail Hartlepool Mail Tremor - A to Z of MS
  • Multiple sclerosis and "miracle cures": sometimes it's the hope that'll kill you

    MULTIPLE SCLEROSIS - Yahoo News Search Results
    17 Apr 2014 | 5:28 am
    Multiple Sclerosis is an unpredictable and often devastating illness, so it's hardly surprising if sufferers will jump at the chance of a possible but untested cure. But such optimism can sometimes do even more damage I have progressive multiple sclerosis. Im quite disabled, and I have no idea how disabled Ill end up. Thats what MS is like. Its unpredictable, and its different for everyone. Ask ...
  • Research my lead to development of novel therapeutic agents for multiple sclerosis

    Multiple Sclerosis News From Medical News Today
    3 Apr 2014 | 1:00 am
    Just a few short weeks ago, dimethyl fumarate was approved in Europe as a basic therapy for multiple sclerosis.
 
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    Multiple Sclerosis Research News -- ScienceDaily

  • Mode of action of new multiple sclerosis drug discovered

    1 Apr 2014 | 2:31 pm
    Dimethyl fumarate inhibits inflammatory cell infiltration of the central nervous system through the blockade of a specific receptor, a study concludes. Multiple sclerosis (MS) is a chronic inflammatory disease of the central nervous system that affects nerve fibres in the brain and spinal cord by damaging their protective myelin sheath. The cause of multiple sclerosis is unknown and the disease has no cure to date, but a range of treatments are available that can have a positive influence on its course.
  • Natalizumab treatment in patients with MS associated with JC virus infection

    24 Mar 2014 | 3:15 pm
    Treatment with natalizumab in patients with multiple sclerosis (MS) appears linked with JC virus (JCV) infection, which can lead to a rare and often fatal demyelinating disease of the central nervous system called progressive multifocal leukoencephalopathy (PML) that destroys the myelin that protects nerve cells. The movement of cells with JC virus into the blood stream may provide researchers with a possible reason why patients with MS develop PML.
  • Medical marijuana may ease some MS; Little evidence for other complementary or alternative therapies

    24 Mar 2014 | 3:12 pm
    A new guideline suggests that there is little evidence that most complementary or alternative medicine therapies (CAM) treat the symptoms of multiple sclerosis (MS). However, the guideline states the CAM therapies oral cannabis, or medical marijuana pills, and oral medical marijuana spray may ease patients’ reported symptoms of spasticity, pain related to spasticity and frequent urination in multiple sclerosis (MS). The guideline states that there is not enough evidence to show whether smoking marijuana is helpful in treating MS symptoms.
  • Alzheimer's disease progression and its physiological aging: New therapeutic scenario?

    19 Mar 2014 | 6:38 am
    The role of 4-HNE and PPAR beta/delta during Alzheimer's disease progression and in physiological aging have been studied in recent research. The data obtained using a special AD animal model, indicate a novel destructive age-dependent role of PPAR beta/delta in AD. This finding may have important implications for the prevention of cognitive impairment in elderly and in neurodegenerative diseases.
  • Stem cells from muscle can repair nerve damage after injury

    18 Mar 2014 | 4:00 pm
    Stem cells derived from human muscle tissue were able to repair nerve damage and restore function in an animal model of sciatic nerve injury. The findings suggest that cell therapy of certain nerve diseases, such as multiple sclerosis, might one day be feasible.
 
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    MS-UK Latest MS News

  • Sexual dysfunction: An overlooked side effect of MS

    17 Apr 2014 | 2:39 am
    More common than anyone suspects, the unspoken issue of sexual dysfunction affects more than half of the MS population.Researchers delved into the private lives of men with multiple sclerosis (MS) in a recent study and discovered that sexual dysfunction is a common MS complication. Although it’s a topic patients may be reluctant to discuss with their neurologists, they should be aware that intimacy problems are often treatable.....
  • Children with MS have higher disease activity but better myelin repair than adults

    14 Apr 2014 | 2:17 am
    Quantitative determination of regional lesion volume and distribution in children and adults with RRMS.AbstractINTRODUCTION: Onset of MS occurs during childhood in about 5% of cases. It is unclear whether very young age at MS onset, when the nervous system is still myelinating, affects MS lesion accrual or regional distribution........
  • Low testosterone is associated with disability in men with multiple sclerosis

    11 Apr 2014 | 2:15 am
    AbstractBACKGROUND: Gonadal steroids may modulate disease course in multiple sclerosis (MS)..........
  • Could MS be caused by a retrovirus?

    10 Apr 2014 | 3:21 am
    Could drugs shown to successfully treat HIV also be used to quell MS? To find out, researchers explore remnants of ancient viruses locked with the human genome.Two new studies are under way to test antiretroviral medications on multiple sclerosis (MS) patients. This research is spurred by a narrowly accepted theory that MS may be triggered by human endogenous retroviruses......
  • Teva asks Supreme court to stay ruling in Copaxone case

    9 Apr 2014 | 8:52 am
    Teva Pharmaceutical Industries Ltd has asked the U.S. Supreme Court to stop a lower court ruling from going into effect while the justices consider an appeal in a patent fight over Teva's top-selling multiple sclerosis drug Copaxone......
 
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    MULTIPLE SCLEROSIS - Yahoo News Search Results

  • Multiple sclerosis and "miracle cures": sometimes it's the hope that'll kill you

    17 Apr 2014 | 5:28 am
    Multiple Sclerosis is an unpredictable and often devastating illness, so it's hardly surprising if sufferers will jump at the chance of a possible but untested cure. But such optimism can sometimes do even more damage I have progressive multiple sclerosis. Im quite disabled, and I have no idea how disabled Ill end up. Thats what MS is like. Its unpredictable, and its different for everyone. Ask ...
  • Multiple sclerosis and 'miracle cures': sometimes it's the hope that'll kill you | Margo Milne

    17 Apr 2014 | 5:06 am
    Multiple Sclerosis is an unpredictable and often devastating illness, so it's hardly surprising if sufferers will jump at the chance of a possible but untested cure. But such optimism can sometimes do even more damage I have progressive multiple sclerosis. Im quite disabled, and I have no idea how disabled Ill end up. Thats what MS is like. Its unpredictable, and its different for everyone. Ask ...
  • Multiple Sclerosis Society to stage fundraising events

    14 Apr 2014 | 9:11 am
    CAKE BREAK: Hambleton and Richmondshire branch of the Multiple Sclerosis Society is holding a coffee afternoon on Tuesday, April 29 from 1.30pm until 4pm at Rivendale, Bankhead Road, Northallerton.
  • MS Society holds 6th Family Day

    13 Apr 2014 | 3:31 pm
    MESSAGE OF HOPE: Those with the rare, chronic disease learn there is life after multiple sclerosis
  • Press Release

    11 Apr 2014 | 11:09 am
    PR NewswireDUBLIN April 11 2014DUBLIN April 11 2014 /PRNewswire/ --Research and Markets (http://www.researchandmarkets.com/research/btp9ds/global_multiple) has announced the addition of the 
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    multiple sclerosis

  • Sanofi decides to take a second shot on Lemtrada app

    John Carroll
    7 Apr 2014 | 4:01 am
    Sanofi is walking away from any plans to appeal the FDA's emphatic rejection of the multiple sclerosis drug Lemtrada, at least for now. But rather than launching the added trial that the FDA demanded ahead of any possible approval, the company thinks it has a shot at answering the FDA's concerns with a new application.
  • Biogen hits an FDA speed bump with its next-gen MS drug

    Damian Garde
    18 Mar 2014 | 8:29 am
    The FDA said it needs three more months to consider Biogen Idec's Plegridy, an injectable multiple sclerosis treatment, delaying an expected midyear launch for the company's latest entrant in its blockbuster MS franchise.
  • Teva stands by its MS pill after yet another setback

    Damian Garde
    24 Jan 2014 | 7:55 am
    European regulators recommended against Teva Pharmaceutical's laquinimod, marring the Isreali company's odds of crossing the finish line with its once-promising multiple sclerosis treatment, a drug it hopes can dull the blow of the soon-to-go-generic Copaxone.
  • UPDATED: FDA spurns Sanofi's MS drug Lemtrada on fatally flawed PhIII design

    John Carroll
    30 Dec 2013 | 4:41 am
    Sanofi has been slammed against the regulatory wall at the FDA, picking up a stinging rejection of its multiple sclerosis drug Lemtrada with orders to go back to the clinic for a major round of new trial work if the company ever expects to get the drug over the U.S. finish line at some point.
  • UPDATED: Sanofi gets mixed FDA blessing for MS drug Lemtrada

    Damian Garde
    13 Nov 2013 | 2:10 pm
    After a scathing staff review, Sanofi walked away from an FDA panel with mixed messages on its long-delayed multiple sclerosis drug, as agency advisers said the injection wasn't too risky to approve but took issue with the drugmaker's trial design.
 
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    About.com Multiple Sclerosis

  • Marijuana Pills and Spray May Help MS Symptoms

    31 Mar 2014 | 4:21 am
    With Colorado recently legalizing the use of medical marijuana, people love to ask me if I would use it (I think they really want to know if I am currently using it) for my MS symptoms. They are no doubt disappointed when I tell them that I would definitely use it if I had spasticity or other symptoms, but those aren't my biggest problems. Since my main symptoms are fatigue and cognitive dysfunction, I cannot imagine that pot would do anything but make those worse (but I probably wouldn't care about them as much if I did use some marijuana)....Read Full Post
  • Body Temperature and Multiple Sclerosis Fatigue

    31 Mar 2014 | 1:19 am
    I had no idea that resting body temperature could be different among different groups of people (who did not have an infection, that is). Turns out that it can. In this study, researchers took the temperature and tested 40 healthy controls, 50 people with relapsing-remitting MS (RRMS) and 22 people with secondary-progressive MS (SPMS) for general fatigue, physical fatigue and cognitive fatigue. Here is what they found:...Read Full Post
  • "MS Guilt" and Summer

    30 Mar 2014 | 10:21 am
    It's getting closer to high season for what I call "MS guilt." That is the guilt that many of us feel when we cannot do everything that we want to and we are convinced that we are disappointing everyone around us....Read Full Post
  • Have you tried biofeedback for MS?

    30 Mar 2014 | 10:14 am
    I'm a huge fan of biofeedback. I cannot imagine how it could cause any harm. Instead, you are gaining control of your ability to manage stress and your response to it - just through your mind. No drugs required....Read Full Post
  • What is the difference between MS pseudobulbar affect and euphoria?

    30 Mar 2014 | 10:09 am
    These symptoms of multiple sclerosis are so interesting and strange. One, pseudobulbar affect, results in uncontrollable laughing or crying with no corresponding situation or emotions. This can be very distressing to the person experiencing the outbursts....Read Full Post
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    Life With Multiple Sclerosis

  • How Many MS Drugs Do We Really Need?

    Trevis Gleason
    15 Apr 2014 | 8:34 am
    When I was diagnosed with multiple sclerosis in 2001, my MS specializing neurologist handed me a large binder full of information, resources, and a tab for MS drugs.  This was back in the day of the “ABC” drug choice.  So called because there were only three and they started with the letters “A”, “B” and “C.” Soon after, the “R” drug was added to our kit and “ABCR” soon took on the acronym “CRAB.”  That’s when I started to note a change in many people’s attitudes from “We need a drug to treat MS” to “I don’t like what these drugs are doing to me.”…
  • Can We Protect the Unborn From Multiple Sclerosis?

    Trevis Gleason
    11 Apr 2014 | 11:06 am
    One of the three things people think of as “curing” multiple sclerosis — I call this “A Cure, in Three Acts” — is to prevent the next generation from contracting MS at all.  This is likely the most difficult of the three levels of cure as we don’t yet know what causes the body’s immune system to turn on our myelin. A recent Everyday Health article titled, “6 Ways to Protect Your Baby From MS” has me thinking about this topic again and I’m wondering your thoughts. The things listed as MS preventative are mostly good health choices for any child.  Things like,…
  • Hey Friend, I Have MS, Not the Plague

    Trevis Gleason
    9 Apr 2014 | 12:09 pm
    I think I was feeling better today than I have in weeks. I contracted a nasty bug on my flight home from New York, was knackered from the travel and two 5-hour time changes in four days is tough on any body. Finally, I think I was back to near normal. I had some energy and even got up relatively early. Maybe that’s why it seemed so shocking to the new acquaintance I was conversing with when I said that I have MS. I got That look… Part shock, part pity, half confusion and a sprinkle of “Is it catching?” all crossed my companion’s face in an instant and I could read every one of the…
  • Can You Really Be Healthy With a Chronic Disease?

    Trevis Gleason
    4 Apr 2014 | 10:04 am
    “Dad, I’m sick…” Funny that of all of the conversations I had with people around the time of my sudden diagnosis with multiple sclerosis (13 years ago later this month), of all the times I told the story of my “attack,” of the recounts of the process, of recurring mispronunciations and misunderstandings; the one thing I see as the most inaccurate telling was the one time I used the word “sick.” Perhaps it’s that I’m only now spending the majority of the day out of bed after a travel-induced crud that had me clawing for breath, coughing-up Technicolors, and sweating…
  • Accessibility Improvements for MS: What’s a Renter to Do?

    Trevis Gleason
    2 Apr 2014 | 9:36 am
    Recovering from a travel-induced crud which had me in bed for four days, I was happy to finally get a shower the other day. Standing in my “European sized” stall, I was for once happy at its small size. Let’s face it; there was no room for me to fall down. No handrail in there and it got me to wondering about improvements we may need if we don’t own our homes. I’ve owned my share of houses, condos and apartments,  but for the amount I’ve moved around in my career it was often the wiser choice to let a place rather than buy. As a former landlord (see, moving so much while owning…
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    Carnival of MS Bloggers

  • Carnival of MS Bloggers #154

    3 Apr 2014 | 5:00 pm
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Multiple Sclerosis: The First Two Yearsby Valéria at It's complicated.What I remember most about the first two years of MS is the hunger. I remember lying flat on my mattress, hungry. Close your eyes, go back to sleep.I’m hungry.I’m tired. No: I’m decimated. In this game of rock-paper-scissors, tired always wins out over hungry. I close my eyes. I drift in and out of sleep. Four hours pass. I wake up and think: I’m so hungry. Sleep. Eight hours.
  • Carnival of MS Bloggers #153

    6 Mar 2014 | 5:10 am
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.MS and Hope for Life Expectancyby Laura at MultipleSclerosis.netPreface: this entry is about MS and mortality rates and lifespans, which some people  find unsettling to think about; it is a tough topic to consider and even harder to write. Knowing this, you may choose to return to something else to read while I try to make sense of this.Many times over, I have said Multiple Sclerosis usually will not kill us – it can make our lives miserable and set…
  • Carnival of MS Bloggers #152

    6 Feb 2014 | 4:31 pm
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Special Announcement:Our blogger friend Judy Mercado of Peace on the Journey has published her inspiring and expressive haikus and poems in her new book Peace on the Journey: Poems which is available in paperback and Kindle editions.Editorial Reviews“For those struggling with chronic illness, loss of a loved one, or any major life challenge, the Peace on the Journey poems affirm that one can still choose to smile and resolutely renew life. In facing…
  • Carnival of MS Bloggers #151

    2 Jan 2014 | 4:29 pm
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.The Last 5,256,000 Minutesby Jamie of The Tousled ApostleTen years is kind of a big deal. it’s a marriage that has lasted a decade or an object that stands the test of time, when something makes it to the ten-year mark, it’s worth celebrating. And that’s precisely what I’m doing tonight. Wayne is out playing a gig with the Peachtree Jazz Edition, and I’m relaxing in our beautiful home. A fire is crackling in my living room, Debussy is playing…
  • Carnival of MS Bloggers #150

    5 Dec 2013 | 4:27 pm
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.1,001 Days in the Life of a Happy Turkey StoryFrom Life Well LivedAs I am listening to The Black Swan, The Impact of the Highly Improbable  by Nassim Nicholas Talebin my car on the way to work this past week, I keep finding myself engrossed in analyzing where I think the logic a novel way to look at the world and where I find the logic lacking.  I can not help it.   Being raised sitting at a dinner table with a physicist questioning…
 
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    Maggsbunny

  • Eye problems

    Maggie
    26 Mar 2014 | 11:35 am
    It has been a really tough week, with my eyes being heavily impacted by the MS. My eye muscles are strained and my vision is weak. It sucks and stresses me out. I can’t take corticosteroids. Well, I can, but it would be pretty ill-advised. And I can’t take my usual homeopathic remedy, as it’s not safe during pregnancy. Luckily, it does seem to be getting better (but so s-l-o-w-l-y) I read that a top home remedy for optic neuritis is soya milk, taken at bed-time. I found a good one at Woolworths. Organic Soy Milk, in which the only ingredients are water and organic (hulled)…
  • Feeling somewhat more delighted with life today :-)

    Maggie
    16 Mar 2014 | 11:45 am
    I took a good look at the 4D scan that I posted yesterday and had a good chuckle, because Vivienne is wearing her umbilical cord on her head like a hat A girl’s earliest fashion accessory. When I wake up in the morning and see my belly, I think “Oh no, look at the stretch marks that appeared overnight!” Then,on consideration, I realise that they are, in fact, pillow creases And no, I most definitely don’t sleep on my stomach anymore. It’s the pillow that is next to me, lol. This pregnancy has surprised me. What I did expect: At least some of the usual pregnancy…
  • Just a quick update…

    Maggie
    15 Mar 2014 | 10:02 am
    Felt down today. So happy on the one hand, so blah from the MS on the other. I should be happy that I have no trouble from the pregnancy. No back-ache (yay!), no nausea, no heartburn, no headaches, no stretch marks (although it is early days yet), no erratic mood swings (amazing, considering the MS stress). Very easy-going pregnancy. The MS relapse does seem to be improving. My walking and balance are better. The trouble I had focusing my vision is also better than it was. Alas, my visual accuity has gone down quite significantly, which is terrifying. Mainly in my left eye. I still have very…
  • Belly pics :-)

    Maggie
    13 Mar 2014 | 10:17 am
    I finally created a pregnancy ticker at Lilypie and I am loving it! Check it out on my right-hand side-bar. Then, some overdue belly pics… Belly starting to pick up some momentum  
  • 20 week scan

    Maggie
    12 Mar 2014 | 2:59 am
    I am definitely starting to feel better, MS-wise. Thank the Lord! I was feeling miserable and quite scared. I am very much against taking cortisone while pregnant, and it seems as if I’ve gotten a reprieve. The thing is, I’m so in love with this little girl inside me. I can’t bear to think of causing her any distress. I’m not feeling up to running a marathon (or even going with for the dogs’ daily 2km walk), but at least I’m not feeling dizzy the whole time from not being ables to focus my eyes. And also my balance is improved and I have a little more…
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    Brass and Ivory: Life with MS & RA

  • Life with RRMS: Stubbornness or Denial? When MS Makes a Minor Appearance

    9 Apr 2014 | 9:54 am
    Ok, I admit to a certain level of stubbornness. Last week, I had that nasty episode of spasticity which resolved (see my post "MS Needs to Check My Calendar First" on MultipleSclerosis.net).  During the past 2 weeks or so, I've had on/off bladder issues.  (grumble, grumble).  So this past Monday, I dug through my meds to locate the "emergency" supply of decadron I've had since 2011 and started up a steroid taper. Yesterday, no bladder issues.  Today, no bladder issues.  Whoohoo.  This is nice.Oh, wait.  That means this really does count as a minor relapse, I…
  • Short term memory problem? Or, just a wandering mind?

    8 Apr 2014 | 11:33 am
    This morning in the middle of my shower I was standing under the shower head with water flowing through my hair.  I checked the back of my ears to see if they were clean.  Once I was satisfied, I reached for my shampoo bottle.Wait.  Had I already washed my air?  I seem to recall squeezing shampoo into the palm of my hand.  So I checked my hair.  The hair itself felt smooth and even, not obviously dirty, but not squeaky either.  (Not that I aim for "squeaky" hair, just clean hair.)So I continued to squeeze shampoo into my hand and proceed to wash my…
  • Carnival of MS Bloggers #154

    3 Apr 2014 | 8:00 pm
    Welcome to the Carnival of MS Bloggers, a monthly compendium of thoughts and experiences shared by those living with multiple sclerosis.Multiple Sclerosis: The First Two Yearsby Valéria at It's complicated.What I remember most about the first two years of MS is the hunger. I remember lying flat on my mattress, hungry. Close your eyes, go back to sleep.I’m hungry.I’m tired. No: I’m decimated. In this game of rock-paper-scissors, tired always wins out over hungry. I close my eyes. I drift in and out of sleep. Four hours pass. I wake up and think: I’m so hungry. Sleep. Eight hours.
  • Is there a recommended diet for RA?

    31 Mar 2014 | 8:20 pm
    Often we are asked this question in the RA community.  So I decided to delve into the topic and see what the science reveals. Check out my post at HealthCentral (link below).Read this post in its entirety:Mediterranean-type Diet and Rheumatoid Arthritis
  • March 2014 Round-Up of MS News and Research

    28 Mar 2014 | 8:16 pm
    Hot Topics include:Statins Drugs Reduce Brain Atrophy in Secondary Progressive MSTestosterone Treatment as Complementary Therapy in Men with MSDisease-Modifying Therapy and Postpartum Relapses in Women with MSRead this post in its entirety:Hot Topics and MS Research News for March 2014
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    A Short in the Cord

  • Want to Wish Me a Very Happy Birthday?

    24 Mar 2014 | 9:21 am
    In honor of my upcoming 55th birthday (Thursday), please consider making a donation to my Multiple Sclerosis fundraising efforts.  For the fifth year in a row, the Wheeler's Wobblers MS Walk Team will participate in the Wilmington, DE, MS Walk (April 12th) to raise money for research and programs.  Our team's fundraising goal is $5,000.  Ah, the power of five.  I wonder if we can get 5 people to donate $55?To make a tax-deductible contribution via credit card, go to MY WALK PAGE and select "Donate to Joan."  Let me know if you prefer to donate by check, and…
  • Why I Walk

    6 Mar 2014 | 12:19 pm
    Recently, the MS Society asked me about my motivation for participation in the yearly MS Walk fundraisers.  They asked for a quote about “Why I Walk.”At first, I struggled to answer because it was a high-fatigue day and I was barely able to get around the house and I wanted to be left alone.  I didn't have the energy to think about forming a team, doing fundraising, or recruiting walkers.  So really, why DO I organize a team and participate in the MS Walk, especially when every year in post-walk exhaustion I mutter "I'm not doing this again"?Then I looked at the Wheeler’s…
  • Happy MS Awareness Week

    4 Mar 2014 | 7:36 am
    Just in case you didn't know, this is MS Awareness Week.  There, now you are aware!The Delaware Chapter has a week of fundraisers at local restaurants, and today is Ruby Tuesday's day.  If you go anytime today, to any of the Delaware Ruby Tuesday restaurants, and give your server this coupon, RT will donate 20% of your check to the MS cause.  And the Wheeler's Wobblers MS Walk Team gets the credit.I reserved a table at the Bear, Delaware, Ruby Tuesday for 6:00 pm, and you are welcome to join me.  Hope to see you soon. Wobble…
  • Martin Luther King Jr. Day of Service: MSAA Shares Ways to Show Support This Monday

    16 Jan 2014 | 4:49 pm
    Ways to Give Visit mymsaa.org Tweet This What are your plans for this Monday? In 1994, Congress declared the Martin Luther King Jr. holiday as a day of service.  Twenty years later, Americans all across the country still honor King's memory by engaging in acts of service that benefit their fellow community members. Rather than taking the day off this Monday, January 20th, we're encouraging others to use this day to help improve lives for the multiple sclerosis community in the spirit of service. Short on time or money?You'll find many different ways to help, and not all of them…
  • Not Exactly a Book Review: "Americashire: A Field Guide to Marriage"

    2 Jan 2014 | 6:35 pm
    Dear Jennifer Richardson,I finished your book, "Americashire: A Field Guide to a Marriage," and thoroughly enjoyed reading it.  However, I've been having a heck of a time writing a book review.It's a wonderful travel story of an American experiencing the beauty and charm of the English Cotswold culture by living as a local.  The descriptions of the people, customs, and countryside were poetic, especially in your description of the changing seasons:  "The Cotswolds of Matisse will slip into the diffused light of the Cotswolds of Monet." Ah! Such artistry with words. I found…
 
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    MS Trust Recent Story List

  • Volunteering

    15 Apr 2014 | 4:00 pm
    Ann Davis, one of the volunteer Games Makers at London 2012, is spreading the legacy of the Games as a leader of the Join In campaign. One of her activities is volunteering to support an MS exercise group in Chelmsford> Daily Telegraph Article on volunteering from Open Door
  • Deep brain stimulation for tremor

    13 Apr 2014 | 4:00 pm
    A Hartlepool man with MS has had deep brain stimulation surgery to help with tremor. Daily Mail Hartlepool Mail Tremor - A to Z of MS
  • Finding better ways to track MS progression

    10 Apr 2014 | 4:00 pm
    The US MS Outcome Assessments Consortium has met to try and develop better ways to measure the effects of new treatments on progression in MS. National MS Society (USA) Progressive MS - A to Z of MS
  • Visualising MS

    7 Apr 2014 | 4:00 pm
    An app has been developed in Australia to allow anyone to visualise and share the experience of multiple sclerosis. It applies visual filters to photos to mimic MS symptoms. Canberra Times MS Awareness Week 28 April - 4 May
  • Dimethyl fumarate (Tecfidera) approved in Scotland

    6 Apr 2014 | 4:00 pm
    The Scottish Medicines Consortium (SMC) has approved dimethyl fumarate (Tecfidera, formerly BG-12) as a treatment for people with relapsing remitting MS in Scotland. Daily Record SMC Dimethyl fumarate (Tecfidera) - A to Z of MS
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    MS Strength

  • The Wahls Protocol Review

    Jen
    31 Mar 2014 | 8:05 am
    I recently finished The Wahls Protocol, a diet and lifestyle book for treating autoimmune conditions. The author, Dr. Terry Wahls, was able to go from a state of progressive multiple sclerosis to a state of significant remission (enabling her to resume physical activity and bicycle many miles). I definitely appreciate that she is a medical doctor (M.D.) and that she embraces alternative approaches to treating disease.   The book presents variations of a “Wahls” diet, giving readers three levels of commitment. The diet has some of the elements of a Paleo lifestyle, including…
  • Can Diet and Exercise Improve MS?

    Jen
    18 Mar 2014 | 11:06 am
    So I’m about to start a new book pertaining to MS and better health: The Wahls Protocol by Terry Wahls, MD. I hafta admit that I’m skeptical about anyone claiming to cure their own multiple sclerosis, especially through diet and exercise alone. However, I’m always open to better eating habits and exercise ideas. This woman apparently was wheelchair-bound and through her own research found a way to recover from autoimmune disease. She can now bicycle many miles….There seems to be a correlation with the Paleo diet, which touts eating more like our ancient ancestors and…
  • MS Relapse

    Jen
    25 Feb 2014 | 1:03 pm
    http://www.msstrength.com/wp-content/uploads/2014/02/Capture_20140225.wmv
  • Quick MS Update!

    Jen
    20 Feb 2014 | 4:10 pm
    Hi there!   I’ve been outta the loop recently because of graduate school demands, but my academic portion of the program is over so I can spend more time concentrating on this website and my MS journey (thank you if you still find yourself coming to this site– I appreciate the continued interest). I am currently having an acute multiple sclerosis attack, unfortunately, and I’m trying to hash out things for my final Master of Social Work practicum. Yes, once again fitting MS into my life, but I haven’t had a new attack– to my own knowledge– in about…
  • MS and 15 Years In

    Jen
    12 Aug 2013 | 10:47 am
    So I’m trying to be a little more consistent with posting, but again— this graduate program IS KILLING ME. It’s a ton of writing because it’s distance education. Lots of posting and commenting on others’ posts. YIKES. But I think the end result will be well worth it. I’ll be done in about a year: end of August, 2014. And speaking of time, I need to commemorate the 15 year anniversary of my first multiple sclerosis symptom. Not the anniversary of my diagnosis. (I think that occurred, FINALLY, in 2005?) 15 years in and I’m still pretty mobile, although…
 
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    The Lesion Journals

  • Seeing MS - Exposing the Invisible Disease

    Christie @ the Lesion Journals
    24 Mar 2014 | 6:18 am
    "Most symptoms of multiple sclerosis go unnoticed by everyone except the person living with them. One day they can alter your memory, the next your vision. Striking without warning and leaving no trace, they are invisible." – Seeing MSI recently came across this amazing creative project, hailing from our friends down under at the MS Society, Australia: Seeing MS. It features the work of nine photographers who worked with MSers to portray the invisibility of nine MS symptoms: fatigue, blurred vision, numbness, brain fog, spasticity, hot and cold, pain,…
  • Let go of what you can't change

    Christie @ the Lesion Journals
    22 Mar 2014 | 8:54 am
    Photo courtesy of Finer MindsI really like this quote and it serves as a great reminder for me to think about letting go of stuff I cannot control. But, I will admit, I find it difficult to do this sometimes. Do you find this to be true, too? Letting go. Exactly how does one do this? I try my best to move through the bad stuff, like fatigue, but sometimes I just have crummy moments, sprinkled with a bit of self-pity. I try to acknowledge these moments and accept that this is just how it will be, for the time being. I try my best (practice to progress, not to be perfect) to look forward to a…
  • 7 days of MS Awareness Week – Day 4

    Christie @ the Lesion Journals
    6 Mar 2014 | 6:36 am
    "We Write for the Fight"Extra, extra, read all about it. "Something On Our Minds: An Anthology to benefit the National MS Society" is now available! This is a great book filled with stories written about MSers and those who love us. I've got my copy and it's really good. The best part (aside from the wonderful writings of course)? 100% of proceeds will be given to the NMSS. Buy your copy today: Something-Our-Minds-Anthology-Sclerosis. Press Release - We Write for the FightHope you are well this MS Awareness Week, take care!Christie
  • 7 days of MS Awareness Week – Day 3

    Christie @ the Lesion Journals
    5 Mar 2014 | 5:33 am
    "Why do you connect?"Every connection really does count and the National Multiple Sclerosis Society (NMSS) is running a great campaign this week, asking MSers and their loved ones to share connection stories with others. Here's my submission: So, on this 3rd day of MS Awareness Week, I invite you to think about why connections are important to you and share your story. Simply go the NMSS website here: http://www.msconnection.org/#Cheers and hope you are well this week.Best,Christie
  • 7 days of MS Awareness Week – Day 2

    Christie @ the Lesion Journals
    4 Mar 2014 | 6:09 am
    Special Report from Multiple Sclerosis.netSource: www.multiplesclerosis.netReport: http://multiplesclerosis.net/special-report-2014-oral-treatments-for-ms/Our friends over at www.multiplesclerosis.net put together an incredible report, "Special Report: Oral Treatments for MS". It’s based on the recent MS in America 2014 survey completed by over 5,000 respondents. Two things popped out to me as being pretty significant:Did you know that oral meds are used by nearly a 1/3 of MSers?Did you know that over 50% of people using injectable medications for MS are considering making the big…
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    Wheelchair Kamikaze

  • 11 Years Gimpy and the Lessons Learned, Part Two

    The Wheelchair Kamikaze
    9 Apr 2014 | 9:15 pm
    Caduceus Symbol - Medical Symbol MD (Photo credit: wcm1111) Last month I “celebrated” the 11th anniversary of my MS diagnosis with part one of Lessons Learned (click here), which looked at some of the insights my grappling with the disease had revealed about life, both the one lived inside my head and the kaleidoscopic swirl of the world around me. Along with the expected liberal dose of anguish, the disease has also brought with it some unexpected flashes of understanding, and maybe even something akin to a bit of wisdom. Not to say that I’ve got much of anything figured out, but I…
  • Bits and Pieces: Can’t Please Everyone Edition (Also, MS and: Statin Drugs, Ancient Viruses, Obesity, and Contraception; Thank Your Doctor, and an MS Photo App!)

    The Wheelchair Kamikaze
    27 Mar 2014 | 7:34 pm
    For those readers who receive Wheelchair Kamikaze via email, this post contains videos that can only be viewed on the blog website (click here). In my meanderings around the MS Internet, poking my nose into both highly trafficked spots and those more obscure, I occasionally find references to individual Wheelchair Kamikaze posts or to the blog in general. Usually these mentions are quite complementary, and upon reading them I sit before my screen blushing like a young man who just vomited at his boss’s table during the office Christmas party (um, not that I would have any firsthand…
  • Pioneering MS Stem Cell Trial Needs Your Help!

    The Wheelchair Kamikaze
    16 Mar 2014 | 8:35 pm
    I've very rarely used Wheelchair Kamikaze to directly appeal for charitable donations to help any individual research project, as I've always been extremely wary of abusing the trust that's been built up between me and my readers. Very recently, though, I've been alerted to a cause that I feel is so fundamentally worthwhile that I decided to devote this entire essay to making such an appeal. It is my most fervent desire to see crippling neurologic diseases wiped from the face of the planet, and to put the nightmarish world of such diseases firmly in the realm of history. There is a…
  • 11 Years Gimpy and the Lessons Learned, Part One

    The Wheelchair Kamikaze
    11 Mar 2014 | 10:05 pm
    March 9, 2003 was a typical late winter’s day in New York City. The temperature was about 30°F, but the sun shone brightly, and in the late afternoon, feeling a little bored and just wanting to get some fresh air, I decided to take my furry pal Stella the Labrador Retriever for a nice long walk. We made our way to a bike path that runs along the Hudson River on the west side of Manhattan and headed north, our ultimate destination the Soldiers and Sailors Monument, a structure which was completed in 1902 and is dedicated to the soldiers and sailors who served in the Union Army during the…
  • Bits and Pieces: Arctic Vortex Edition

    The Wheelchair Kamikaze
    24 Feb 2014 | 8:34 pm
    Okay, I know it’s considered terribly mundane and just downright boring to talk about the weather, but the winter here in NYC and in much of the Midwest and Eastern US has really been something else these last few months. Since weather reports here in The States only occasionally and very briefly touch on conditions outside of our borders, I’m only parenthetically aware that much of the rest of the world has also experienced extreme conditions this winter as well, but I do know that plenty of WK readers all around the world have been hit with some downright nasty tricks from mother nature…
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    Life in Spite of MS Blog

  • Challenges of Love

    17 Apr 2014 | 1:18 am
    Challenges of Love: Book 1, A Contemporary Romance Novella about two people who face challenges, in this case MS and blindness, yet still fall in love.
  • She is Beautiful

    8 Feb 2014 | 10:45 am
    She is beautiful She is beautiful, My gentle, caring girl, She comes out of her home, And comes to sit next to me in my car, Hat on, gloves on, And
  • When Life Gives You Challenges

    6 Feb 2014 | 1:46 pm
    When Life Gives You Challenges, Write a Poem - Books 1 & 2, are now available on Amazon! The poetry from our site has now been compiled into an ebook for your reading pleasure. Get your copy today!
  • When Life Gives You Challenges Write a Poem

    6 Feb 2014 | 9:39 am
    New eBooks! We finally did it! All of the poems on our poetry page are now in ebook form - When Life Gives You Challenges, Write a Poem: Books 1 & 2 are available now. Get your copies today! The first introductory Free Promo Day is February 7th. After you get your copies, tell your family and friends about them, as well. And leave a review to get the word out to others who will benefit from these inspirational ebooks. Poems by MSers for MSers and the People Who Love Them.
  • Home Modifications

    23 Jan 2014 | 2:19 pm
    I was diagnosed Nov 2012 and have quickly progressed to a wheelchair full time. We were not prepared for this and have no insurance. I have applied for
 
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    MS Village

  • Test post in English

    admin
    20 Mar 2014 | 12:15 pm
  • Obesity may increase Multiple Sclerosis risk

    MS Village
    18 Mar 2014 | 12:46 pm
    A recent study from Argentina finds a link between obesity and the development of multiple sclerosis. Read full story here.
  • Multiple Sclerosis Treatment: Knowing the Risks and Benefits of DMDs

    Dr. Scott Jarvis
    14 Mar 2014 | 2:30 am
    Whether you’ve recently been diagnosed with Multiple Sclerosis, or have been living with it for some time, staying well-informed about your treatment options is an important step toward living well with MS. This means understanding which medication is right for you, how you’ll integrate your treatment into your lifestyle and overall MS management plan and the advantages and disadvantages of each option. Disease-Modifying Drugs (DMDs) are used in relapsing-remitting MS (RRMS) primarily to reduce the number of relapses. The term ‘relapse rate’ refers to how often a person with MS might…
  • Teen running champ with multiple sclerosis wins races, collapses

    MS Village
    12 Mar 2014 | 3:25 pm
    A diagnosis of multiple sclerosis hasn’t stopped an elite teen runner from winning races, even though her legs get so numb that she collapses at every finish line. Kayla Montgomery, 18, spoke with CBC Radio’s As It Happens about how she became a high school state champ in North Carolina. Listen to the full interview here.
  • Woman turns Multiple Sclerosis diagnosis into positive action

    MS Village
    6 Mar 2014 | 7:33 am
    Sue Blackburn was diagnosed with multiple sclerosis after an attack caused her to lose coordination on the right side of her body. The 33-year-old has gone from being someone who didn’t like to workout,  to participating in just about every MS awareness event. Read full story here.
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