Multiple Sclerosis

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  • New compounds protect nervous system from the structural damage of MS

    Multiple Sclerosis News From Medical News Today
    4 Mar 2015 | 1:00 am
    Pharmacological agents hold promise for several neurodegenerative disordersA newly characterized group of pharmacological compounds block both the inflammation and nerve cell damage seen in mouse...
  • Researchers propose novel new treatment of stroke and other neurological diseases

    Multiple Sclerosis News From Medical News Today
    5 Mar 2015 | 1:00 am
    Medicine should reconsider how it treats stroke and other neurological disorders, focusing on the intrinsic abilities of the brain and nervous system to heal themselves rather than the "modest"...
  • A Call to the Cosmic Complaint Department…

    Wheelchair Kamikaze
    The Wheelchair Kamikaze
    8 Jan 2015 | 9:41 pm
    RHello…? Mr. Universe…? Mrs. Universe…? Sir…? Ma’am…? Anybody…? Well, if you’re listening, I think there’s been a terrible mistake. You see, I’ve got this, well, this creeping paralysis, and it just won’t stop creeping… and creeping… and creeping. It’s creeping so much that it’s creeping me out, and I’m afraid it’s about to swallow me. So, before things get completely out of hand, I’d like to lodge a formal complaint and see if I can get some kind of a cosmic credit, or even maybe a do-over. You know, like back in the schoolyard, when in the middle of a…
  • Genetic risk factor uncovered

    ThisIsMS - News
    MSUK
    5 Mar 2015 | 1:21 am
    Gene Therapy Statistics : 1 Post || 60 Views Post by MSUK
  • Myelin-maker: How an FDA-approved drug boosts myelin synthesis

    Multiple Sclerosis News From Medical News Today
    5 Mar 2015 | 12:00 am
    Damage to myelin, the fatty insulator that enables communication between nerve cells, characterizes multiple sclerosis (MS) and other devastating neurological diseases.
 
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    Multiple Sclerosis Research News -- ScienceDaily

  • From chick to bedside: Removing the Wnt barrier

    5 Mar 2015 | 9:55 am
    Kick starting a process that might repair the damage done in cerebral palsy and multiple sclerosis could begin with disabling a driver that helps block regeneration, say researchers.
  • Strong genetic risk factor for MS discovered in family of five affected siblings

    4 Mar 2015 | 11:14 am
    A genetic variation has been discovered that, in women, significantly increases their risk of developing multiple sclerosis, scientists report. The variant occurs almost twice as often among women with MS as in women without the disease, making it "one of the strongest genetic risk factors for MS discovered to date,” said the study's senior author.
  • Myelin-maker: How an FDA-approved drug boosts myelin synthesis

    2 Mar 2015 | 12:08 pm
    A researcher has discovered a way to keep remyelination going, using a drug that's already on the market. Damage to myelin, the fatty insulator that enables communication between nerve cells, characterizes multiple sclerosis (MS) and other devastating neurological diseases.
  • New compounds protect nervous system from the structural damage characteristic of multiple sclerosis

    27 Feb 2015 | 3:10 pm
    A newly characterized group of pharmacological compounds block both the inflammation and nerve cell damage seen in mouse models of multiple sclerosis, according to a study. Multiple sclerosis is a disease of the brain and spinal cord, where for unknown reasons, the body's immune system begins an inflammatory attack against myelin, the protective nerve coating that surrounds nerve fibers. Once myelin is stripped from these fibers, the nerve cells become highly susceptible to damage, which is believed to underlie their destruction, leading to the steady clinical decline seen in progressive…
  • Physician-industry conflict of interest issue from MS patient perspective

    27 Feb 2015 | 10:09 am
    A new study explores what multiple sclerosis patients know, or want to know, about their physician’s financial relationship with the pharmaceutical company sponsoring clinical trials.
 
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    MS-UK Latest MS News

  • Patients want full disclosure

    6 Mar 2015 | 5:12 am
    Individuals with multiple sclerosis want to know what’s going on behind closed doors concerning drug research, according to a study published in the Multiple Sclerosis Journal. The study shows MS patients want full disclosure concerning the financial relationship between the doctors and the drug companies in pharmaceutical industry-sponsored clinical trials (ISCTs) before they will agree to participate in such research....
  • Survey highlights need for pain treatment information

    5 Mar 2015 | 7:30 am
    A new survey, conducted by Pain UK and St. Jude Medical, has found that although 66 per cent of people see their GP for chronic pain, the majority do not see a specialist or visit a pain clinic.Almost ten million people in the UK suffer from chronic pain, according to Pain UK, which has a major impact on quality of life and day to day activities, such as work......
  • Businesses missing out on £1.8bn a month

    5 Mar 2015 | 7:06 am
    A report released today by the Extra Costs Commission led by disability charity Scope has found that 75 per cent of disabled people and their families have walked away from a UK business due to poor service....
  • Genetic risk factor uncovered

    5 Mar 2015 | 5:22 am
    Researchers at the University of Illinois at Chicago have identified a genetic variation that in women significantly increases their risk of developing multiple sclerosis. The report is published in the journal ASN Neuro.The variant occurs almost twice as often among women with MS as in women without the disease, making it "one of the strongest genetic risk factors for MS discovered to date," said senior author Doug Feinstein, professor of anesthesiology at UIC and research biologist at the Jesse Brown VA Medical Center.............
  • MS-UK launches live web chat service to support anyone affected by multiple sclerosis after seeing a 23% increase in contact

    2 Mar 2015 | 12:47 pm
    MS-UK, the national charity supporting anyone affected by multiple sclerosis to make the most of today, has launched a live web chat feature on its website at www.ms-uk.org/livewebchat....
 
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    Life With Multiple Sclerosis

  • Your Life With MS: We Want to Hear Your Stories

    Trevis Gleason
    5 Mar 2015 | 5:00 am
    As we’ve seen in many of your wonderful comments, we all have a story to tell about living with multiple sclerosis. We all walk through our lives with MS in unique ways, not unlike the disease itself. On that subject, I have a couple of announcements: Google Hangout With Meredith Vieira: Follow Your Life Passions In honor of MS Awareness month, Everyday Health is hosting a second Google Hangout with our partner Meredith Vieira, about following your life passions through MS on Wednesday, March 25. I’ll be there, and so will Maureen Manley, founder of Spirit in Motion, and Van DiBernardo,…
  • MS Awareness Week: Test Your MS Smarts

    Trevis Gleason
    2 Mar 2015 | 7:46 am
    To begin MS Awareness Week, I say it’s time to sharpen our pencils and break out the anti-anxiety meds: MS Quiz time. Last week, the National MS Society emailed a link to a 7-question MS quiz.  Though there are only seven questions, some of them are a bit tricky!  Might I suggest you take the quiz? Even better, after you’ve taken it and gotten your score, how about sending a link to the quiz to your family, friends, co-workers, and the greater community to spark an MS conversation. I think that would be a perfect way to dispel myths and misgivings about this disease. People only…
  • Food and MS: Cause or Effect?

    Trevis Gleason
    23 Feb 2015 | 7:44 am
    A new, rather small study has me wondering even more about the cause-and-effect aspects of multiple sclerosis research findings. Researchers at Johns Hopkins University in Baltimore tested a small number of women, 27 with MS and 30 without. They started out studying vitamin D in relation to MS. What they found was that not only did the women with MS have lower vitamin D counts, they also had lower levels of five other nutrients known to have antioxidant and/or anti-inflammatory properties: food folate, vitamin E, magnesium, lutein-zeaxanthin, and quercetin. Both groups of women were…
  • ‘MS Energy’: A Surprising Boost From a Traumatic Diagnosis

    Trevis Gleason
    13 Feb 2015 | 7:41 am
    While I have heard and read of people who say “MS saved my life” or “MS made me a better person” or “MS gave me the chance to…” I think we all know I believe that any good that comes from a diagnosis with MS comes from within the people we already are. That said, I know that I am a better person today than I was before, not because multiple sclerosis did anything positive for me but rather because of what the psychological community has come to call “post-traumatic growth” Shift.MS – the online support network who has given us some really great…
  • Clearing the Deadwood to Make Way for New Grass

    Trevis Gleason
    9 Feb 2015 | 10:06 am
    Yesterday was an absolutely stunning day here in west Kerry. Not that it was particularly warm, but the bright blue sky stretched all the way down to the mountains where winter hazel began to show a hint of spring green. When the sun came out from behind the fluffy, bleached clouds, the February chill cracked and the thinnest sliver of heat seeped through. Thick rolls of sea fog came in through the town’s harbor entrance but were pulled to thin wisps of white candy-floss by the time they reached the near shore. The mountainsides belched thick, amber-tinted smoke. It’s the season of gorse…
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    A Short in the Cord

  • Get Ready to Wobble!

    27 Feb 2015 | 1:30 pm
    March is Multiple Sclerosis Awareness Month.  You know what that means, right? It's time to wake up the Wheeler's Wobblers MS Walk team and get ready to wobble!From your interactions with me or others with MS, you are already aware of the debilitating effects of this disease, including blindness, debilitating fatigue, muscle weakness, cognitive impairments, numbness, tingling, and muscle spasms.  And those are just the symptoms I have experienced.  There are many more.There is still no cure, but medications to slow the progress have seen a marked improvement in the last few…
  • Need a Laugh?

    22 Dec 2014 | 2:39 pm
    The holiday madness has started, so I'm giving you the gift of a laugh. Or four.
  • And So I Choose... Sad

    17 Dec 2014 | 4:42 pm
    This is a reprint of a post from last December.  Please read all the way to the end before posting a comment telling me not to be sad; the punch line explains the title.  Happy and healthy holidays to everyone!Oh, Christmastime. So full of merriment.  Parties with lots of people, houses dripping with decorations, wrapped presents under trees and in stockings.  Gatherings, caroling, late nights.  What’s not to love?Well, let me tell you…Christmas involves activities that I find exhausting, like shopping for presents. When I simply go grocery shopping, I have to put…
  • Gilenya: My Third Year Anniversary

    5 Nov 2014 | 1:16 pm
    Wow, I can't believe that it's been three years since I decided to change my direction and switch my disease modifying drug to Gilenya.I revisited my old blog posts about the long road leading to the "First Dose Observation." I had forgotten about all the tests required before getting the drug, wrangling with insurance, finding a location to be monitored for the first six hours after swallowing one tiny orange and white pill. I had forgotten how really worried I was the night before. Now that three years have passed, I'm pleased to report that I'm doing very well. I…
  • A Scary Scooter Story

    31 Oct 2014 | 5:16 am
    This is a scary story about fear and dread.  No, it's not another Halloween story.  It's an adventure story.  A silly story, really.Last weekend, The Husband treated me to a weekend at Rehoboth Beach for the Sea Witch festival. Sea Witch Balloon"Oh dear, is the witch that scary?" Nah, the Sea Witch is actually the name of a really fast clipper ship that navigated Delaware waters, and a clever woman developed a way to bring people to the shore after Labor Day by blending this nautical theme and Halloween into a huge festival.   But there is a really scary Sea Witch balloon…
 
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    MS Trust Recent Story List

  • Gene increases MS risk

    3 Mar 2015 | 4:00 pm
    US researchers have identified a gene variant that occurs 1.7 times as often in women with MS than in the general population. Included in the study of 1,400 people were five sisters, all of whom have MS and three of whom have this gene variant. Eureka Alert Risk of developing MS - A to Z of MS
  • Attitudes to MS and work

    1 Mar 2015 | 4:00 pm
    An American survey of 1,248 women with MS in employment found a mixed picture of support from colleagues and employers. Almost three quarters had worries about their ability to remain working, though two thirds were optimistic about their ability to continue in employment. National MS Society (USA) At work with MS
  • Vaccines and fingolimod

    1 Mar 2015 | 4:00 pm
    A study of 136 people with MS found that those on fingolimod (Gilenya) were less likely to see the benefits of vaccinations against flu or tetanus, though around two in five people on the drug were protected. MS Research Australia Vaccination and immunisation - A to Z of MS
  • Stem cells

    28 Feb 2015 | 4:00 pm
    Coverage of the UK arm of an international stem cell study originally reported in January. The stories focus on a dramatic case study rather than the more general view of the results of this encouraging trial. Daily Mail Daily Telegraph NHS Choices - Behind The Headlines MS Research Update - comment on the original trial
  • Coffee as protection against MS

    25 Feb 2015 | 4:00 pm
    Two studies involving over 6,500 people found that those who drank coffee had a lower risk of developing MS than non coffee drinkers. Medical Daily Medical News Today Latest MS Research Update
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    The Lesion Journals

  • Now you can have a gorgeous cane and support Multiple Sclerosis awareness!

    Christie @ the Lesion Journals
    1 Mar 2015 | 9:53 am
    "Canes for a Cure" from Top and DerbyMy friends over at Top and Derby have done it again. They’ve gone ahead and made another gorgeous, design inspired cane. This one is truly special because it is a limited edition Chatfield cane featuring the color of Multiple Sclerosis – Pantone 158 (or, in other words, MS orange!), just in time for the kick off of Multiple Sclerosis Awareness Month that began today. Know what’s even better? These are “canes for a cure” as proceeds from each sale will be supporting research and awareness for Multiple Sclerosis.These guys are awesome. I just love…
  • Orange is the new black via the #Orange4MSF campaign

    Christie @ the Lesion Journals
    28 Feb 2015 | 9:23 am
    Multiple Sclerosis Awareness month kicks off on March 1 and there is no shortage of awareness campaigns out there. The first one that caught my eye is the #Orange4MSF campaign which invites everyone to take a selfie with an orange. Why an orange? Orange is the official color of Multiple Sclerosis awareness and we’re really amped to make orange the new pink, the new black.The Multiple Sclerosis Foundation (MSF) launched this fun effort and its main mission is to spread the word about Multiple Sclerosis, educating the public and building hope for those living with this often debilitating and…
  • If I can bicycle, I bicycle

    Christie @ the Lesion Journals
    15 Feb 2015 | 7:39 am
    Cycling is something that brings me pure joy and helps me forget that, if even for a few moments, that I am someone living with Multiple Sclerosis. For me, that can be one of the greatest benefits  – not to be consumed by life with a chronic illness as I fly by the ocean waves, pedaling as hard as I can, on my bicycle. It is pure happiness.Certainly there are days when I cannot ride, those days when the fatigue kicks in full blast. I simply rest through these moments, reminding myself that tomorrow is a new day and on that new day, if I can bicycle, I bicycle.Take care,Christie
  • iConquerMS™: Our Voices. Our Data. Our Power.

    Christie @ the Lesion Journals
    5 Feb 2015 | 10:27 am
    Hey everyone -iConquerMS has been hitting the national scene and invites you to participate in this incredibly important research project. If you want more information, there is a great (and free!) webinar coming up on February 9th that explains it all. Hope to "see" you there.Check it out:On Monday, February 9, 2015 at 2:30 PM EST, Robert McBurney, PhD, President and CEO of the Accelerated Cure Project for MS and the Principal Investigator for iConquerMS™, and Laura Kolaczkowski, the Lead Patient Representative for the initiative, will talk about iConquerMS™ and what it means…
  • Just for fun on a (somewhat) wordless wednesday

    Christie @ the Lesion Journals
    7 Jan 2015 | 6:34 am
    © The Graphics Fairy 2007Nothing compares to the simple pleasure of a bike ride.John F KennedyCheers to more bike rides in 2015! Happy New Year friends.Best always,Christie
 
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    Wheelchair Kamikaze

  • Interview With A Kamikaze

    The Wheelchair Kamikaze
    23 Feb 2015 | 9:48 pm
    I was recently contacted and asked for an interview by fellow MSer Meagan Freeman, who writes the excellent blog “Multiple Sclerosis, Motherhood, and Other Traumatic Experiences: The Life of a Nurse Practitioner With MS”. After checking out Meagan’s blog and making sure she wasn’t part of the vast government conspiracy intent on siphoning off my Cosmic MS Mojo for use in covert attempts to transform reptilian aliens into characters on the “Real Housewives” reality TV shows (you didn’t think those people were actual human beings, did you), I readily agreed. Meagan asked me a…
  • National MS Society FAIL: UPDATE – The NMSS Responds

    The Wheelchair Kamikaze
    9 Feb 2015 | 10:26 pm
    First, I’d like to thank all who helped contribute to the online dialogue (some might even call it a brouhaha) spurred by my last post on this blog (click here), which detailed the American National Multiple Sclerosis Society’s repeated refusals to fund the only current ongoing FDA approved stem cell trial being done on MS patients in the nation, at The Tisch Multiple Sclerosis Research Center of New York. Your response has been a personal inspiration to me, and your comments and sharing of the article on social media have definitely been noticed by the powers that be. Several readers…
  • National MS Society FAIL! Repeatedly Refuses to Fund Only Ongoing FDA Approved MS Stem Cell Trial…

    The Wheelchair Kamikaze
    6 Feb 2015 | 12:34 am
    The National Multiple Sclerosis Society (NMSS), by far the largest MS nonprofit organization in the US, has three times rejected grant applications from the Tisch Multiple Sclerosis Research Center of New York, which were submitted in an effort to procure funding for what is now the only FDA approved regenerative stem cell trial being conducted on MS patients in the nation. The trial in question uses a very sophisticated approach to this experimental therapy, arrived at after over a decade of development in the laboratory, in an attempt to repair nervous system tissues damaged by multiple…
  • A Stem Cell Scam Unravels…

    The Wheelchair Kamikaze
    23 Jan 2015 | 1:09 am
    As many MS patients are aware, stem cells represent one of the great hopes for vanquishing multiple sclerosis by way of their tantalizing potential for repairing damaged brain and spinal cord tissues, regulating aberrant immune responses, and ultimately restoring patients to good health. Research into the use of stem cells to treat a wide variety of diseases is increasing seemingly by the day, and scientists are beginning to unlock the tremendous promise of these emerging therapies. The therapeutic use of stem cells may dramatically transform the medical landscape in the coming years, and…
  • A Call to the Cosmic Complaint Department…

    The Wheelchair Kamikaze
    8 Jan 2015 | 9:41 pm
    RHello…? Mr. Universe…? Mrs. Universe…? Sir…? Ma’am…? Anybody…? Well, if you’re listening, I think there’s been a terrible mistake. You see, I’ve got this, well, this creeping paralysis, and it just won’t stop creeping… and creeping… and creeping. It’s creeping so much that it’s creeping me out, and I’m afraid it’s about to swallow me. So, before things get completely out of hand, I’d like to lodge a formal complaint and see if I can get some kind of a cosmic credit, or even maybe a do-over. You know, like back in the schoolyard, when in the middle of a…
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    Life in Spite of MS Blog

  • Rise Above

    5 Mar 2015 | 6:26 pm
    I always loved to paint but never pursued it. I just dabbled here and there throughout the years. I was diagnosed with MS in 2003 and it was manageable
  • Meet Dr Terry Wahls!

    4 Mar 2015 | 4:25 pm
    Meet Dr Terry Wahls! A doctor who used functional medicine to bring herself back from the affects of progressive MS.
  • HELP OUR FAMILY!!!!!!!!!!!!!!!!!!

    3 Mar 2015 | 7:31 pm
    Go Fund Me Fundraiser for Rachel Schirripa Reply: This link is to a fundraiser for Rachel, which her friends/family have set up for her. She is an MSer,
  • Monster In Me

    3 Mar 2015 | 5:14 pm
    There is a MonSter in me That you cannot see It just won't let me be. This MonSters left many scars on my spine When you look at me I seem to shine But
  • Nerve Pain with MS

    2 Mar 2015 | 10:44 pm
    Nerve pain is difficult to explain to those who've never had it. It's difficult to understand any invisible symptom, however, I'll give it a shot - (no pun intended.)
 
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