Multiple Sclerosis

  • Most Topular Stories


    ThisIsMS - News
    20 Apr 2015 | 4:21 pm
    Drug Pipeline Statistics : 1 Post || 42 Views Post by seeva
  • what does your relapse look like?

    ThisIsMS - News
    20 Apr 2015 | 1:01 pm
    General Discussion Statistics : 1 Post || 35 Views Post by admackenzie
  • National MS Society Decision Makers Take Big Bucks from Big Pharma

    Wheelchair Kamikaze
    The Wheelchair Kamikaze
    9 Mar 2015 | 8:39 pm
    As I detailed in two recent Wheelchair Kamikaze essays, the American National Multiple Sclerosis Society has repeatedly rejected grant proposals to help fund the only FDA approved human MS stem cell trial currently being conducted in the US, which is now underway at the Tisch Multiple Sclerosis Research Center of New York (click here and here). These two previous posts resulted in a flood of email and phone calls to the powers that be at the NMSS (thank you, dear readers), who responded by saying that the Society makes decisions regarding which research projects to fund based on the…
  • Experimental drug that may repair nerve damage in MS moves forward

    Multiple Sclerosis News From Medical News Today
    16 Apr 2015 | 2:00 am
    A new study suggests that an investigational drug for multiple sclerosis (MS) may repair myelin, the fatty material that protects nerves and is damaged in MS, according to a study released April...

    ThisIsMS - News
    20 Apr 2015 | 11:33 am
    Drug Pipeline Statistics : 1 Post || 49 Views Post by seeva
  • add this feed to my.Alltop

    MS-UK Latest MS News

  • Extending natalizumab up to eight weeks ‘safe and effective’

    21 Apr 2015 | 6:07 am
    In a study of 1,964 patients with multiple sclerosis, researchers at the NYU Langone Multiple Sclerosis Comprehensive Care Center found that extending the dose of natalizumab from four weeks up to eight weeks was shown to be well-tolerated and effective in patients, and resulted in no cases of the potentially fatal side effect progressive multifocal leukoencephalopathy (PML).....
  • Mindfulness ‘as good as anti-depressants’

    21 Apr 2015 | 5:29 am
    Mindfulness-based cognitive therapy may be as good as pills at stopping people relapsing after recovering from major bouts of depression, according to a new study.....
  • Athlete's foot cream 'could repair nerve damage'

    21 Apr 2015 | 5:00 am
    A common athlete’s foot cream sold over the counter at most chemists could help people living with multiple sclerosis, a new study claims....
  • Doctors urged to consider diverse symptoms

    20 Apr 2015 | 11:53 am
    Medical professionals have been urged to consider a wide range of possible symptoms when it comes to neurological conditions such as multiple sclerosis.The move comes after a case where a seven-year-old boy's only symptoms were abdominal pains....
  • Biogen announces latest Tecfidera data

    20 Apr 2015 | 11:31 am
    Biogen has announced new data that continues to support Tecfidera as an effective, long-term treatment for people who are living with relapsing-remitting multiple sclerosis (RRMS).....
  • add this feed to my.Alltop

    multiple sclerosis

  • Biogen's novel MS drug shows promise of repairing nerve tissue

    Damian Garde
    15 Apr 2015 | 8:50 am
    Biogen's latest treatment for multiple sclerosis helped repair damaged nerve tissue in a Phase II study, an incremental victory for a novel therapy that has a long way to go.
  • Biogen's future: Bigger bets on CNS, smaller name

    Damian Garde
    23 Mar 2015 | 6:43 am
    Biogen's latest evolution is more than just a nominal shift, according to its CEO, as the Big Biotech lops the Idec from its name and hopes to parlay its success in multiple sclerosis into some tough-to-treat diseases.
  • Google, Biogen team up on MS research: report

    John Carroll
    27 Jan 2015 | 7:42 am
    Looking for some insights into the way that environment and biology influence the development of multiple sclerosis, Biogen Idec will team up with Google to sift through a mountain of data on the topic, according to a report from Bloomberg.
  • UPDATED: Biogen Idec's remyelination drug raises hopes--and fears--in PhII

    John Carroll
    8 Jan 2015 | 5:23 am
    Shares of Biogen Idec were buoyed this morning after the big biotech highlighted positive data from its mid-stage study of anti-LINGO-1, a closely watched drug that raises the potential for spurring remyelination--repairing the damage done by diseases like multiple sclerosis. But a careful second look at the results also underscores just how challenging this development program is for Biogen Idec.
  • GeNeuro snags a $455M deal, inks MS drug pact with Servier

    John Carroll
    2 Dec 2014 | 4:19 am
    Geneva-based GeNeuro, a spinout of the Institut Mérieux, has come up with a licensing deal that will deliver $47 million needed to complete a Phase IIb study of its experimental therapy for multiple sclerosis. And France's Servier gets an option on ex-U.S. and Japanese rights that's tied to a $408 million package of milestones along with a chance to buy an equity stake in the biotech sometime in the next year.
  • add this feed to my.Alltop

    Life With Multiple Sclerosis

  • Caregiver? Care Partner? Who Really Cares?

    Trevis Gleason
    17 Apr 2015 | 7:25 am
    Caretakers are in charge of the grounds of cemeteries, buildings, grounds, etc. They take care of something. Caregivers, on the other hand, give care and are referred to in British English as “carers.” If  caretakers take care and caregivers give care, do carers simply care? Now throw in the very American derivations of care partner or carepartner (the latter is from the National MS Society) and I guess we have partners who care. No one with the earlier stages of MS enjoys thinking about the need to be given care. We think of feeding, toileting, transferring, and the far-advanced…
  • A Day Without (Thinking About) Multiple Sclerosis

    Trevis Gleason
    15 Apr 2015 | 7:48 am
    Monday, I was supposed to write a blog and send it in. That obviously did not happen. We don’t own a car here in Kerry. We do rent a car now and again when needed, and this week is one of those times. So, I, piled the happy dogs into the hired transport, took Caryn to work on Monday, and then stopped at a lovely and secluded beach on the way home. We drove down a shaggy laneway to the strand and I set the pack to running about in the sand. I collected my assistive devices of choice for the day – a sturdy walking stick and another cane for support – and set out after them. My intention…
  • The Sliding Scale of MS Symptoms

    Trevis Gleason
    10 Apr 2015 | 10:30 am
    For a long time now, we’ve taken one post per month to ask the question; “How’s your MS today?” Last month seemed to be a bit mental for me and I simply forgot to ask. Using our LWM3S formula whereby 1=the best your symptoms have been since diagnosis and 10= the worst since diagnosis, how is your MS today? I’ve had the chance to speak with some MS specialists in the past few months who really like this as a system of self-reporting.  Even if it is a subjective scale (and, of course, it is), at least it is a scale that helps us to consider how we are feeling relative to that point…
  • Who Is Your MS Hero?

    Trevis Gleason
    9 Apr 2015 | 6:59 am
    Some of you may remember the video I posted last year of Caryn and myself doing the adventure swim Jump for MS to raise awareness of multiple sclerosis. The hearty soul who led us on that trip is Ripley Davenport, and he too has MS. We all have our role models and personal heroes in the MS world. Davenport is one of mine. This coming weekend, Davenport is — in his own words to me via e-mail — “…doing something nuts.” In a fundraising event for MS Ireland, Davenport intends to swim the entire length of the Kenmare River (really an estuary bay of the North Atlantic),…
  • When Art and MS Come Together

    Trevis Gleason
    3 Apr 2015 | 9:47 am
    With the sixth annual, and now international, MS Art Show taking place in Seattle in a couple of months, I have been thinking about art and multiple sclerosis. The old philosophical debate “What is art?” came to mind. Great musical performers like cellist Jacqueline du Pré, country star Clay Walker, and Australian singer Chrissy Amphlett, as well as painters like Jacques Raverat and William Newman, have given us great art while living with MS.  The art of the written word isn’t unrepresented either. Nicola Griffith, Joan Didion, and Miquel Martí i Pol have all…
  • add this feed to my.Alltop

    Brass and Ivory: Life with MS & RA

  • Numbness as a Sign and Symptom of MS

    1 Apr 2015 | 8:43 am
    Numbness is often associated with other symptoms such as tingling (pins-and-needles), weakness, pain, difficulty walking, and increased risk of falls. When a person experiences complete numbness (anesthesia), delayed reaction to harmful situations such as deep cuts or exposure to hot temperatures can be dangerous. You must always remain vigilant.What causes numbness?Sensory information travels along nerve pathways. Disruption anywhere along these pathways can cause numbness or other sensory alterations. Common causes of numbness include demyelinating disorders such as multiple sclerosis,…
  • LDN: Low-Dose Naltrexone

    27 Mar 2015 | 8:45 am
    Have studies explored LDN therapy and MS?In three small studies, LDN was found to be safe and well tolerated in patients with MS. A 6-month phase 2 study in Italy also showed that spasticity levels were significantly improved in patients with PPMS (n=40) who took 5mg of LDN daily. Five participants dropped out of the trial and two participants experienced major adverse events. One participant experienced increased disability. Common side effects included urinary tract infections, mild agitation, sleep disturbance, and increased liver enzymes (Gironi, 2008). In a 17-week randomized,…
  • 23 Mar 2015 | 8:50 am

    23 Mar 2015 | 8:50 am
    HealthCentral has launched the new MS Newsletter. It's easy to subscribe here. As a community member, you can also subscribe to my own posts here.Read this post in its entirety:Have You Signed-Up for the New HealthCentral MS Newsletter?
  • What Does Sick Look Like?

    17 Mar 2015 | 8:52 am
    When someone suffers with a cold, infection, or allergies, it becomes much easier to ‘see’ the sickness. Accompanying each of these conditions is inflammation, the kind that often causes redness that is visible to the observer. If we see someone with signs of infection, the outward signs make it easier to avoid that person to reduce the risk of picking up the offending virus or bacteria. Very helpful, in fact, because who ‘wants’ to be sick?Diseases such as multiple sclerosis also involve inflammation, but not the kind that is visible to the naked eye. Our inflammation is internal,…
  • Living with MS for 10-15 Years So Far

    13 Mar 2015 | 8:56 am
    Fifteen years ago, I became blind. In under two days, I went from ‘something is just not right’ to ‘all I can see is solid gray.’ It was terribly frightening and I wasn’t sure what to expect for the future. One thing I knew at that time was that I did not have multiple sclerosis because my brain was clear of ‘white spots’ or lesions. I also didn’t have a brain tumor. I could walk just fine, so I probably didn’t have neuromyelitis optica (NMO) either. This was before the blood test was available to look for NMO markers to make diagnosis easier, but I was to return to the…
  • add this feed to my.Alltop

    A Short in the Cord

  • Wilmington Walk Results!

    14 Apr 2015 | 5:14 pm
    Update to my last post: Wheeler's Wobblers MS Walk Team Wilmington raised $6,742.72!   Great job, everyone! Thank YOU for your hard work and support!
  • Thank You!

    13 Apr 2015 | 4:48 pm
    I'm sending out a big THANK YOU to everyone who supported the Wheeler's Wobblers MS Walk Team efforts in Wilmington last Saturday: the walkers, the donors, the sponsors, the walk staff.It was a sunny day, but very windy.  We had our famous Wheeler's Wobblers team sign up for a short while before we decided it was not safe and packed it up. Then the wind decided to toss our tent across the parking lot, crashing into the registration tent. Fortunately, the walk had already started so there were not a lot of people in the area.We didn't have our own registration table this year, so it will…
  • One Week To Go! Can You Sponsor Me?

    3 Apr 2015 | 5:17 pm
    Greetings to all friends and followers of A Short in the Cord blog and the Wheeler's Wobblers MS Walk Team! You are the great people interested in helping to rid the world of Multiple Sclerosis.There is one week left before the Wheeler's Wobblers MS Walk team wobbles for the sixth year in Wilmington, Delaware.  We have raised over $45,000 toward MS research and programs.Shirt from The MS ShoppeMy personal goal is to raise $3,000 this year. So far, I have received $2,120 in personal donations.  To those who have already contributed, I say THANK YOU!  Can you help me reach my…
  • Want to Help Me Have a Very Happy Birthday?

    26 Mar 2015 | 9:30 pm
    Yes, it's that dreaded day again. No, not the arrival of the day that reminds me that I am one year older. Although I am one year older today, I am grateful that I am lucky enough to have this complaint.Rather, this is the arrival of the day every year when I ask you to donate to my fundraising efforts for Multiple Sclerosis research and programs.  Yes, this is the equivalent of an NPR fundraising campaign.Will you consider making a tax-deductible donation to my MS Walk fundraising efforts?  Every donation will make me very, very happy. And very, very grateful!If so, you can…
  • Fundraising: One Step at a Time

    24 Mar 2015 | 8:45 am
    Believe me, I know first-hand how challenging it is to ask for help or ask for money.  It’s uncomfortable, it’s scary. It fills you with dread. You don’t want to beg.  I can hear the groaning coming from your belly. "Please, please, please don't make me do this," you plead.The most important thing to remember is that many people actually WANT to help in some way. It makes them feel good about themselves. You are raising money to help find a cure for a disease that debilitates thousands of people in our area. You are raising money to provide programs for people who need help…
  • add this feed to my.Alltop

    MS Trust Recent Story List

  • Housing adaptation delays

    18 Apr 2015 | 4:00 pm
    A report by Leonard Cheshire says that two thirds of councils aren't completing adaptations to homes of for people with a disability within the one year legal limit. Budget cuts are cited as a cause. Independent Housing adaptations
  • Biotin (MD1003) study

    16 Apr 2015 | 4:00 pm
    Pre-publicity for a presentation at AAN conference says that a study of the drug found it was associated with improvements in people with progressive MS. Results will be announced later in the week. MedPage Today MD1003 - Biotin - drugs in development
  • Generic Copaxone approved in US

    15 Apr 2015 | 4:00 pm
    The FDA - the US drug regulator - has approved Glatopa, a generic version of glatiramer acetate, taken as a daily injection. The drug is unlikely to be marketed in the US until later in the year. FDA MedPage Today Glatiramer acetate - A to Z of MS
  • Anti-LINGO-1 trial results

    13 Apr 2015 | 4:00 pm
    A phase 2 study involving 82 people found that repair of myelin on the optic nerve was better in people taking a drug called anti-LINGO-1 than in a group taking a placebo. Further trials are planned. Biogen press release Daily Telegraph Forbes Latest MS research update
  • Secondary progressive MS trial in Oxford

    9 Apr 2015 | 4:00 pm
    BBC Radio Oxford talk about the city being one of the centres for the MS-SMART trial and talk to Dr Jeremy Chataway who is leading the research. (Show available until 8 May) BBC MS-SMART - secondary progressive MS trial starts recruiting - news items
  • add this feed to my.Alltop

    MS Trust Stop Press

  • Phenytoin has neuroprotective effect suggests study

    16 Apr 2015 | 4:00 pm
    Research suggests that phenytoin, a drug used to treat seizures, may protect nerves from MS.
  • Encouraging signs of myelin repair in optic neuritis drug trial

    14 Apr 2015 | 4:00 pm
    In a clinical trial of anti-LINGO-1, people with optic neuritis who took the new drug had improved nerve signals between the eye and the brain.
  • Freedom pass

    14 Apr 2015 | 4:00 pm
    Victoria Rodwell who was diagnosed with MS two year ago blogs about getting a freedom pass for public transport in London.
  • Fingolimod (Gilenya) eligibility extended in Scotland

    13 Apr 2015 | 4:00 pm
    The Scottish Medicines Consortium (SMC), which issues guidance on whether treatments should be funded by NHS Scotland, has announced that fingolimod can now be prescribed as a second line treatment for people who are continuing to have relapses despite taking any one of the disease modifying treatments.
  • Positive interim results from major UK study on MS drugs

    1 Apr 2015 | 4:00 pm
    Results of the analysis of the 6 year data of the Department of Health (DH) MS Risk-sharing Scheme (RSS), published in the Lancet Neurology today, show that the disease modifying drugs Avonex, Betaferon, Copaxone and Rebif are cost effective and are clinically effective in reducing the progression of the disease in people with relapsing remitting multiple sclerosis (MS).
  • add this feed to my.Alltop

    The Lesion Journals

  • LA artist raises awareness about MS through gorgeous mural

    Christie @ the Lesion Journals
    12 Apr 2015 | 7:39 am
    I recently came across this CBS report that highlights LA artist Lydia Emily. Lydia created this amazing mural in downtown LA, hoping to spread awareness about living with Multiple Sclerosis.Have a watch and be prepared to be inspired!
  • You’re invited to share your MS inspired tattoo with

    Christie @ the Lesion Journals
    5 Apr 2015 | 7:50 am
    Getting inked can be a powerful reminder that you are stronger than your MS, and a great way to raise awareness. While I don’t have a tattoo myself (reason being is that I cannot decide for the life of me what to ink myself with – I am forever contemplating the perfect design), I think what our friends over at Healthline are doing is pretty cool. They are hosting the “My MS tattoo” campaign and are looking for tattoos inspired by your fight with MS.Here’s how to participate:Send a clear photo of your tattoo (at least 285x285 in .jpg or .png format) to with…
  • Call your neurologist on Monday morning and ask for guidance on Vitamin D

    Christie @ the Lesion Journals
    29 Mar 2015 | 8:47 am
    There was a common theme at a couple of events I attended recently yet what I heard was nothing new to us, especially if you are reading the news, set up on Google Alerts for Multiple Sclerosis, and hanging out in social media chat rooms. What’s the advice from our favorite neurologists, professors, nurses, MSers, and friends of the MS community?If you live with MS and are not already taking the "sunshine vitamin", call your neurologist on Monday morning and ask for guidance on Vitamin D. The benefits of the sunshine vitamin have been talked about for a while and if you cannot relocate to…
  • Now you can have a gorgeous cane and support Multiple Sclerosis awareness!

    Christie @ the Lesion Journals
    1 Mar 2015 | 9:53 am
    "Canes for a Cure" from Top and DerbyMy friends over at Top and Derby have done it again. They’ve gone ahead and made another gorgeous, design inspired cane. This one is truly special because it is a limited edition Chatfield cane featuring the color of Multiple Sclerosis – Pantone 158 (or, in other words, MS orange!), just in time for the kick off of Multiple Sclerosis Awareness Month that began today. Know what’s even better? These are “canes for a cure” as proceeds from each sale will be supporting research and awareness for Multiple Sclerosis.These guys are awesome. I just love…
  • Orange is the new black via the #Orange4MSF campaign

    Christie @ the Lesion Journals
    28 Feb 2015 | 9:23 am
    Multiple Sclerosis Awareness month kicks off on March 1 and there is no shortage of awareness campaigns out there. The first one that caught my eye is the #Orange4MSF campaign which invites everyone to take a selfie with an orange. Why an orange? Orange is the official color of Multiple Sclerosis awareness and we’re really amped to make orange the new pink, the new black.The Multiple Sclerosis Foundation (MSF) launched this fun effort and its main mission is to spread the word about Multiple Sclerosis, educating the public and building hope for those living with this often debilitating and…
  • add this feed to my.Alltop

    Wheelchair Kamikaze

  • A Stranger in Strange Lands

    The Wheelchair Kamikaze
    13 Apr 2015 | 6:47 pm
    Way back in the summer of 1989, just about a month before my 26th birthday, I unintentionally found myself living in South Florida. An unfortunate confluence of bad decisions on my part, ill will on the part of others, and an ample dose of plain old rotten luck landed me in an environ in which I never intended to land. Without getting into the gory details, suffice it to say that for me Florida was a refuge of last resort, a place I had visited fairly often (I’d long had family living there) but one which I’d never even considered a spot in which I might one day actually reside. In fact,…
  • Bits and Pieces: Short-Term Memory Edition (including MS drug news, restless genitals, natural remedies, Oscar Wilde, ancient viruses, and nauseating MS studies)

    The Wheelchair Kamikaze
    23 Mar 2015 | 4:42 pm
    (For those readers who receive these posts via email, the following contains lots of multimedia eye and ear candy that can’t be accessed via email. I wouldn’t want you to miss out on all of the good stuff, so (click here) to view this post on the Wheelchair Kamikaze website) Over past year or so, I felt like I was experiencing lapses of memory and that I just wasn't as mentally sharp as I used to be. Although my disease continues to decimate my body, it has pretty much left my mind alone, and I thankfully haven’t previously suffered from any of the cognitive difficulties that plague so…
  • National MS Society Decision Makers Take Big Bucks from Big Pharma

    The Wheelchair Kamikaze
    9 Mar 2015 | 8:39 pm
    As I detailed in two recent Wheelchair Kamikaze essays, the American National Multiple Sclerosis Society has repeatedly rejected grant proposals to help fund the only FDA approved human MS stem cell trial currently being conducted in the US, which is now underway at the Tisch Multiple Sclerosis Research Center of New York (click here and here). These two previous posts resulted in a flood of email and phone calls to the powers that be at the NMSS (thank you, dear readers), who responded by saying that the Society makes decisions regarding which research projects to fund based on the…
  • Interview With A Kamikaze

    The Wheelchair Kamikaze
    23 Feb 2015 | 9:48 pm
    I was recently contacted and asked for an interview by fellow MSer Meagan Freeman, who writes the excellent blog “Multiple Sclerosis, Motherhood, and Other Traumatic Experiences: The Life of a Nurse Practitioner With MS”. After checking out Meagan’s blog and making sure she wasn’t part of the vast government conspiracy intent on siphoning off my Cosmic MS Mojo for use in covert attempts to transform reptilian aliens into characters on the “Real Housewives” reality TV shows (you didn’t think those people were actual human beings, did you), I readily agreed. Meagan asked me a…
  • National MS Society FAIL: UPDATE – The NMSS Responds

    The Wheelchair Kamikaze
    9 Feb 2015 | 10:26 pm
    First, I’d like to thank all who helped contribute to the online dialogue (some might even call it a brouhaha) spurred by my last post on this blog (click here), which detailed the American National Multiple Sclerosis Society’s repeated refusals to fund the only current ongoing FDA approved stem cell trial being done on MS patients in the nation, at The Tisch Multiple Sclerosis Research Center of New York. Your response has been a personal inspiration to me, and your comments and sharing of the article on social media have definitely been noticed by the powers that be. Several readers…
  • add this feed to my.Alltop

    Life in Spite of MS Blog

  • Meet Elizabeth Jameson

    20 Apr 2015 | 4:08 pm
    Who is Elizabeth Jameson? An artist for one. What makes her unique is that she has MS and makes lemons out of lemonade or rather art out of brain scans. Cool, huh?
  • MS Relapse

    19 Apr 2015 | 5:39 pm
    What is an MS Relapse? Do you know when you're having one? Is it the same as a flare-up? Or an exacerbation? Find out.
  • MS Caption Contest No. 3

    9 Apr 2015 | 10:19 pm
    MS Caption Contest No. 3 by Akrista (Life in Spite of MS) Here it is. The 3rd MS Caption Contest cartoon. What does it say to you as an MSer? Can
  • My Inspiration

    5 Apr 2015 | 1:42 pm
    Good evening Mr. Montel...., I know you probably won't read this, but I'm writing in hopes that you do. Recently, I was diagnosed with MS, and it affects
  • World MS Day 2015

    4 Apr 2015 | 3:07 pm
    World MS Day 2015 - This year it comes on May 27th. The theme is how everyone around the world is breaking down the barriers to living with MS.
Log in