Multiple sclerosis wellness session offeredBellingham HeraldBELLINGHAM - The new Cascadia Multiple Sclerosis Center is presenting a free session on wellness for people with multiple sclerosis on Wednesday, July 8, and more »
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Google News: Multiple Scelrosis
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Multiple sclerosis wellness session offered - Bellingham Herald
4 Jul 2009 | 12:07 am -
Pendyrus Male Voice Choir and Catrin Aur perform for Hope Multiple ... - Milford Mercury
3 Jul 2009 | 12:39 amPendyrus Male Voice Choir and Catrin Aur perform for Hope Multiple Milford Mercury tomorrow (Saturday), for an evening of Midsummer Music to raise much-needed funds for Pembrokeshire's Hope Multiple Sclerosis therapy centre. and more » -
The unexplained disease of Multiple Sclerosis - Flesh and Stone
2 Jul 2009 | 1:41 pmThe unexplained disease of Multiple SclerosisFlesh and StoneEvery October for over a decade I've been doing the MS-150, a two-day bike ride with thousands of other riders to raise money for multiple sclerosis (MS). and more » -
Symptoms and treatment for multiple sclerosis - Anderson Independent Mail
2 Jul 2009 | 10:39 amSymptoms and treatment for multiple sclerosisAnderson Independent MailQ My daughter may have multiple sclerosis. We really do not know what is causing her symptoms, but I wanted to get a better understanding and more » -
Biogen Idec: Shifting Its Multiple Sclerosis Pipeline - American Chronicle
2 Jul 2009 | 8:00 amEarthtimes (press release)Biogen Idec: Shifting Its Multiple Sclerosis PipelineAmerican ChronicleBiogen's MS pipeline has been in the spotlight this week due to negative Phase II data for CDP323 and the company's announcement of an agreement to develop Biogen Expands MS Profile in Acorda DealTheStreet.comBiogen Buys Rights to Acorda's MS Pill Outside USBloombergAcorda shares fall on Biogen partnershipThe Associated PressBusiness in the Burbs -Boston Herald -MarketWatchall 135 news articles »
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MedicalNewsToday: Multiple Sclerosis
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First Ten-Year Follow-Up Shows That Treatment With AVONEX® Leads To Long-Term Benefits In Early Multiple Sclerosis Patients
4 Jul 2009 | 1:00 amBiogen Idec (NASDAQ: BIIB) announced data results from the CHAMPIONS (Controlled High-Risk AVONEX® (interferon beta-1a) Multiple Sclerosis (MS) Prevention Study In Ongoing Neurologic Surveillance) study, an open label follow-up to CHAMPS (Controlled High Risk Subjects AVONEX MS Prevention Study). Based on the CHAMPS study, AVONEX was granted approval for use in patients who experienced their first clinical MS episode with MRI findings. -
Mri Data Showing Tysabri® Promoted Remyelination Presented At The 61st Annual Meeting Of The American Academy Of Neurology
4 Jul 2009 | 1:00 amBiogen Idec (NASDAQ: BIIB) and Elan Corporation, plc (NYSE: ELN) announced results of a study demonstrating that TYSABRI® (natalizumab) promoted regeneration and stabilization of damage done to the myelin sheath, as measured by advanced MRI technology. Damage to the myelin sheath causes the symptoms of multiple sclerosis (MS). -
Insight Into How Brain Stem Cells Develop Into Cells Which Repair Damaged Tissue
3 Jul 2009 | 12:00 amThe joint research, funded by the National Multiple Sclerosis Society and the UK MS Society as well as the National Institutes of Health and Howard Hughes Medical Institute, was conducted by scientists at the University of California San Francisco (UCSF) and University of Cambridge and was published in the journal Genes and Development. -
UCB And Biogen Idec Discontinue Phase II Clinical Trial Of CDP323 - Analysis Showed No Clinically Relevant Benefit For Patients
2 Jul 2009 | 5:00 amUCB and Biogen Idec announced today the discontinuation of the Phase II clinical trial of CDP323 for the treatment of relapsing multiple sclerosis (MS). Preliminary interim efficacy analysis showed that patients enrolled in this clinical trial did not benefit as expected from CDP323 compared to placebo after a six month treatment period. No cases of PML (progressive multifocal leukoencephalopathy) were noted. -
Hard To Treat Diseases (HTDS) Clinical Trial Update On Therapeutic Effects Of Combined Treatment With Ribavirin And Tiazofurin
2 Jul 2009 | 2:00 amHard To Treat Diseases (HTDS) Chief Scientist with its Slavica BioChem subsidiary, Dr. Sanja Pekovic provided updates on recent clinical trials with animal subjects in regards to the use of Ribavirin And Tiazofurin for the potential treatment of Multiple Sclerosis (MS). Dr.
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ScienceDaily: Multiple Sclerosis
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In Pursuit Of A Happiness Gene
2 Jul 2009 | 11:00 amThe pursuit of happiness characterizes the human condition. But for those suffering from stress, money trouble or chronic illness, a positive outlook on life can be difficult to find. Now, a researcher says we should look to our genes. -
Why Repair Of Brain's Wiring Fails
30 Jun 2009 | 9:00 pmScientists have uncovered new evidence suggesting that damage to nerve cells in people with multiple sclerosis accumulates because the body's natural mechanism for repair of the nerve coating called "myelin" stalls out. -
Advanced Nerve Cell System Could Help Cure Diabetic Neuropathy, Related Diseases
28 Jun 2009 | 11:00 pmResearchers have created the first lab-grown motor nerves that are insulated and organized the same way they are in the body. The group's model system could dramatically improve understanding of the causes of myelin-related conditions such as multiple sclerosis, diabetic neuropathy and Guillian-Barré syndrome, potentially enabling the discovery and testing of new drug therapies. -
New Control System Of The Body Discovered
27 Jun 2009 | 9:00 pmResearchers have ameliorated inflammation of the brain in mice caused by immune cells. A receptor they discovered on T cells in the CNS plays the key role. They showed that this bradykinin receptor 1 controls the infiltration of immune cells into the CNS. When they activated B1 in mice with encephalitis, the inflammation markedly decreased. This may unveil a new target for the treatment of diseases such as multiple sclerosis. -
Tracking Down The Causes Of Multiple Sclerosis
24 Jun 2009 | 11:00 pmDespite intensive research, the factors that trigger multiple sclerosis and influence its progress remain unclear. Scientists have succeeded in attaining three important new insights into the disease. It would appear that B cells play an unexpected role in the spontaneous development of multiple sclerosis and that particularly aggressive T cells are activated by different proteins.
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This is MS
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Oral Therapy Laquinimod to Start Phase III Trials for RRMS
The race for an oral multiple sclerosis medication took one further step today, when Teva and Active Biotech announced that they were going to begin the final Phase of clinical testing for their pill candidate, called laquinimod. This followed the successful conclusion of Phase II, as well as consultations with the US FDA. Drugmakers are cautious... Story continues, please click "read more"... -
MS Walking Improvement Drug Gets FDA Help
Most of the MS therapies in the drug development pipeline, or even available today, are targeted at reducing relapses and decreasing disability progression. Which makes Acorda Therapeutics'' Fampridine-SR quite interesting. In Phase III trials, it is targeted specifically at one particularly onerous aspect of the MS burden-- impact on walking ability. Acorda and the United States Food and Drug Administration recently reached an agreement on a pathway to getting Fampridine approved for this indication. In addition to a Phase III trial currently underway, Acorda will work with the FDA''s… -
Daclizumab Shows Promise in Phase II Trial for Relapsing Remitting MS
Just over a year ago, PDL Pharmaceuticals partnered with MS giant Biogen (Avonex, Tysabri) to bring a drug known as daclizumab through trials for MS. Daclizumab is today used for the prevention of kidney transplant rejection, under the marketing name Zenapax (r). The partnership seems to be bearing fruit, as the companies announced that Daclizumab hit its targets in its first Phase II multiple sclerosis trial. Please click ''read more'' -
Minimal Changes in Cognitive Function of Relapsing-Remitting MS''ers in a 10-year
The question of cognitive decline as a result of MS is a serious one. If the ac*****ulation of physical disability is a hallmark of the condition, its affect on cognitive dysfunction is not always so obvious. In fact, in a recent trial for Copaxone (glatiramer acetate) observing cognitive scores, the placebo group improved just as much as the Copaxone-treated group over two years. Perhaps 2 years was too short to see a difference, so a new study observed a group of MS''ers over TEN years. Please click ''read more'' to see the rest of the story... -
PML Seen with Rituxan for Lupus
Our old nemesis, progressive multifocal leukoencephalopathy, or PML, has reared its ugly head yet again, this time in association with another of Biogen''s drugs, Rituxan. PML, if you recall, was implicated in the multiple deaths associated with Tysabri last year, leading to its temporary suspension. After much analysis and an unprecedented patient board hearing by the FDA... Story continues, please click ''read more''
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MedicineNet: Multiple Sclerosis
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Smoking May Trigger Brain Damage
29 Jun 2009 | 12:00 amTitle: Smoking May Trigger Brain DamageCategory: Health NewsCreated: 6/27/2009 7:00:00 AMLast Editorial Review: 6/29/2009 -
Health Tip: Why is the Room Spinning?
23 Jun 2009 | 12:00 amTitle: Health Tip: Why is the Room Spinning?Category: Health NewsCreated: 6/23/2009 7:00:00 AMLast Editorial Review: 6/23/2009 -
Muscle Spasms
17 Jun 2009 | 12:00 amTitle: Muscle SpasmsCategory: Diseases and ConditionsCreated: 6/16/2009Last Editorial Review: 6/17/2009 -
Breast-feeding OK for Most Moms with MS
9 Jun 2009 | 12:00 amTitle: Breast-feeding OK for Most Moms with MSCategory: Health NewsCreated: 6/9/2009 7:00:00 AMLast Editorial Review: 6/9/2009 -
Recession Means Free Rx Drugs for Some
8 Jun 2009 | 12:00 amTitle: Recession Means Free Rx Drugs for SomeCategory: Health NewsCreated: 6/8/2009Last Editorial Review: 6/8/2009
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Health Central: Multiple Sclerosis
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Hospitals close to agreeing to accept Medicare cuts
2 Jul 2009 | 1:16 pmAccording to Kaiser Health News, the hospital industry is about to agree to accept federal funding cuts of $150 billion to $170 billion over the next decade to help pay for efforts to reform the national healthcare system. -
Wal-Mart supports employer health insurance mandate
30 Jun 2009 | 12:40 pmThe Associated Press is reporting that the nation's largest private employer, Wal-Mart, has announced that it supports an employer health insurance mandate. -
Clinical trial: Cymbalta for MS-related pain
29 Jun 2009 | 11:25 amCall for adults who have multiple sclerosis to participate in a study. -
10th Tysabri-related brain inflammation case reported
29 Jun 2009 | 11:15 amDrugmaker Biogen Idec Inc. is reporting a tenth case of the potentially lethal form of brain inflammation known as PML in a user of its drug Tysabri. -
How to get quick help in the ER
29 Jun 2009 | 7:22 amThe average total wait time in an emergency room in the United States is four hours and three minutes, but experts say there are ways you can cut down your wait.
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Yahoo! News: Multiple Sclerosis
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Mri Data Showing Tysabri® Promoted Remyelination Presented At The 61st Annual Meeting Of The American Academy Of ... (Medical News Today)
4 Jul 2009 | 4:10 amBiogen Idec (NASDAQ: BIIB) and Elan Corporation, plc (NYSE: ELN) announced results of a study demonstrating that TYSABRI® (natalizumab) promoted regeneration and stabilization of damage done to the myelin sheath, as measured by advanced MRI technology. Damage to the myelin sheath causes the symptoms of multiple sclerosis (MS). -
First Ten-Year Follow-Up Shows That Treatment With AVONEX® Leads To Long-Term Benefits In Early Multiple Sclerosis ... (Medical News Today)
4 Jul 2009 | 4:10 amBiogen Idec (NASDAQ: BIIB) announced data results from the CHAMPIONS (Controlled High-Risk AVONEX® (interferon beta-1a) Multiple Sclerosis (MS) Prevention Study In Ongoing Neurologic Surveillance) study, an open label follow-up to CHAMPS (Controlled High Risk Subjects AVONEX MS Prevention Study). -
Multiple sclerosis wellness session offered (The Bellingham Herald)
4 Jul 2009 | 12:05 amBELLINGHAM - The new Cascadia Multiple Sclerosis Center is presenting a free session on wellness for -
Symptoms and treatment for multiple sclerosis (Anderson Independent-Mail)
2 Jul 2009 | 10:34 amMultiple sclerosis (MS) is a disease of the central nervous system that results in miscommunication between the brain and other parts of the body. -
UCB, Biogen discontinue phase II trial of CDP323 for relapsing multiple sclerosis (PharmaBiz)
2 Jul 2009 | 1:48 amUCB and Biogen Idec announced the discontinuation of the phase-II clinical trial of CDP323 for the treatment of relapsing multiple sclerosis (MS). Preliminary interim efficacy analysis showed that patients enrolled in this clinical trial did not benefit as expected from CDP323 compared to placebo after a six month treatment period.
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L.A. Times: Multiple Sclerosis
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UCB And Biogen Idec Discontinue Phase II Clinical Trial Of CDP323 - Analysis Showed No Clinically Relevant Benefit For Patients
UCB and Biogen Idec announced today the discontinuation of the Phase II clinical trial of CDP323 for the treatment of relapsing multiple sclerosis (MS). Preliminary interim efficacy analysis showed that patients enrolled in this clinical trial did not benefit as expected from CDP323 compared to placebo after a six month treatment period. (Source: Health News from Medical News Today) -
UCB And Biogen Idec Discontinue Phase II Clinical Trial Of CDP323
UCB and Biogen Idec announced the discontinuation of the Phase II clinical trial of CDP323 for the treatment of relapsing multiple sclerosis (MS). Preliminary interim efficacy analysis showed that patients enrolled in this clinical trial did not benefit as expected from CDP323 compared to placebo after a six month treatment period. -
Why Repair Of Brain's Wiring Fails
Scientists have uncovered new evidence suggesting that damage to nerve cells in people with multiple sclerosis accumulates because the body's natural mechanism for repair of the nerve coating called "myelin" stalls out. -
Why Repair Of Brain's Wiring Fails
Scientists have uncovered new evidence suggesting that damage to nerve cells in people with multiple sclerosis accumulates because the body's natural mechanism for repair of the nerve coating called "myelin" stalls out. -
Biogen Reports 10th Case of PML Linked to Tysabri
A 10th patient taking Biogen Idec Inc's multiple sclerosis drug Tysabri has developed progressive multifocal leukoencephalopathy (PML) since it was reintroduced to the market in July 2006. Reuters Health Information
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About.com: Multiple Sclerosis
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Heat and MS: Okay, it's officially hot now...
30 Jun 2009 | 1:20 pmOkay, it's official. It's hot. It's humid. This means that for those of us with MS we have a choice - stay inside and be kinda mad and anxious about... -
Transcranial Magnetic Stimulation for MS
29 Jun 2009 | 10:03 pmTMS (transcranial magnetic stimulation) is a therapy that uses magnetic pulses on the brain to create an electrical field in brain tissue. This can help "restructure" some neural pathways and... -
Julie' Low Dose Naltrexone Journal: Don't Double Up and Don't Skip Doses
23 Jun 2009 | 2:10 pmOkay, I'll be the first one to admit that there are days that I take my Copaxone 12 hours later than I usually do. I have also forgotten to take... -
Multiple Sclerosis Treatment in Baghdad
18 Jun 2009 | 10:02 pmDr. Abdul Majeed Hammadi is using a state of the art stem cell treatment in the midst of Baghdad. His treatment uses stem cells and he has performed it on... -
Learning Increases Myelination
17 Jun 2009 | 10:02 pmResearchers at Oxford have proven that, when people learn a new skill (juggling), brain imaging shows that the white matter in their brain increased. This increase in white matter is...
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HealingWell: Multiple Sclerosis
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Smoking May Trigger Brain Damage news
Compound in tobacco causes attack on healthy cells, study finds -
Breast-feeding OK for Most Moms with MS news
But each woman's circumstances are different, expert cautions -
Herb May Offer Hope for Autoimmune Diseases news
In lab and mice studies, compound halts disease without crimping immune system -
Synthetic Vitamin A-Like Molecule Blocks Early MS news
Tests in mice show AM80 prevents early symptoms but not chronic ones, study finds -
Researcher IDs Narcolepsy as Autoimmune Disease news
Discovery of 2 gene variants that kill off protective hormone could lead to new treatments
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Down the MS Path
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MS Progressive Types: The Human Side
1 Jul 2009 | 12:48 pmThis series on Progressive MS for the MS Section of Health Central has included long articles that paint a bleak picture of life with MS. This one adds a personal touch, including stories from several MSers living with one form or another of Progressive MS. This article was first published June 17. Here it is --MS Progressive Types: The Human SideWith Progressive MS, there is not a moment free from the thought and feel of MS. Pretty scary? This series of articles started with an explanation of the different types of MS and then continued by expanding on Progressive MS. Some of the information… -
Progressive MS Types: Research
23 Jun 2009 | 5:31 pmIn the series of articles on Progressive MS for the MS Section of Health Central, this one talks aboutresearch. This article was first published June 10. Here it is --Progressive MS Types: Research" What is research but a blind date with knowledge?" ~ Will Harvey At least 60% of all MSers have Relapsing/Remitting MS (RRMS). It follows that most clinical trials apply to RRMS as well. The goal of these clinical trials is to slow or prevent slipping into the chasm known as Chronic Progressive MS. There is less known and fewer treatments for progressive MS types and also less research to address… -
Pictures of MS
19 Jun 2009 | 1:35 pmCan a picture convey what MS means to you?The Multiple Sclerosis Trust is a UK charity with a mission to provide information, education for professionals, research funding and support. They sponsored a photography contest for MSers to show what MS means to them. This is exciting. My Facebook friend Denise Walburgh is a finalist in the photography contest!There are nine photographs with a sentence or short paragraph that how or why the image represents MS. One says ". . . the picture says it all." I think each of the pictures provides a personal voice we can all understand.Check out the… -
MS Progressive Types: Treatments
17 Jun 2009 | 3:17 pmIn the series of articles on Progressive MS for the MS Section of Health Central, the third one talks about treatments. This article was first published June 3. Here it is -- MS Progressive Types: TreatmentsThe MS community was thrilled in 1993 when the FDA announced approval of the first drug that addressed the disease instead of just symptoms. Approval of Interferon B opened up a whole new world of possibilities for MSers. In the next few years, a family of drugs -- Avonex, Betaseron, Copoxane -- and later, a fourth option -- Rebif -- became standard treatments as disease-modifying… -
MS Progressive Types: Living with It
10 Jun 2009 | 11:19 amIn the series of articles on Progressive MS for the MS Section of Health Central, the third one talks about living with it. This article was first published May 26. Here it is -- MS Types: Living with Progressive MSEach of us has our own way of dealing with bad news, and an MS diagnosis is bad news. When someone is newly diagnosed, it is pretty scary. Some people bend over backwards to learn everything they can. Others just live with it awhile, hoping for the best. We all learn as we go along because living with MS is such an ongoing challenge. Living with progressive MS is even more of a…
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Multiple Sclerosis Blog
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Go to the MSBPodcast wiki intead.
9 Jun 2009 | 12:02 pmEnough of this mollycoddling... :-)I'm stopping all further blog and podcast posting and directing you to go to the MSBPodcast wiki instead.Click here for my new wiki site.Feeds: Atom XML: http://multiplesclerosisblog.blogspot.com/atom.xml Podcast: http://msb.libsyn.com XML: http://msb.libsyn.com/rss iTunes: http://phobos.apple.com/WebObjects/MZStore.woa/wa/viewPodcast?id=120932170 -
msb-0362 Arrgh I'm a pirate (Its legal)
7 Jun 2009 | 10:00 pmmsb-0362 Arrgh I'm a pirate (Its legal)YouTube videosAdvance Patrol - "Blågula färger"..Advance Patrol - Soy De La Calle..introDisclaimer! Disclaimer! Disclaimer!MSBPodcast is "not" any kind of a medical podcast.It is by and for MSers.Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.The path to illness is shadowy, murky and rough strewn.The path to wellness is lit by the lamp of knowledge.----I have a quick and easy, painless and not too figgin' nosy customer survey that I really, really,… -
msb-0361 We don't call them Reds now, do we?
2 Jun 2009 | 10:00 pmmsb-0361 We don't call them Reds now, do we?YouTube videosintroDisclaimer! Disclaimer! Disclaimer!MSBPodcast is "not" any kind of a medical podcast.It is by and for MSers.Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.The path to illness is shadowy, murky and rough strewn.The path to wellness is lit by the lamp of knowledge.----I have a quick and easy, painless and not too figgin' nosy customer survey that I really, really, really need you to go and fill out.You can go to my podcast "page"… -
msb-0360 Making enem, uh, friends across the world.
31 May 2009 | 10:00 pmmsb-0360 Making enem, uh, friends across the world.Theme Song to Alfred Hitchcock Presents..YouTube Theme Song to Mister Roger's Neighborhood:..Theme Song to The Peanuts (Linus and Lucy)..Theme Song to The Man from U.N.C.L.E...Theme Song to Mission: Impossible..Theme Song to The Twilight Zone..introDisclaimer! Disclaimer! Disclaimer!MSBPodcast is "not" any kind of a medical podcast.It is by and for MSers.Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.The path to illness is shadowy, murky… -
msb-0359 Beautiful Day
27 May 2009 | 10:00 pmmsb-0359 Beautiful DayYouTube Beautiful Day:..introDisclaimer! Disclaimer! Disclaimer!MSBPodcast is "not" any kind of a medical podcast.It is by and for MSers.Its purpose is to keep us entertained, to explain our symptoms, to remark on our discoveries, and to raise the general consciousness about our disease.The path to illness is shadowy, murky and rough strewn.The path to wellness is lit by the lamp of knowledge.----I have a quick and easy, painless and not too figgin' nosy customer survey that I really, really, really need you to go and fill out.You can go to my podcast "page" […
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Blindbeard's MS Blog
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Fresh Fish And Violations
1 Jul 2009 | 5:21 amIf you hadn't noticed, I'm enjoying putting several different subjects in the title of my posts. It keeps me on the path of what I intend to write about so I don't go off into no-man's-land -- even though that is a great vacation spot, so much better than hell.I went to that damn exercise thing yesterday and I lived. I didn't expect to survive it, so it was an unexpected surprise that I wasn't carried out in a coffin. They pounced on me like I was a fresh fish entering a prison that was dying for someone new to violate. They circled their wagons (or assistive devices) around me and pelted me… -
Irritants And Blood Loss
30 Jun 2009 | 4:37 amEveryone has that one thing that annoys them more than anything else. That one thing that will get your hackles up and bring out the beast in you. For both my sisters it is fairness. They want everyone to be treated the same and not to show favoritism to anyone, be it the work place or with their kids. For me it is rudeness. That will stick in my craw every time and bring out the very worst in me. I live by the ol' axiom that manners are a social lubricant, even though my little sister can't get past the "lubricant" part to process the rest of that rule. ("What kind of lubricant? KY? -
You Take The Good, You Take The Bad
25 Jun 2009 | 5:02 amYou take them both and then you have the facts of life, the facts of life! Too bad there is no way for me to put music notes around all that, but I'm going to take a gamble and say that you all know that song as well as I do. After my recent visit at a pain management clinic, I received several ideas of ways to help my pain and several more prescriptions to add to my impressive collection of meds. I have tried both of those nuggets of wisdom and couldn't help thinking to myself, "who knew doctors knew so much?" Certainly not me.The pain doctor told me to try wearing a satin camisole thingy… -
Where Have I Been?
23 Jun 2009 | 4:02 amDo I know how worried I was? I couldn't have at least called, dropped a postcard in the mail, sent smoke signals?! I almost started calling the hospitals and morgues I was so worried. Next time I do that, I need to call and let myself know that I will be late. After all the recent stressful things, I feel so relieved that it is all over and like I want to take a Rip Van Winkle-style nap.Blindbeard v BastardI won.That damn exercise study.I lost. I had to wear a skin tight wrestling suit and let a bunch of whippersnappers stick reflective things all over me to measure my balance. I now have to… -
Boogers, Bitches, And Blindbeard's Blues
14 Jun 2009 | 3:33 amIn an uneventful life, it is rare for me to have so many things going on right now. It gives me a pleasant feeling of busyness and deadlines that I inexplicably miss. For once it is pouring and I am relishing it, especially as I know it won't last.BoogersYesterday when I was drying off from my shower I noticed a gigantic booger on the towel. I didn't think it was mine as my nose was not runny and I didn't see any bats in the cave when I checked my nose to be sure. I figured I must not have noticed when I dried my face, even though a booger of that size should be felt when exiting one's nose.
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Trevis's MS Blog
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The MS Community Weighs In on the Health Care Debate
2 Jul 2009 | 2:45 pmWhat does the multiple sclerosis community think about changes to medical policy? This week in Washington, DC lawmakers began what is sure to be an arduous national debate on the subject of health care reform. Already “both sides” are waging an advertising campaign based upon people’s fears and hopes. I figured that as we go into the long Independence Day holiday weekend, we might afford ourselves to express (and maybe someone making decisions a chance to read) our thoughts on the subject. Few diseases have a more significant lifetime economic impact as multiple… -
Is It Multiple Sclerosis or Something Else?
29 Jun 2009 | 11:08 amIt is not only those newly diagnosed (or awaiting confirmation of diagnosis) who wonder if the things happening to their bodies are really caused by multiple sclerosis. I’ll admit to a time, now and again, when I wonder, aloud sometimes, “Do I really have MS?” My medical team assures me. I’m not saying that I/we don’t battle our symptoms daily. I’m not trying to minimize the effects this disease can/does have on us. I’m just saying… It wasn’t that long ago when MS was almost totally a “diagnosis of omissions,” meaning… -
Medical Tourism and Multiple Sclerosis
26 Jun 2009 | 11:06 amWe’ve spoken a wee bit (and I’m talking “small” here, not bladder issues) about having to travel for multiple sclerosis treatment. Some of our community have to drive hours to see a specialist. In the past months, however, someone in my close MS community has taken the need to travel to a nearly bi-hemispheric level. One of the former members of Poker Night moved to browner pastures a couple of months ago (seriously, where could you find “greener” than Seattle?). He and his wife moved to be closer to family as his disability progressed. His multiple… -
MS Self-Help Groups: What’s Your Take?
24 Jun 2009 | 2:59 pmAs many of you know, I lead a National MS Society self-help group in Seattle for men with MS. This morning, as the sun shone brightly outside my study window, I dialed in to a training call with other leaders around the country. The topic of the call had to do with “marketing” our groups to increase attendance. Ideas from presenters ranged from the mundane (like posting fliers in doctor’s offices) to the hi-tech (”tweeting” and the like). My group has grown “organically” - ok, The Seattle Times front page article about our group didn’t hurt. -
Vacations and multiple sclerosis
22 Jun 2009 | 2:01 pmGreetings! I offer my apologies for not being around much last week. It wasn’t for lack of trying, rather due to lack of Internet access. I spent last week in the beautiful land of Yellowstone National Park! I was not vacationing, rather spending the week consulting and training chefs at various lodges in the park. It was grueling and I certainly wish that I had refilled my prescription for anti-fatigue meds prior to the trip! It is also absolutely stunning in its beauty. As I mentioned before, there was no Internet access in the park, save for a faint Wi-Fi signal outside the…
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Conquer Multiple Sclerosis
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Fact or Fiction? Multiple Sclerosis Alternative Therapies
23 Jun 2009 | 8:14 amHere are some popular misconceptions about alternative MS treatments. Some surprising facts and things for you to think about. Fiction:Alternative medicine is completely natural and nontoxic. Fact:Not all alternative therapies use natural substances.And even a natural substance can be toxic.Remember, poison ivy is completely natural. Fiction:Alternative medicine is non-invasive and painless. Fact:Some alternative therapies are invasive, painful, and may produce serious side effects.Examples include chelation therapy, colonic irrigation, and bee sting therapy. Fiction:Alternative medicine is… -
Interview with Multiple Sclerosis Author
9 Jun 2009 | 10:21 amPlease welcome Jeffrey Gingold, diagnosed with multiple sclerosis and author of Mental Sharpening Stones and Facing The Cognitive Challenges of Multiple Sclerosis -
What Information Are You Privy To?
8 Jun 2009 | 1:31 pmLast night I was watching the famous movie “Titanic” with my wife and daughters.A movie that many of us have seen over and over again, and I’ll admit I’m victim to this to.Seeing the movie last night was just as good as seeing it for the first time how many years ago I don’t know. But that’s not what I wanted to talk about. What I did want to talk about is the relationships in this movie. The relationships between rich and poor.And how the rich had privileges that the poor did not. How the poor slept in the belly of the boat, and the rich slept in exquisite state rooms with hand… -
Mental Sharpening Stones
6 Jun 2009 | 9:11 amI just finished reading the book, Mental Sharpening Stones, manage the cognitive challenges of Multiple Sclerosis, by Jeffrey N Gingold.This is a fantastic book for anyone facing the challenges of living successfully with Multiple Sclerosis. The image of sharpening stones is laid out in the introduction from a time that precedes my life as a child.It is about a man with a cart of sharpening stones that would walk through a neighborhood and invite the women to bring their knives out to be sharpened.This man would expertly pick the proper stone to match the knife that was given to him.First… -
The Never Ending Trail
1 Jun 2009 | 5:15 amThis past weekend I attended a Multiple Sclerosis conference here in Wisconsin. The event was a two day shin-dig featuring guest speakers from around the U.S.One of them being Maureen Manley and Jeffrey Gingold.I hope that maybe you might have heard of one of these individuals.They both have multiple sclerosis, Maureen a competitive bike rider and Jeffrey an author of several books. I had the opportunity to speak to both of the privately, and this is something I’m very glad I did. Why? Well I learned that how I feel about multiple sclerosis and my life is not too unusual. All 3 of us had…
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The MS Recovery Diet
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food for the 4th
3 Jul 2009 | 11:24 amHappy Independence Day! May our independence also include greater independence from compromises due to MS through the diet. Here is an egg substitute I came across instead of using only the EnerG product, Egg Replacer. Use 1 tablespoon ground flaxseed meal to 3 tablespoons water. Let stand 1 minute. Add as you would an egg or the egg substitute. It works! I was invited to our friends' annual 4th pot luck picnic and knowing my limitations, they put me in charge of a grain salad. I chose to make tabouli since I have an overabundance of fresh mint growing outside my back door. You can use any… -
Food Rotation and Moderation reminder!
25 May 2009 | 8:14 amI didn’t think I needed a reminder but apparently I did! Due to having a very full life while completing a big project (something I am still marvel at doing just 3 years after beginning the diet) I had about a week or two when I was out of my normal routines of eating. I began to eat more spelt products than usual because it was easy when I was on the go. As we have often said before, spelt flour recipes are in our book because spelt is low in gluten although still contains gluten. For folks who have little or no negative response to gluten, it is a good substitute for wheat in baking and… -
Stress
10 Apr 2009 | 3:24 pmStress S eparation from our higher nature T rying to insist life be different R ejecting change E ffectively frozen S truggling against, not allowing in S uffering, without hope There have been a lot of stress related stories coming from those of you on the diet recently. The economy is hard on us all, relationships are suffering, family dynamics rearrange, and unexpected crises erupt. Inevitably, our health immediately reflects the stress that ensues. Many of you are having to adjust to major life changes which is not easy for anyone, even without MS. What to do? Remember that this too,… -
Support
2 Apr 2009 | 7:45 amI just got off the phone with a woman from Cleveland who is pretty compromised with MS. She has been on the strict version of the diet (proteins and vegetables only)for a year and wanted to thank us for the book and to say how much she has already improved on her stronger side. She gets to a gym 2 times a week and says that her trainer also notices her new found strength. She thanked me as well for mentioning how important resting and napping was to the healing process. It has helped her to keep positive about her needing to close her eyes and considers it the time when a lot of healing takes… -
Change of Season
1 Apr 2009 | 9:17 amDepending on where you are located, astronomical spring means a change in the weather patterns- warmer, colder, or more or less rain. But wherever we are it means a shift in the amount of light we receive. Vitamin D is very important for all of us to heal and to stay healthy. (Ashton Embry at ms-direct.org has done a great deal of research on this aspect of MS.) If you cannot tolerate absorbing any of the sun’s rays by getting out of doors for even short periods of time, than you may want to consider getting a simple blood test to evaluate whether or not you will need to take a supplement.
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My Journey: Living well with MS
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MS Exacerbation and Grieving
27 Jun 2009 | 3:51 pmA video about grieving and MS and the passing of my Father. -
Dealing with Changes - Anxiety Spiking a Bit
15 Jun 2009 | 8:37 amI have been having so much muscle tightness and pain in my hip area that using my walker ("Jimmy Walker as CC calls it) is imperative for any amount of walking past a half mile.I finally got my DepoProvera shot and that has actually been a lifesaver. I was going through some pretty rough days with depression and anxiety. I really missed my Dad but know that not having the Depo in my system was causing a lot of endometrial pain AND messing with my hormones and moods. Very, very nasty stuff. I am feeling better now and think I have a little more control over that part of my life. I know that… -
Endometriosis Acting Up in Remaining Ovary and Bowel -- Just Shoot me!
24 May 2009 | 11:11 amTo shoot or not to shoot -- that is the question. I was on Lupron for a year and then went to Depo Provera (as an add-back kind of therapy to help with the pain). I am past my 3 months for my shot,Of all of the crazy things, Endometriosis has decided to pop it's head into the mix of my life and make things kind of miserable. I have just popped a Lortab 7.5 and should be feeling some relief soon (this stops some of the bad bowel issues too because it seems to quiet the bowel to a point where I can deal with it). I am stuck between a rock and a hard place because the endometriosis and bowel… -
A week without Dad ... He is Around
21 May 2009 | 4:08 amI have to say that I feel the spirit of my Dad and that he is helping us accomplish a lot of the stuff that has to be done and precedes a funeral Mass. Mom has seemed somewhat at peace and so strong through the past week but I think that she has her moments. I feel that Dad is in a much better place now and happy to have a few reminders that will always stay with me and keep us close in spirit.Thankfully, the steroid side-effects seem to be waning more and I have my vision back. I can't ask for more than that, really. Solumedrol is amazing for that. It kicks things in the butt and puts the… -
My Dad's Obituary -- Working Through It
19 May 2009 | 2:16 pmRolando de Avila, 74, passed away on Wednesday, May 13, 2009 at Memorial Sloan Kettering Hospital in New York City surrounded by his loving family. Born on January 1, 1935 in Cochabamba, Bolivia he was the son of the late Eduardo and Emma (Canedo) de Avila.Raised and educated in Bolivia, he came to the United States in 1956 to pursue further education as Communications Director of the Bolivian Oil Pipelines. It was at this time the he met his future wife Patricia Ann Bruce whom he married in 1958. The couple celebrated their 50th Anniversary in 2008. After returning to Bolivia for 5 years to…
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My Journey with MS
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Insurance Companies suck
2 Jul 2009 | 4:40 amIt is 4:30 in the morning here in sunny California ( well at least it will be sunny in a few hours) and I've already been up an hour. I woke up to terrible joint pain. Last night was Rebif night and the side effects have decided to make themselves known. I'm not one to take any extra medication (they have me on so much now I don't want to take anything else) but i had to take my prn prescription pain medication. I'm in that much pain.We're still waiting for the da*# insurance company to approve me going to UCLA for the Tysabri evaluation. It's already been two weeks. I wish they would get off… -
Just call me "wifey" wanna be
30 Jun 2009 | 5:46 pmToday started off is it's usual fashion as I stated in my earlier blog. After blogging I got up, dressed and pondered about what to do with my day. I use my scooter even in the house for energy conservation, so I was feeling pretty good. I decided to tackle the laundry. I have someone who comes in and cleans my house and does the laundry for us so Mark doesn't have to to everything on the few days he's actually home.Anyway, as I said I decided to tackle the laundry. I sorted and started the load of towels. YEAH. I was actually doing something "wifey". (I always loved keeping my house neat and… -
Goodbye June
30 Jun 2009 | 7:48 amMost folks enjoy the summer. The BBQ's, warm weather, boating, all the family gatherings and playing touch football. I used to be one of them. Not now, no way. I dread the summer. The heat keeps me housebound most of the time. Thank goodness for the cooling vest. At least it gives me a solid 2-4 hours outside depending on how hot it is, and it's been HOT here this June. I'm sorry to see June go, even as hot as it's been. Means July will be coming in with it's usual heat. At least we don't have the humidity some of you have to deal with.Today is off to a good start. My pain level is manageable… -
The Bow Award
29 Jun 2009 | 6:45 pmThank you Ms. ME http://txphoenix.blogspot.com/ for The Bow Award! I'm glad you enjoy my blog. I, as everyone else who blogs, often struggle with a topic or exactly "how" to say something.So, a year ago, when I started blogging (can you believe it will be a year July 31st?!), I promised myself I would write following ONE simple principle. Keep it honest, even when it was painful. (Heck, ESPECIALLY when it's painful). For me, blogging has been a great therapy. It's helped me put emotions, feelings and frustrations into words. Words that I may not have been able to find any other way. Blogging… -
Letter to caregivers.
28 Jun 2009 | 10:25 amObviously MS changes your life. The diagnosis shakes you to your core and the disease itself can be kind or cruel depending on it's own perspective. MS, for me, is something that has a life of it's own. No matter what I do, what treatments I take, MS is going to do to my body what MS is going to do. Period.As MS has attacked my body I have lost more and more of some of the physical abilities I always took for granted. Walking for one, finding words for another. I, like most MSers learned the hard way what my limitations are, and what the consequences I have to deal with, often for days, if I…
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I'm an MS Activist
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In the News: Agreement Reportedly Near on Health Bill
26 Jun 2009 | 1:23 pmSenate health-care negotiators said yesterday they were closing in on a $1 trillion health-care bill that would be fully funded by tax increases, Medicare cuts and new penalties for employers who do not offer health insurance. Senate Finance Committee Chairman Max Baucus (D-Mont.) said members of the panel would consider a menu of policy and financing options over the Fourth of July recess, with the goal of producing a deficit-neutral 10-year bill shortly after Congress returns July 6. "We're getting a lot closer to an agreement," Baucus told reporters after the committee reviewed new… -
Announcing National MS and Parkinson's Disease Registries Act
18 Jun 2009 | 6:45 amRegistry Would Collect Accurate MS Data and Risk FactorsThank you to all MS activists who have been pushing for a national multiple sclerosis registry. Senator Byron Dorgan (ND) on Tuesday introduced legislation that would for the first time establish a national coordinated system to collect and analyze data on multiple sclerosis and Parkinson's disease — the National MS and Parkinson's Disease Registries Act (S. 1273).Many of you have expressed concern about whether the current numbers accurately reflect the MS community. Ask your Senators to support the MS registry legislation. Click here… -
Help Include Follow-On Biologics in Health Care Reform
16 Jun 2009 | 7:58 amFour of the six multiple sclerosis treatments are biologic drugs that cost between $16,500 to more than $30,000 per year. Biologic drugs are produced from living cell cultures rather than synthesized chemically as in traditional drugs. No generic (or follow-on versions) of biological therapies are available because the Food and Drug Administration (FDA) does not yet have the authority to review those drugs. Congress must pass legislation in order to create a regulatory pathway for the FDA to approve safe and effective follow-on versions of biologic drugs. As Congress prepares health care… -
Aggressive Timelines for Moving Health Care Reform
12 Jun 2009 | 12:33 pmComprehensive health care reform is expected to move through Congress before the August recess. President Obama has indicated that he wants the bill on his desk by October. Aggressive timelines have been set in the House of Representatives and the Senate, and legislation is expected on each Chamber floor for debate and potential votes before the August recess.Just this week, the "Affordable Health Choices Act" was introduced in the Senate under the leadership of Senators Chris Dodd (D-CT) and Ted Kennedy (D-MA). The House committees with primary jurisdiction over health care reform (Energy… -
Check Out Other Multiple Sclerosis Blogs
28 May 2009 | 7:47 amStu's Views & M.S. News is new to our list of other MS blogs. Check it out at wwwmsviewsandrelatednews.blogspot.comIf you have an MS blog you'd us to add to the list, email the link to msactivist@nmss.org.To see other MS blogs on our list, scroll down to the bottom of this blog.
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activisMS
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Help America Vote Act Increases Voting Numbers in the Disability Community
1 Jul 2009 | 12:36 pmAmerican Association of People with Disabilities (AAPD) has announced that the voter turnout of Americans with disabilities was only 7 percentage points lower than that of people without disabilities in the November 2008 election.Researchers conducting the study, Lisa Schur and Douglas Kruse, professors at the School of Management and Labor Relations from Rutgers University who have extensively studied the disability community, also found that 3.8 million more people with disabilities voted in the 2008 presidential election than the 2000 presidential election. They found that the Help America… -
Money Follows the Person
29 Jun 2009 | 12:59 pmNorth Carolina was awarded a Money Follows the Person Demonstration Grant in May 2007. It was intended to help individuals who are confined to institutions move back into the community. Most of these said people remain institutionalized, not out of willingness or preference, but because they must do so in order for Medicaid to cover their care. “Money Follows the Person,” a potential solution to the problem, is the term describing the practice of Medicaid allowing these people to move out of nursing homes and institutions and into their homes and communities to receive the assistance they… -
To Pay or not to Pay
18 Jun 2009 | 7:43 amSome people with MS have been finding that it is either one or the other. Pharmacy benefits manager Prime Therapeutics (Prime) assembled a team to examine the correlation between high out-of-pocket expenses for medication and those who decide not to fill their MS prescriptions. Research results showed that a daunting 1 out of 4 people with MS are not getting the medications they need due to high costs. According to the study, the majority of individuals had an out-of-pocket expense of $150 or less and their decline to fill rate was 5.8 percent. For individuals with an out-of-pocket expense of… -
“People First”
16 Jun 2009 | 1:32 pmEthics play a large role in all interactions and societal matters today. People are constantly striving to make sure they act in accordance with how they “should”, and if they’re not, they are usually still cognizant of what the norm is and how they are willingly disobeying it. For this reason, it comes to some surprise that, up until recently, tons of bills were easily passed by NC State Legislature that used derogatory terms such as “dumb” and “crippled.” Senator Katie G. Dorsett recognized the inherent offense behind using these terms, and pushed for Senate Bill 208, entitled… -
Time for Universal Health Care Coverage?
16 Jun 2009 | 8:59 amHarvard’s Dr. David Himmelstein certainly thinks so. A study done to discern the causes of U.S. personal bankruptcies revealed that medical bills make up a majority of the losses. Furthermore, the researchers, from Harvard Law School, Harvard Medical School, and Ohio University, found that more than 75% of these families had health insurance but still could not handle their medical debts. These findings confirmed for Himmelstein his belief that middle-class Americans are not adequately covered at all by health insurance. Currently, the US is a mélange of several different public programs…
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Carole's MS Blog
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Canada Day 2009
1 Jul 2009 | 8:13 amIt's Canada's 142nd birthday. I can't take credit for this photo. I found it hereI wanted something a little different and this picture reminds me of the lifeguard house at the eastern beach on Lake Ontario in Toronto. A place I spent so many summers as a kid. Back when you could swim and not worry about pollution warnings. Oh, does that ever age me !Amazing days, when kids could take off to the beach, without adult supervision. Then they built the swimming pool and we went back and forth from the pool to the beach all day, no adults, except the lifeguards, who were mostly university… -
Silver
30 Jun 2009 | 12:20 pmIn case you are wondering The banner ad is for my kid. OK ? He wants to get rich. -
Too Sick To Care
29 Jun 2009 | 6:40 amHad a great holiday Today I'm too sick to care about anything Sorry -
Glad it's over
19 Jun 2009 | 1:29 pmHorrible, pissy, work week with me breaking down in tears on Wednesday( my in office day). Not a big dramatic cry, just an endless stream of tears. A person saying "trust me " " don't worry" " I've been through bad times here too", had me laughing and crying at the same time. I work with mindless, insensitive, trolls ! Feeling better today but having a serious bout of the worries. I've decided to take a few days off. So if I'm not blogging it's because I'm out and about. -
Feeling Normal ??!!
14 Jun 2009 | 8:33 pmThe strangest thing happened today. Out of nowhere, I suddenly felt normal. By that I mean like my old self before I started getting sick and feeling like garbage all the time. Today, this evening I do not feel like garbage I feel like I have found some long lost soul. That it has reentered my body and I am whole again. I wonder how long that will last. How the heck did that happen ?It feels wonderful, yet odd at the same time. I don't understand. Why? Why now? It's not like I've been doing anything differently No new regime, no drugs, no new diet, nothing !! I have to say a distant Happy…
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Carnival of MS Bloggers
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Carnival of MS Bloggers #39
1 Jul 2009 | 9:27 pmWelcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Honesty, Vision, and PerspectiveOrange You Glad I Typed by KmilyunHere is one of my favorite orange shots. I took it in 2007. it was one of my first macro shots that captured what my eyes and brain were seeing.I loved the powder laying there, the pollen, ready to perpetuate the species.I have always been fond of bright colors. Orange is one of those colors that I can not wear – it makes me look jaundice, as do browns, and yellows.Noticing the little… -
Carnival of MS Bloggers #38 - Health Reform Edition
18 Jun 2009 | 7:00 amWelcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis."Health Reform Edition"Americans Are What Is Wrong With America… by Blinders Off at Living With MSWhen is it going to stop…?My healthcare coverage was the best to have, but over the years, benefits are slowly disappearing, while my premium is slowly rising. Out of pocket expenses were something I did not dread, but I dread going to get a prescription. Co-pays are steadily increasing. So far, I am still one of the fortunate ones to afford my drugs to… -
Carnival of MS Bloggers #37
4 Jun 2009 | 6:21 pmWelcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis."Dog's Best Friend"Good-bye Sue, We Miss You! by MaryannOn Mother's Day, a friend of mine died. I knew Sue through Saint Francis Service Dogs. She was one of the first people to be partnered with a St. Fran dog, and his name is Barkley. Yes Barkley is 12 years old, and he was by her side for ten years. Barkley will continue to live out his life with Sue's husband and family. He is a very sweet golden retriever who loves life and people.Sue was one of these… -
Carnival of MS Bloggers #36
21 May 2009 | 7:56 amWelcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis."Without Darkness There is No Light"Photos by NinaThe Shadow Selfby Nadja Yse StringerI long to be only as I am--To let the voice of doubt in my mindQuiet.I swore I would give up this addiction--My desire to find chaos where there is noneMy willingness to see obstacles where none exist.Shadow self,NemesisCatalystAnarchist in my mind.I am not youI am not my fearI am not just my shadow.But you are realNot to be ignored or deniedYou will have your say--There's… -
Carnival of MS Bloggers #35 - Rollercoasters and Walks
7 May 2009 | 10:44 amWelcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis."Rollercoasters, Steroids, and Walks"Mowing, Planting, and Nice Neighbors by MaryannMS has taken some things away from me, or the ability to do some things. A little over two years ago, we sold our two-story home and bought a ranch that is on 1.25 acres. A few months after that, we bought a riding lawnmower. I mow the yard.That lawnmower has given me so much pleasure! I have a responsibility to do that I absolutely love doing. When I'm on the mower, I have…
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Living! with MS
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Artistic Endeavors
2 Jul 2009 | 6:42 pmLately I have been inspired to create a lot of different art. Here I have posted my latest watercolor of some Pansies. The other photo is a rose patch I just designed and embroidered for a jacket refashion I am working on. Some of you know I have also been writing a bit of poetry. My latest poem was posted yesterday and is also featured this week on the Carnival of MS Bloggers. Be sure to follow the link and check out the other writers/artists featured this week. -
Finding the Muse
1 Jul 2009 | 10:13 amI lay in the darkness but sleep eludes me.A clutter of useless thought crowds my mind,These worries wash me in discontent.But there is no need for worry--I shove aside all concerns and center my mind.I escape this huskTravelling through visions of creationIn this state, everything I imagine, I can create.It comes to me within these visions--Time is keyTake the time,I can manifest each thing I imagineResults become unimportant.I am adrift in sensory images.My hands caress this design I have crafted from old things made newI feel the texture of the fabric beneath my fingers.I am not troubled by… -
Update 6/30
30 Jun 2009 | 11:46 amWow, time flies when you're having fun... June is already ending but I still have another complete month of vacation (Yay). I don't officially go back to work until August 10th but I imagine I will get started after the July 31st grand opening of our new high school building if I don't still find another job.I did apply for a few more jobs. The most exciting thing I applied for is a language arts job at a school for the arts but I'm sure the competition will be fierce. I do have a connection at the school but I think everyone is on vacation right now so I'll just have to wait and see if I can… -
The Latest from Denver Refashionista
26 Jun 2009 | 12:23 pmThe more ADD I allow myself to be, the more creative I become. I recently have found myself drawn to watercolor painting. One of my latest paintings is pictured here. If you want to see the others check out my Denver Refashionista blog. I hope you enjoy them. -
Great Interview
25 Jun 2009 | 12:51 pmI just was sent a link to a great interview with a poet who has MS. What was significant to me was not her MS, but all the great things she has accomplished. I found this interview very interesting and inspiring. Click here to enjoy.Happy Reading,Nadja
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Living Life with Sarcasm, Kids and MS
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I Guess It's Been A While....
2 Jul 2009 | 6:22 amIt seems a little funny to me that I started this blog as a form of therapy to help me deal with my journey down the winding road of MS, and yet, when it gets rough the last thing I feel like doing is writing about it.I've made some decisions over the last few months that I feel were the best for me.First of all, I decided to stop taking the antidepressant that I was put on the same day I was diagnosed.I was taking Effexor XR 75 mgs, two a day, which adds up to 150 mgs.Now, I'm not going to bash antidepressants because, honestly, I don't know how I would have made it through the first six… -
A Flare Up, Some Good News (Or So I'm Told), Some Confusion, And Traces Of Complaints...This Post Covers A Lot Of Ground!
21 May 2009 | 7:09 pmI had my first real flare-up since starting the Tysabri infusions five months ago. It happened three weeks ago and, while I am grateful for only one flare-up in a whole five months, I have to say that this one was quite impressive in it's intensity.I've had some pretty impressive flares during my life with MS (in my book anyway)(I cannot believe I'm bragging about how impressive my flares have been..ugh!) but this one took the cake. For the first time, MS decided to screw with my eyesight. No, that's not right. This is the second time, the first being my Optic Neuritis. Anywho, I woke up one… -
UN-Happy Anniversary To Me
5 May 2009 | 7:41 pmToday is my "One Year Anniversary". Exactly one year ago today, I had my life turned upside down by a diagnosis I didn't expect and an illness I will never understand.I don't know if any of you have ever had this happen, but last week I was sitting in the waiting room of my neurologist's office, flipping through a magazine that was older than my youngest child, when I saw an article that asked: "What Is Your Idea Of Bliss?"Out of the blue, something happened that hasn't happened to me since I was 16 and had great plans of being a world known author, all of these things and ideas rushed to my… -
I'm A Little PO'd So I'm Gonna Rant And Rave And Try Not To Use Any Cuss Words So That I Don't Offend Anyone!
23 Apr 2009 | 6:29 am**Image borrowed with love from CartoonStock **I'm sure I can't be the only one who is having these problems.There have to be others of you out there, fighting back the anger, tears, curses, screams of agony.You might be afraid to come out of the shadows and talk about it, and I understand why you would choose to hide. I'm talking about dealing with the Bermuda Triangle of Medicine:1. Getting past the office staff to see or speak to the doctor.2. Getting the doctor to agree to write you a script for the medication needed and for the amount needed.3. Getting your insurance and your mail order… -
I Would Like To Know Who The Wise Man/Woman Was That Said That Quote So That I Can Find Them And Punch Them In The Forehead
14 Apr 2009 | 3:32 pmI've had a rough couple of weeks.What's funny about that statement, though, is that they were also pretty wonderful too.Contradicting, I know. But I've been told many times, by different people, that I tend to be a "Walking Contradiction" so I'm basically just sticking to form.The wonderful part was that my mother-in-law, whom I've spoken about on here before, left today after a 12 day visit. And even though we didn't plan it to happen this way, her visit happened during the same time that my two oldest monkeys were out of school for Spring Break.I don't know if it's because I'm a…
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Maggsbunny
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Wegolf
18 Jun 2009 | 2:29 amI am astounded at Michael’s natural business sense. He is doing very well as South African agent for WeGolf, the excellent application for cellphones that works as a fully functional golf GPS and electronic scorecard, among other features. It is a fraction of the cost of what you’d pay for other golf GPS products on the market. If you are a golfer, or you know someone who is passionate about golf, please pay a visit to Michael’s new WeGolf blog: www.wegolfsa.wordpress.com Overseas visitors welcome too, of course, as Wegolf is an international product. P.S. Great… -
New hair do.
14 Jun 2009 | 5:33 amI don’t know how I managed it, but my hair now looks exactly like it did when I was in Std. 6. (That’s grade 8, for overseas folk and new generation Saffies). I didn’t like it then, and I don’t like it now. I want to grow out my ultra-short style a little, so asked the hairdresser for short back and sides but to leave it long on the top. Well, it now looks like Harry Potter’s do. Of course, I didn’t know this back in grade 8, because Harry Potter didn’t exist back then. Not even as a twinkle in J.K. Rowling’s eye. But he does exist now, and I… -
A circulating email that is leaving melted hearts in its wake…
11 Jun 2009 | 6:31 amWATCH THAT DOGGY DOOR Could you imagine coming homefrom work to find this tinycreature napping on your couch with your dog? Guess who came home for dinner? It followed this beagle home, right through the doggy door. This happened in Maryland recently. The owner came home to find the visitor had madehimself right at home. This hit the 6 o’clock news big time. Isn’t this adorable? Send this to all your friends, especially the animal lovers and give them a big smile. Okay, how cute is that? It certainly brought a smile to my face on this cold and dreary day -
Cellphone photo’s
7 Jun 2009 | 11:38 amOur trusty HP camera is once again out of action. Luckily, it’s just the rechargable batteries that need to be replaced, but they’re kind of expensive. To the tune of R150. They’re supposed to last longer than 2.5 months though, surely. I think it could be due to the fact that I am charging them through the docking station. In the meantime, before I get so far as to replace the damn batteries again, I am taking photo’s with Michael’s Nokia N95, which does take quite stunning photo’s. Here is one of the exquisite sunset we had this afternoon, taken from our… -
When worlds collide: Roses and a Pooch :-)
6 Jun 2009 | 1:39 pmI have such a silly little head cold. Not actually feeling sick, but am sneezing and snuffling beyond what could be considered comfortable. Oh yes, and this awful little wheezy cough that is reserved exclusively for when my head gets lowered onto the pillow. Michael says he got no sleep last night. That is why I am still awake, with no intention of going to bed. I don’t feel like lying in the dark, unable to sleep, bored and trying to keep from coughing because a) it is bothering Michael, and b) once I start it builds up into a bit of a frenzied coughing crescendo. So I thought of doing…
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Planning The Unpredictable
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Words
11 Jun 2009 | 11:52 pmWhat do you do when people always comment (think its funny!) on your misplaced/slurred/screwed up words? I am getting tired of some coworkers always commenting on it. Today I made a comment to him about how I had holes in my head and to be nice to me but I have said that before…. I don’t think he connects the two. More » -
Bad night
2 Jun 2009 | 3:25 pmWell, I gave myself a shot at about 11:30PM and was in an insane amount of pain until about 2:30AM when I finally fell asleep. I called Shared Solutions at about 2AM and they were completely useless. They just told me how to do injections which I am not sure how that is even remotely useful at this point. None the less… they said they can’t help with anything else and to call my doctor. Basically, I was having throbbing pain down my leg to my foot. I couldn’t get comfortable at all and my whole hip area was swollen. I haven’t experienced anything like that before. It… -
MS ShmMS - I am going to climb Everest
1 Jun 2009 | 2:58 pmJust climbing Everest is insane but add in MS? Crazy!!!! http://www.jsonline.com/features/health/45924582.html Ten years after doctors presented Lori Schneider with a hellish warning to prepare for life in a wheelchair, she ascended to the place on Earth closest to heaven. Schneider stepped to the summit of Mount Everest, in sunshine and bitter cold, on Saturday morning, and became the first woman with multiple sclerosis to reach the roof of the world. Standing at 29,035 feet, the 52-year-old adventurer unfurled a banner for World MS Day, and then called her father, in Janesville. “She… -
MRI results
28 May 2009 | 9:27 pmOk so, I wanted the MRI CD/results… because it’s my brain. So, I filled out the little form and asked for it to be sent to me. The said if would be 13 dollars unless it was sent to a doctor then it’s free. WTF??!? I have to pay 13 bucks for MY OWN MRI but it’s free for a doctor? Are you serious? GEEZ! Oh, and don’t even get me started on the drama involved in my earring. Yes, I have had probably 6 MRIs with this earring and it’s still a big deal. NEVER has it been a problem even in the 3.0 Telsa. The lady thought my ear was going to fly off. Cool image but… -
How cool is this?
28 May 2009 | 9:17 pmSo, I had my MRI on a 3.0 Telsa which is that new powerful MRI dealiebob. I have no idea what this is but it’s freakin cool! Click for the full size image. More »
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Brass and Ivory
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Carnival of MS Bloggers #39
2 Jul 2009 | 5:28 amWelcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Honesty, Vision, and PerspectiveOrange You Glad I Typed by KmilyunHere is one of my favorite orange shots. I took it in 2007. it was one of my first macro shots that captured what my eyes and brain were seeing.I loved the powder laying there, the pollen, ready to perpetuate the species.I have always been fond of bright colors. Orange is one of those colors that I can not wear – it makes me look jaundice, as do browns, and yellows.Noticing the little… -
Patients for a Moment is Up!!
1 Jul 2009 | 9:51 am#2 Is Up at Duncan Cross. Do go check it out!! -
Love Intimacy and All That Jazz
27 Jun 2009 | 10:56 amAll around us we are surrounded by relationships. Our proximity to friends and family, to our activities, to our bodies, even to our minds. Yes, I sometimes think that my relationship with my own brain and body changes with the tide.Do we always know what is waxing and what is waning? Or must we wait until the time has passed to reflect and analyze? Perhaps I’m just in a reflective mood today.My multiple sclerosis is of the waxing-waning type. Depending upon which points in time I choose to delineate, I seem better off or worse than another.Two weeks ago I was demonstrating an MS relapse to… -
Financial Assistance for MS Medications
24 Jun 2009 | 7:43 pmWhen it comes to finding financial assistance in paying for expensive medications, the process is not often an easy one. Many of the pharmaceutical companies that produce drugs specifically for the treatment of rheumatoid arthritis make financial assistance available to patients in need. This benefits the patient and the drug company. Face it, they want you to continue to use their medication and not move to the competition, which might have better assistance available.Often each company will run their own program or make contributions to independent foundations that handle the administration… -
Financial Assistance for RA Medications
22 Jun 2009 | 6:32 pmWhen it comes to finding financial assistance in paying for expensive medications, the process is not often an easy one. Many of the pharmaceutical companies that produce drugs specifically for the treatment of rheumatoid arthritis make financial assistance available to patients in need. This benefits the patient and the drug company. Face it, they want you to continue to use their medication and not move to the competition, which might have better assistance available.Often each company will run their own program or make contributions to independent foundations that handle the administration…
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A Short in the Cord
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Happy Fourth of July!
3 Jul 2009 | 8:13 amAlso known as "American Independence Day" for any non-US reader. In Great Britain, it's known as the American Rebellion. I once worked on an international project and our team was made up of people from six different countries. At the end of a conference call one American woman said, "Have a happy 4th of July everyone." Of course, most people on the conference call were puzzled. I had to point out that this is an American holiday.Having said that, I wish to send belated Happy Canada Day wishes to my northern friends.To the rest of you Yanks, be safe and well.Home -
Whew! That was a lot of work...
29 Jun 2009 | 2:52 pm...Other people's work, that is! Today, I took the car to the shop for transmission service and oil change; then the bug pro came to install termite monitoring stations (oooh, sounds like some hi-tech, space satellite); then the basement waterproofing pro came to fix a leak in the basement wall. They all worked quickly and professionally. So why am I so tired? I guess it's exhausting watching other people work so hard.Home -
"What Energy Do You Worship?" A short film
27 Jun 2009 | 12:30 pmI absolutely love watching this video, which is a short film "...comparing various types of religious worship, to the worship of nature and the energy of its oceans." I've always found divine love and comfort in nature and am always in awe of the power of the oceans. If the video below does not work, go to http://www.youtube.com/watch?v=73WCKk3dX3sMore surfing videos on SurfingMagazine.com -
Well, that WAS completely different
26 Jun 2009 | 6:03 pmThanks to all the chatters who popped in Friday night for a very different MS chat. Because the topic was "open," the discussions were all over the place (about MS and not about MS), and got a bit heavy and times. But it was good to connect with friends and share deep thoughts and laughs in a safe chat room. Next chat 10 July: The chat room will celebrate its 1st anniversary!Home -
Delaware Area MS Chat This Friday
24 Jun 2009 | 3:00 amDelaware Area MS On-line ChatFriday 26 June, 7:00 - 9:30 pmChat Topic: And Now for Something Completely DifferentLet's do something completely different in honor of the lazy days of summer. Call it an "Open Mike Night" or maybe "BS about MS." No specific topic, just whatever you want to chat about. But be warned: if you whine too much, you'll need to follow up with a joke or a song. We'll have a karaoke machine in the wings…If you want to connect on-line with others with Multiple Sclerosis in Delaware and surrounding areas, please join us THIS FRIDAY any time between 7:00 - 9:30 pm. Show up…
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Navigating the Journey of MS
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fireworks and a scared dog
3 Jul 2009 | 4:28 pmIt's 6:20 pm and the fireworks are already going off next door at the park by some kids playing around.Last Sunday morning at 9:00 am we were eating breakfast to the sound of them going off.This community is so obsessed with fireworks it is sad.I am not a fireworks fan ( probably a result of 9/11 and having a front row seat that day) but loud noises and certain smells ( fireworks burining) bring back that horrible time in my life.But I'm okay with a fireworks show down by lake put on by the city. I'm not okay having to put up with fireworks 9 months of the year.One year Mark was out back… -
yikes
1 Jul 2009 | 11:15 amToday I got an email from my hubby that the company he works for is closing a location in Oklahoma and moving it to Michigan.It was a small company with only 61employees. This whole thing is making me crazy.I also just got off a Tysabri advocates conference call. They discussed a new program they are going to introduce shortly and wanted our opinions on it.It sounds like a fun program and hope it actually comes out my way.I forgot Mark & I had plans to go to the DMV today so I could renew my driver's license.We will have to wait til next week probably. I wasn't up to going this… -
A little of this and that
30 Jun 2009 | 7:01 pmToday I did a little of this a little of that.So many little things I had to get caught up on. Been working on an Excel spreadsheet for this quarters taxes for the business. I'm also done and then Mark can put the numbers together.Perfect timing to get the taxes done right before our trip. Oh well at least we won't have to worry about it for a few months.Got a phone call from MSF asking if I would write an article about our working from home.Of course, I said. I love to write. It's my dream to get published someday.Also got a call from MSF regarding my new role as an Ambassador with their new… -
The Rumor mill
29 Jun 2009 | 2:14 pmLast week our local newspaper ran a story that the largest employer in town is moving to Oklahoma.The rumor mill is running on overtime. Everybody is in a panic.Mark works there and it is more than a little stressful there right now.I don't even work there and everywhere I go people keep asking me if they are moving out of town. This move would kill this town. A lot of buisnesses rely on this company.All I can and will say is this. Maybe I know a few things others might not. That info is locked in my MS brain. Good place to keep a secret haha !Seriously folks, just stay calm. I realized along… -
mother nature and her own agenda
28 Jun 2009 | 2:00 pmWe had plans to go ot on the boat today. We had invited some friends to join us but the weather was not looking great the past few days. On and off rain but today they were predicting high winds.For those of you who are not boaters, wind is a four letter word ( unless you own sailboat, they love it)We took a drive out to the boat this morning and the lake was white capping and rolling just from the wind. The harbor was empty which means we weren't the only ones who took a pass on the weather. 30 mile an hour winds can cause all kinds of problems for a boat. Even a boat as big as ours.
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Chain Reaction
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Musikfest 2009!
3 Jul 2009 | 7:19 amI wanted to inform all my readers of a great music festival that takes place every summer in Bethlehem, PA called Musikfest. Drawing over 1 million people each year, it is the biggest and best Music Festival I've ever been to and I've been to many all over the country.From the "about" page on the Musikfest website In 1984, nearly 182,000 people attended a small, grass-roots music festival in Bethlehem, Pa. featuring 118 performers and 295 performances on six stages. At the time, no one knew how large the event would grow or how long it would last. Amazingly, more than two decades have passed… -
Heads or Tails
30 Jun 2009 | 8:37 pmHeads - I get a new FT Job in TN that I interviewed for today and they already made an offer to me - then I countered offered at the end of the day for more $$$.Tails - I do not get the new FT Job in TN and go back to PA sooner than later and begin my job search there.By this time tomorrow I should know the answer to the above Quarter Flip/Flop. I'm letting it up to chance. I don't feel strongly about it one way or another. Whatever is meant to be will be.-------------------------------------------------On a side note, after being on Copaxone almost 6 months now, I REALLY feel like it's… -
What a Month!
29 Jun 2009 | 9:35 pmGod must be preparing for a big shindig in Heaven...Look at all the talent he's requested lately:Gary Papa - a local sports journalist that has been around in Philly for as long as I can recall.Michael Jackson - Talent out the Wazzoo back in the day and then well I think he just lost his mind.Billy Mays - He is the reason I've ever heard of OXYCLEAN!Farrah Fawcett - I loved her on Charlies Angels and I keep watching the reruns.David Carradine - Kung Fu Movie MasterFred Travelana - ActorEd McMahon - The Tonight Show and many other thingsJune seems to have been an active month for "celebrity"… -
Gimmie an "E"
28 Jun 2009 | 10:35 pmFor Exhaustion!Last week I was on cloud 9. This week I am still floating among the clouds, but, now I am on cloud 7. I was so gung ho last week on getting a new job and a new life, that I pretty much ran myself into the ground. By Thursday I was toast after 4 days of non-stop stuff. I pushed myself to go out with the girls Thursday night for dinner. Friday though I just vegged all day and then Sat pushed again and then Sunday vegged again. The ongoing heat and humidity in the south is not helping, alas, I shall push on and hope for better days.With the Deaths of Farrah Fawcett and Michael… -
Shoot for the moon. Even if you miss you will land among the stars!
22 Jun 2009 | 6:26 amI used to be a Glass Half Empty sort of person. Pessimist. However, since adjusting my pain meds last week something *clicked* and now I am a Glass Half Full person. I've learned how to control my pain for the past week to a point where I am rarely in pain during the day even though it is in the mid-90's and humid. This does lead me to wonder if it's the change in temps and barometric pressure rather than the heat and humidity that bother me. However, for the next 7 days it will be in the mid 90's and humid and I have to say, I am okay with it. I don't love it, but, I no longer hate it more…
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Jim's DEEP Thoughts
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In fear, Police shoots and kills 11-year-old Miniature Daschund
13 Jun 2009 | 6:09 amNews We have two weiner dogs and their barks are worst than their bite. This happend in Virginia. -
How others are viewing us Conservatives?
5 Jun 2009 | 6:50 pmLately, I have been thinking of switching parties (from Republican to Libertarians.) The Republican party have too much damages in the last 15 years. We have our internal fights within our Conservative brethren. The conservatives I am talking about are those who have this "over-idealism" in a control issue and that it is at the root of our need to over-control situations, people, places, or things in order to ensure that they come into compliance with our ideal image of the way reality is supposed to be. Negative perceptions of Christians are on the rise that people continues its drift away… -
Sabbath and Grace
5 Jun 2009 | 6:47 pmThe Sabbaths were symbolic of the rest and holiness salvation brings through Christ. Just as the Old Testament sacrifices pointed to the Lamb of God, so also the whole sabbath system pointed to Christ, who gives ultimate rest and holiness. In reading Isaiah's prophecy Christ was saying, "I am the true Sabbath rest, the One who proclaims a spiritual Jubilee by freeing sinners from bondage to sin. " That's why Christ said, "Come unto me, all ye that labor and are heavy laden, and I will give you rest" (Matt. 11:28). Through His atoning work on the cross, Christ inaugurated a new covenant, which… -
Being Content and understanding God's Sovereign
27 May 2009 | 5:11 pmGod’s SovereignWhat do you think of these quotes?One of the hardest lessons to learn comes from our stubborn refusal to refrain from interfering in other people’s lives. It takes a long time to realize the danger of being an amateur providence, that is, interfering with God’s plan for others. Oswald ChambersFaith recognizes the fact that God is in control of my life. Whether I believe it or not, it’s a fact that God is in control of the world. If I don’t believe it, I”m just robbing myself of the enjoyment of the fact. Paul LittleWithin the broad field of God’s sovereign,… -
Considering Libertarian?
24 May 2009 | 11:31 amWhy am I considering Libertarian Party? I am one Republican who wants to see a return to traditional values that must come from the people, not the government. "We the People" are the true government. Historians have stressed Lincoln's use of and redefinition of republican values that he highlighted the moral basis of republicanism, rather than its legalisms. However, I don't see this happening because of the "far right" members of the party. Some Christians want government set up their way, which mean they want Theocracy rather than Democracy. Political and Christianity will always be…
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Word Salads,the Demyelination of Me and the Breakdown of a Marriage
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To plow or not to plow, that is the question....and it's a year later
3 Jul 2009 | 3:33 pmThey have the most remarkable fireworks at the Air Force Academy every year. I want to go again this year. However to get to the disabled parking you have to drive through people (as in...mounds of people) that are ignoring the fact there is a road in place. Uh...no. Not me! *bleep* I know I will be one of those to mow down an entire platoon of cadets. I recall firmly planting my flag in the field last year and thinking "things will be better this year".Boy was I ever wrong. Things got much, much worse.I lost my daughter which is the worst thing that can ever happen. Losing a spouse that… -
Do I have a spot or do I not? That was the question...
2 Jul 2009 | 1:01 pmToday was one of those days when nothing was going right. First things first. I opened the cabinets and everything fell out. Did I say everything? I mean...EVERYTHING. It was quite noisy too. Dog food, cat food, laundry basket, trash bags, you name it...CRASH! Then did I or did I not take my shot??? I knew I had taken one out of the fridge but I could not remember if I had injected it. So I started on a spot hunt. I spy for robin eggs. Oy vey.I see spots but were they from today's injection or yesterdays? Given that I had already gone to an every other day schedule and was loathe to miss any… -
Some "IF" answers by my daughter...
2 Jul 2009 | 7:36 amIf you could sing any one song beautifully and perfectly, which one would you pick?Amazing GraceIf you could spend one year looking for one thing in the world, what would you search for?end of the rainbowIf you were given a yacht today, what would you name it?Happy HippyIf you could give a single piece of advice to the automobile industry, what would you tell them?Your kids drive in these cars, depend on them- make them feel safe in what you make.That sums up what I want to say about her today. -
At Seventeen, I learned the truth...
1 Jul 2009 | 2:25 pmYup, a musical commentary by a deafie MS'er again...Lyrics for the deaf:by Janis Ian"At Seventeen"I leaned the truth at seventeen that lovewas meant for beauty queensAnd high school girls with clear-skinned smileswho married young and then retired.The valentines I never knew,the Friday night charades of youthWere spent on one more beautiful.At seventeen I learned the truth.And those of us with ravaged faces,lacking in the social graces,Desperately remained at home,inventing lovers on the phoneWho called to say, "Come dance with me,"and murmured vague obscenities.It isn't all it seems at… -
Rev it up, baby
30 Jun 2009 | 4:55 pmMy daughter and I talked a LOT about kissing. We both were really *funny* about kissing. We knew what good kissing entailed. Neither of us (well she more than I) had kissed many but we knew what we liked. Too much information? Well, it's something we talked about. I don't know if you mothers with daughters ever talked about stuff like that but WE DID. And oh we did...and did..and did! And we loved this song as a result: Rev it up, baby! The last time we visit in Texas (in May) when I think about it....we did not have our *girlie-girlie* chat like we normally do. Even if neither of us were…
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MS Maze
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Walmart, Health Care Reform, and Employer Mandate
2 Jul 2009 | 11:13 amIn a letter addressed to President Obama, Walmart Stores states its support for health care reform “not just to improve the health of all Americans, but also to remove the burden that is crushing America’s businesses and hampering our competitiveness in the global economy.” The letter went on to say, “We are for an employer mandate which is fair and broad in its coverage, but any alternative to an employer mandate should not create barriers to hiring entry level employees. We look forward to working with the Administration and Congress to develop a requirement that is both… -
Join the Online Town Hall on Health Care Reform
30 Jun 2009 | 10:40 amThe charge toward health care reform is in full swing. This Wednesday, President Obama will hold yet another town hall meeting to answer questions regarding health care reform, this one online. When it comes to health care reform, “inaction is not an option,” says the President. He will be taking questions from Facebook, YouTube, and Twitter (use hashtag #WHHCQ). You can watch the President’s video and post your own 20-30 second video response. Now is the time to get involved — tell your own story and get your questions answered. If you’ve had to deal with the tangled… -
Insurers to continue practice of canceling insurance for the sick
25 Jun 2009 | 11:19 amYou are one of the lucky ones. You have good health insurance and your premiums are paid on time. You enjoy the peace of mind that comes from knowing that should you fall ill, your insurance company has your back. Think again. Three of the nation’s largest insurers told legislators that they did not plan to discontinue the practice of canceling medical insurance for sick policyholders. At a time when the free market system is being touted as the answer to the nation’s health care woes, the practice of rescinding coverage on folks fighting for their lives does not bode well. Read this post… -
National HIV Testing Day is June 27: Pass it On
23 Jun 2009 | 11:49 amNational HIV Testing Day is Saturday, June 27, an annual campaign established by The National Association of People with AIDS (NAPWA) in 1995. HIV (human immunodeficiency virus), is the virus that causes AIDS (acquired immunodeficiency syndrome). According to the Centers for Disease Control, about one quarter of people living with HIV/AIDS do not know that they are infected, putting themselves and others at serious risk. Photo: National HIV and STD Testing Resources Get the details on WHO should be tested and WHY, and HOW testing is done at Care2.com: National HIV Testing Day is June 27: Pass… -
Would Congress put their own Health Insurance Benefits on the line?
18 Jun 2009 | 10:46 amWe are fortunate enough to live in a country where we can vote for those who will represent us in Congress. In exchange for our confidence, they receive a salary and health care benefits. According to the U.S. Office of Personnel Management, the Federal Employees Benefits Program offers “the widest selection of health plans in the country.” To the members of congress who insist that a government fall back plan cannot be allowed to exist, or that the time is not right for health care reform, how about giving up your health care benefits for yourselves and your families and brave…
